How to deal with a toddler?
I'm 33, married, we have a wonderful 2 year old son and I was diagnosed a month ago while still breastfeeding him.
As of now, the diagnosis is Stage II/III with definite lymph node envolvement, ER/PR neg, Her2 pos , Grade 3
We have just finished IVF and got 6 embryos - our insurance for having more children.
I will have a mastectomy (with reconstruction) on Monday (which also happens to be my son's 2nd birthday ....) , then will have 4 rounds of AC at 2 weeks, then 12 weekly rounds ot Taxol + Herceptin, then 5 weeks of Radiation and Hercepin at 3 weeks to finish the year of it.
Here is my question... How do I help my toddler deal with all of this? He is already traumatized by me weaning him, and now there will be the time I will not be able to pick him up and carry him, and then I will loose my hair (and one of the things that really calms him down is playing with my hair before gonig to bed), and feel sick and be weak, and his life will change dramatically...
Does anyone have any advice? Maybe, any good book recommendation?
Comments
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My son was 17 month at dx.... and 20 mo now. The hair thing didnt phase him just cut it in dtages. I was so worried.abouut ruining him. A.neighbor and child psych said that matter how this goes anticipate some behavioral issues but as long as the child is well loved and taken care of by ppl who love him everything can be worked out. Most ppl i talk to said their young kids dont even remember treatment. One of the biggest things u can do is call his pediatrician for two reasons. If he ever gets sick or has a behavioral meltdow (hasnt happened so far for us) then the ped will see.him right away since u r immune compromised. And it will affect his vaccines. He cant have any lve virus vaccines while u r on chemo. My son derek was a terror for about two weeks or so after my mx. He equilibriated to the new situations. He is very cuddly and kissy but still comfortable to play on his own. Try to keep him on routine as much as possible. You will be able to hold him just not lift him. Use a.pillow to protect youself right after ur mx. You may not be able to feel it if he hurts u. We told d.mommy has an ouchie boobie and he had to be gentle. It worked pretty well. Feel free to pm me with more questions. I am on my phone
Drry for mistakes. He will be fine it might be a.painful tantrum filled adjustment but he will b ok! -
Elesha,
I second everything MiniMacsMom said. My kids were 2 and 3-1/2. Here is a recent thread you may find helpful:
http://community.breastcancer.org/forum/69/topic/784276?page=1#idx_9
We used a ton of books, which was especially good for my 3-1/2 year old. I can't look at their titles right now because the kids just went to bed, but I will try to take a look in the near future. Some might be too much for a 2 year old, but one, I think it was called "Sammy's Mommy Has Cancer" is especially simple with colorful pictures.
We let our pediatrician know, and it was super-helpful. We also let our vet know, and she kept our cat when he had a draining abscess.
My 3-1/2 year old had a tough time when I was in treatment. But she has rebounded really well.
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I think trying to stick to routine as much as possible will help. He will take his cues from you and your husband. Do you have family and/or close friends nearby? Have you heard of cold cap therapy to keep your hair?
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Do you have help with him during treatments. I was on weekly taxol first and now FAC. I found with the weekly taxol, I was tired but I could take care of him on my own just fine. With the FAC I have more trouble. We had treatment Monday mornings early, I was usually done with taxol by 11 or noon. D stayed with the same three friends, so he was very comfortable with them. For FAC, I need help for most of the first week, so mom comes week 1 and then the other weeks I do ok on my own. D and I cuddle a lot, I don't have as much energy to run after hinm all the time, but I cook and clean and garden more
during weeks 2 and 3 of FAC. I usually feel my worst around day 3 and 4. You are Dose Dense so you will have a harder recovery each subsequent time, but you will get done faster. Also, you might be getting neupogen or WBC cell booster shots. I have heard they can cause a lot of muscle and bone pain. A lot of women use Claritin the days before and after to help with that!
Not sure if this is weird or not, but can you get a doll or stuffed animal with long hair. My brother was a hair twirler, and when he was a toddler, my mom ended up getting a wig that she put next to her in bed so her hair didn't wake up in tangles.
Derek does like to check on my boob and ouchie boob to make sure they are ok and healed, he also now likes to stick cars and forks, pretty much anything down my bra since he is used to seeing me put an insert in
They adjust, it may not be easy, but they do. We just got D a deck sand box so I can watch him play outside but don't have to chase him around our fenced in yard. Be creative! It will all end up being ok.
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My son was almost 4 when I was diagnosed. I am a stay-at-home mom so we were always together and very very close, rarely got babysat. Before starting treatments (same treatment as you) I arranged for him to go to my sister's or mom's house on the day of chemo and sleep over and comme back the next day. I didn't want him to see me sick if I was to get sick from chemo. After the first chemo: didn't get sick. 2nd chemo: still wasn't sick. 3rd chemo: all was fine. So after that he stayed home and was there when I got back from chemo. I wanted him to stay in his routine as much as possible. The "hair" thing scared me more then him. I too was affraid because since he was a baby, he was always playing with my hair and had to play in my hair to fall asleep too. When the time came, he and my husband shaved my hair together. We thought it would be less traumatising for him if he participated. When all my hair fell, I wore scarfs and hats and he was fine with it but asked me everyday when my hair would be "normal" again. I think that for him, when mommy's hair would grow back to what it was before, it would mean that mommy was ok. But all in all, I found out that children are very resilient. They adjust to the "new normal" very fast. I told him what was going on with me every step of the way and he took it all in. Made him grow up fast in that year too. Things that I used to have to do for him, he decided to start doing for himself. I was and still am pretty proud of him. Good luck with chemo. You may be suprised on how well you will handle it. Stay on top of things. Take your meds like they will tell you too. Let family/friends do things to help you like cook dinners. I had lots of help and it gave me more time to rest when I needed to and be able to take the time with my son.((( Big hugs)))
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My daughter was almost 3 and my son was 6 months old when I was diagnosed. On the days that I was feeling sick and couldn't lift them up, I would lay on the floor with them and watch them play. I would be honest about how I was feeling that day. Children are very accepting of the truth.
I did get a coloring book from the hospital that explained good cells and bad cells. I think it was made for children who in the hospital getting radiation. My daughter and I would color the pages and talk about the hair loss that I would have eventually. Check to see if your hospital "library" has material they could give you.
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My daughter is 2 1/2. I just had my breast removed and she clearly knows that something is not right with Mommy. She's so distant from me now.
She doesn't wanna hug or kiss me like she did prior to the surgery. I'm just wondering what to do to get our closeness back. I really miss it and it kinda makes me sad. I hope it gets better because I don't know how I will be able to cope with it once I start chemo. My daughter is my world and I really miss her affection. :-( -
Sade, Children have a sixth sense when something is up. She is just feeling scared right now. Any sort of change of routine will make them temporarily out of sorts. Just keep the normal routine as much as possible. Children are very resilient. She will be fine and so will you.
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Elesha- I stumbled across your topic and just wanted to drop in. I was diagnosed at 33 also, when my daughter was 3 and my son was only 7 weeks old. As a stay-at-home, breast-feeding mom who had never used a babysitter other than the grandparents, I was very concerned like Babs was. I had a VERY hard time with my chemo regimen (different one than yours) and needed to hire a part-time nanny after needing to be hospitalized after the first infusion. Meanwhile, my girlfriend had the identical regimen as you and worked throughout all of her treatments and managed her 2 toddler boys. Despite my difficulties and the guilt I felt needing so much help with my children on my "bad" days, my kids handled it perfectly fine. I actually saw positive changes in my daughter, too, like being more outgoing with new people and more self-confident. My son remained extremely easy-going throughout, still knew that I was "mommy," and walked at 8 months! Like everyone else is saying, kids are extremely resilient! Not only do I know this from what my own kids have gone through during this process, but I am also a child psychologist. Personally, I feel that toddlers are somewhat easier because they aren't as traumatized by the hair loss. I made the wig shopping "fun" for my daughter, didn't act upset about it in front of her, and let her try on the wigs as if it were Halloween. Also, she did not have a concept of cancer being such a serious illness nor a concept of death. Thus, her issues were more the day-to-day routine issues. I tried to be as involved as I could, like some of the other moms have suggested, even just lying down and watching a movie with her if I felt too sick to do anything else. I kept explanations simple like, "The medication mommy is on might make her lose her hair and feel tired sometimes, but mommy's hair will grow back. Mommy's energy will come back. On days mommy doesn't feel well, we will make sure you have someone else to play with." I can tell you that I did feel discouraged at times during treatment because I felt that I couldn't be there for my children in the same way as before. I also felt guilty when I was envious that other women didn't have to get up with a infant during the night on days they were exhaused. Hopefully, you will find it very manageable, like my firend, but even if you find it tough, know tha it definitely gets easier. I am only 2 months out from chemo and already feel that so much of my "old life" has returned.
Sade- I agree with Laura. You can reassure her that it is okay to kiss mommy, just not bump her chest, or whatever the case may be in your case. Kids move on from things so quickly at her age.
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I have an eight year old, which is different than your situation, yet there are some things in common. People gave me great advice in a thread that I started, so this may help. I just updated the thread with more info about a very helpful book, When Mommy Had a Mastectomy. If you order it today on Amazon, you could have it at your house by Monday or Tuesday for someone to read to him.
http://community.breastcancer.org/forum/69/topic/784276?page=1#idx_9
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