Calling all TNs

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  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    Inmate - you are an amazing woman!  I agree paper work can wait - go be creative!

     HUGS 

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  • christina1961
    christina1961 Member Posts: 736
    edited March 2012

    Tina, So glad you got the kitties out!  Thank you! I'm glad you are feeling well!

    C

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  • Titan
    Titan Member Posts: 2,956
    edited March 2012

    Thanks Inmate for your story...kind of brings things into focus doesn't it...

    Heidi..woo hoo on the clean mammo...we need this good stuff!  Mine is in May...not too far away...if it is good I see the onc every 6 months..not sure about that.....I'm happy with the every 3....

    Ok..I'm going to say something..you guys don't have to read this..cause I know I sometimes "go on"..too much

    Anyway...(tomorrow is the day I found out I had BC by the way 3 years ago..and my life changed).. my SIL told me to come to BCO and check it out...I didn't..for a couple of months..then I would come on here and kinda look around...get some info..sign off...I finally joined my April 2009 chemo group (love those ladies)...I remember when I signed up..it was finally admitting that yes I had breast cancer...I remember browsing the threads...taking a deep breath and looking at the Stage 4 thread...I think that is when it finally hit me that BC isn't pink..that beautiful women die from this **it..every day...at this point..I could have just left here and never come back...you know..if it isn't there it can't happen to me kind of thing...anyway..I stayed...I think it has done me good...it just wouldn't be right not knowing all of you...

    I think my DH finally understands now too...I was telling him about Laura and her "masters of horticulture design from Purdue"..and then I told him that I couldn't talk to her because she died of this crap..it was like I punched him...oh yeah..we know how that feels...

    I think that he finally understands that this crap absolutely sucks and that I'm not a wait until tomorrow person anymore...

    Oh and Heidi..I'm trying to talk him into getting a dog..a Boston Terrier..but..if it lives with us it will be a "buckeye" terrier...sorry..lol.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited March 2012

    LRM216..oh gosh, I forgot..will change that, yes she spoke of her duaghter and grandson..I jsut was stuck on her wishing to be here for her son's graduation and teaching him to iron. transference as I have a son who is a freshman in college.

    Inmate...hoping you hear good news.

    McCrimmon...got the metformin..now to look up the studies to make sure the correct does is 1700mg. 

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  • swiftbird
    swiftbird Member Posts: 177
    edited March 2012

    Best thing that happend to me today: because I have become paranoid of jinxing myself and won't take sick leave, I used one day (of my weeks of it) today as a "dammit I am going to feel sad day" and spent the day just relaxing (and checking in here periodically, on Inmate...) Anyhoos...I did share my sadness about LJ and Suze with my BFF and she left work early, picked my as$ up and took me out for margaritas, and made me laugh tonight.



    Friends = Sanity

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  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited March 2012

    Though I don't often post, I read everyday and have been so sad to read about Laurajane and Suze. I showed my husband Kim's message to the group about Suze and he really didn't understand either. He asked if I need a hug-no, I need for there to be no more deaths, no more surgeries, SE's, or pain. Yeah, he was a little afraid for me. And him. He tries. They try to understand and be supportive. And they mostly are, but they don't know really.

    Inmate, love the story. We do need to get a new perspective. we help each other do that.

    Titan, I can relate to joining this site; I lurked for a month or more, mostly reading all the research and info pages and bookmarking them so I could study them later and freak myself out even more. Last night I thought that maybe I needed a break, it is so overwhelming sometimes. But then I thought about missing out on knowing how someone's scans turn out or hearing that someone gets to go six months instead of three to the doctor or that someone has a new grand baby or furbaby...you get the picture!!

    Stay with us ladies; we surely need each other.

    Best thing today? It was 75 degrees and I didn't wear a coat outside for my recess duty at 11:30 this morning! Last week I was in a parka, scarf, and earmuffs. Tomorrow, again, "...gonna be a bright, bright, sunshiny day."

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    The best thing that happened to me today.  I got an unexpected compliment on my outfit from my husband. 

    Goodnight ladies, I see all of you in the morning.

    Inmate, I'm thinking of you and hoping your results are good news. 

    BTW, Happy Cancerversary Titan.   Thanks again for starting this thread, so many of us would be lost without our little group you started. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    My husband gets it. He gets all emotional when I have tests, etc. and gets really concerned when I relay what is going on in here.

    Best thing that's happening to me tomorrow? Carriage driving on the beach.

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  • Sandlake
    Sandlake Member Posts: 211
    edited March 2012

    This thread is such a blessing....you are all amazing ladies!!

    Best thing for me today was seeing Spring on my 2 mile walk.  I am also planting Forget-Me-Not's in my garden.

    Thank you all!! 

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  • ATeamNana
    ATeamNana Member Posts: 464
    edited March 2012

    So sorry to hear of the loss of LauraJane & Susan.

    I don't post much either but I do read the board...I will be saying a prayer for their friends & family.

    I too was glad for the posts that gave me some insight as to who they were.....sound like lovely ladies..

    Best thing for me today was taking a walk with my husband and popping in to see our 4 Grandsons...they can always bring a smile to my face.

    Marsha

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Inmate - lovely story!  Thanks.

    Titan - Congratulations tomorrow on your 3 year anniversary!  And thanks for starting this thread and getting us all together.  I hope you have 90 more years celebrating annniversary after anniversary.

    My son and daughter-in-law get emotional and then they go out and buy me presents.  Lately, with my neck pain, I got a new laptop.  Now I have a backpain - yes, this is my brand new concern, not sure what gift it will be this time.  They show their pain and love in whatever way they can.

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited March 2012

    Morning to you all.  I too don't post often, sometimes i just want to forget about the treatments, scans, etc.

    Thinking of you all. 

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  • journey4life
    journey4life Member Posts: 517
    edited March 2012

    Proverb:

    "Just when the caterpillar thought the world was over, she became a butterfly."

    Soar high, LauraJane and Susan - you earned your wings. 

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  • Summer38
    Summer38 Member Posts: 253
    edited March 2012
    Congratulations on 3 years Titan!!!!! Laughing
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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Morning Ladies,

    Lisa, I love the Proverb,

    Lovelyface, what kind of back pain?  Have had a bit of it for a few days now myself.  Took a few days off from my exercising routine and feel like my body has gone back to how crappy I felt a month post chemo.  3rd day back in my exercise routine and I'm just now starting to feel the kinks coming out but still achey and back is really stiff and sore.  Besides, you just had an MRI, I would think it would have picked something up if your having pain so quickly afterward, my guess is not FC.  Son and DIL are sweet. 

    Heidi, my hubby has he own script for xanax and takes his when I have dr appts. 

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited March 2012

    I  know that DH "gets it" when it comes to ME and my struggle with BC.  He is very in tune when It comes to the angst of having a weird pain issue that results in scans and additional office visits.  What I think he doesn't understand is how upset I feel when others are suffering and or lose their fight with this FC.  When Elizabeth Edwards lost her life, I heard it first on the news...I took in a loud breath, put my hands over my mouth and just kept saying no, no, no.....same feeling as when Maggie Daley passed and same reaction when I sit infront of the computer and learn of sad news here on BCO......It stays with me.......He sees my pain and fear and is very compassionate and supportive.  but he is able to disconnect from it easier than I can. 

    Titan, congrats on 3 year mark.  Mine is coming up in May.

    Best thing so far today....Slept all night with the bedroom window OPEN.  Awoke to birds singing.  Yeah  to spring.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited March 2012

    Titan Celebrate life. Wow 3 years and thanks so much for starting this board.

    Lovely to wake to birds chirping and at the feeder. Window open too!

    Have a great day ladies.

    It hurts it stinks it sucks and yet we are amazingly resilient.

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  • Luah
    Luah Member Posts: 1,541
    edited March 2012

    Titan: Congratulations on the three-year mark! Truly a milestone for us TNs. And thank you so much for starting this thread. It is the only one I still check in on regularly, because I just love all the ladies here. 

    Now a confession: When I was first on these boards and lurking, I was shocked and devastated to read posts from women who were thrilled to be two years out, or three years out or 5 years out. I didn't find that encouraging at all, quite the reverse, as the prospect of death from this disease had just seemed so remote to me - my sister had just recently got through her own battle and was doing fine. Of course, now I realize all too painfully that BC does in fact kill, and takes away amazing women I've felt close to, like Pauldingmom, olga, konakat, LJ and Suze. On a brighter note, I also realize the significance of those early annual milestones and why we celebrate them -- for us TNs especially -- because if we make 3 years, our odds of making it to 5, to 10, and beyond are so much greater... and that's why we cheer. Of course, this all makes sense to the inner club here, which is why I value this thread and these boards so much.   

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited March 2012

    Good Morning Ladies.

    The best thing that happened to me yesterday.......IT HAS NOT SPREAD!

    Thank you for all your thoughts and prayers.  Now to figure out what to do about "lefty"

    Have a wonderful day!

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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2012

    HAPPY, HAPPY DANCE!!!!! That is the best news we have heard all week. I know you still have to deal with the local recurrence, but no spread is awesome!! We will be with you every step.

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  • KSteve
    KSteve Member Posts: 486
    edited March 2012

    Yay, Inmate!!!!!!! I logged in to check on you and am so happy with your news.  I know I don't post here often, but I think of you ladies every day.  Anyway, good news on this thread today!  Soooo excited that it hasn't spread.  Now you need your plan for "lefty" and get fighting!

    Kathy

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  • youngmommy
    youngmommy Member Posts: 10
    edited March 2012

    Congratulations Inmate for the wonderful news. 

    I am DH of my 29 years old wife who was diagnosed with TNBC in Nov 2011. (She is going through Neoadjuvant chemo right now.). I have never posted here but checks this forum almost 20 times every day. With the recent sad news about LJ and Suze, I was feeling so very heavy hearted and was praying since last 2 days that you should good the BEST news possible. Just saw your message and finally could not resist posting my first post in bco site. 

    I wish you all the very best and would sincerely hope that you would do even better for decades to come. 

    Have a wonderful day dear ladies.  

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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2012

    A little grammar help here- is it recurrence, reoccurance or another spelling???

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Inmate.  Just breathed a huge sigh of relief for your news.  So sorry you have to go thru more treatment but so thrilled it hasn't spread!!! 

    Welcome Youngmommy, so sorry you and your wife are going thru this now.  Please post as often as you like and keep us posted on your wife's progess and surgery.  Good luck with everything. 

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Inmate - Wow, Wow and Wow!  I am so glad that is has not spread.  It sounds like it is a new primary to me, which is 100% curable, which is what I hope it is.  Even if it is not a new primary, then a different chemo regimen should totally bring this under control.  This is the best thing that happened to me today!

    I have been thinking about our beautiful friend Suze and I must say I miss her so badly.  She had such an amazing talent of putting things in perspective, always with a positive answer.  She did it so brilliantly that even if it was the worst situation, her answer would make one have hope.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Lovelyface, I think I have to agree with you.  Best thing to happen to me is hearing Inmates news!  Just so relieved that it hasn't spread at the moment. 

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  • Titan
    Titan Member Posts: 2,956
    edited March 2012

    YEAY INMATE....Your news is the best thing that happened to me today! 

     Welcome Young Mommy!

    Lovelyface and the rest of you..thanks for the 3 year wishes..I can say that my mind occasionaly goes to the dark place..but I try to not let it ruin my entire day...I had to laugh at the 90 year wish though..wow...that would make me the oldest living person around... 

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  • Summer38
    Summer38 Member Posts: 253
    edited March 2012

    Agreed!!! The best thing that has happened to me is hearing Inmates news!! Sooo happy for you Laughing

    Welcome Youngmommy, sorry the 2 of you are having to deal with this! I hope she is faring well through her treatment and I will keep you both in my thoughts. Please do not hesitate to post often and reach out. Good luck!

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    mccrimmon, sorry to hear that you are also experiencing some back discomforts.  I have become really quiet these days at work, suffering silently, not knowing really what to do, as I have one thing after another.  It is non-stop.  Before one thing can get better, another thing pops up.  First it was the neck.  A nurse friend of mine told me to hold the area, push deep with your fingers and then breathe in and out.  It is helping alot.  The pain has become less so I have hope that this is probably just a muscular thing. There are some normal degenerative findings on my cervical MRI which the Ortho. will explain to me on April 10th. The MRI was only for the Cervical only (upper neck area).

    Regarding my backpain, I have to explain:  I was diagnosed with BC in July, 2010.  Prior to that starting in 2008 I had been running to doctors telling them about this back pain or "looseness" as I used to call it.  I had every single test done under the sun, labwork, including tests such as testing for heavy metals, allergies, vitamins etc), neurological testing, even sleep study.  There were no findings, except they told me I had a mild sleep apnea.  My MRI's of the thorasic, lumber and cervical spine showed just normal degenerative changes.  The neurologist told me it was probably anxiety which comes to women of menopausal age.

    What happens is that when I wake up, the back pain or this "looseness" of limbs is not there.  It starts by the time I take a shower.  My legs and arms feel like they are getting separated from my body, they feel loose. My back starting from the neck all the way down hurts.  I guess I can feel every single degenerative changes in my spine. I also feel like I have breathing difficulties.  While going through this, I am 100% convinced it is my back and that I need to go and stretch or do yoga or something.  However, not always, but mostly after lunch, the pain and looseness completely vanishes.  It is as if my back had never ever hurt before. It feels like it is totally mascular during the pain.  But later, I realize it could not be mascular, as my back is totally fine.  I can bend, run, move just fine.

    So in 2008, this started and all through 2009 I was running to doctors.  Then in 2010, I was diagnosed with BC.  During treatment and afterwards, I never felt this once.  I was taking the anti-anxiety pill for sleep.  Now just around last week, this "looseness" has started once again.

    My fears are - since this happened to me just before cancer diagnosis, could this be cancer and is this how I feel it in my body?  Will I ever be able to know what this is.

    I have a few theories myself.  It seems to me that when I reduce my calories, there are some hormones which are not being produced.  I looked up Addison's disease, however, I don't have all the symptoms of it as they mention, for eg. dark patches on your skin.  Didn't MBJ mention this disease in one of her posts.  I am being referred to an endocrinologist to do a workup on this theory.

    The other theory I have is that I always seem to have blood pressure which I feel is very low for a woman my age.  It is always like 117/62 or 120/80, or even 110/60. I feel that maybe my blood pressure gets too low, although doctors love my numbers.

    Does anyone have anything like this happening to them?  So sorry for the long post.

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  • patsfan
    patsfan Member Posts: 72
    edited March 2012

    A big HELLO to all you wonderful ladies!

    I have been following this thread for a few days now.  What a great family you are to each other!  So sorry for the sad news you have all endured recently. 

    Inmate-Such good news.  Doing the happy dance for you!

    I have just reached my three year milestone, and have my tests tomorrow.  I haven't been this scared since my diagnosis.  Can't shake the feeling something isn't right.  I did call a new treatment center this week and have an appt the end of the month to continue my follow-up with them.  I have been going to my onc, but she brushes everything off.  I have a pain in my side near my liver, and she won't do a test because my bloodwork was fine.  Do any of you TN's have routine PET or CAT scans?  All I have are mammo/us and bloodwork.  

    So glad I found this thread.  You have all helped me so much already by letting me "creep" on you all! 

    ~Gayle 

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