Are there supplements that help with fatigue?
I'm currently on Xeloda and wondering if anyone has found any natural supplements that help with fatigue? I can manage all of the other side effects but hard to deal with the exhaustion and always feeling tired. If there is something that worked for you, I would love to hear about it.
Comments
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Good question. Would love to hear any advice. This isn't a supplement but when I was going through radiation Tx, the nurse suggested walking 1/2 hr a day to help beat the fatigue. She said moderate exercise also gives a slight boost the immune system. If you're having any sleeping related issues, I know there were some threads on that; some members suggested accupuncture, etc. Best of luck. Fatigue isn't fun.
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I use Vitamin D, and it seems to help exponentially with energy levels. When my levels were low, I had very low energy. Just getting up into the 50 range helped me enormously.
Also, make sure you take a daily B Complex, as B vitamins are crucial to energy and neurological function. I take an extra B1 when I need to have an "edge" at work, and it seems to help me. I've heard the same for B5.
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i take a tblspoon of molasses.. all the iron and minerals are really good for the blood... let's it carry oxygen better. i mix brewer's yeast for the B vitamins with water.. i love the taste. D3 and Calcium if i feel i can take even more pills
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Second the Vit D. I don't know if mine are low, but I just had it tested. My daughter who is 15 is a vegetarian and was struggling with fatigue. I thought she was anemic. Turned out she was really low in Vit D. She's been taking a massive dose for four weeks and is already feeling better.
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I've upped my vitamin D to 10,000 IU's daily to get the maximum benefit and try and get my levels from in the 50's to the 70's. I get a weekly vitamin infusion (Meyer's cocktail) which is loaded with vitamin C, B, and other minerals. I didn't do rads, but the tamoxifen is making me tired and in need of a nap daily. I'm not used to that.
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I met with a bone endocrinologist last year and he thought there may be risks when taking super-large doses of Vit-D. My complete notes on that meeting with him are posted in the Bones forum, but here are my notes related to Vit D. It was a long appointment and we discussed many things so I didn't get into details about the toxicity risks of too much Vit D. But just an FYI that it might be worth investigating before taking super large doses."Vit D. He said the general recommendation on Vit D supplements of 600-800 UI is probably too low and he thinks 1000 UI is probably better. He knows that some cancer researchers are recommending extra Vit D. That's not his expertise but he said there is no known toxicity when taking 3000-4000 IU day. (this should be the max including food and sun exposure). In my case, he recommended a supplement of about 500 IU day. However, some supplements are mega-doses (like 10,000 IU/day) and that's too much."
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I take a mega dose B complex at lunch. Really helps.
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I take B-12 sublingually. It's a small tablet that dissolves under the tongue. I also mix 1 TBL. of yeast protein(contains B vitamins) into 1000mg liquid Vitamin C. I swallow it down with a gulp of water.
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I take a complex multivitamin and mineral supplement once a week, and also an iron tablet on top of that. I also eat as much protein as I can. And then there's a simple walk a few days a week and drinking some extra water. That walk, even if you can only do a little at a time, you'll find if you keep at it, even intermittently, it will slowly build up strength. Soon you can walk farther, do more regular stuff in general. But when you need to rest, THEN REST. Lots of naps, just fall asleep whenever. They say after radiation, and I say after ANY cancer treatments especially chemo, that it takes six months to a year to get over the whole thing.
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The best thing I have just found is Olive Leaf Extract - one capsule in the morning and I have started taking less naps. I am a Xeloda Diva as well and along with keeping my vitamin D levels up (I get the levels checked with my onc and he recommends I take 2500 units a day), the Olive Leaf is the only thing that I have taken that actually is having a good result. If you can't find it, just ask the pharmacy to order it for you - it runs about $6.99 for a 60 tab bottle. I use Walgreens but I am sure any other pharmacy would do the same for you.
I would check with your onc on the massive vitamin B's - I was cautioned against taking a multi vitamin and I should get enough B's and C's from eating well. Ensure Immune is great too especially if you are like me and when the morning pills are to be taken with food, I just can't eat first thing in the morning and the Ensure gives a good coating to my tummy to avoid any issues until I do eat later in the morning. Oh, and I did check with the onc about the Olive Leaf and the only thing was that it may lower the blood pressure - with Xeloda possibly raising the blood pressure - its a win! It may also cause some loose bowels but with the pain meds I am taking (don't know if you are) and constipation being an issue with them, it has actually helped me without having to resort to other options.
I just found it two weeks ago and have already have noticed a pretty significant reduction of the fatigue!
Best to you!
LowRider
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I asked onc to check my B-12 level. It was so low I now get monthly double dose B-12 shots. They definitely help and insurance pays.
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I use patches that contain the methylcobalamin form of B12. They boost my energy and my B12 lab came back near the top of the range. I've tried the sublingual B12 with the cyanocobalamin form and they didn't perk me up at all.
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Have you tried keeping your blood sugar level even? i.e. a anti-inflamatory diet such as a diet for diabetics. It helps me to have 5 smaller meals a day rather than 3 regular meals and to make sure I have some protein at all of them: nuts, yogurt cheese beans (humus and carrots is one of my favorite snacks). It will take about a week of eating like this before you'll see a difference in your energy level,and I still get tired, but it is nothing like the exhaustion I felt before I worked on keeping my sugar levels even.
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i take brewer's yeast....(those b vitamins are great) and a tablespoon of molasses.....(helpful iron and minerals). i never did too well with stimulatives like guarana or sugar..besides, i drink coffee)
Xeloda is tiring - it's a real chemo even tho it looks like a pretty pink pill. i took it for 13 cycles. I think the most helpful thing for me to do was take a nap. I got up earlier to accomodate a mid-day break.
There is a very helpful thread on Xeloda with tons of tips on dealing with the side effects.. particularly the foot mouth dryness. Many of us have responded positively to Xeloda.. i really liked it. and the fact that one keeps one hair.
http://community.breastcancer.org/forum/8/topic/772113?page=45#idx_1350
Search for "All about Xeloda" (search box is in upper right hand corner of the BCO task bar, if this link does not work for you.
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On the main breastcancer.org site, there is some additional information on ways to manage fatigue.We hope this helps!Your Mods
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