Has anyone started a Dec 2011 group?

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  • Baileybump
    Baileybump Member Posts: 172
    edited March 2012

    Lori and Rachel - - soft virtual hugs to you.  As miserable as you feel, this is the last treatment.  I know it doesn't help the immediate feelings, but let it help you look into the future.  Thinking about both of you as you curl up this weekend.

  • markat
    markat Member Posts: 909
    edited April 2012

    Lori hope you feel better soon. #6 was definitely my worst.



    Rachel I hope things don't get too bad. Try to rest and take care of yourself.

  • dougieswife
    dougieswife Member Posts: 171
    edited April 2012

    Thank you all for all of your kind words....I am still very fuzzy and will respond later.



    My RBC's have dropped to a 24 so they are prepping me for a transfusion this afternoon. Just have to hope it gets here so that I don't have to drive another 45 minutes tomorrow and be in misery another day.



    Hope everyone is bouncing back much quicker than I am!!!!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2012

    Lori - I am so sorry you have had such a horrible time.  Thank God this was your last treatment!  Hopefully a transfusion will make you feel alot better and you will be on the way back to recovering.  I'll be thinking of you....HUGS

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited April 2012

    Lori, I have my fingers crossed for you. I am sad for you that the last one was so hard, however it is the LAST. In a couple of days you should be feeling better. Did you do the neulasta/ neuprogen shots?



    Like I said fingers crossed.

  • markat
    markat Member Posts: 909
    edited April 2012

    Lori I am hoping that this takes care of it for you. So sorry you have to go through this.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited April 2012

    Lori - Sorry to hear about the rbc's. I hope they recover without a transfusion. Feel better!

    Yesterday was rough, but I stayed in bed late today and am actually feeling a little better, I think, than I did this time last treatment. But my fingers are tingly and my heels a bit numb. Downing the oatmeal okay at least. 

  • dougieswife
    dougieswife Member Posts: 171
    edited April 2012

    Okay...reading my last post, I was so out of it.



    So...I ended up getting one unit of blood. I feel so much better. I guess the standard is to type and cross match one day and then get the blood the next. I don't remember too much of the why but the hubby and I told them there was no way I could go home and come back tomorrow. We live 45 minutes away and I couldn't hold my eyelids open much less walk myself into the house. It took the nurse and my hubby to get me from the wheelchair to my seat this morning.



    So...the moral of the story....speak up! You know your body and what you need!

  • Baileybump
    Baileybump Member Posts: 172
    edited April 2012

    Oh gosh, Lori.  So sorry you're going through such a rough time with this treatment.  The last one really wanted to kick you. . .but you fought back!  I hope the next few days bring you a bit more strength each day. 

    Kelly - how have you been?  I don't remember seeing many posts from you recently.  Are the kids behaving?  Wink

  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2012

    Hi Bailey....I am doing ok.  I finished chemo on 3/22 and am starting to feel better now.  The last TCH hit me pretty hard.  I have an ECHO and a PET scan on Thursday so the scanxiety is starting to kick in.  I'm still going for Herceptin for the rest of the year but will find out what the next step is next week.  Thanks for asking!  The kids....hmmmm, that's calmed down a little bit, but there is always drama!

    Lori - So glad you are feeling better.  You have had such bad luck I am glad you are done and can hopefully start to feel better every day.

    Rachel - glad to hear you are doing pretty well.

    WE DID IT GIRLS!!!!

  • dougieswife
    dougieswife Member Posts: 171
    edited April 2012

    I am feeling SOOOOOO much better!!!!!  Oh my word...I feel like I didn't even have treatment just on Thursday!!!!  

    WE DID IT!!!!!  And now I'm ready for a vacation!!!!!  Not sure it will be in the budget, but I am going to try!!!  We are about 4 hours from the ocean and I just want to go to the ocean...I want to feel the breeze in my hair (however much I will have by then), feel the warm ocean air, hear the waves crashing, watch my little guy play....I don't know, maybe I am being a little dramatic, but I do...I really, really do just want to go to the ocean.  

    AND....on the hair note...I'm feelin a little fuzzy ya'all!!!!!  I never did go completely bald, I had a lot of stubble, but I have about 5 hairs that cover my ear!!!!  And my one bald spot is very prickly!!!!

    I honestly can not wrap my head around the fact that I am finished with chemo...what about you guys????  

    OH...and on a completely different note, sort of...Have any of you seen the news report (I just saw it today) that breast cancer is over diagnosed??  The article suggests that many breast cancers "won't really cause harm".....WTH?????  Had I waited even ONE more month, I would have a completely different outcome!!!!!  REALLY???  They said, once you choose to find out with a mammogram, you have no choice but to treat it.  CANCER is CANCER....you can't just say, oh, well, I'll wait till it causes a real problem!!!  Oh how I hope this is not the future of BC in America.  

  • Mardibra
    Mardibra Member Posts: 1,111
    edited April 2012

    Welcome to this side of the finish line!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2012

    So happy for you Lori!  I feel the same way about the vacation.....I want my ass in a chair with my toes in the sand, bring on the ocean!  I'm gonna try for that also, even if it's not in the budget...and I live quite a bit farther from the ocean.  I say treat yourself, you deserve it!

    mardibra - Thanks!

  • FLislander
    FLislander Member Posts: 243
    edited April 2012

    Congrats to all my PFC sisters and many thanks for being there to share all our SE and pull each other through! Couldnt have done it without you all. I'm 5 weeks PFC and got white fuzz that is now turning black? Maybe half inch, not my previous color.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited April 2012

    Lori - Glad to hear you're on the rebound. I actually woke up this morning feeling much better than I had expected and for the first time thought, could I really be 'done'? Sorry you needed the transfusion, but it's good you got the treatment you needed.

    BC 'overdiagnosed'??? Unless they're talking about DCIS as being 'precancer.' And I've seen way too many women here who start with a dx of DCIS and wind up finding out it's more to say we can take it easy. But that's what happens when people who aren't the actual doctors treating their patients get to make the rules the rest of us have to live (and die) by.

  • seacretgardn
    seacretgardn Member Posts: 269
    edited April 2012

    Hi Ladies, So many of you are finished with chemo, and I'm so happy for all of you. 

    I've been checked out for a while, have been struggling with some things.  Also looking at 4 more taxol weeks.  I sometimes look back and just can't believe how far we've all come. 

    I am grateful to God and grateful to all you wonderful ladies for being here when I sometimes felt I had no where or no one who understood. 

    I hope you all are on the upswing and gaining strength. 

    Meeting with a radiation oncologist this Friday to map out the next part of this journey. 

    Good day to all, Hugs & Love, Laura

  • seacretgardn
    seacretgardn Member Posts: 269
    edited April 2012

    FLIslander, My thoughts and prayers are with you tomorrow as you go for your surgery. 

    Laura

  • FLislander
    FLislander Member Posts: 243
    edited April 2012

    So good to hear from you Laura! All my well wishes are with you.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited April 2012

    Lori!! I am so glad for you. You sound like a different person from a couple of days ago. Congrats !!!! I am going to the ocean too, leaving May the 28th, got to get on a plane and fly to fort Meyers Florida to do that but definitely well worth it.



    I start rad on the 10th, 20 shots, got my marking yesterday. Td them I did not want permanent tattoo.



    So we have what? Two others to go? We are waiting on you both.

  • Deb267
    Deb267 Member Posts: 46
    edited April 2012

    Anyone that can make it to st Augustine fla we can pick a date and all are welcome at our beach house sit with our toes in the sand, I would love to welcome all. I have a friend a BC survivor she calls it the healing place. Room for about 20. I finished my TC treatments 3weeks ago starting radiation tomorrow I don't know how I would have made it thru this without all the support on these site, I don't feel so alone when I read your post how everyone is going thru the same things I know I am far away from most but the offer is genuine and with lots of thanks.

  • naan1004
    naan1004 Member Posts: 520
    edited April 2012

    Today I had 6th/12 Taxol, half way done yay! Surgery date set for 5/25th for partial mx. Then on to rads, seems endless.



    Welcome back Laura, missed u!



    Deb, what an awesome offer, it would be great if we can all meet up a yr from now when all of us will have come back to somewhat normal and see how everyone is doing, kind of a reunion of sorts.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited April 2012

    Laura - So glad to hear from you! I hope your last few tx go well and wish you the best with your rads.

    Naan - Yay for halfway done! This can seem endless, especially since we all travel slightly different routes. But the general concensus is that chemo is the toughest road of them all. I had a bmx, but feel free to ask any questions. 

  • markat
    markat Member Posts: 909
    edited April 2012

    Lori so glad you are feeling better!



    Seacret so glad you checked in. Hope you can finish with little SE's.



    Naan yay for half way done!



    Rachel how soon after your BMX could you do normal things...cook, clean, or feel normal?

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited April 2012

    So we all wait for our hair to grow back. ;) is everyone using shampoo at this point? I have very little coverage and the longest strand may be 1/4 of a inch.



    Who are we waiting for to finish up?

  • Peacock
    Peacock Member Posts: 86
    edited April 2012

    Hi -- I have 3 more taxol fridays ahead of me.  You know, I can I can do this, but we celebrate both Passover and Easter, and I hate losing yet another set of holidays to post-chemo lethargy (and worse).  Anyway, I can see three weeks ahead...not bad!  (Then time off for good behavior before rads -- and I'm going to Puerto Rico to stare at the sun!!)

     Yes, I shampoo my "hair,"  which is tiny wisps. But it's part of my ritual that I have reclaimed. And, you know, sort of "build it and they will come."  No, seriously, I like the smell, I think massaging the head can't hurt, and it's oddly relaxing.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited April 2012

    Thanks Peacock for your response. Good wishes for your Friday's.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2012

    I agree Peacock, I still shampoo also for the same reasons.  My DH shaved me again this past Sunday.  I am done with chemo now and I had some peach fuzz with strange long wispies, looked pretty bad.  The nurses at my cancer center suggested it, said it may help it grow in thicker.  At least it should grow in more evenly.  I am going to try some Nioxin as I've heard it helps.  If it's too expensive, I have considered Miracle Grow...jk

  • Mardibra
    Mardibra Member Posts: 1,111
    edited April 2012

    oh hair!  I cant wait for it to come back.  I do see some signs of it coming back but unfortunately its on my lip!  Freaking figures.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2012

    LOL Mardibra....thanks for the laugh!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited April 2012

    mardibra -   :)   (regarding the humor, not the situation)

    Kelloggs - Good luck as your hair starts its regrowth. I'm going to have to figure out handle my hair since I never shaved. I have wisps of hair that are longer than 1 inch, but once new stuff comes in, at some point I'll have to trim it to get it even and respectable in public. And it gives me something to shampoo, too! 

    markat - I think it was just shy of two weeks before I drove. Definitely get a pillow to use under the seat belt. The recovery was gradual - and if I haven't recommended it, definitely make sure you arrange for PT. My mom stayed with me for about two weeks, and I didn't go back to work for about 4 weeks. You have to work your way back up to full movement, and even then, you can't do any heavy lifting - or exertion like vacuuming - for at least 6 weeks or so. Which is why PT is good because you have someone guiding you along the way. Cooking is harder to say.... I had meals brought for about 4 weeks from friends. I remember being excited when I could take a plate out of the microwave on my own (it's above the stove, and I'm very short). Maybe 2 weeks? Good luck!

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