Calling all TNs
Comments
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Yea Inmate! I was just logging in to see if you had posted!
Cheers
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Inmate, Praise be! I'm so glad about your news.
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Patsfan - My onc outright told me that tumor markers are pretty unreliable for us TN girls but I still don't get routine scans. If i was having a symptom I'm sure he would test whatever I asked.
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Best thing that happened to me today was to hear that Inmate has no spread (thank you, God, or whoever's up there) and that Titan is at 3 years! With the last few days, I can think of nothing sweeter than that news. We'll take it wherever we can get it!
Linda
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Inmate yea! The best news I have heard all day...smiling broadly for you.!!!!!
PAtsfan...God these appointmetns jsut have us on edge. Be good to yourself. You are 3 years out. Glad you are switching. Feeling like you are getting the best care and LISTENED TO is so important. Let us know how tomorrow goes.
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patsfan - Congrats on your 3 year milestone! I know exactly how you feel about being scared of the results of tests. I don't have regular PET or CAT scans unless I have an issue going on. To tell you the truth I am actually thankful that they don't do those types of check-ups as part of their protocol, as waiting for results would be a nightmare as well as the fact that having too many scans is not good. I think you have a genuine concern which should be looked at. Bloodwork does not tell everything. Especially with us who have had this horrible experience should not leave anything unresolved. I think you should just pick up the phone and call the Onc. office and insist on getting a scan. Don't let her brush you off and please don't get intimated by anyone, since this is your "LIFE' which you are dealing with, not anybody else's. Do not care for one minute about what she thinks is right for you, do what you feel is right for you. If your guts is telling you something is not right, get it checked please.
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Me too- Best thing today- Inmate's news and Titan's 3 years!!
Welcome Youngmommy and Patsfan! Hope I didn't forget anyone!
Today is hubby's birthday- going out for dinner tonight!!
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TifJ -Enjoy!
Titan-Celebrate!
Inmate-YES! YES! YES!
Lovelyface-I sincerely hope you get answers to your pain.
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Lovelyface,
I hope you get answers, also.
Inmate, YAY!!!!! So happy for you!
Titan, Congratulations on the three years. My oncology surgeon told me yesterday the highest risk for recurrence was up to 2 years following my surgery so 3 years is absolutely awesome!
Welcome to Youngmommy and Patsfan!
I had a good check up at oncology surgeon yesterday.
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My BS described the 2 year mark like graduating from High School. It is something to get excited about. She said the 3 year is like graduating college- it's important, but not as big a party!
Glad to hear your visit went well Christina!
Thanks Fighter! Going to Outback.
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Inmate: Soooo happy to hear it hasn't spread. What a relief.
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Inmate. so pleased to hear your news.
Titan. congrats
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inmate-that is the best news ever! so glad you got through the anxiety of waiting for the results.
My best thing yesterday was my mo getting me in at the last minute to check on an eye allergy thing I have going on. Well, he wound up doing a compete exam bless his heart! I guess I was late for my zometa infusion so he scheduled it for me for today. I got a phone call this morning saying that my bs wouldn't let me have an infusion without a port, my port was taken out at the beginning of the year because of the infection:( So the bad news is that they want me to get another port for blood draws and zometa infusions. I don't mind having a port, but I really don't want it installed while I am doing rads, as last time it wound up being a 2 hour surgery because I have smallish veins. Plus it makes me think that my mo is thinking my cancer will come back, so I am still a bit sad today. I know they are being careful about lymphedema, because I had 47 nodes out on my right side (9 years ago) and now 2 nodes out on my left side. I am having a little bit of swelling on my left side. Plus my mo scheduled another appointment for me in 4 weeks and he said we will talk about getting some scans done then. Double sad face:(
I don't want any scans! He likes lots of scans and I should be thankful for that but as we all know they are very stressful! I am getting a bit crispy from rads, I think it was number 17 today, so 11 more to go.Titan-Congrats on 3 years!
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Inmate - good news. Anxious to hear the treatment plan to kick its a$s!
Titan - woot! woot! happy dance!
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Oh, it's nice to see some newbies posting, but so sorry you have to be here, and nice to hear from those that have not posted in awhile!
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Inmate- Yeah for no spread!!!!!!!!!!!!!
Just came back from my breast US and CLEAR! 2/2 US clear in 2 weeks! I feel sooooo relieved.
Welcome Youngmommy and Patsfan. Glad you found us.
Hugs to everyone.
Isabelle xx
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Yay Babs!!!
Bak- Crap! Why can't anything ever be simple! So sorry you're having a sad face day. Sending you a big hug!
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Best things that happened today: Inmates good news, my clear US and seeing that the donations for cancer in Susan's memory are exceeding the goal of 500$.
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Inmate - tears of joy for you friend, tears of joy! I'm sure we have all felt like we were holding our breath, right along with you. Now we can all enjoy watching you kick some fc ass, with your wonderful, strong spirit!
Youngmommy - I am so sorry, you found yourself here. I hope your wife is able to tolerate her treatment well and that this whole experience is behind you soon.
Lovelyface - I am sorry to don't have any answers and have such fear. I hope you get some relief and answers soon. Big hugs.
Patsfan - wishing you continued good health. It is hard living with the shadow of cancer filling you around, and for me, the fear can escalate near an anniversary. I only have scans, with symptoms. My doctor likes to limit my exposure to radiation. I hope you have a great check up and you can put your fears to rest. Check in and let us know how it goes, or if you need a place to put your fear before the test or waiting for results. In the mean time, deep breath.
---/
My good thing.. 200 lb husband and I managed to hold down our 5 lb Yorkie-Poo, long enough to clip off his winter coat! Now he looks very tiny
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Inmate- great news!
patsfan- as in Patriots? (Titan, you knew I had to ask...)
Update on LJ memorial- heard back from Wonderlab today (via voicemail). Sounds like we will be able to do something in LJ's memory. I'll talk to the gal in charge tomorrow and get back to you.
I donated in Susan's memory too.
I'm beat. Drove the horses on the beach today and got all filled up with fresh air and sunshine.
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OBXK-that is too funny-holding down a 5 lb. yorkie-poo! I can just visualize it!
That's great Heidi! Keep us posted. I need to go and donate in honor of Susan.
We just got a beautiful peach tree that we will plant in honor of LJ. I would like to also put a bench in our garden, a place to remember LJ, Susan and all the lovely women and men that we have lost here at BCO.
OK, I do know the difference between hear and here!
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INMATE--Happiness happiness happiness!!!!
Titan--3 YRS woot woot!!
Finally some good news to us here.
I am in that what if thing again. My head has had a recurring pain on the left side for a few weeks now. My daughter keeps reminding me that I lived with headaches almost everyday before I was diagnosed. Oddly I had not a single one during chemo. I only have 2 rads left (partying on Friday with friends). I have considered calling my MO who will probably schedule an mri or catscan but I do see her next month anyway. Not sure if I want to persue it or not yet.
Best thing that happend to me today was having a spontaneous lunch with my Mama and DD at Red Lobster. I love you crab alfredo and cheese biscuits. YUMMM
Maggie -
OOOH- cheese biscuits!!
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Inmate- yippee no spread!
Titan- 3 years, such great news!
Babs- yay for clear US!
Bak- sad you had a rough day! Happy about your new peach tree.
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Maggie:
Allergies?????? They can give you a nasty headache as well. I'm in the SE too and all the reports I have read so far is that this is supposed to be a horrid year for allergies.
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Nothing better than Red Lobster Cheese biscuits...did you put some in your purse and take them home...uh...I've been known to do that before...lol.
so glad for the good news on this board...we know that Suze and LJ would be so happy for us..you guys know that right? I think they would be so pissed off if we grieved for them too long...the best thing we can do for them is to LIVE like them....so..let's do it...!
I bet patsfan is a Patriot fan..there have to be a couple around...dang...you guys better get together because the BROWNS are going to win the Super Bowl in 2013...100 to 1 chance in Vegas.....lol
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Bak..11 more to go...that's nothing..you can handle it..I think we all can handle about anything anymore...yuk on the scans though...I've never had any...my onc isn't scan happy...I honestly don't think I could handle them...best of luck to YOU!
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Titan- Maybe the Browns and the Kansas City Chiefs will be in the 2013 Super Bowl. Maybe 1,000,000 to 1 in Vegas!! LOL!!
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From LJ's daughter Sarah:
well ill try to make this short and to the point. she loved all of you gals from the TNBC blog site. you were often times the only folks she could feel like who really understood what she was going thru. i know you all have probly heard from her most of the details up until a couple weeks ago. about 3 1/2 weeks ago, her doc said 6-9 months, then two weeks ago she said more like 6- 8 weeks, we were devastated. it turned out she only had a few days at the time of that statement. she became extremely short of breath starting around sunday march 4th. by tuesday it was so bad they admitted her and put her on 6 liters of oxygen, what a shock! just the saturday before that we were hanging out, watching " hugo" the movie, and playing with my son, eating popcorn, telling stories, having a great time..... it all just happened so fast. they figured the cancer spread" like a spider web" in her lungs, really fast, and also said she had had a small stroke without knowing it, probly sometime around the first weekend in march. apparently the cancer spread into her spine too... well after a bunch of procedures, pokes, and my mom getting very upset with the medical personel at the hospital( not her doc, of course) we finally got it thru their heads that we needed to go home asap, bc it really wasnt looking good, and we wanted to be togehter, in peace, at home.... did she tell you all about the deck on the back of her house that was built for a her last week by a friend? he finished it on wedsday, the night we got home, her by ambulance ( bc of the oxygen, etc..) the deck was finished, she insited on going out there and " having a cigarette on her new deck , damnit" :)well, it was scary. she sat down on the stoop and couldnt get up, after that i hated to say it but , no more smokes mom... she could barely breathe off her oxygen....... thursday, hospice started and her local girlfriends came over, we opened a bottle of wine, my mom in her chair and them all around, giving her love and support, while she huffed her ox... and mostly sleeping, not talking too much, she was getting so anxietal, too, when she would wake she would apologize to all of us for not being much fun( that was my mom!)
friday was the last time she spoke to me, just a few words, i took a picture of some outdoor furniture that her half sisiter sent as a bday present... brought it in and showed her, it was so hard for me and sad, and just crazy insane at how fast this happened, yall....
friday she slept all day, we called emts to come carry her into the living room from her bedroom, which is tiny, and into a hospital bed. we couldnt do it ourselves ( me and the nurse) they started her morphine into her port, bc we could tell she was still in a lot of pain, it took the pain away wonderfully, no more furrowed brow.....she was sleeping all day, her nurse told us she was in " transition" no food no water, we tried but she just wouldnt take it.... i sponged tiny bits of water into her mouth to help with dryness, but eventually she just would close her mouth tight and i couldnt get it in there... a bunch of people were here, just talking to her, listening to music, telling great stories about her, wine drinking, and eating food.... it was in a way, like a two day long birthday party....
saturday march 10 was moms bday. i enjoyed waking early and it was just me and her. a beautiful spring day here. i got out her drum and did some drumming to her, and her tibetan singing bowl that she loved! and did some chiming, and i love to sing so i sang her a few songs, and just told her how much i loved her, and how i wouldnt ever leave her side.... as the day progressed her breathing got worse and worse, you could tell it was a struggle by then... i cut her some daffodils. her bday party happened her at her house....
a bunch of her friends were here again, and more of the same as the night before... we all knew, well, i especially knew that she could hear us... i played her fave cd's, etc...
a little after 9:30 pm, i was feeling like my mom was going to die, and didnt want to in front of everyone, i told a friend that, and just as the words came out of my mouth, her other friend came and got me, and said " its time" i ran in, and it was over within a minute, it was the saddest thing i have ever experienced in my whole life. i love my mom so much, i miss her so much... she was litteraly my best friend, we were so close, we told eachother almost everything, and really she is the best mom i couldve ever asked for. i am so sad about my son thuja, he is 2 1/2 years old, and hi and my mom were best buddies. i have been telling him that grandma flies with the stars now, and that she always loves him.... etc... but its hard. my husband, and my son and i were here at her death time.... and i just cant leave her house now. i went home yesterday and i had lost all inspriation to be there, right now, at least for the time being, i jsut have to be surrounded with her beautiful gardens, and plants, and all her things. well, this has been extremely detailed, and i really hope it wasnt " too much"" for anybody, a rabbit appeared in the yard the other night, and no dogs chased. i know it was my mom, it made me feel a little better. she was the rabbit in chinese astrology..... also her time of death and date of death all add up in numerology to #9 which isthe number that symbolizes completeion.... i feel glad that my mom is not in any pain anymore, but there is such a huge void. she has been such a wonderful inspiration to me, she was so strong..... well i could go on and on and on.... but thank you for reading... she told me it was very important to her that i get on her blog site and post to all of you... i lost her login info, so im glad i met heidi here on FB so she can forward this to you all. my email is rootcycle@yahoo.com if you wanna write. peace to you, love sarah -
Inmate, that's great news!Titan, a big congratulations on hitting 3 years!
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