Has anyone started a Dec 2011 group?
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I don't know how all of u have been feeling, but last week Mon I just felt like I was imprisoned for 5 months, can't really go wherever I want or do whatever I want without worrying about my low immune system, fatigue. I think at the end of chemo they should provide each of us with an all expense paid weekend getaway to a tropical island with full spa service, anyone with me on this?
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Hey, Seacret! My heart goes out to you - what a horrible thing to add to an already trying time. I hope you're able to find some peace.
All, I'd like to stay with you ladies, even though I'm not doing rads (UMX coming up). My Fester look is still going strong with about 4 lashes and as many brows. I am damn good with the eyebrow pencil. My hair is now about 1/2" long and getting darker (had white fuzz all the way through) - just not fast enough! Using Nioxin (have for a while) and spraying tea (mulberry?) from my acupuncturist on my scalp every day. I look like a balding alien man. I wish I were brave enough to take pics. Please all keep updating on hair growth. I am obsessed.
I left the treatment room in a cloud of pink roses and a nurse who kept starting to cry
It is a bittersweet moment; these women have been with me for months, but I am so happy to be done. Just got a report of the mammo I had 2 weeks ago on the "good" side. Who cries over a report that reads "Clear. No cancer detected" ? I just thought, this is how it all began, with a report like this that said, "Highly suspicious."
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Thanks for the info, Kelloggs. It's helpful to know what to expect.
I dream about hair almost every night, and wake up thinking that I'll have a ponytail. Nope! Not for a good long time
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HA!!! I had a hair dream the other night, too!!!!
Naan...I'm with you!!!!!!!!!
Krewton...My hair is NOT growing fast enough for me, either!!!! I want it back and I want it back NOW!!! It is getting softer and not so bristle-ly....so that's progress, right?? Mine is white as white can be, too!! I had a lot of gray in my hair before, maybe 30-40% gray, so I'm sure mine is going to come back in a lot more gray.
Last night I finally slept uninterrupted (except for 1 time to the bathroom vs. the usual 3-4 times) for 10 hours!!!! I have not been sleeping at all lately...mainly due to getting up and going to the bathroom so much. I will take my 10 hours and hopefully I can get some stuff done today!!!
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ahhh, the dreams! I had a dream i was running my fingers through 3 inches of hair. Oh I wish that were true!
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Hi ladies! I haven't posted on her much lately, but I am more than mid-way through my rad treatments (22 done, 14 to go). Today is the first day that I am sore under my breast. My skin has been tolerating the treatments very well - - I consider myself very fortunate because I'm fair skinned. The treatments go by quickly and hopefully you have a good group of people at the rad center. You get to see them EVERY day, so you quickly form a bond with them.
I am 10 weeks PFC and have a decent amount of hair regrowth. My eyebrows/lashes just left me about 3 weeks ago (can't believe I kept them for so long and then POOF!). Mine was coming in very grey, but is starting to get darker as the days go by. I'm thinking about slapping some hair color on this weekend. If my wig blows away from my face, you can see the grey hair on my sides. . . not cool.
Krewton - keep those happy tears flowing. They are therapeutic!
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Wow Bailey you have enough hair to color, that is terrific. I am five weeks out and I have some growth on the sides but the top is still bare.
How are you feeling with the rads? I have 8 more to go after today and I must admit I do feel some fatigue as we continue on. Nothing to big but it is noticeable. Nothing compared to chemo however.
How are you adjusting to things getting back to a regular routine? -
Naan, I'm with you on the all expense paid vacation. I too have been in a 6-month self-imposed isolation.
But instead of vacation, I'll be trying to figure out how to "fit" back into my old life somehow. I'll be returning to work end of May/Beginning June, to a new office. Maybe that's a good thing? I don't know.
Someone sent me a "Happy Administrative Assistant's Day" email, and it just had me in tears. I haven't been there in 6 months.
Yesterday I was at a Dr. appointment, my social life these days, and when the guy sitting across from me started coughing, I practically ran out the door.
Krewton thank you for your kind words. Peace is certainly at the top of my list. Peace, health, happiness. For all of us.
I have had the hair dreams too. Had another one last night matter of fact.
I pretty much wear my ball cap with hair attached everywhere. I'm going to have to come up with alternatives for work. Do most of you who work wear your wig? I was going to look at some summery hats and attach a little hair (extensions) to them. Maybe use velcro.
Ok, wishing a good day to all of you,
Laura
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i wear a wig to work. Anything else would draw too much attention....something im not interested in.
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I wear the wig for work, but -- and this is going to be a problem -- it's hot! Last week, when we hit 90 degrees here in NJ, it was brutal wearing that extra layer of plastic and hair and net. The sweat was pouring down my face since there's no hair up there to catch it. I don't know what to do about that. I'll try powder next time, and then maybe carry some with me, but it was also very uncomfortable.
Suggestions?
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i figured I was just going to have to live with it. I agree, wearing a wig in the summer months is going to be brutal. I cant wait for my hair to get to a length where I will feel comfortable going without. I dont see that happening over the summer so my plan is to wear it while at work and the minute I hit my car, yank the thing off!
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I wear a wig out...but go all natural at home...I call that going commando, LOL.
I actually got a human hair wig, semi custom made. It was pricey...but so worth it. I have a free one that I got and that is twice as heavy and hot. Taping it down helps with the itchiness of it. I'm sooo ready to have hair!! I have no idea what I am going to do over the summer!!!!
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i too have a human hair wigh that was custom made. The money was worth it!
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I wear my wig to work, too. For the first few months I wore different ones depending on my mood. I work in a physician office and all my co-workers know so I tried to have a little fun with it. I finally found a short one that I love and is very flattering. I hope my real hair comes in to look like it. I have been wearing it every day now. I also go commando at home! My daughter comes home from college every other weekend and when I drive the hour up to get her I always rip the wig off for the ride home....after all, it's dark and I doubt I will scare the other drivers on the highway! Can't wait to go topless in public ( a 2 sided joke for me since I drive a Jeep Wrangler and often go topless in the summer!)
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What awesome information I have gained from reading your posts. I am going for the "meet and greet" with the RO on Friday and a bit nervous about what will happen next.
I heard someone mention the "C" card. I thought I was the only one to use that term. LOL.
Now that I am no longer on Taxol, I have started my 5k training program. Hoping by the end of summer I will be back in shape. I am not letting this "C" stuff slow me down. :-)
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Stall - I meet with the RO on Wednesday. We should compare notes!
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I usually wear my wig to work, but I've worn a hat that I really like a number of times, and when I just don't care (or want to emphasize that I'm worn out and exhausted and don't want to be hassled), a turban. I did buy a hair halo but haven't used it. Most of the hats I'd wear it with I wouldn't want to wear indoors, so I'd have to swap to something else, so it just hasn't made sense. I'm not sure what I'll do for summer. I might try to get a few lighter hats.
On Sunday I sort of started feeling closer to normal. I still get a little tired when I walk, and I have to stop before I get to the top of my stairs outside, but it's not nearly as bad as it was the past several weeks. Yeah! A glimpse of normalcy.
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I know what you mean Rachel. I finally feel some normalcy as well. The only residual is that I have to get up from my desk during the day and walk often because my legs get stiff. I still have the taxotears and some drippy nose, but that could be from the Herceptin too I guess.
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I have been feeling so good...except my hands are swollen. I guess that's from taxotere? I'm pretty sure I get to skip rads unless they find more lymph nodes or cancer during the BMX. My hair is coming in on the sides more than the top. I can't wait to have hair. I'm so sick of my wig I feel like burning it lol.
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burning the wig....what a great idea!
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lol markat and mardibra - we could have a bonfire! I have a few to add to the kindling!
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and some hats....and some scarves....and a whole lot of expensive bras i will never wear again!
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I wish this was like Facebook with a like button, LOL!!!!!
I haven't worn a bra since 11/10/11....I won't know what to do when I do have to wear one after my exchange on 5/31....but all of the ones I had before all of this, I'm sure won't fit after exchange, so I could burn those.
On the hair note...my little boy told me today...Mommy...I see hair back there!!!!! (on the back of my head) I asked him if it was white and he said no...it's kind of black. I haven't looked in the mirror back there because I don't want to be sad when it's not where I want it to be. It is getting softer and softer, so I know it's growing...but it's still just soft stubble.
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I had a lumpectomy so I am still wearing the bras but had to go buy a whole new batch. Pre-BC I was obsessed with only wearing underwires...now they are painful. The wire rides right where my incision is! So, I have alot of pretty, lacy, pushup, sexy, worthless bras now! Burn em!
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If just our group alone started a fire im sure it would be seen from space.
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There is a thread here called Bonfire of the Goddesses - for exactly that reason. Toss anything you want on.
Lori - Good news about your hair. I haven't seen or felt anything new, but I have a lot of whisps that never left, so it's an interesting look - another reason why I don't go out without anything on. I think this would freak people out more than a competely bald head.
Markat - Sorry about your swollen hands. My feet finally seemed to get back to normal, but they're a bit poofy again. Sigh.
Kelloggs - I understand about the stiffness. I should get up and walk more often; I can spend hours editing at the computer.
I've been wearing the Fruit of the Loom sports bras that I got after my bmx, though a few times I've gone without. Someone mentioned that a Coobie bra is a great buy. I'm going to look into it, probably after my exchange.
I hope everyone has a great weekend.
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Last year for my birthday the DH and my stepkids got me a gift certificate for a one hour relaxation massage. About a month and a half later I was dx'd. I used that gift certificate last night and it was heaven! I didn't realize how tense I was and the therapist was surprised how tight I was through the shoulders and upper back. The leg massage felt wonderful, too as the Taxotere caused some real leg achiness for me. I wish I could afford to go to the massage therapist once a month....I highly recommend it!
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HI Kelly,, The massage sounds heavenly,so happy that it made you feel so good. Sounds like you are doing very well..How about this crummy Ohio weather? What happen to our beautiful spring?
I only have two more chemos then it is on to radiation for me too. I have been so lucky,no side effects at all..My MO did tell me last week that treatment 5 & 6 MIGHT make me more tired,but heck I can handle being tired. Look forward to your updates as you begin radiation. Have a great weekend in spite of the rain & cold..
Hugs Eileen
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Eileen - This weather is for the birds..but I hear it's supposed to be in the 70s again next week! I start rads on Monday, just got the call. I am so glad to hear you have done well with chemo. WOOT WOOT, only 2 more..you go girl! Have a fabulous weekend!
Hugs Kelly
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Ladies,
Had my last chemo yesterday! Usually I'm wired the next day from steroids but I'm strangely exhausted.
I didn't quite know how I felt yesterday. Was a bit surreal. The lovely volunteer, John, gave us yellow roses, and one of the ladies receiving her 2nd treatment gave me the scarf right off her head (I had commented on how pretty it was when she arrived). I was very touched by that.
My wonderful nurse Eileen had tears in her eyes.
So my next step will be radiation in 4 weeks.
Will check in again very soon, just wanted to share my news with you all and thank you all again for so much love and support.
Much love, Laura
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