Her2 positive - how long did you leave your port in?
Comments
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From what I've seen, it depends on whether you can keep your port functional, and how emotionally important it is to you to have it out. I kept mine for 7 years, not primarily for recurrence after the first 3 years but because I was using it every 3-4 months for draws for a clinical trial I am still in, so it was helpful for that. (My draws now are 6 months apart, and the flushes were expensive enough that I had it taken out.)
A.A.
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From my first chemo treatment on 1/18/10, (I did 6 rounds of Taxotere, Carboplatin & Herceptin), till my last Herceptin infusion on 1/18/2011. I'll be in remission 2 years on May 28th.
Love,
Brandi
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Thanks AA and PoliceWife - the port doesn't bother me and I don't mind the monthly flushes. I just don't like the idea of taking the Warfarin, even though it's only 1 mg, for such a long time. My onco does blood work every four months for at least the next couple of years, so it's very convenient for that. Glad to be able to come here to see what others have done! Thanks.
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I had mine out 6 days after my last herceptin
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I kept it for 18 months after my last Herceptin. From June 2005-March 2008
Last Herceptin was September 2006
It was my choice.
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I had mine taken out 3 months after my last Herceptin, which was May 2008. My onc.suggested I have it taken out, otherwise I would have to come in for flushing every 6 weeks or so.
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I will be on Herceptin for 5 more months, but it never occurred to me to leave my port in after treatment is completed "just in case". I'm thin, and the port sticks out a good half-inch from my chest - can't wait for it to go away!
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I never had any problems with my port, and never had to take Warfarin. I didn't like the idea of going in every 6 weeks for a flush, just didn't want to go back to the chemo ward again after finishing treatment, so I had mine out just 3 weeks after my last Herceptin infusion.
I decided I was never going to need it again anyway :-)Trish
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My onc said to leave it in for 5 years, but my BS said not to: she thought that scar tissue would form around it, and she could easily get it back in if it ever was necessary. I still have herceptin thru June tho.
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one day after Herceptin finished, I didn't like the idea of my mind creating "what if" scenarios, I was done and needed to move on
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My Onc was happy for me to have it removed as soon as I finished Herceptin. I am having zometa for osteoporosis every 6 months and just have an IV inserted for that.
Personally I believe the risk of infection or clot leaving it in longer outweighs the "Just in case scenario" -
Wow mmm5 - I thought I was quick
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My oncologist asked me to leave it in "in case we need to start chemo again."
I left it in for 1 1/2 years after herceptin (2 1/2 years for chemo) and had it removed with my doctor's blessing because I was doing reconstruction, had finished with the tissue expansion process, and wanted to do the exchange without the port.
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Mine was removed about two weeks after my last tx. My onc felt there was no need to leave it in and I was glad to get it out and move on....
....should it happen that I need one again, then they'll just have to put another one in.
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I had mine put in during BMX and taken out after H. and during exchange. One less scar is fine with me. Like you MizMarie, the thing stood out on my boney chest as if I had a wine cork in there!
I am interested though in why some Oncs encourage it to remain for awhile. Given the high odds to remain cancer free, I wanted it out asap. Not tempting fate here but just another way for me to move on.
Does it have to do with stage or Onco score perhaps?
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My onc likes her patients to leave their port in for a total of 3 years because that is the highest risk recurrence. At my treatment center they will not put a port back in the same place because there is a higher risk of clots. I get mine flushed every 3 months. I try to coordinate it with other appointments. I've had mine since Oct 4th 2010. 1.5 years down, another 1.5 years to go.
But she did say if I wanted to take it out right away it was my choice.
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I finished Herceptin in April of 2009. Had a PET/CT a few months later (no symptoms, just standard operating procedure for my onc); my onc's NP gave me the good news about the scan results, then her first question was "Are you ready to get your port out?" And I did that as quickly as they could schedule the procedure.
January 2012 marked 4 years from my dx. I love reading posts like lago's about the highest risk of recurrence being in the first 3 years.
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I had mine out shortly after finishing herceptin. I was excited when my onc asked "when do you want it out"? If i should need chemo again I will have another placed.
K
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I had mine removed during my DIEP surgery, which was 2 months after my final herceptin.
V
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5 days after my last Herceptin it was OUT of there. My onc told me to have it removed. Said it was of no use to me and had too many risks of leaving it in there. (blood clots, infection etc) Told me to take it out and enjoy life. I was so happy because I hated the stupid thing. I have a thin chest so I was always bumping it. It served it's purpose but otherwise was pain in the butt. My bra always felt uncomfortable with it, seat belts were uncomfortable. Life is good now
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Hi! My last Herceptin was in Jan and I got my port out in Feb
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I still have mine in. Original dx of DCIS and IDC was 4/2008. I had lots of pain recovering from my port insertion surgery so decided I didn't want to go through that again and would keep it for awhile. Then in 6/2009 I was dx with IBC. I have now been NED for 2-1/2 years and have been on Tykerb for 2-1/2 years. My doc wants me to try and go off of it this summer. I asked about taking the port out now and he says no, not now, especially since we are going to try taking you off the Tykerb. So, it will stay in. It doesn't bother me. I do have to get it flushed every couple of months, but I have to go in for bloodwork every couple of months anyways, so it is no big deal.
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I just went for a flush Friday and I'm keeping mine--They can't access any blood from either arm or do any work on either of my arms---so it's to my advantage when they need to do work ups for me.And I'm still getting testing all the time so why not (for me).
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I, too, sometimes have trouble giving blood from my arm. When I had my mx in Feb. 2010, they could not get an IV started on me. Finally, my surgeon came out and said to just take me into surgery and she would put my IV in my port. So, I was glad I still had it that day!
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I had mine out within weeks of my last Herceptin. I just needed it out. I figured if the cancer comes back I will just get a new one...
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Had mine out within one weak after last use. My Breast surgeon said it was a record for her to remove one so fast. Her hospital likes to leave them in 2 years in case you need chemo again. But, my onc said take it out and start living life again. I like my onc. I am now 2 and 1/2 years since dx.
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I had mine out after my 6 rounds of TCH. We did a trial run of Herceptin in the top of my hand and I didnt experience any problems so I removed the port and did the next 10 rounds of Herceptin in my hand.
I couldnt wait to get my port out!
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2 months after my last herceptin I had my port removed during my stage 2 surgery. I figured it was one less procedure if I had it removed during a planned surgery.
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