Calling all TNs

OK, Gemzar sucks. I had my 1st infusion yesterday. I was feeling good for about 4.5 or 5 he's after the infusion, then........... Chills, 103.5 fever and ER here we come. I am now in the hospital. Potassium,and calcium are low, slightly anemic and waiting for blood cultures to see what happens next.

Met with my psych this morning. I guess the fit I had yesterday was an anxiety attack. They're giving me Klonopin. I have not been able to eat much and feel like hell. Sigh, why am I such a wimp? Why can't I be strong like everyone else?

Good luck Teka, will be thinking of you and hoping it will all be for nothing.  Last one I had the gal was very "gentle" and didn't reposition me either, as they always seem to keep on doing and I needed to get a few extra pics redone too.  Fortunately for me, I get my results from my BS right away, so I just had to get undressed again and go back in to the mammo area - but my were fine.  Your's will be too! 

Linda

LRM216,

She acted like I hadn't had BC.   I like old format.

Hi ladies, may I join you? I'm 42 dx Oct 2010, AC/Taxol 6 rounds every 21 days started in Nov 2010 finished Valentine's day 2011.  Lumpectomy in March 2011 since I had "ample" tissue as my BS so kindly said....then radiation 35 treatments including boosts.  After treatment was over I saw a nutritionist in the MO office and went to a vegan diet for 8 months, almost a raw diet....no added sugars, no preservatives, etc.  I think I was overloading on carbs, potatoes, beans, etc since I didn't loose a pound! So I added fish back in for no carb/protein combo.  I felt like being TN I had to "create" my own medicine.....

I still have pain in the radiated area. I started with nuerapothy during chemo, especially the hands, and am on gabapentin.  I find I don't handle stress the same, I still can, but in smaller chunks....I find myself starting to feel overwhelmed at work, home, etc. and have to focus on managing it, didn't have to do that before BC.

I have one DD in college, and one DH who is wonderful, but I think he stills sees me as a chemo patient, like I might break....

I need help understanding the TN portion of this BC, I'm so confused and looking forward to learning from you all.  

The new format is strange, but why couldn't they put the spelling check as an auto feature??? That would have been helpful. lol.  

The look seems cleaner, but less functional. What's the sense in wasting a huge column of space along the left side - and why is the type  so small as I create a post? (maybe I will get used to it - kinda peeved they sprang it on us!)

Teka hang in there.

Lovelyface..wonderful news about your mom.

Just learned my high school buddy who is a doctor has triple negative breast cancer-she is in Tennesee and she said they told her it was small enough not to need chemo...what could this be? In situ. I mean she is a doctor so she must know what she is talking about but strange to me. 

Cool and rainy in Rhode Island. Picked some lilacs for the table. Will have Rhode Island dinner of sauted kale (that overwintered in my garden) and onions to which you add clams jsut until they open and add cooked chorizo steaming all in beer. A good cool evening dinner.

Most of you know I am a painter. This week I got into 2 more galleries who will represent me. Feel that this is nice news and makes me think of that instead of my upcoming mammo. May 26th is my cancerversary.

Hi everyone! Thinking of those of you who are waiting for results.

((((((((beccad))))))) hope you start feeling better soon.

I agree with Luah, the left column is a waste of space.  I'm wondering if they are moving to something that works better for Smart Phones?

The best thing I did today was attend a gardening session and book signing by a local TV gardening celebrity called "Frankie Flowers." It was packed and I bought his book and had it signed. Even though I'm not into gardening, I attended because I wanted to plant something nice in my garden in memory of LauraJane (...and Suze and MBJ).  

Haven't checked in for several days.  My ANC was up when I went for infusion yesterday.  Back to normal, so I had my first infusion of my fourth treatment.  I will have the second next week......taking Cytoxan by oral meds for 14 days, and the Methatrexrate & 5FU by infusions.   Got a call the day before my mammogram on remaining breast to tell me it was scheduled one month too early, and also I needed to have an MRI scheduled the same day........so all of that is June 5th. 

Lost a dear friend last Friday to inoperable lung cancer.....eight days after the diagnosis.  She is one who has probably called me more since my BC diagnosis in December...just checking on me after every treatment.  Such a dear friend.  I believe the Lord was benevolent to her, because she had been suffering with COPD and then congestive heart failure.  What was ahead for her was not good.  Her dear husband of 55 years is grieving, but as a believer, he knows she's in a better place, and now breathing without the 24/7 oxygen.

Thanks everyone, I think they may let me go home tomorrow. I think my day nurse was a little surprised this afternoon when she came into the room in a bit of a rush,and the VP of the hospital was sitting here just chatting. Day nurse slowed her a&& down and followed the time out and 2 forms of ID here giving meds.

I still hate cancer, but life is good when I can get a laugh out of that nurse's reactions.





Becca

Give 'em hell!

Teka, praying for good results tomorrow morning.

Titan - I think we all have that problem of writing our posts and then trying to go back to see something but can't.  It doesn't allow us to go back.

Luah - I totally agree with you and as soon as I saw this format, I thought what a waste of half the screen of space.  The more people try to change things, the worst things get in the world. Sometimes you wonder why they change good things, why, why and why?

Fighter - Welcome back!

Becca - Are you admitted to the hospital for the night or just for several hours until things get back to normal?  That sucks!  I am sure you want to go home dear!  Your spirits are wonderful, keep it up Girl!  I hope things level off pretty fast and you get out of there.

Sagina - Welcome to this board, these ladies are wonderful here!

Kathyrnn - I went through authorization processes with my insurance co. to get the BRCA tests done.  My hospital BRCA counselor wrote wonderful letters on my behalf insisting why I was a good candidate for the test.  One reason was having TN.  However, they denied it the first time. On reason was I had no family history except a cousin who I share only 7% of the genes with.  Then I found out that I had another cousin somewhere in the world who had some sort of cancer, either ovarian or stomach.  This was enough for my counselor to send another authorization a second time, using the insurance co's rules and hoisting them "onto their own petard" which was if 2 people had cancer in the family, then they would authorize the tests.  Lo and behold they approved it the second time without hesitation, and paid for it almost 100%.  I think I paid a tiny little amount such as $35.  My result was inconclusive on BRCA 2.  Negative on BRCA 1.  I am writing this from memory, so am not sure if the tests were called BRCA 1 & 2 or something else. Once more research is done on the type of gene which was inconclusive, I will hear back from the Utah testing place.  In my case, since I am Indian, and most of the information they have in the database comes from caucasians, they did not have enough research on my genetic history.

Painting - the galleries are lukcy to be representing you.  Enjoy!  Don't even give the mammo a single thought, it will come out all fine.