Calling all TNs

Titan - oh so far away. We are way up north.

Inmate....you look so happy and wow, sking, great!

Lovelyface...thank you so much. I am going to Trader Joe's tomorrow. There isn't one near me but when I leave work tomorrow I have some time so will go to one closer to my job...this 65 mile one way commute is a little over the top.

Everyone have a fabulous day. Good thoughts to all.

So back to the breast surgeon this morning. Everything like it was 3 years before. Put on gown. Wait in room 1. Mammogram. Wait in room 2. Ultrasound. Wait in room 3. See doctor. At this point I am crying and can't stop. My old doctor comes in, cuts to the chase - "We can see it, we need to biopsy and find out what it is." Core biopsy. Now the waiting game - results should be in next few days.

My doctor says that in mammo it presents like scar tissue, round and bubbly. But it concerns her that it is in the exact same place as the last FC. So that's all I have to go on for now.

When I got back to my car I had what I can only describe a temporary breakdown. I threw myself in the back seat and sobbed and sobbed until I was vomiting, and then was screaming and crying and vomiting more. Ugh. Luckily my husband was there and helped get me pulled together. I called in sick to work and collapsed at home for three hours. Mentally I feel like like I've been run over, mangled, and spit out.

Inmate - I think you've made a lot of hearts smile with that photo. thanks for sharing.



Heather - Wow, what a long drive. Glad you are halfway, to your new life! How exciting. May all your dreams come true.



Reading about the Budwig diet, makes me think I should give it a go. This fatigue is killing me, I feel like my life force energy is leaving me.



I'm poaching chicken and it smells wonderful.



My one good thing.... A local colony of purple martins, are putting on an air show, right outside my window.

Karen - I continue to do the Budwig diet - one update, I have 3 huge pimples on my face.  I am not sure what is causing it, the oil or the ground flax.  Now I have to find a balance, maybe use just the one at a time and figure out the amount too.  Just to let you know.....

minxie - Oh dear!  I am so sorry what you went through today  but I completely understand and can relate to your feelings.  There is just no way around it, except to hear the news, whatever it is going to be.  I am also waiting to hear my mom's result today.  I am sitting here at work, but my whole body just goes into a warm sweaty like feeling, huge amount of anxiety as soon as I think about it being positive.  My sister wrote me an email with the header "mom's results" which was a reply to an old email.  I swear I almost died, trying to open the email.  I wish that the people of the world would have been spared from these types of illnesses, but unfortunately, we have to become really very strong and face it.  What else can we do?  I honestly feel that yours is going to be benign, maybe the area is just irritated by hormones or something.  Good Luck, my dear.  I am praying for benign results for you and my mom.

Minxie:

Mounains of love and prayers going out to you.  What you went through was what we all fear so dearly.  Try to stay as strong as possible -breath - and know that you are getting hundreds of good vibes that this will NOT be cancer.

Teka:  sucks so much that you have to wait.  Don't these so called freaking "professionals" know what waiting and waiting some more does to us mentally.

Inmate:  beautiful picture - you are truly amazing, but the mother and grand-mother in me wants to know WHERE IS YOUR JACKET????????

Inmate- great picture!

Teka...so sorry, hang in there..hugs.

Minxie...God, it is all of our nightmares.  Hoping it is just scar tissue. Please hang on to the words that th surgeon said regarding it is likely scar tisue. Hell, this is awful. I am so sorry. Hugs and more hugs.

Lovelyface, although I didn't try the Budwig Protocol, I think you are on to something with regard to low estrogen or messed up hormone levels. I suspect that with regard to triple negative bc in particular, there is a chronic low estrogen or an extreme see / saw-ing estrogen cycle that contributes to the perfect storm of low vitamin D, inflammation, inflammatory 4 estrogen metabolites, perhaps even too much testosterone or androgenic metabolites. Reducing inflammation is one of the ways Budwig promotes health, but, in my opinion it is not strong enough to do the whole job. You might want to consider reading something that I trumpet a lot about on these boards: the Edge CAM at no surrender to breast cancer.



http://www.nosurrenderbreastcancersurvivorforum.org/post/UPDATED-EDGECAM!-AUGUST-2011-5424968?trail=20#1



It is a thoroughly vetted and researched supplemental protocol that you can incorporate with Budwig. I love to share this info and even my skeptical doctors are supportive of it, even bordering on boosters of the recommendations. I have done broad research, saw several integrative specialists, several oncs, one of them my bil, all of whom told me I would likely not survive without chemo and rads.



My goal was to improve my health, pass on chemo and rads (I sort of had no choice,but I was stage 1) and never look back.

Hi Ladies.

Thinking of all of you that are waiting and waiting for result. That really sux.  Just not good enough to have to wait. Don't they know what it does to us.

LRM1216 - had to laugh at your post.  Its the nurturing part of us that wants to keep everyone warm and happy but you are right, where was the coat. Inmate was obviously too happy to feel the cold.   

OBXK - why are you so tired all of a sudden.  Have you been doing too much? Are you feeling well?  Panicking a bit at your post although I see your appetite is ok as your chicken is cooking.

Finally I have come to terms with this bloody Taxol. Still don't want it,  but I guess as you ladies did it,  I too will have to brave it.  If only I could stop my tummy from jumping around. 

Have a good day ladies.  Get up to everything that tickles your fancy (that means do whatever you want to do).  Love and hugs to all and those waiting for results. Annie.              

Inmate - the best thing that happened to me today was seeing that smile on your face

Minxie - My heart goes out to you. I'm so sorry you are going through this....the waiting is such torture.  I'm sending good thoughts your way...

LOVELY FACE AND PAINTING - I am the one who started the Budwig Diet...I have been on it now for over a month. I loved the results I was getting..more energy, increased WBC and just feeling normal. Now, for the past few days, I have been having mouth/gum issues and general nausea. I am not sure how long one is supposed to stay on Budwig Protocal but I am going to lay off for a couple of days and see what happens. Maybe I now have too much estrogen from my daily regimen.  I will miss my breakfast as I have acquired such a taste for it.....adding Manuka Honey, blueberries, strawberries and the Brazil nuts make for a tasty and filling meal. Please keep posting your good results, I do think everyone can benefit..not sure about those ladies still in treatment, they should check with MO first.

Teka, it sucks that you have to wait.  How dare they?  I agree with Titan - plan on being obnoxious.  I fired my primary care doc yesterday and told the girl everything I felt.  My ins. requires me to start with a new doc 1st of a new month.  I am without a primary care doc this month, as I was so angry and fired him, told the receptionist, I will never see him again.  How dare he play with my health, I had a life threatening disease and he is not watching me as he should.  Teka, it truly is a nightmare waiting for the results.

I waited almost all day for my mom's results.  GOOD NEWS EVERYONE!  My 82 year old mother's lesion is benign.  My sister who is not very medically inclined, said the nurse told her that it is just "old age fibrosis tissue".  Not sure how that tranlates to whether it is calcifications or what, but I have asked to see the report.  THIS IS ONE OF THE BEST THINGS THAT HAS EVER HAPPENED TO ME IN MY ENTIRE LIFE, AS WATCHING MY MOM GO THROUGH BC AT AGE 82 WOULD HAVE BEEN THE WORST THING EVER.

MsBliss - I can't wait to finish writing this post and go check out the link you have sent me.  Thank you so much, as I have been trying to discuss this subject for a long time.  I have said it to so many doctors already that I believe TN is caused by very low estrogen or that it spikes up and down.

Wrenwood - You know I just feel that to stop taking the budwig diet all of a sudden is not good.  Flaxseed is definitely estrogenic, that is why I have got pimples.  I can feel the difference in my body, with and without estrogen.  We don't want our hormones to be spiking up and down.Stopping suddently will probably have an effect.

I learned this from My Onc. who had told me when I was taking aridimex - that studies suggest that when women take aridimex intermittently that the percentage of recurrence is higher in those women.  I would suggest reduce the amounts of Flax oil and cottage cheese to find a balance.  Somewhere I had read that there is no harm in taking flaxseed oil and to keep taking the correct amount which makes you feel energetic, for up to 5 years. They are all actually food items and not drugs.  But I am trying to find the correct amount to take daily, and trying to find how many times a day I can take it without the horrible acne side effect. I am getting a lot of pain in my arms, and 3 pimples on my face.  There is no pain in my breasts, so i feel that this is not acting like real estrogen but it is in some fashion.  Tomorrow I will get the results of my recent estrogen, progesterone and testerone blood tests.  It will be interesting to see what my blood levels were the day I took the test.