Newly diagnosed - sick with fear

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rescuemomma
rescuemomma Member Posts: 2

Hello all,

I discovered my lump a few weeks ago, had a biopsy done the beginning of April, met with 2 teams for opinions, chose my surgeon and am meeting the oncologist tomorrow.  I still need to get a scan done and I hope to get started on chemo asap. 

I've never heard of this cancer and reading about it has been scaring me to death.  As if this isn't enough to deal with, my husband left me months ago to be with his new girlfriend (after 18 years) and although i'm still in the marital home and he is paying the mortgages, he is trying to get the house sold and I have not found a place to live yet and now with this situation, I am so overwhelmed I don't know how to cope with it all. 

All I have now in my life is my daughter, literally.  And my Bubs (real name is Sawyer), my silly little Frenchie.  I have no friends, no other family.  I don't have time for this!  I have things I need to do!  I can't die! 

My biggest fear right now is that maybe it's spreading.  I really try not to think about that, but it keeps creeping into my thoughts.  I think once I know that it hasn't spread, I'll feel alot better and will start kicking some cancer ass.  But  until then, I'm really almost paralyzed with fear. 

I feel fine, no change in my health status, just the issue with my breast.  I do have a sort of a cough and feel the need to clear my throat from time to time, but I'm pretty sure that's allergies, it's that time of year. 

Are you all able to keep up with your normal lives at all?  I have a small petsitting business, I love my job!  Spending time with pets (even if they are someone elses) is such a wonderful way to spend your day.  I don't want to lose that. 

How about hair loss?  I haven't seen many posts about that.  I'm not sure I even care right now, I just want to hear that the rest of my body is fine. 

I know I'm all over the place here, but I can't find my boombox and meditation tapes, so I sat down and came here.  Yeah, makes sense, lol. 

Man, this really sucks.

Comments

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited April 2012

    I just loggin in and saw this and had to comment.  Having just come through the other side of chemo I can tell you that while you will have side effects from chemo, you can for the most part continue on in your daily life with some planning.  You can read all about what may or may not happen from that perspective but as far as your pet sitting business, perhaps with a little additional help you can do it.  My biggest issue is/was fatigue personally but I also have a home based business that I managed on more of a part time basis.

    I'm sorry you also have to deal with upheaval in your personal life in addition but this DX has to be your first priority. I know what you mean about not having time for this, its never a good time for this.  I'm not sure where you live but mabey if the market isn't moving too fast you will have more time in the house that you think.  Do you think the ex would at least suppport you in that?

    Hang in there!

  • jenlee
    jenlee Member Posts: 504
    edited April 2012

    resucemomma, It does really suck and I'm so sorry that you're here and that you're going through this, along with your marital issues.  I had a cough too at the time of my diagnosis and was convinced it was throat or lung cancer, which it wasn't.  There are a number of other women in your marital situation and they'll probably have helpful advice on that front.  I too was paralyzed with incredible fear upon my initial diagnosis and fluctuated between deep depression, hiding in bed worrying, and sobbing in the shower for several months. I turned off my crazy switch each afternoon to be a fun engaged mom when I picked up my daughter from school each afternoon from school.  You might consider talking to a doctor about taking something for anxiety/depression.  A support group might be helpful too as it sounds like you could use the company of other adults.  As for chemo, it varies with each person.  There are those who have side effects.  But the average person is NOT vomiting all the time and wasting away, which is what my perception of chemo was.  There are lots & lots of women here who continue to work full time, take care of their kids, exercise, I think I even saw one who ran some in some races while on chemo.  The women here have been amazing and I'll always be grateful to them. You will get through this!  Best wishes for your treatment and we'll be here for you.

    Jenifer 

  • taxitreesdeb
    taxitreesdeb Member Posts: 24
    edited May 2012

    I got diagnosed 2 years ago in July.  Yep, it's scary.  Just try to think one day at a time.  I worked the whole time through chemo, mastectomy (except took off six weeks) chemo and radiation.  I didn't do much otherwise.  Eat lots and lots of veggies.  Avoid sugar as much as possible and any chemicals--if you are a pet sitter, don't be the one applying the frontline. 

    I lost hair and got neuropathy for a while but made them change my chemo and the neuropathy finally went away.  Still have some chemo brain (it must makes you a little slower in areas you don't do well in anyway--for me it was math and spatial thinking).  Be good to yourself!  I'm feeling much better now.

  • rescuemomma
    rescuemomma Member Posts: 2
    edited May 2012

    Thank you everyone.  I actually lost this whole thread and thanks to taxitreesdeb for posting on it because luckily enough I must have checked something that tells me when someone adds on to it.  I've been on so many cancer sites, I can't keep them straight.  Now that I found my way back here, I think I'll just settle in and stop roaming around everywhere else. Lol. 

    Let me update my situation.  I had a PET scan and it has not spread, other than the lymph nodes under my arm.  I am so grateful.  I read stories about other women and just sit here and cry for them. 

    So I have met and chosen my team.  My oncologist is just incredible.  The nurses tell me she is very smart and extremely good at her job.  She is a whirlwind, like a little hurricane, she talks a million miles an hour, lol.  But when she is with me (and I've seen her about 3 times now), she will sit right next to me, just about touching knees, and look me right in the eye when she talks to me.  I really like that.  She is compassionate, kind and listens to every single thing I tell her.  And she has wonderfully cold hands, lol!  I say that because I'm always warm and cool hands just feel so good.  She and the nurses keep telling me they are going to get me through this and I will be fine.  And I believe them!

    I had a port installed. Wait, installed?  Is that the right word?  Surgically implanted, there.  My veins suck except for my one nice donating vein, but that's on the inside of my arm and that won't do for chemo.  So the plan is 20 weeks of chemo, a mastectomy and then radiation.  They haven't done the genetics testing yet, so it could be a double mastectomy.  What worries me is after going through all this, there is such a good chance that it comes back.  But I can't worry about that right now. 

    My hair has been long for more than 20 years, halfway down my back.  Over the weekend, I cut it.  That was so much fun, to take a scissors to my hair and not care about the outcome, lol.  I actually did a fairly decent job.  It's all gone, like Mia Farrow short.  I can't think of anyone else, do you guys remember her?  Lol, I'm showing my years here.   I bought some fake bangs to stick under a hat just for the illusion of hair.  I don't want to be looked at with pity, you know?  And besides, I do not have one of those pretty faces that will look good without hair, haha. 

    So I had my first chemo last Tuesday, May 1. I felt fine until maybe Thursday evening, then I was wiped out for the next 3 days. Maybe 4. I felt like I just could not move. I could barely get up to use the bathroom. Thank God my Bubs is the way he is, he can hold it for hours and never bothers me to take him out unless he really needs to go. I still try to get him out at least every six hours though. Not good for his little kidneys to hold it that long. Anyway, my biggest problem was not having the right kind of food handy so that when I was hungry, I could grab something or keep it near me. I met with the nutrionist yesterday (an oncology specialist) and she gave me some great suggestions, so I'm going food shopping today to prepare for the next round. These first 4 are the killers, I guess. It's AC for the first 8 weeks, 4 sessions, every other week thankfully. Yesterday I was still feeling tired and my daughter had to come down to bring me to my appointments. But today I'm feeling fairly normal, yippee!

    I'm such a weird person when it comes to some things. When I get sick, I feel like I'm dying, lol.  I was just sitting there crying a few days ago.  Wishing my husband was here actually.  He always took such great care of me when I got sick which wasn't very often.  But he doted on me and that's so nice when you don't feel good.  It really and truly sucks to be going through this all alone. 

    Well, I'm going to stop here, I need to get my butt up and ready to see my favorite client (a boxer) and then do some food shopping.  I'll check in later.  I hope everyone else is feeling ok.  I"m a good listener if anyone needs a shoulder. 

    Thanks everyone.  It's really nice to know that someone is reading what you write.

    Jeanne 

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited May 2012

    I am so sorry you have IBC.  I can't imagine how you feel with your husband leaving.  Just know that you can kick it's butt! We are here to support you! Sending lots of love & support. NJ

  • 1openheart
    1openheart Member Posts: 765
    edited May 2012

    Jeanne....I'm so sorry to read about all that you are going through now.  You seem to be very strong and handling everything that life is putting in your path very well.  I know your furry friends are a real comfort to you now.  Our pets seem so intuitive at times and know just what to do to make us feel loved and better.  

    I really don't have anything to offer you now other than my wishes for peace, comfort, ease and love during this time.  I am so sorry that you are going through this without your husband by your side.  I am a true believer in what goes around comes around and he will have to answer to what he has done at some point.  Your job is to try to forgive so that you can move on with your life and not be burdened by bitterness.  

    Just know that you can find support, information and amazing positive, loving energy on this site....even with the new format!  

    Take care and keep in touch. 

  • kittykathy
    kittykathy Member Posts: 5
    edited May 2012

    Hi Jeanne,

    Sorry to hear about your diagnosis. I was just diagnosed last week. Will be having my first chemo treatment this Friday. I am so scared. I have to continue working and I am hoping I won't be too tired. Why do some people have ports installed? Where do they stick the IV in? I just have no idea what to expect on Friday and I am thinking the worst. Any feedback would be appreciated. Good luck to you!!

    Kathy 

  • ibcmets
    ibcmets Member Posts: 4,286
    edited May 2012

    Jeanne,

    Sorry about your diagnosis.  I also have ibc, but with bone mets.  I was diagnosed 6/09 and doing well 3 years later.  I'll always be in treatment due to stage IV.  I'm glad yours has not spread and you'll be able to see the completion of treatment one day.  I did chemo and BMX/with recon.  I did not have radiation because I was already stage IV from the get go.

    I was exhausted on chemo, but took plenty of anti-nausea medicine so I did not get nauseous.  Ask about "Emmend", it's  really good anti-nausea medicine for chemo.    I had a hard time sleeping so I took melatonin at night (natural over the counter med).  I also took sublimal B12 & B6 and I did not get neuropathy and help with energy.  Anything you take, you'll have to talk to your medical team with, especially on chemo.

    Your dog will be a great source of happiness for you.  I did not even get a dog until I knew I would be home to care for her when I was diagnosed.  So glad I have her and my 14 year old son.  You may not feel like taking them for a short walk, but they get you out and about and stay by your side.

    Wishing you the best with your treatment.

    Terri

  • ibcmets
    ibcmets Member Posts: 4,286
    edited May 2012

    Hi Kathy,

    They suggest a port when you need to go through months of chemo to protect your veins.  A small disc is surgically placed under the skin usually under your clavicle on the opposite side from your breast cancer.  The nurses can easily access blood & insert a needle for chemo there.

    They do have a lot of anti-nausea meds to use so you don't get sick.  You most likely will get pretty tired a few days after chemo and they will probably give you Neupogeon or Nuelasta shots to bring your white blood cells counts up to protect you from infection between chemo treatments.

    Sorry you are also going through this.  Wishing you lots of support.

    Terri

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