December 2011 Surgeries - want to wait together?

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  • Ginger48
    Ginger48 Member Posts: 1,978
    edited April 2012

    Dave Matthews is definitely worth pinning up those drains and going if you still have them!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012

    Does anyone know?  Does the filling of TEs ever cause lower back muscle aches?

  • fitzdc
    fitzdc Member Posts: 1,467
    edited April 2012

    I had 3 drains total.  #1 for 1 week; #2 for 4 weeks, #3 for 7 weeks.  However, the horrible, awful #3  was for the flap surgery.  It was a pain, but I still was somewhat active.  Attached to my bra and it was not really a problem. Strange..... Now it seems like it was no big deal, but at the time I was ready to rip the darn thing out myself.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    Just about two weeks post-op and what do I notice tonight? I'm starting to get itchy. I HOPE HOPE HOPE this is NOT an allergic reaction, but have e-mailed the allergy doc, just in case it is so that he can hopefully see me on Friday if it is. Man I hope it's not another reaction, because that would SUCK! OK, I'm going to haul my whiny butt off to bed now. Goodnight all. I hope the morning brings comfort and not itchies.

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited April 2012

    Oh, no, cookie, I hope it goes away. Much love.

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited April 2012

    Cookie-hope the itchies disappear soon.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited April 2012

    Cookie-hoping you woke up itch free!!!

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    Morning update - it's a bit better this morning. Hope that means it's going away and isn't the nasty reaction. Keeping everything crossed. Have a great day everyone!!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited April 2012

    Cookie - hope today is a good sign that the itchies are going away! Keep us posted!

    ~~~~~~~~~~~

    Optifast is going well.....last night was class, and I lost 4.8 pounds last week. The only glitch - my ALT (liver function) numbers have tripled. Somewhat worrisome....I had HepB in 1982 (almost died) and am very protective of my liver.

    Doc says he is more interested in symptoms than numbers (I have none) but is sending me for an US on liver and gallbladder tonight at the hospital.

    It was so weird - I mentioned it to a my friend in class who is a 3 year ovarian cancer survivor, and she asked "Are you worried about liver mets?" I just stared at her. Never crossed my mind. But there is a higher incidence of liver cancer in post HepB patients, so better safe than sorry, and run the tests now. I'll also have additional bloodwork.

    Come to find out, several members of the class showed elevated ALT numbers in the beginning, which came down on their own. This is what I am hoping for.....that it's diet-related. There is some research showing that Optifast actually reduces the size of the liver, and causes it to release fats into the bloodstream. Hoping to get to the bottom of this mystery, and that I can stay in the program because it really does work!

    I love the products, it's easy to stick to, and I'm never hungry. If I have to take a break I will, which just means the TEs will be in longer than I'd hoped. Got them in December, was hoping for exchange in September. The only issue I'm having now is that the smaller I get, the bigger (and harder) my 620cc TEs feel - especially at night - it's like rolling over onto a boulder! Yell

    Other than that, life is good.

    Sending out hugs to all my December sisters!!!!

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited April 2012

    Blessings-congrats on the weight loss! Hope everyhting checks out ok with your liver and you can continue on your optifast program.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited April 2012
    Thanks, spunky....the docs don't seem too worried.....Smile
  • chrissilini
    chrissilini Member Posts: 313
    edited April 2012

    Blessings....congrats on the weight loss. I'm sure everything is just fine. I've been working on losing wt myself, just doing it the old fashioned way. I'm counting calories and exercising everyday. The weight isn't dropping as quick as I'd like but slow and steady wins the race for me. I've lost 11 pounds so far, 30 more to go. We can do it!



    Cookie...hope the itchy is gone.



    I'm doing well. Exchange was March 15 and I'm getting used to the new jubblies. I think one needs a little work though, a divot in one spot and it's a little lower than the other. Nothing that's noticeable in a bra so that's good.



    Hope all are doing well.

  • fitzdc
    fitzdc Member Posts: 1,467
    edited April 2012

    ah, weight loss.  Would love to drop my extra 20 but lack the motivation.  Plus, I love to eat!   DH traveling now and I end up eating less healthy when he is gone.  But I plan on making food changes for him due to high cholestrol so I will  make food changes for me.  Hope everyone is well.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012

    Chrissilini - did you ever get back aches from the Tissue Expanders?  Can I ask how many cc's you went to before exchange.  I'm up to 475 and thought I was happy. Now I think I will go for more. I feel like I have no guidelines on what I should do to be a full B or small C.

    Congratulations to any and all that can lose weight, period.  I think I asked this once Blessings, but is there a specific reason they want you to lose weight before Exchange? 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited April 2012

    Thanks, chrissilini - and congratulations to YOU! Slow and steady IS the way to go, and you're doing it the right way.

    Hi, Kam -  I made the decision to do Optifast on my own, because I asked my plastic surgeon what would happen if he put in permanent saline implants that matched the size of my TEs before I lost weight, and he said "The implants would look bigger afterwards."

    Well, I have in AMAZON sized expanders, and if he did match up the saline implants to the TEs I now have, and I did lose the weight later on, I would have stripper boobs. NOT what I want! I have about 40 more pounds to lose. My goal is 135 or 140.

    The other reason is one I hadn't thought of. I had to get my MOs approval before being accepted into this program, and when she saw I had applied to it, she was THRILLED!!! She said that if I hadn't done it myself, she would have referred me.

    She told me "The very best thing you can do for your overall health - AND your ER+ breast cancer - is to drop this weight, now!!!"

    Estrogen is produced in body fat, of which I have plenty. After I get off Optifast, I'll be taking the Estrogen-sucking drug Arimidex for five years. Someone just reminded me that this drug alone can add the pounds.

    So I'll be on the liquid diet for three more months, then slowly transition back to food. Most people on the plan continue to lose weight as they add regular meals to their days. Once I have been off the fast for three weeks, I can have surgery again, but I want to make sure I'm strong nutritionally, as well as physically, so I'm back at the gym. I'm expecting to have my exchange surgery in September.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    Congrats on the weight loss to those losing - I too am trying (I started well before my BC diagnosis) to lose. I"m down 30+ pounds with another 20-25 to go.

    The itchies are holding mostly steady, and now I'm sure that no rash will show up. How do I know that, because I was able to schedule an appt. with the allergist. He will make a special trip from his lab on campus at UCLA to the Dr. office just to see me tomorrow. He did ask that I cancel if there's nothing doing tomorrow. So now I'm SURE that I'll be rash free so that he can't see it. Ha! I am still itchy. I had an odd experience today, I had an itch on my belly and tried to scratch it, but couldn't feel the scratches. Could feel the itch, but not my scratching - that's just not fair!!

    I'm also not feeling 100%, was feeling very warm this evening so decided to take my temp, just to see - was 99.9, wondering if it's from the Tamoxifen or if I might be mildly sick - just what I need huh? I'm going to lay low tonight, that's for sure!!

    I am looking forward to my PS visit tomorrow so that he can take out the stitches that are sticking out of my hips, don't know if the foob has any or not, the steristrips are still on it.

    Have a good evening everyone!!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012

    Well, I have in AMAZON sized expanders, and if he did match up the saline implants to the TEs I now have, and I did lose the weight later on, I would havestripper boobs. NOT what I want! I have about 40 more pounds to lose. My goal is 135 or 140.

    Blessings - I guess I don't understand why you have to match them?  Can't you use a size of implants that match your future would be weight and figure?  Are you saying "the visual" would be hard for the PS or are you saying the body fat actually creates an issue?  This is my dilemna...ideally I would be at a lower weight so I could see how my final foobs would look, but was told not to try and lose weight during chemo (though it's difficult not to lose some) and ofcourse 3 weeks after chemo done, my PS wants the exchange to be done.

    Did the TE's every give you lower or mid back aches?

    I believe my MO said the Anti-Hormone therapy would protect one from one's own body fat so theoretically "we" would have those 5 years to lose the weight. I"m going to double check on that! 

    Cookie - hope you are feeling better. 

  • chrissilini
    chrissilini Member Posts: 313
    edited April 2012

    Kam...I don't really recall having backaches. The TE's were uncomfortable more at first but after the first fill not bad. I was filled to about 600-650 cc's if I remember right. I ended up with Allergan style 15, moderate plus, 700 cc's. I only had 2 fills prior. My PS filled as much as I could handle each time and by the 2nd fill I was filled as much as I could be. I asked him about going bigger. For me it was a body proportion issue. My originals were always small for the rest of my body and I figured I deserved something out of all this ugliness.



    He took in 3 different sizes at surgery and I was very clear that the bigger, the better. I could only go so big because I didn't have enoug skin to go huge. 700's sounds gigantic but they aren't. I don't see a huge difference from my originals, just sitting up a bit higher really. I'm a C/D cup depending on brand. I always thought I was a B cup before all of this but my PS said I was never a B.



    I think so much of it is body frame and proportion. I remember my PS telling me my originals had a volume of about 450. At 700 you'd think I have stripper boobs. Nope. I should think your PS should be able to give you some idea of where you need/want to be.



    Blessings....that's precisely why I'm working on losing the weight...the estrogen thing. I'm not on any hormonals and have to do something. It's actually something I should have done years ago.



    Cookie....hope you feel better.

  • Bogie
    Bogie Member Posts: 286
    edited April 2012

    Cookie after 3 surgeries and allergic reaction I feel your pain. It happened to me again with this past one 2 weeks ago. You may get lucky this time, hope so!!



    He didnt use Betadyne so now we know it's the surgitape and all adhesive tape, like a zillion ants biting me.. Keep the insicion aired out and for me dial soap and water worked the best to dry it out plain and simple. Done with capsular contracture surgery, only to find out from BS yesterday the other side I have breast or truncal lymphadema. Does it ever end!!



    At the end of my rope and I've had only two fills in tissue expander. Ggrrrrrrr....

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited April 2012

    Oh Bogie, I'm so sorry you have more issues to deal with-I hope you get a break soon.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    Bogie!! - sorry to hear about more allergic reaction, that sucks! As for me, I still feel itchy here and there, but no rash showed up so I didn't see the allergist today. Hopefully that means I'm in the clear.

    I did see the PS today, he took out sutures from the April 5 surgery and we discussed the next step surgery - scheduled for July 11. Right now I've got nothing in me but me, no foreign objects (well, except for the one voluntary one I've got.

    We have a soccer tournament with DS this weekend, so I'll be keeping plenty busy. Have a great weekend everyone and I hope that everyone is feeling good and looking to the future for fun times.

  • Bogie
    Bogie Member Posts: 286
    edited April 2012

    Thanks Spunky and Cookie.



    Spunk I just got in the IL group, next will by Lymphadema thread. Cookie..keeping my fingers crossed NO ALLERGIES this time. You go girl and have fun at the tournament and forget about all this. I'm going to a shower today and doing the same !



    hugs to allmy sister :)

  • fitzdc
    fitzdc Member Posts: 1,467
    edited April 2012

    Hope everyone has a great week!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012

    Chrissilini -  on the road to see my PS (a 3 day trip).  Found out she thinks I'm done. I thought I had 475, but am up to 525cc.  Ok, it was nice to see her and visit my favorite city on the west coast :)

    So while in the big city, always have fun going out to the good (but cheaper) restaurants. I've just discovered that the 4 doses of chemo I've had thus far have killed my taste buds.  Ok, losing one hair is bad, but losing one's taste buds....who knew how depressing that could be.  And all this time I thought the pizza I had last week,  that was so bland I threw it out, was not due to a decliing reaturant, but my own declining ability to detect flavor.  I finally discovered what was going on when we went to the same restaurant we went to 2 weeks ago, ordered the same thing, and what was mouth watering two weeks ago only had texture this time.  I can't tell you how depressing this is.  Imagine the exercise of eating food to be like having to do jumping jacks to get a workout.  (And I have 14 more weeks of chemo.)  ((((Scream)))))

  • fitzdc
    fitzdc Member Posts: 1,467
    edited April 2012

    Sorry about the taste buds!  That sounds horrible.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited April 2012

    Kam- that really sucks!  I hope that SE goes away quicky...

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    Kam - Ugh. Hope it gets better, not tasting food would be miserable.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012

    It is surprisingly miserable. It's one thing to be anorexic on chemo, but when you manage to eat you can still sort of enjoy it, but when one does have an appetite and food just yields texture and no taste, it is suprising how unsatisfying it is....to top it off, "sweet" still comes through a bit, but whether a piece of chocolate or orange sorbet, all tastes the same. Might as well be eating table sugar.

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited April 2012

    Kam-so sorry, hope it subsides and you get your taste back soon.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited April 2012
    Good news is I heard Taxol does not destroy taste buds and I'm done with the Red Devil (Doxiruben or "Adriamycin" - the culprit) and on to Taxol, as of today.  You can only have the Red Devil once in your lifetime (it can destroy your heart muscle, even up to 5 years later, or cause leukimia in 7% of patients).  Not all BC patients get AC (Adriamycin/Cytoxin)...it's one of the big guns.  Writing from my chemo chair!  (Just high on the benedryl at the moment Cool).

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