Wait and see?

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blondie0236
blondie0236 Member Posts: 24
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  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    I just had my first abnormal mammogram, after having all normal mammograms, at the age of 46, went in for the follow up mammogram and ultrasound today.  They said it looked like a cyst but the tech told me while doing the ultrasound that it looked a little complex to her, not a simple fluid filled cyst but it was so deep in my breast it was hard to tell.  She then went out to have the radiologist review the ultrasound and came back in and said everything was fine, they thought it was just a fluid filled cyst, "probably benign" was my diagnosis and to come back in 6 months for a follow up ultrasound.  My question is, should I wait 6 months?  My mother was diagnosed with breast cancer at age 49 and passed away at 51 because hers was too far advanced by the time it was found, her mammogram came back negative.  My aunt (my mother's sister) also had breast cancer, i'm not sure of her exact age but I think she was 50 at the time.  Luckily hers was caught early and she is still with us.  I'm so confused, should I push for a biopsy?  Will waiting 6 months be that big of a deal if it is more than a fluid filled cyst? 

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    I can see why you're concerned. Did the radiologist know that your mother had BC? I think I would talk to my Dr (ob/Gyn, or primary) and request at least an MRI or preferably biopsy. I'm not a fan of "wait and see".

  • eulabt
    eulabt Member Posts: 194
    edited May 2012

    I would not wait. I would go see a breast surgeon and have it removed to be safe.

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited May 2012

    Yes.  Push for the biopsy.  I don't like what they were saying about it, it seems as if they really don't know for sure what it is.

  • ButterflyLady
    ButterflyLady Member Posts: 136
    edited May 2012

    I would talk to my doctor again.  I would feel more at ease if they would do a MRI or a biopsy.  I would not want to wait six months.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    When the tech came in and told me everything was fine I told her I did have a family history of breast cancer and asked if the radiologist knew that, she looked at me funny then said "oh the radiologist has all that information and i'm sure he used it to determine what if any treatment was needed". 

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    I don't think I'd be satisfied with that answer... I'd want whatever it is 'out' and tested. Not all mammogram machines are created equal, and for that matter, neither are radiologists.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    My boss was just talking to me about this and he is saying the same as what you ladies are saying.  He thinks I need to have a breast doctor look at my results to be on the safe side.  So, I'll give my gyn a call in the morning to see who they recommend.  Better to be safe and not worry for 6 months than be sorry, right?

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    Yes, definitely! You don't need to be worried for six months, thats for sure.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    One last question, so if they thought it was a simple fluid filled cyst that was not suspicious why didn't they mark " Negative/Benign:  No evidence of breast cancer" on my ultrasound results or is it normal to mark "Probably Benign: Short-term follow-up recommended" with a cyst?

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    I really don't know. Did they give you the radiologists written report? Do you know a radiologist that can read the US or look at the mammogram and give you an opinion? I still think that I'd insist on an MRI and / or biopsy.

  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited May 2012

    I would insist on a biopsy; MRI's don't always show what's going on,any more than mammograms do.

    As I always say,"if it wasn't there when I was born-get it out!"

    That's the sure way to have peace of mind.

  • CLC
    CLC Member Posts: 1,531
    edited May 2012

    My grandmother had bc at age 82.  Other than that, I have no family history of bc.  I had an abnormal mammo with a follow up in 6 months comment at age 42.  I immediately made an appointment with a surgical oncologist that specializes in breast cancer.  He said, yes, we wait.  So I waited.  Six months later, I had adh...(something like "precancer").  Removed.  Then, 6 months later, new abnormal mammo, with follow up in 6 months again.  Six months later, at age 44, dcis.  I believe that, in my case, waiting was absolutely the right thing to do.  We still caught it early.  Now, in my case, things were a little different than you.  I did not have a cyst.  I had calcifications. 

     I was REALLY glad that I had gone to see the surgeon after the first abnormal mammo.  I had developed a relationship with him, by the time the surgeries started.  Also, I liked having his expertise in reassuring me that I could wait 6 months. 

    If I have any advice for you, it is to be sure to get a specialist involved now.  Get their opinion as to whether to wait or not.  And, if you are not comfortable with their answers, seek another opinion.

     Wishing you all the best outcomes!

    Claire

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    I just heard from my gyn office, the hospital where I had my mammogram and ultrasound this morning informed them that I qualify for a breast MRI due to my personal and family history.  According to them I have a 23.1% chance of developing breast cancer in my lifetime, anything over 20% means you qualify for an MRI.  The nurse also gave me names of two breast surgeons in Arkansas so I'll be checking them out too.

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    Thats good news! Chances are it is benign. With the MRI, if it's benign at least you'll now have a baseline for the future. If they see anything, I'd push for a biopsy.

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2012

    Yay... Have the MRI, but afterward, perhaps get it removed anyway. Or have a  MRI guided biopsy.

  • cp418
    cp418 Member Posts: 7,079
    edited May 2012

    There is no reason to wait when they can go ahead and identify it.  You have a family hx which validates further caution to detect and resolve early.  Some of these lumps are best placed in a jar.

  • JayeGA
    JayeGA Member Posts: 82
    edited May 2012

    I agree. Once my breast surgeon saw the atypical cyst on ultrasound, it was clear the only way they'd know for sure if it was a problem was to take it out. The MRI after the ultrasound was helpful, but only once they actually did the biopsy and examined the entire area carefully were they able to say for sure. 

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2012

    Okay, let me be the only person to offer a different perspective.  I say this as someone who has a few cysts in my one remaining breast, including at least one complex cyst. I'm currently in the middle of a 6 month wait and see period.  I've had BC (and a single mastectomy), my mother had BC and my aunt had BC.  Yet the recommendation from the radiologist upon seeing my latest cyst on the ultrasound was "let's wait 6 months and see".  And I gladly agreed with her.  Why?

    First, cysts are often very easy to identify on an ultrasound. The fluid in the cyst is a give-away. So when a radiologist sees something and says "it's a cyst", then it's pretty much always a cyst. Simple cysts are perfectly round masses filled with fluid.  Simple cysts are benign about 99.99% of the time.  Complex cysts are any cysts that aren't perfectly round or that might include a few floating particles (called 'debris') in addition to the fluid. Complex cysts are benign about 99.5% of the time.  

    The easiest thing to do with a cyst is aspirate it.  I've had that done more times than I can remember.  It's a 2 minute procedure and all you feel is a pin prick. The doctor uses a needle and syringe and pulls the fluid from the cyst.  And then the cyst is gone. If you have just one or two large palpable cysts - i.e. cysts that the doctor can easily find just by feeling your breast - then an aspiration is simple and easy and probably the best thing to do.  But if the cyst isn't palpable, then an aspiration is a more complicated procedure because the doctor needs to use an ultrasound to locate the cyst. If the cyst is tiny, it can be hard to get the needle to the right spot. Depending on where the cyst is located in the breast, it might be difficult to reach the cyst with a needle.  If there is more than one cyst, it might not be possible to aspirate all of them.  I currently have all four of these problems, which is why my current cysts haven't been aspirated.  

    So that leads either to multiple biopsies or surgery - which would be silly for something that is almost certain to be benign and totally harmless.  So instead, for those of us who have cysts that aren't easily aspirated, we get a BIRADs 3 rating. BIRADs 3 is defined as a condition that is "Probably Benign; Short term follow-up recommended".  BIRADs 3 means that something has been seen in the breast, but whatever was seen does not have the appearance of cancer and has less than a 2% chance of being cancer.  With BIRADs 3, to avoid unnecessary biopsies (and the scarring that comes with that), the preferred approach is to wait 6 months and then take another look.  What the radiologist is looking for is stability. Breast cancer isn't stable; it spreads and grows.  A cyst is either going to dissipate on it's own or remain completely stable and unchanged, or grow.  In the first case, when you have the 6 month follow-up, the cysts will be gone.  In the second case, the cyst will still be there but will have showed no change, confirming that it is stable and just a harmless cyst.  In the third case, if the cyst has grown, it might be easier to identify and/or aspirate.  If anything else should happen over those 6 months, for example if the cyst no longer appears to be a cyst, then you move on to a biopsy. With cysts, that rarely ever happens. 

    A couple of things to keep in mind as you consider all the responses here and other women's experiences.  Sometimes, depending on where the cyst is located and how dense your breast tissue is, it might be hard to know for sure that a mass is a cyst.  I have extremely dense breast tissue and I've had that happen to me quite a few times.  In those cases, the radiologist is less certain that the mass is a cyst and therefore an immediate aspiration or biopsy is strongly recommended.  This is why some of the women responding here were sent for biopsies immediately.  Another reason this could have happened is because all complex cysts are not alike.  Any cyst that isn't perfectly round and 100% fluid filled is a complex cyst.  Some cysts appear to be 100% fluid filled but maybe are just slightly oval in shape.  Some cysts may have just a couple of specks of debris. Some cysts have very thick uneven walls. Some cysts may appear to be as much as 50% solid.  Those are all called complex cysts but the risk associated with each of those situations is different. The last two situations are more concerning and those usually lead to an immediate biopsy; the first two situations are not concerning and they may be more appropriately handled with a 6 month follow-up. This is why all of us who have complex cysts cannot compare our situations to each other.  If your radiologist is satisfied that you can go with the 6 month wait and see approach, it means that he is quite certain that what shows up on your ultrasound is indeed a benign cyst.

    I have some cysts that have been in my breast for years.  They are stable and every year they show up and are noted on my films. Because they are stable, at this point they only warrant a BIRADs 2 rating, which is a "normal assessment" however something benign is noted as being present in the breast.  I'm currently BIRADs 3 and on a 6 month follow-up because a new complex cyst showed up at my last screening.  The radiologist was very confident that this is just another cyst so I'm not worried at all.  I'm confident that my follow-up ultrasound will be just fine and then I'll be back to BIRADs 2.  And if by chance it's not, we'll deal with it then. 

    Having said all that, I would agree that you should get a second opinion.  Have either a breast surgeon or another radiologist review your ultrasound films.  If the conclusion is the same - that what shows up appears quite certain to be a benign cyst - and if the recommendation is the same, i.e. let's follow-up in 6 months, then I think your mind will be eased and you can go with that recommendation.  But if another set of eyes reviewing your films reaches a different conclusion and recommends that something be done sooner, perhaps an MRI, then you can go with that.  

  • number5
    number5 Member Posts: 75
    edited May 2012

    I had this done three years ago when I was 43!  Because of what they found on the mammogram, they did an ultrasound!  It was still unclear if it were simply a 'cyst.'  Because of my sister's diagnosis 6 days before her 44th birthday, we all opted for the surgical biopsy- a needle biopsy wasn't possible!

    I HAD TO HAVE the biopsy-for my own piece of mind!  There was no way that I personally could have waited 6 months after seeing what my sister went through-no way!  Was it painful?  Yes!  Was it benign?  Yes!!  Would I do it all over again?  In a heartbeat!  I'm 46 now, and I have four boys 13 and under-there is no way that I could live with that amount of stress for 6 months, and still be the best Mom I could be!!

    I hope that everything works out and it is simply a cyst!  I'm sending some good karma you're way-we could all use some every now and again!!

  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited May 2012

    When I was in my early 30's I found a lump in my right breast. went for mammogram,it "looked like a cyst".

    Two weeks later,it was larger and surgeon tried to aspirate-nothing. Had surgical biopsy it was a (by then) huge fibroadenoma. That was the start of my faithful yearly mammos,and then 6 month ones when microcalcifications showed up.

    But,my 2 idc's never showed on mammos.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    Thank you to everyone for all information!  I've talked to my doctor's nurse and I think I'm going to go ahead with the MRI so I will have a baseline for future reference, after that I'm still not sure what to do.  My husband thinks I just need to wait the 6 months because he said "i honestly don't think they will find anything".  He'd rather I save the money than spend it on an MRI.Undecided

     How many of you have had the genetic testing?  My gyn strongly recommended I do this, what does everyone think?

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2012

    The BRCA test is a $3500 test, but with your mom and aunt it should be covered... will still cost you a co-pay though... I had to pay 10%.

    I would definitely have the MRI.. non-invasive and might shed some light on things. My mantra is better safe than sorry.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    Yes, the doctor said it was expensive.  He said they would draw the blood, send it to the lab, the lab would call my insurance company and fight to get it covered and would accept whatever payment they received from the insurance company or if it wasn't covered, he said the most I'd have to pay would be $300-$400, either way, the lab would call me before doing the test to let me know how much it would be and find out if I wanted to proceed with the testing or not.

    I wish all I had to pay was a co-pay, unfortunately I have an individual health policy with a $5000 deductible, if the insurance covers it, it will go towards my deductible which I hasn't been met this year.

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2012

    Before they draw blood the doctor will ask you a lot of questions.. Make sure you mention all the family history... or if you are of Jewish decent (can't remember the kind of Jew)... then it will be covered... I think it always counts toward deductible... Luckily I have a 90/10 coverage, but a copay for sure would have been better.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    On top of breast concerns, I found out last month what's left of my thyroid gland is full of solid and complex nodules and cysts and I need to go see an endocrinologist for possible radio iodine therapy to kill my gland and I'm in peri menopause, doctor thinks I'll be start menopause in the next 6 to 12 months. I swear, when it rains it pours! Getting older is hard, guess I'll tackle one thing at a time! Lol

  • Catherine
    Catherine Member Posts: 305
    edited May 2012

    Personally I would not "wait and see".  It's fine if it really is a cyst, but you might want to get a second opinion just to be sure.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    Just received my diagnostic mammogram & ultrasound results.  What do you women think, should I request a biopsy?  Here are the results

    Mammogram - A rounded subcentimer density persists in the inner slightly lower right breast.

    Ultrasound - Right breast demonstrates a hypoechoic rounded mass at 4 o'clock position 7 cm from the nipple, which may be a cyst which cannot be cleared of internal echoes, versus hypoechoic small solid mass.  Measures .7cm x .3 cm. I strongly favor that this is probably a cyst which is too deep to entirely clear of internal echoes.  Recommend ultrasound followup in 6 months to ensure continued benign features

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2012

    You could have an US guided biopsy... Have you met with a breast surgeon? If not, do that first.

  • blondie0236
    blondie0236 Member Posts: 24
    edited May 2012

    Should I find a breast surgeon?  I decided to go ahead with a breast MRI, having it done on the 18th.  Still trying to decide if I want or can afford a genetic test.  Found out yesterday my aunt's bc was found when she was 45, I always thought it was after she went through menopause but it wasn't.  So both my mother and aunt(mother's sister) developed bc before menopause. My aunt had DCIS and is doing fine now but neither my sister or I know what type our mother had.  All we know is that it was the most aggressive kind and by the time she was diagnosed all lymph nodes were infected and it had spread to her bones.

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