Calling all TNs

I have been on this thread since 2010, it has given me so much information. I am so thankful for all the wonderful women who share there stories and give us valuable information to move forward with. Have a wonderful weekend.

First-Titan-I don't think you truly realize what a wonderful thing you did when you created this thread (I'm talking Mother Theresa kind of wonderful!). I can't count how many health professionals and laypeople I've told about this thread. It was the combination of the support here and being able to connect with people with the exact same type of breast cancer. I would have lost my mind without all the info I got from all the ladies. I am sad too about the wonderful women we've lost, but remind myself I wouldn't have had the blessing in my life of knowing them, if not for your thread.



Lovey- hopeful that it will be a benign growth.



Kittykat

- congrats

Becca - congrats on the ovation, it must have been such a wonderful feeling

Hope - Enjoy the wedding!

Minxie -Very worried about you!!! I know the "not knowing, what if" is killing you, but hang in there.

KS- great news!

Teka - hug!

Christina - I'm 2 mo out of rads, and I have these random sharp stabbing pains. Doc said it's normal and will last for awhile. Where you're 6 mo out, I'd call the doc and ask if it's still normal

Cocker - other then some mild fatigue I had no major SE on Taxol ( I had it first and used to refer to it as my baby chemo). Only 2 surprises. They told me my hair would "only thin gradually" but by the 3rd treatment I was pulling small animals off my head. I also thought I dodged the nail problems but 5 mo AFTER treatment all my toenails fell off. Fingernails shredded at the ends but not as bad as toenails. The Benadryl they will give you during treatment will kick your ass! One of the wise women on here told me that I could get the Benadryl changed to Claritan, and after that I was able to drive myself to all my treatments ( kisses to that wise women!)

kHS - I didn't even realize till I read your post, that my cancerviercery is next week. How fast a year can fly!

Sorry guys, just realized paragraphs are way off, hope you all find your greetings

(((((ks)))))

I've just read thru 5 pages and there is so much news!  Thank you again for your love and support.  It really really helped!   That being said, Lovelyface, if your mother has a slow growing malignancy, they might not do anything at all, thus sparing her from surgery and chemo. My friend's mother has had breast cancer for 4 years with no treatment and you would never know.  Here's hoping she will be fine!!

I came up with 3 little round 'peas' on my foob last year and after having it biopsied,found it was fat. I still have 2 left and they are hard. But benign!!  

I think everyone will agree with me that all of the chemo cocktails are all do-able.  You'll feel 'off', tired, and your whole digestive system will know something's up. I'm just trying to say, try not to worry too much.  

I also had an ovary removed right before the dx, and they had everything set up for probable cancer and on the spot hysterectomy, and it turned out to be a baseball sized benign mass.   This is the actual pot calling the kettle black because I was crazy with worry, but the doctors gave me very little hope that the results would be negative...even so...I spent too much time worrying and being upset.  

So very many of us will go on to have NED for the rest of our lives!!  Hoping all my friends here fight the fight and join THIS group!  Thank you Titan for starting this for us.  I've been here since Sept. '10 and the suport has been invaluable!  

Wrenwood & Painting - I am also doing the Budwig Diet and I must say it is doing wonders for my lethargy.  The one downside is that I am getting pimples on my face. The flaxoil must be upping my estrogen, wow! It ups my energy and then when I don't take it for several hours, I feel like I am getting lethargic again.  I honestly feel that if I don't do the budwig diet, I could possibly get diagnosed with either chronic fatigue or fibromyalgia. and this is a new thing.  My neck pain, I believe is part of the fibromyalgia 18 points...... does anyone else have this?  I have been reading up on it.  Although at this point I don't have the pain all over my body as they describe is the symptoms.

Annie - I felt that Taxol was much much easier than AC.  I wouldn't say it was completely great, I just had a lot of smells and things become more pronounced. I couldn't drink water or go near the sink, as the smell of dishwash liquid and water made me feel sick.  Other than that, everything was okay with Taxol.  Oh! and a little bit of neuropathy in my fingers.

Christina - I used to have so much pain in my breast after rads, I still have pain.  I think I also developed a little bit lymphderma, even though in my case only the SN biopsy was done.  I am 1 year 8 months out, but I still have pain and tinges coming from there all the time. I think it has something to do with Rads.

Thanks all for the breast pain info. It eased my mind.

KS --- don't worry too much. Oddly enough, a year before my breast cancer was diagnosed my gyn was concerned about an ovarian cyst that he had been watching for about a year. So I had a hysterectomy and the cyst turned out to be benign. Too bad about the surgery but the peace of mind was worth it. And now with the BC dx I'm glad I had it done. Plus, I read an article earlier this year that radiation has systemic effects on the rest of the body perhaps preventing other growths from getting out of hand. Good luck tomorrow.

KS - sending positive thoughts for a benign result.  (((Hugs)))

I have no energy. Today, I have to go to my kid's spring band concert. I feel like I am walking through water.

I did 12 taxol first. Went pretty well until about the 8th or 9th one. I got really fatigued and neuropathy in hands and feet. Then I started A/C a week after I was done with my 12th taxol. I would say the A/C is worse for bone pain. Also the chemo brain is worse. Mine has been pretty manageable with the neulasta and pain meds when needed for bone pain. Hopefully the last 2 A/C will not be any worse but I won't hold my breath. Thanks all for this forum.



Have a good week.

Lisa

Titan - where is your friend in Idaho - I'm in Idaho.

Painting - I forgot to tell you that I have been doing the diet ever since it was suggested on this website, could be like 10 days ago.  I read about the properties of flaxseed and lo and behold  I knew all along that for many years now, my estrogen was the culprit in my body. Out of all the 100's of blood tests and scans, I have had done to date, the only thing which stands out is low estrogen.  On my blood test, it said "interpretation should be made with caution".  Doctors could not explain, they just said all menopausal women have low estrogen. Anyway, once I read the properties of flaxseed, I knew that was my answer.  I used to take flaxseed oil in a pill form before and maybe that's why the low estrogen symptoms wasn't as bad as recently.  I could probably just heal by flaxseed alone, I am not sure.  I will see how it goes.  I am just so thrilled right now.

Titan and Lisadi1963 - thanks for your advice on Taxol. I too think I am more afraid of this as it has the potential to cause that allergic reaction in the first ten minutes.  I haven't been given a pill for in the night but apparently they do give me a 10mg pill of Phenergan on Wednesday morning which can apparently make me drowsy. Hopefully I won't get any nausea or vomiting with it so I am keeping my fingers crossed.   Well I guess we will see as its coming around mighty quick. Hopefully I might get some fuzzy bits growing then.  Would prefer to get it every two weeks instead!!.  Thank you once again ladies.

OBXK - hope you are not so tired today. Sit down, put your feet up and while away the hours for a change.

KSMatthews - awaiting to hear some good results from you and keeping fingers crossed.    

Hope everyone else is having a good day and the sun is shining for you. Annie      

Inmate - the more I see that picture the more I smile. You made my day.  Annie