Has anyone started a Dec 2011 group?

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  • victorious2012
    victorious2012 Member Posts: 61
    edited May 2012

    Tkaiser:  Congratulations on crossing the finish line!  It only gets better from here.  I wish you minimal SEs. 

    Rachel:  Glad to hear that the swelling went down.  Keep using that handicap sticker so that you don't have to walk on your ankle too much!  It's easy to feel like we can get back to normal life but we have to remember to ease into it because our bodies are still in recovery.  Thanks for sharing the details of your doctor visits.  I have my first post chemo bloodwork on monday with my onc.  I'm anxious to see how my wbc and rbc are.  Did your onc mention how long it takes for rbc to get back to a normal level.  Mine have been low too.  I'm thinking once they rebound maybe all of this fatigue business will finally go away.  My BS has said that after surgery, she will see me every 6 months.  I will have to confirm that since it sounds like yours has said once a year. Congratulations on getting the green light to move on with life. I can't wait to be at that point.

    I'm 2 weeks PFC.  I will say that for the last 5 days, I actually feel a little more normal.  The fog has lifted and I feel like I can do more than I've been able to do in months without being tired.  That feels really good.  Ofcourse, I'm pacing myself and trying to still rest as much as possible.  I'm waiting for my surgery (BMX) which is scheduled for 6/1.  I'm really counting on what many of you have said to be true...that surgery is easier than chemo.  I really hope my experience is like that.  I am just ready to get over it and move on from this cancer journey.  For those of you that had BMXs, did you stay in the hospital overnight or discharged the same day as your surgery? 

    A good girlfriend of mine flew in to visit me. We went for a spa day yesterday.  It was so wonderful. It is the first time I've done anything to pamper myself since I started chemo. I had a hot stone pedicure and an 80 minute massage. In the back of my mind I was wondering, "am I supposed to be doing this?". Didn't know if there was any medical issue with getting a full body massage while in treatment.  I'm sure there is but oh well, it was absolutely wonderful and so worth it. 

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I had a UMX without reconstruction and was required to stay in the hospital for one night.  The next morning I practically flew out of there...couldnt wait to go home!  Im told that BMX is a somewhat more challenging because movement is limited...I at least had my right side.  Also TE's seem to add an additional challenge.  I will let the other ladies fill you in on that.

    Im 2 1/2 weeks since my UMX and other than being lopsided, im pretty much back to normal. A bit sore but nothing that Advil cant take care of.  Im working from home for this week and next and then back into the office.  Hoping that I can wear my prosthesis by then...no way im going to work with one boob!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    "fill you in"....excuse the pun!

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    I had a BMX with TE's and I was in 2 nights.  I don't remember much about it because I was so drugged up.  I think I was having some pain issues so I stayed an extra night.  How bad is this...I don't even remember coming home or that my sister was there with me at the hospital when I got discharged.  I do remember that it was late in the evening when I went home.  It was more of the tissue expanders and the drains.  I remember when the drains came out, I was a NEW person!!!!  The last one came out on black Friday and I actually went shopping!!!  (Surgery was 11/10)

    So...here is a question for all of you...how is the chemo brain???  I am still VERY foggy and I can't spell or read anymore.  I get words mixed up and have to re-read them all the time and I USED to be a VERY good speller.  It's almost like I am dyslexic now.  This, of course, scares the crap out of me.  (you know...is there something else going on fears that you have).  Please, please tell me that someone out there is still foggy!!!!  I do have a friend that is 3 years out and still has some issues with that, so that was kind of promising!!! 

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    Lori - It's sad when we are glad that friends 3 years out are still having problems....because it validates we are not crazy!  I am 6 wks PFC and still have some fog myself.  I find myself having to look for words, like I know what I want to say but can't think of the word.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    for me, its my memory....i cant remember shit!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    I think alot of it comes from stress....compound that with all the poison we've had pumped into us and the radiation, it's a wonder we can speak at all!

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    Yes, Kellogs...I think stress has A LOT to do with it, too!!  I find that when I get myself really stressed out it is worse....and words TOTALLY leave my brain, too!!!  Oh how I hate that!!!

    2 things...First thing...I ran out to my van tonight "commando" (no wig/hat/bandanna) and guess what I felt???  I felt my "hair" blowing in the wind!!!!!  It's literally only 1/16th to 1/8th of an inch long, but it blows in the wind!!!!  

    Second thing...Not sure if I mentioned this here or not, but my mom passed away 3 1/2 years ago from pulmonary fibrosis.  My dad remarried a year later to a really, really wonderful lady.  She couldn't come to my party on Saturday so tonight she gave me a gift and a card....this is what it said....

    "I think you are one of the strongest people I know, how you faced your diagnosis of cancer was amazing.  I know there had to be times of real fears but you met them head on!  You were an encouragement to me!  If I would have had a daughter, I would have wanted her to be as strong as you.  God is Good!!!  PS...We will have to do a pedicure again!"

    Of course, she made me cry with this!!!!  As weird as this may sound, as sick as my mom was, I am SO glad she was/is not here to see me going through this. Looking back on life, I can see God's hand in all of this.  I'm so thankful for my husband...who almost wasn't my husband, LOL!!!  (long story short...after our 1st date, I told my mom he would make a great husband but I wasn't ready yet....we stayed friends for 1 1/2 years and then he drove 3 hours to fix my laptop and we were married 6 weeks later...hadn't seen him in about 4 or 5 months before that)   I guess I am just seeing a lot of the "why" questions being answered.  As much as I miss my mom and really do wish she were here and healthy, I am glad that I had/have a mother figure in my life to comfort me and to help out with Jake (my little guy...who loves her like crazy).  She has been a huge blessing to us, even though I was not super happy when my dad started dating and then they got married 1 year later.  

    So...all in all...a good night....working on cleaning this trashed house of mine and decluttering!! 

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    Lori - funny thing is, my dad died almost two years ago from pulmonary fibrosis. What an awful disease. Like you, I'm glad he is not here to see all this BC stuff but on the other hand I wish he were here to help my mom deal. Life can be cruel.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    Lori - I'm glad you have a mother figure who can help you through this.  She obviously loves you like you were her own daughter and that is a gift.  God works in mysterious ways.  I spent 12 years after my divorce alone, raising my girls by myself.  I was determined that I would never "settle" again, that I would only get married again if I knew with my whole heart and soul that he was "the one".  Well, turns out I dated him in high school and hadn't seen him in 27 years but thanks to the wonder of Facebook, we reconnected.  4 months later I moved in with him and another 10 months later we were married.  5 months later I was diagnosed.  I really feel like God brought us together and I can't imagine how I would have dealt with this without him.  I would be alone since my youngest DD just finished her first year of college and lived on campus.

    I find that I am acutely aware now of just how grateful I am for everyone in my life and for every day I get to share with them.  That is one gift that BC gave me.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    BTW...our first anniversary is May 14th!

  • victorious2012
    victorious2012 Member Posts: 61
    edited May 2012

    Lori and Kelly, both of your stories bring tears to my eyes.  God is so good.  And He brings angels in our lives when we most need it.  Like both of you, I am amazed at the love and kindness that people have shown to me during this process.  And some of them have been the most unexpected people and that makes it even more special.

  • seacretgardn
    seacretgardn Member Posts: 269
    edited May 2012

    Lori & Kelly I love your "love" stories and am so happy for both of you and the fact that you know you are blessed.

    The memory thing for me is scary.  I have been away from my job for so long, I don't even know how to begin again.  When I left I was in the midst of training, I look at it all now and it feels like I have to begin all over again.  Except now my memory isn't what it once was. 

    Words and especially names escape me. 

    Anyone else feel like they need new glasses? 

    One week PFC! First Thursday in 3 months with no treatment!

    Naan, hurray for your 9th! You're almost there!

    A good day to all,

    Laura

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Laura, thanks, I'm right behind u

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    Laura - My opthalmologist actually called to schedule me yearly exam while I was in the midst of chemo.  I told her and she said to just wait because chemo screws with your vision.  Mine still isn't what it was and I am 6 wks PFC....don't know if the Herceptin is a culprit or not.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited May 2012

    Ladies, an update. I am done rads as of Monday. I am on the Menformin trial and will tamox two weeks after rads. Omg it has all gone so fast. Hoping my head recovers as quickly as my body. Lol. I went to see about talking to someone at psycho oncology and they have a waiting list. They did say that should I be considering hurting myself they would move me up on the list. Lol. I am not at that place but would like to talk to someone about what the heck just happened. Anybody else thinking their heads are recovering as quickly as their body?



    I was brave enough to ask what the chances are of this coming back. Lol. Held my breath for a long time until the doctor answered. Stats are stats. Can't put alot of stock in them. We all have a better chance of it not coming back. :)



  • rachelvk
    rachelvk Member Posts: 1,411
    edited May 2012

    Lori and Kelloggs - Wonderful stories. I also think a lot about the choices and circumstances that brought me to where I am and who I'm with. I can't imagine having gone through this without my BF. 

    As for chemo brain, I hate to admit it but I have not seemed to get hit with it as bad as some. I mix up some words here and there, but I'm not any more foggy than usual (?!?). Laura - You're right about the glasses. I was told that happens a lot, and I'm having some issues. But I've also been told it clears up in about 3-4 months or so. Don't get new glasses just yet if you can hold off.

    victorious - I was in the hospital 2 nights after my bmx. Healing was gradual, but I had a great physical therapist, and I had full range of motion within 3-4 weeks. Don't push it, but don't baby yourself too much, either. 

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    My eyes are terrible!!! My left eye is still red and irritated and I can't wear my contacts...which makes me very grumpy. I hate wearing a wig AND my glasses...just way too much irritation going on and more things that "aren't me", if that makes sense. I am actually going to the eye Dr in 2 weeks to see about the irritation in my left eye and hopefully get some kind of relief.



    Now that we are starting to grow hair and summer weather is fast approaching, what is everyone doing??? Bandannas, wigs, commando??? My wig is just too dang hot but I don't want to shock people who don't know and who have only seen me with the wig. (Like at my little guys's baseball games)

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I refuse to lose the wig until I can pull of a reasonable short haircut look. I fully expect it will take me 2-3 more months before I can do that. Bald is not a good look for me!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    Oh, and as soon as its long enough, I'm getting extensions.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited May 2012

    I agree about not ditching the wig, at least in public.  I go commando at home unless I'm gonna be outside doing yardwork or something.  I don't know why I care if the neighbors see or not since they all know.  It's just the bald look reminds everyone I have cancer, and I want them to forget.

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    I have no idea what I am going to do, but, dang....I don't know if I can handle the heat with that thing on. My hair that is coming back in has changed from stubble to super soft fuzz!!! That's progress, right??? Oh, and I have shaved my legs for a 2nd time!!!!! How sad is that...being excited about shaving your legs. Just tired of looking like a naked mole rat. LOL!!!!



    On the energy level....I have stripped the bed and washed the sheets already today and I worked all day yesterday in my kitchen and living room. Feels good to be able to get this stuff done!!! My house has been terribly neglected the last 6 months so I have a TON of catching up to do.

  • Baileybump
    Baileybump Member Posts: 172
    edited May 2012

    I think I'm going to go commando on the weekends, but not for work.  My hair is coming in niceyl - I can feel it blow in the wind, too!  And I'm with you, Lori, I'm excited about having to shave my legs.  Who would have ever believed that!  Although I'm super sore (and raw) from the radiation, so I can't bend over to shave (and need to).  One more week of rads and I'll be on the mend.

    I was reading an article today about "radation brain" being similar to chemobrain.  So for those of us having rads, too, we've got a double whammy on the brain issue!  My biggest problem is coming up with a word.  I know what I want to say, but sometimes get a block - frustrating!  And sometimes I read something, but it registers as something else.  I was at the drugstore today and saw BandAids for tough wounds.  I swear it said for TONGUE wounds . . . I had to take a closer look at it to see what in the world would qualify as a tongue wound.  My DH laughs at me, and thankfully I can laugh about it too.  I'm counting on it being temporary!  Smile

  • rachelvk
    rachelvk Member Posts: 1,411
    edited May 2012

    I'm sticking with the wig and turbans for now. The hair that I didn't lose is growing at a pretty good clip, and I have some new-growth stubble. Still less than a newborn, so no commando for me. Noticed stubble on the legs, too, so I'll probably have to shave in the next 2 weeks.

    Has anyone noticed that their face is an odd texture - just really soft. I can't really describe it. But I was wondering whether it's because I've lost any of the usually unnoticeable tiny hairs that I usually have (like down). 

  • Tskaiser75
    Tskaiser75 Member Posts: 32
    edited May 2012

    douglaswife, you are truly a blessings to me I love your posts and outlook. Bless you and all the ladies here! I am so glad my last treatment is over. Having alot of aches, pain and fatigue. Even the fuzz(what little I have)  hurts. But hey at least I can feel it. I have my one month followup with Rad and Onc on June 6. Looking forward to that to get port removal scheduled. One step at a time. With all the prayers and love in here should be a piece of cake. Cake-gross don't have any desire to eat, everything still seems nasty. I am not a water drinking person but that is all I can seem to tolerate. Never knew you could gain 20lbs drinking water but I have LOL. I know its fluids cause I have the elephant ankles to prove it. Just another day in paradise. To all the ladies here - God Bless and best wishes.

  • dougieswife
    dougieswife Member Posts: 171
    edited May 2012

    Awww...Tskaiser...you are too sweet!!!  : )

    Well...I did it...I went out all day with just a hat on.  I spent the day with my sister out and about and then went to the airport to pick up my niece and her partner from the UK (they don't believe in marriage and are expecting their 1st baby in September!!)  I had 2 people ask me about cancer and one lady at the airport came over and grabbed my hand and squeezed it and asked if I was a survivor.  She said, Me, too...Bless You!!!!!  And then she was off.  The first lady I talked to at the farmer's market was a 15 year survivor.  It was kind of weird, but cool at the same time.  

    Anyway, hope everyone is have a fantabulous weekend!!!!!!  

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Teresa K, u should get the ankles checked, it shouldn't be so swollen.



    I'm planning to wear bandanas, and scarves, no wig, too many bald spots to go comando this summer in sunny southern CA!

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Had Taxol 10/12, only 2 more to go, yeah baby!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited May 2012

    Naan - You're getting close...! That finish line is in sight.

  • naan1004
    naan1004 Member Posts: 520
    edited May 2012

    Yes, Rachel it sure is, man this is a long ride, so wanted to jump off many times, but glad I didn't thanks for the encouragement ladies!

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