Nurse said its okay to use needles and blood pressure on me

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  • camillegal
    camillegal Member Posts: 16,882
    edited April 2012

    Thank goodness no one gives me a problem about it--Neither one of my arms can be used and they are great about following procedure--they do use my port for blood draw--but that's it I've had no problems???????

  • beth1965
    beth1965 Member Posts: 455
    edited April 2012

    Wow Ladies i cannot thank you enough for all your replies and information you are all amazing. I am on my way to a few different hospitals this week and i feel very confident that what you have all told me is correct i am ready to stand my ground! I bought a medic alert bracelet and copied links you's have listed and sent me i feel armed and ready to go to battle...lol..or at least thats what it feels like. But thanks to all of you i never have a moment i feel alone through all this i can't thank you all enough.  Hugs to you all

  • Sian65
    Sian65 Member Posts: 99
    edited April 2012

    Here in Sweden they say definitely no to blood pressure.  They say taking blood is ok but only if it can be drawn without a strap.

    I have a PICC on my right (had it in since last October) and mastecomy on my left; I get blood pressure taken from my leg. Bloods are taken from my PICC if the person is qualified, but most of the time blood is taken by a technician so it has to come from veins on my left - some of which are now permenantly scarred and useless due to this.  I was just in hospital for 4 days and it took them 11 attempts to get 3 samples.. ouch!

  • lago
    lago Member Posts: 17,186
    edited April 2012

    Bottom line is its your body. I found the nurses and techs will do what's easier for them.

    When I went for my liver can I told them before I went that they were to put the IV in my foot (like they did the last time which I also had to fight for). The tech said to me "I notice that last time you got the IV in your foot but today we are using your arm." I told him no way. And if he wouldn't use my foot I was leaving… and I"m not kidding. Ended up he didn't have enough experience yet to do it in my foot so he had to get another tech to do it.

    Yes you have to fight for this. (I have 10 nodes removed in the LE arm and 4 nodes in the other where I do feel heaviness at times. No one is sticking me in my arms!)

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2012

    A bit OT but not totally - for those who have to use foot veins. They usually hurt like Hades to use, so have you ever asked your Drs for EMLA/lidocaine cream to use for those draw/accesses? We haveit for port accesses so why not for painful draws? Just a thought.

  • lago
    lago Member Posts: 17,186
    edited April 2012

    I don't think they are that painful. I've had 4 so far. Granted it does depend on who is doing them. Some are better than others.

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited April 2012

    I wanted to add a note about PICC lines.
    DH had one when he was treated for cancer at a major university hospital.

    He had all his blood work done through the PICC line, as well as receiving his chemo thru it.

    If they don't have a special unit for drawing blood in the oncology area, ask to be transferred. If you are already there, ask for the oncology nurses to come down to do your blood draws. You just have people who don't know what they are doing, and there is no reason for you to suffer through blood draws when you have a line in.
    THAT IS WHAT THEY ARE FOR.

    Incidentally, be really careful on the lookout for infections. The antibiotics that they gave DH for his PICC line infection wiped out the good flora in his gut, so he ended up with a really bad case of C. diff.
    Good luck with this

  • rgiuff
    rgiuff Member Posts: 1,094
    edited April 2012

    I had only 4 nodes removed on my left side, and when I questioned my surgeon about lymphedema risk, she said I wasn't at risk for it, and no problem about using the left arm.  So when asked by medical personnel which side should be avoided, I've always said it's not a problem to use either side.

    However, after reading a few posts on here about those of you who got lymphedema even with very few nodes removed, I think I no longer will allow anyone to touch that side!  I'm very sorry for anyone who has had to struggle with this, but I thank you for sharing your experience.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited April 2012

    I previously asked the phlebotomist if blood can be drawn from my foot. I was told I'd need to get a Dr to order it. Sooooooo,convinced my internist to write for my blood to be drawn from my foot.

    I arrived at the lab this morning for my draw. Waited my turn & was taken to a drawing station with the chair/armboard set-up. I told them it needed to be drawn from my foot as written. I was taken to a room with a table/pillow set-up. The phlebotomist left the room & came back with another phlebotomist who proceeded to tell me blood couldn't be drawn form my foot because of legal/licensing reasons. I told them I didn't believe them & took my lab slip leftYellYellYell

  • lago
    lago Member Posts: 17,186
    edited April 2012

    Good for you coraleliz. The reason is they worry about infection. Increased risk in the foot

  • 3girls
    3girls Member Posts: 94
    edited April 2012

    Hi I am a cardiac nurse and have been practicing for 27 years.  It is common knowledge and routinely practiced where I work not to use the side that lymph nodes have been removed.  Using the forearm of the PICC arm or the leg would be totally acceptable.  Good Luck

  • rk85
    rk85 Member Posts: 145
    edited April 2012

    Lago, do you know why they worry more about infection in the foot?  It seems sticking an arm with compromised lymphatics would pose the greater risk of infection!  Also, if its a hygene issue, why not just wash the foot with antibacterial soap before the draw?  How frustrating, I sympathize with you Coraleliz.

     Can anyone who has had draws in the hand and foot compare the level of pain?  I too have only one good arm and am wondering if I should try for the foot sometimes or risk scarring up the good arm.  My veins are very small and hard to find, so it takes 3 or 4 tries each time.  Ouch and Yuck.

  • kcshreve
    kcshreve Member Posts: 1,148
    edited April 2012

    I get draws from my foot.  CPL, Quest, and LabCorp will not draw from the foot, so I have made arrangements with the hospital's lab to do my draws.  That was fine until my last time, in which they charged me $5000 just for the draw.  Makes absolutely NO sense to me....but my insurance paid that - unbelievable!  That was the last time I went there!  I then found that one of my doctor's nurses will draw from the foot - with no extra cost.  They then send it to Quest.  THat's my way around the whole ridiculousness.  I'm not wild about using my foot, since my veins are not any more cooperative there than anywhere else, but I have no choice.  For me, it's usually quite uncomfortable, but not horrible.  I am always tempted to use my arms, though.

  • rk85
    rk85 Member Posts: 145
    edited April 2012

    5k for a foot draw!!!???  Where do I sign up to become a foot-blood drawer?  I'll work 15 minutes a week and retire in a few years.

    No wonder our health care/insurance system is broken.

  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited April 2012

    Free bracelet link:
     
     
    Oh, and I just had surgery in March and once I mentioned LE in my left arm, they put a note on my chart so as to leave that arm alone.
     
     
  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited April 2012

    I had SNB w 3 nodes removed; developed mild truncal LE under breast and armpit on side of lumpectomy about 8 months after surgery. BS said I was not at risk, but most labs/techs refused to draw or take BP's on that side, even when I said they could (thank god). Not sure what prompted the LE, as I am certain I never got stuck or BP's on that side. I sometimes wonder if my post-trmt mammo might have caused it, but couldn't really avoid that (nor did I want to, really)

    I had blood drawn from my port at my local hospital each week before chemo rather than drive to the cancer center. My hospital is rural, in a town of 2800. But 3 different RN's were capable of drawing from the port and when it wouldn't cooperate one time (I got some sort of fibrous clot that had to be "busted") the hospital med tech drew the blood (on the non-surgical side of course!) She is a saint; I have offered her room and board to go with me when I had surgery and port placement/removal, she is that good. First stick, pain free, every time. When I had my lumpectomy at a hospital in a city of 400,000 it took the surgery nurses 8 sticks before they found a vein. EIGHT. Protocol is 2-3 tries and then they have to get someone else. If you are getting stuck more than that by the same person, demand someone else. You absolutely have that right and after 3 attempts there is the theory of diminishing returns at play. It ain't gonna happen.

  • theBCavenger
    theBCavenger Member Posts: 313
    edited April 2012

    Hey All - Where do you get a bracelet and what exactly does it say?

  • lago
    lago Member Posts: 17,186
    edited April 2012

    rk85 if you only have nodes removed on one arm then there is no reason why you can't get a blood draw from the other arm. I know before BC I always had blood draws from my left arm. Never thought about switching.

    In my case I had 10 nodes removed in the left (now has LE) and 4 nodes removed in the right. Right are feels heavy at times. This is how the LE started in the left so no way is anyone going to stick me in that arm.

    Right now I still have my port so if I need a blood draw I can have the chemo room do it even though I've been done with both chemo and herceptin for a while. Once my port is removed I will have to do what kcshreve does because I believe Quest is where I usually go.

    BTW my LE MD gave me two of those free bracelets. They are ugly as sin. You won't wear them. They look like this:
    http://www.lymphnotes.com/pic.php/id/334/

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2012

    Since I have bilateral LE I do get blood draws in my feet. I don't notice any difference in pain level, but I do insist on lying down (easier for the phlebotomist too!) I get mine drawn at LabCorps, and as long as its written on the doctor's order they haven't refused (they DO refuse if I call and ask them, but if I show up with the order they don't -- which is not to say they're happy about it, just that they do it).

    I drink water like crazy the day before, wear a microwave heating pad on my foot all the way there until she's ready to draw (being careful not to get it too hot), and I keep my legs moving while waiting to be called to keep things circulating. In other words, I hobble into the lab with this heating pad wrapped around one foot (and of course both arms in garments or wrapped) and sit there bouncing my legs on the floor like a nervous Nellie until they call me in. Judging by all the furtive glances I get from my fellow patients, it no doubt helps to keep their minds off their own woes. LabCorps should probably pay me for entertaining their customers.

    I do have a very nice phlebotomist who not only does this without any fanfare, but invites her cohorts into the room (with my permission) so they can learn to do it too. One watched and then asked what was different about doing the foot, because it looked the same to her. My gal said, "The difference is it's easier to do in a foot because the veins are bigger." So much for all the hoopla about foot draws!Undecided

    Liz, I'm so sorry about the "hoopla" they gave you. Do you have a doctor who will champion your cause and help convince them to do it? One woman here a while back got the lab to do it by asking them, "What would you do if I didn't have any arms?" Whatever works...

    Binney

  • lago
    lago Member Posts: 17,186
    edited April 2012

    My mom says the difference is the veins tend to roll more on the foot. She was a lab tech way back before I was born.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited April 2012

    What would you do if I didn't have arms? LOL (& I needed a laugh. thanks Binney). I'm having trouble getting my docs to go along with this. My internist was trying to convince me that my lymphatics are working just fine because she didn't see any edema. And that it's not really the LE you have to worry about but the infection/cellulitus..........I did ask her to write on the lab requisition to draw out of my feet & she did(but acted a little frustrated, like I wasn't listening to her).

    I had bilateral nodes removed 4 on one side, 5 the other. My left arm aches about 50% of the time. I recently went for a lymphedema screening. The therapist called it stage 0 & that she wasn't sure if the aching was related to LE or not. She thought everything I'm doing exercisewise is fine & I should consider sleeves for air travel(didn't sound like a strong suggestion). Her only recommendation for me was to have BPs & blood draws in my lowers extremities. She wrote this down on the copy of the Position Statement of the NLN she gave me.

    I have larger than average prominent veins in both my upper & lower extremities. No one has ever missed. I'm not worried about pain.

    I'll try the lab at a larger hospital. Silly me, I went to the lab of a small hospital where I was previously told my blood could be drawn from my foot if the doctor ordered it, grrrrrrrrrrrrrr. I'll make sure I'm never a patient there!

  • rk85
    rk85 Member Posts: 145
    edited April 2012

    Lago, that bracelet definately wouldn't win any fashion awards.  Plus it has the added benefit of looking like a hospital bracelet, which none of us here probably wants to be reminded of. 

    Before BC, I never gave much thought to which side blood draws etc were done from.  It was a rare enough occurrence that it really didn't matter.  But now it is happening so often, I just wonder if the veins on the good arm are getting scarred from the repeated pokes.

    Binney, that is too funny about your waiting room antics!  I never thought to use a heating pad or bring it to the blood draw place!  I think by doing this you are also showing them that you are serious about where the blood needs to be drawn from.  I wonder why they tell you no on the phone but then do it if you show up.  It seems like more training needs to be done on this issue. 

    But I shudder to think what those who need foot draws will go through, because it is hard enough to find someone who is good at drawing from the arm/hand.  If the foot tends to roll more, we are in for a lot of foot jabbing.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited April 2012

    I only had sentinel node removed on both sides and I have LE. Still trying to educate my docs. Thanks for the info and links.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited April 2012

    Hi here in New Zealand we wear a Medic Alert Bracelet.  They are pretty.  You can get them in gold, silver, puter,  pretty colors mine is pink and it reads "CA Breast Left. Lymphoedema Alert.  No BP, no injections, or IV leurs in left arm at all times".  They never rust and look pretty on your arm. They are not like the hospital pink ones. These are galvanised and look like ID bracelets.  Hope this helps. Annie     

  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited April 2012

    The free pink hospital-like bracelet, I posted the link to earlier is fine for going in for surgery, but my usual one I wear for day to day is from http://www.n-styleid.com and they have real pretty ones.

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited April 2012

    Wow!  I am 19 years post my original lumpectomy during which 10 nodes were removed and to this day every doc and nurse agrees that we cannot take blood or blood pressure on that side!

  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2012

    When I was researching foot draws and IV's for Stepupspeakout, all I could find was a higher incidence of infection in leg IV's. Nothing about foot draws.

    Here's the link, and on the page are links for how to take a leg blood pressure:

    http://www.stepup-speakout.org/essential%20informat%20for%20healthcare%20providers.htm---

    For patients with bilateral lymphedema or bilateral risk, learn how to take leg blood pressures, foot blood draws and foot or neck IV's if necessary. http://www.medscape.com/viewarticle/471829

    While popliteal thigh pressures can be obtained, many patients find posterior tibial ankle blood pressures are more comfortable: http://www.ehow.com/how_5729015_check-blood-pressure-ankle.html

    http://www.ncbi.nlm.nih.gov/pubmed/8912031: "Since the mean blood pressure readings obtained at the arm and at the ankle were statistically equivalent, we concluded that the ankle cuff placement provided a reliable alternative to the placement of the cuff on the arm."

    Concerns have been raised over the safety of intravenous lines in the lower extremity: they have been associated with a higher risk of infection, should be avoided when artificial joints are in the limb and this author could find no study that documented increased risk of deep vein thrombosis. The higher risk of infection needs to be weighed against the risk of exacerbation or triggering of lymphedema with the use of an IV in a limb with compromised lymphatic function.

    I work in a rad onc office, and the primary nurse gave me a chart of a bilateral patient yesterday, and with absolutely no fuss, told me she took the blood pressure in her leg. I adore this woman.

     Kira

  • lago
    lago Member Posts: 17,186
    edited April 2012

    I actually find they get a more accurate BP reading in my ankle then my thigh or calve. It still runs a bit high but still normal.

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