Starting Chemo April 2009

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  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Betsy, good to hear from you and to hear that your leg is moving in the right direction. Take care.

    Pam, I had four doses of AC followed by 4 Taxol. I had a neulasta shot after each of the AC infusions. I had a port, which was a little uncomfortable, but I got used to it and as Helen said, it is a better way to have the chemo.

    Wishing you much luck for the beginning of your treatment. Drink plenty and remember you are not alone. We have all found this group very supportive. I think you will definitely benefit from a group beginning in April 2012. Sending much love.

    Amy and Titan, miss you here!

    Hope everyone is doing ok today, hugs to you all, Judy x

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2012

    Doing fine here, just busy.  I did a presentation to a client for a big new project and just found out that I won it!  It is going to be a lot of work in the short term, but could be really good for me overall. When they called to tell me, I felt like "Yay" and "Oh no!" at the same time. But step by step I will work through it and I will learn a lot in the meantime.

    I have had SO MUCH TROUBLE taking off the extra 10-20 lbs I am carrying (since starting Tamox). You all KNOW how hard I work out!  So when I see the onc in a few weeks I am going to ask her if I can try Metformin. it is a blood sugar regulator that is in clinical trial to prevent bc right now. It may help me by keeping my insulin levels lower and possibly, hopefully make it easier to take some of the weight off. I wonder if she will give it to me. I have read about it on this site, some oncs do and some don't.  I'll let you know.

     Other than that, things are good. We are planning our garden and doing some other home improvement type things around the house. Funny how spring motivates you like that.

    Judy - congrats on starting the new job. But it IS an adjustment.  I know that we don't do any real socializing during the week at all. If we do anything, it is early and we are home by 9.  We go to a lecture series sometimes at the local university on Wed nights but it is over around 8:30 or so. I know it is hard for you to say no, and I know that friends/family are so important to you. But please remember that you have busy/full days awaiting you each morning and you need to get your rest.  And get some good take-out for your family some nights so you don't have to cool every night. It won't hurt them and they will love it. Some of the money you bring in can and SHOULD (in my opinion) be used to make your life a bit easier.

    In fact, I was thinking about this new project that will make me so much busier - I was considering hiring a p/t admin to help me with filing and stuff. But then I thought..no, what I really hate is housecleaning. I might hire someone to do that instead, freeing my time up a bit more from something I really don't like. Of course we have to see how much money this project really brings in first! Laughing  But that is my idea anyway.

    Love to all of you.
    Betsy I am glad you are starting to feel better. Sorry about the rain though. That can be dismal after a while.

    Love to all

    Amy 

    ps Helen your note to Pam above was so sweet & supportive. 

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Betsy, glad to hear you are seeing improvement.

    Judy, do take care not to overdo.

    Amy - very exciting about your new project. I understand what you mean about being excited and nervous at the same time - overall, these are good feelings. I totally agree about the housecleaning - give it up. I'm on Metformin - the last round of chemo caused me to become a little bit (if there is such a thing) diabetic. It doesn't help you to lose weight. But it's potentially good for keeping cancer away. I'm reading a book called "Wheat Belly" - the doctor who wrote it makes a compelling case for avoiding products made of wheat in order to lose weight. You might want to check it - I bought it at Costco but he also has a Wheat Belly website which has interesting info.

    I'm sure what I wrote to Pam could have been written by any of you .... but thx 

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Amy, good to hear from you and congratulations on the new project! Well done you!!! I am sure that it may be a little overwhelming, but getting help in the house is a great idea and will help you to focus on your work and other things you enjoy. I have help once a week, it is good to know that it is being taken care of even if I have to do a few touch ups here and there.

    You are right about the entertaining and socializing, I think that I will need to ease off on that for a while and just focus on working, my family and keeping myself as rested as possible. I have been trying very hard to watch what I eat for the past few months, but if my weight goes up even a little, then I simply cannot shift it. Strangely, the exact same thing happened about this time last  year. So, as long as my clothes fit me and I am eating healthily and excercising, I am trying not to think about it too much.

    Helen, I have heard about the theory that not eating wheat can help with weight loss; problem is, I cannot imagine not eating bread or baked goods, they are certainly my weakness Wink.

    Hope Pam is doing ok today. Hugs to you all, Judy x

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Judy, all those baked goods and ice cream are my weakness. Allegedly, giving up wheat causes those other cravings to disappear. I have to admit that the first couple of days I had huge cravings for some sweets that were in the house. By day 4, I just put them away. I'm finding it not as hard as I thought it would be. I'm not gluten free - just wheat. Don't know how long I can keep it up but I see nutritionist on Friday for a weigh in - I'll let you know.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Helen, sounds good, I would love to know how it goes on Friday. With the Passover Holiday coming up, it is going to be challenging to really watch what I eat. I know that I will have to make a big effort to get back on track after the Holiday.

    Hope everyone is doing ok today, sending hugs, Judy x

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Wishing everyone all the best for the Holiday Weekend!

    Sending hugs to you all, Judy x

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Happy Passover. Happy Easter .... to all .... regardless of what you are celebrating!!!

    I did go for a weigh in with the nutritionist today ... in total have lost 7.5 pounds in just over 3 weeks - so it's working. Although I have a mountain of weight to lose and this is just a drop in the bucket but at least it's moving in the right direction. I have given up wheat on my own - not suggested by the nutritionist - but she knows I'm doing it. She's also reading the book Wheat Belly but she doesn't believe there is a "magic bullet" to weight loss and I do agree with her but I'm going to keep it up. Also I'm using a website call "My Fitness Pal" to track what I eat. It's free and it's an amazing site. She wants me to eat a minimum of 1200 calories a day but if I exercise, I have to eat more. She said it's important to keep powered up so your metabolism works faster. I never believed in this but I am losing so I'll keep going. Hope everyone is having a wonderful long weekend.  

  • Titan
    Titan Member Posts: 2,956
    edited April 2012

    I had to go to page 2 to find you guys..lol.

    Hope everyone has a great Easter...and good luck with the job Judy..takes awhile to adjust to the new routine but you will be fine..

    I have a new "boss"..and I like him but I don't..he doesn't know how to be a boss...very inaccurate, likes to take a lot of time off, and just waiting until retirement..He is of a religion that thinks women are meant to be at home..not at work..it's hard to take sometimes...its hard to work for someone that doesn't know what they are doing half the time..I can't believe the company I work for puts up with this crap...I feel like I know his job better than he does...I just want to scream...

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Helen, really pleased to read that you are making progress with the weight loss. It sounds like a great start to me : - )

    Titan, thanks for your good wishes, I really appreciate the support that I am getting here for my new job. Sorry that you don't like your boss, must be very frustrating for you.

    Hope everyone is enjoying the Holiday weekend, sending you all hugs as always, Judy xxx

  • Titan
    Titan Member Posts: 2,956
    edited April 2012

    Haven't heard of wheat belly..is it related to beer gut and to love handles???

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Wheat Belly is the name of the book. The doc who wrote it claims wheat is the villain in our diets.

  • inthemoment
    inthemoment Member Posts: 538
    edited April 2012

    I hope everyone had wonderful holidays, and yes, I am one who now has to really concentrate to lose the two pounds I gained :(

    Helen, this is not the first that I have heard that wheat contributes to the weight around our waist - problem is, everything I like is made with wheat...sigh

    Sorry about your boss Titan - it is tough when you can't respect the person you report to!

    Judy, glad the job is going ok

    My onc app't is Thursday - really get down when I have to go there

    Geri

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2012

    Saw the oncologist this morning.  I don't know if you remember, but all throughout treatment, i had this old, cranky male onc and it was very stressful for me. Well last year I switched to a young woman in the same practice. Only saw her once and what a HUGE difference it made.  So knowing I would see her today made all the difference. I still hate going into the cancer center. But it was wonderful seeing her. She is so open, friendly, conversant - just awesome. She said that I was doing great and we just had a generally super-positive talk.  

    Of course the BEST part of it was leaving and knowing I don't have to go back for another six months!

    Glad it's over.

    Geri - good luck with yours. I know it's not fun. But it will be over quickly.

    OH she told me that as of 2014, I will only have to go ONCE/year.  That will be awesome!

    Titan - that sounds rough. How long till he retires? Maybe it's a GOOD thing that he takes a lot of time off. Might be easier with him not there than being there.

    Love to all! 

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2012

    OH one more thing - today at the oncologist,  when I was making my next appointment, they had a large blotter calendar on the table - you know the kind that has several months in large blocks so you can figure out what day is which when you schedule your next visit? It was very large - maybe 18x24" or so.  Well, being in the promotional products industry, I always note whose logo is on it, who sponsored it, etc.  It was branded with a HOSPICE on it and all their various locations, phone numbers etc.  I couldn't BELIEVE IT! I said to the receptionist - "You really shouldn't have that here for patients to see. These are people who are still fighting."  (i.e. not ready to give up and be reminded about HOSPICE!)  She sort of looked at me like i was crazy and said "Well we need it for the calendar."   BUT STILL!!!! Get a different calendar without reminding people that some of them are going to DIE from their cancer and need hospice one day!

    Does that strike anyone else as inappropriate, or is it just me?  (And if it's just me, tell me - I can take it.!) 

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Geri, really hope the Onc goes ok today, please let us know. I also have a couple of pounds to lose this week, that gets me down.

    Amy, good to hear you had a positive experience at the Oncologist, I agree that the calendar was inappropriate, small things can trigger upset - that needs to be considered.

    Sending hugs to you all, Judy x

  • inthemoment
    inthemoment Member Posts: 538
    edited April 2012

    Hi all,

    Onc appointment went well, and I "graduated" to every 6 month visits - every little step forward is a good step!  My weight was stable from 4 months ago, so while I am not happy that I am still 15 lbs over what I was when I was diagnosed, at least I am not putting more weight on, but what a battle to just sty where I am!

    Amy - the calendar it is probably not in the best taste, however, unfortunately, some people may need the services of Hospice, and for those that do, who may not be aware of what it is, or what it can do, the calendar may spark a question that could lead to a better quality of life.  Hard to know how it will affect peole, but you certainly have a point.

    Geri

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Geri, so good to hear that the appt went well and that you have graduated to visits every 6 months. As you say, every step forward is something. Hope you are enjoying your weekend and relaxing after the appointment.

    Hope everyone is doing ok and having a good weekend.

    Sending you all hugs, Judy x

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited April 2012

    Hi all,

    Sorry I haven't posted for awhile, with work and drs appts, I've been very busy. I had a melt down this weekend. I told my pt on Friday, after discussing all my issues, edema, tendonitis, weight gain and generally just feeling freakin tired of it all, including the weekly appointments, I was just about finished with it. Then she suggested I go to a naturopath and get acupuncture on my leg. Plus, I needed to lose weight. Just what I need more appointments and the comment about my weight  pushed me over the edge. I know she was talking clinically, as less weight lymph fluid flows better but  I said, I know I need to lose weight, I've started weight watchers, workout and eat right. She thinks my edema is systemic. I indicated I thought most of my edema is cause by the tamoxifin I'm taking. She said why don't you switch to AI's? I said because it's my body and I don't have luck on most meds. I think she realized she hit a button with me, and said wisely, let's table this conversation. I told her I was not going to the trainer she recommended as I needed my onc's waiver and hers and I forgot the paperwork. I said, it's a freakin 4 page waiver. I'm not under chemo, I just wanted guidance so I don't injure my arm or leg further on the machines at the gym. She said she would help me next week with a circuit I can follow. I think I surprised her with my anger. I guess I've hit a wall.

    I'm sick of my leg and arm aching constantly. I am shocked at what I see in the mirror. 

    Helen, one thing she said was I should eliminate wheat. Next she said, I need to eliminate alcohol completely. I told her I went to a dietitian and she said don't eliminate things in my diet? The mixed messages are driving me crazy. So I plan to just stay on weight watchers and eliminate alcohol for a while to see if it helps.  I will try wheat next. I also plan to check out the book you have read.

    I think I'm still ranting...my poor dh deserves a medal. It's not been an easy weekend. On top of everything, one dr. appt. today, I woke up with vertigo this a.m. I took a sick day. I need a mental health day as much as a day to nuture my body.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Betsy, so sorry that you are having such a hard time, (((hugs))) to you from me! It definitely sounds like you need a day to breathe. Having so many appointments and getting mixed messages can drive anyone crazy. Take some time to think things through at your own pace so you can make decisions that work for you. Thinking about you.

    I have just come back from a trip to the UK to visit family, it was booked before I started my job, so it was ok with them. It was great to spend time with my parents, sister, BIL and nephews. It is always hard to come back after being there. I am not even going near the scales till I have eaten sensibly for a few days Smile, there is nothing like my mother's cooking! LOL!

    Must get on with the unpacking now, sending you all hugs and hope you are all doing ok today.

    Judy x

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Betsy, good to hear from you. Believe me I feel the same as you do - I often think that I'm the only one who continues to struggle. It is tough - and impossible to ever forget that we got this disease. Sometimes I think the treatment is harder than the disease. I gave up alcohol with this second bc dx when I heard that alcohol raises your estrogen - while it would be nice to have a glass of wine on occasion, I don't miss it really. I've been off wheat for about a month now. I don't know if it's the wheat or just that I've been pretty good about eating only healthy food and watching my calorie, fat, carb intake and using that websit "myfitnesspal" - I've lost almost 10 pounds - lots more to go but I'm happy with the start. If you want i can PM you with some meal suggestions.  Still waiting for new grand baby - will let you know as soon as he arrives.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Helen, almost 10 pounds! That is great! Looking forward to hearing good news!

    Betsy, how are you doing today?

    Hugs to you all, Judy x

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Hi all, I am back at work today, already feel as if I was never away - I am not complaining, the people here are very warm and friendly.

    Betsy, hope you are ok, please let us know when you have a chance.

    Hope everyone is having a good day, sending you all hugs,

    Judy x

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2012

    Betsy - It has been a few days since you posted. I hope by now you are feeling a bit better. I know you have some fun things planned - the fall trip to Europe among them. I hope none of this physical stuff interferes.  It is hard when stuff keeps happening and it isn't just 'over' as badly as we want it to be.  I am confused about the trainer - did you decide not to go? In some ways, a trainer can really add value to your quality of life.

    My husband resisted for YEARS and finally a new trainer came to our gym and he liked him so he gave him a try.  This is a man (my DH) whose back has hurt for YEARS and he refused to do anything (except complain, lol). Now - a few months later - no back pain and he is totally obsessed with the gym and his training. And even stretching, which I've encouraged him about for years. Did he listen? No! But now, the trainer wants him to stretch and he's all about it. :)    Just sharing that to tell you that sometimes a fitness pro can encourage you and steer you in a good direction (and sometimes even make it fun).

    Re eliminating food groups - I know there is a lot of mixed info out there. Many approaches say not to eliminate anything b/c they are afraid the average person won't stay with it, so they tout a more moderate approach. But there are some foods that really don't contribute to our health very much. I think sugar, alcohol and wheat are among them. I've eliminated alcohol, and try to keep sugar to a minimum. I don't really eat that much wheat products anyway.  But if I could have the discipline, I would eliminate all three, and probably dairy too. But that type of eating (over a lifetime, not just briefly) is too restrictive for me. 

    I have this 20 lbs that will NOT COME OFF no matter what I do.  When i saw the onc, I asked for metformin, a very widely prescribed diabetes 2 medicine that has been shown to help with weight loss and is also being tested clinically as a bc preventative.  She took some convincing but gave me the rx.  The stuff I read said that many people lose 10% of their body weight in the first year of taking it.  I have the bottle on the counter - keep staring at it, not ready  to start taking it yet. But it might be something to consider. I'll report back with my results.

    Judy - glad your coworkers are nice to you. They should be. I KNOW you are nice to them!! I can tell you are the kind of woman who is warm and nice to all.

    Love to everybody.

    Helen - baby yet? 

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    No baby yet. We are all on high alert. Judy, glad to hear that you are in a good work environment. Amy, interesting about the trainer's effect on your DH. I've been going to therapeutic yoga since January and I LOVE it. It is definitely helping. I go only once a week - wish I could do more. I started Metformin 2 years ago - didn't drop any weight with it. I'm also trying to keep sugar out of my diet, the only dairy I'm having is plain Greek yogurt and so far I'm finding the wheat not so hard to eliminate. I don't see the nutrionist again until next Tuesday so I'm not sure what the scale would say but I'm guessing that I'm over the 10 pound mark now. As you know my hair never grew back well after chemo -- and with the Arimidex it has been continuing to thin -- upsets me a lot - anyway yesterday I caved in and started wearing a hairpiece - I guess it helps but I hate the fact that I have to have it. Also tattooed my eyebrows - because they were almost nonexistent after chemo ... will this never end?

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Amy, was so interested to read about your approach to a trainer, I am so pleased it has been such a positive influence on you and your dh's lives.

    I also don't think I can eliminate complete food groups. I try and keep everything in moderation, I am not sure it actually helps me lose anything, but keeps me more or less at the same weight.

    Helen, I am sure it was hard for you to put on a hair piece, it is just the constant reminders every day of having had the disease, I don't know if it does ever end. My eyelashes are tiny now, they never came back long like they used to be, but I found a good clinique mascara which makes them look quite good. Looking forward to hearing about the new arrival!

    Betsy, I hope you are doing ok this week. Geri and Titan, hope all is well with you both.

    Sending you all hugs, Judy x

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited April 2012

    Hi all, hope you are all well. I am doing ok. Has been a tiring week, back at work after our trip, but a good kind of tired. I have slept quite well the last couple of nights which is good. I am looking forward to a nice quiet weekend, to catch up on some rest.

    Next week, on 1st May, I have my colonoscopy, which I have been dreading, but I am not going to put it off again, the Onc said that if I don't do it this year, then I will have to do it next year, so I thought I would get it over with.

    I have a good friend who found out that she is BRCA 2 and this week she had an elective mastectomy and reconstruction. She has had the DIEP. I have been in touch with her husband daily and she is in a lot of pain and the doc says it is going to take a while till she recovers. I will go and see her when she is home from the hospital - it has actually been hard for me that she has had the surgery. It has brought it all back again. I am waiting for the CT results to see which surgery is suitable for me and then I will go back to the plastic surgeon. I will keep you posted.

    Hope everyone is doing ok and that you all have a relaxing and good weekend.

    Sending you all hugs, Judy x

  • inthemoment
    inthemoment Member Posts: 538
    edited April 2012

    Hi to all - just wanted to stay in touch...it has been a difficult week...I had to terminate a director in my office (she had been warned and counseled, but as is the case in most situations, she did not see her issues as I or the company did, and she was conducting a personal vendetta against two other employees, so there really was no choice but to let her go (she had worked for us about 8 months).  I had known I had to do this for about three weeks and it kept getting put off by my boss for one reason or another, but this week I said I had to do it and get it over with because the stress of anticipation was getting to me..I was not sleeping, not eating well, irritable, etc.  I'm glad I spoke up and on Thursday I told her.  That is the worst part of my job - necessary, but absolutely the worst part.  And now I need to take over her responsibilities until I hire someone.  Oh well, comes with the territory, and at least it's over.  Oh, and after she left (yelling and hollering I might add), I found that the paperwork that she told me had all been done was not even started...some vindication for the way things turned out.

    So, this has been my R&R weekend...thanks for listening (as if you have a choice...lol)

  • hrf
    hrf Member Posts: 3,225
    edited April 2012

    Geri, I understand how difficult it is. I've had to terminate employment of teachers and even a principal as well as demotions. When you deal with people's lives, it's difficult to do these things - especially if you do truly value the people who work with you. But it happens. I hope you are feeling better.

    Judy, take it easy - don't overdo. Colonoscopies are not fun but necessary, right? Just heard this week of 2 people who have been dx with colon cancer. It is very curable when found early. 

  • Titan
    Titan Member Posts: 2,956
    edited April 2012

    Oh yikes..the colonscopy..I keep putting it off and I know I shouldn't..dang it...i just don't want to go there...I'm two years over due

    Geri...where can I apply...I'm ready for a change.....but then again it would be bad if you would have to fire me...lol

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