Calling all TNs

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  • MicheleS
    MicheleS Member Posts: 937
    edited March 2012

    Heidi- you *are* a poopy-head.  Glad you finally recognize that!  Tongue out

    Hi everyone!  Hope you all have a great day!

    xxoo

    edited to add- regarding arthritis:  never had it before, have it now.  post-recon (and chemo).  If you think abt it, our bodies are subjected to so much to fight bc.  Including toxic chemicals and surgeries that completely mess with proper joint alignment.  It is no wonder that all of us aren't bed-ridden!!  With that said, I got bone scans as well when the pain popped up.  my motto- "Trust, then verify"

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  • Babs37
    Babs37 Member Posts: 455
    edited March 2012

    Hi everyone- Went for my abdominal US and ALL IS CLEAR!!!! Not even fatty liver! Nothing. What a relief.So 1 down. Next wednesday left breast US.

    Have a great day!

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  • naan1004
    naan1004 Member Posts: 520
    edited March 2012

    Aimeemac, you should find yourself lucky to see your children all grown up. I have two little girls 9 and 6 yrs old, I know I'm gonna beat this, but I have fears of recurrence and not being able to see them grow up as much as your children are, so count your blessings and enjoy the now.

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  • Luah
    Luah Member Posts: 1,541
    edited March 2012

    Babs37 - Wonderful news! I'm sure you'll have a repeat next week. Hang in there. 

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Congratulations Babs!  Whew!  What a relief!  Good Luck next week as well.  I am sure it will be all fine.  Not even fatty liver?  That is excellent.

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Okay now I am having a neck pain, of course I might have mentioned before, as it has been there since September.  My Cervical Spine MRI is all clear except for some dessication and stuff, although not on the right, but left.  The neck pain is on the right.  Now I am getting worried.  I have been massaging, heat and cold therapy.  Except for the pain gone from the back side of the neck, now the pain seems to be localized in one spot only.  The pain is very sharp when touched and is not lessening, no, not at all.  Should I be very concerned now?  Onc. asked me when my last petscan was.  I told him August, 2011.  In Sept. the pain started.  He said if it was cancer, we would have seen it on the petscan in August.  Seemed like a good explanation to me.  I am so freaking out nowadays, since this neck pain seems to be connected to a mild back pain as well.

    Michelle - Yes, when you mentioned arthritis, I swear our bodies have taken so much crap.  On my cervical MRI, it does not say arthritis anywhere, however, there is other things they say which has deteriorated since the last exam.

    As long as it is not cancer, I can take this neck pain for life, I swear.  I can take it in its place.  I just want confirmation that it is not that. I guess here we go again, another scan and alarm.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Congrats Babs!! 

    Lovelyface, hang in there, I'm sure you will figure out what is causing the neck pain and it WON'T be from FC!!!  What about gentle neck streching exercises?

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  • christina1961
    christina1961 Member Posts: 736
    edited March 2012

    Babs, So happy for you!

    Lovelyface, Have you tried a really good physical therapist?  I go to one who has a doctorate in physical therapy and he is fantastic.  He has really helped me a lot in the past.  

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    christina - thanks - yes, I did try a PT for at least 6 sessions but did not feel anything was improving.  I was really stressed out by the time I reached my office after PT, due to traffic and the time off from work. So, I had to just stop going.  At least if I can find out from the Ortho what in my MRI suggests this pain, then I can go from there, maybe try chriopractor or PT again.  I will try another therapist this time, maybe late in the afternoons. 

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited March 2012

    Got my Metfomin today.  She wrote 500mg 2 times a day!  I think I will start with 250 2 times a day until my body gets used to it.  The nurse told me to make sure I am on Birth Control because they have had patients get pregnant, one with twins even though they told her she was in menapause.  Which I got the call yesterday that I am in menopause.  I have my tubes tied, but I would greatly welcome  a new little one or two ;)

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  • christina1961
    christina1961 Member Posts: 736
    edited March 2012

    I got the go ahead to do the metformin trial if I want so I am going to read up on the metformin stuff this weekend.  My gyn was very interested that they were looking at metformin for prevention of recurrence.  I finally went for my exam 4 years late!  I also have surgery tentatively scheduled with the PS for placement of a tissue expander in early June. 

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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2012

    WooHoo Babs!!

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  • Titan
    Titan Member Posts: 2,956
    edited March 2012

    Well..Babs..sounds like a glass of wine is in order...GOOD STUFF! 

    RE:  neck pain..this must be going around cause I have it too..had it last winter also..onc said it was arthritis...I did put some ice on it..took some aspirin and that helped alot...had alot of pain Monday but much better now...I hate to say this but I think it was sitting at the freaking slot machine for way too long on Friday night...

    The 2 week rule is a good thing...I was freaking earlier this week but feel so much better now...I need to have better posture...not getting any younger...plus lots of stress lately..but working on that...coming up on 3 years is stressfull as h**ll...I'm freaking about everything!

    Do some of you remember JustPayton (Sam)?  I miss her so much...she loved college basketball and with March Madness coming up soon..well..I just miss her..anyone want to talk sport with me???

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited March 2012

    good evening ladies,

    well, i have my 6 week follow-up appointment on friday with dr k.  i am a little worried.  about 3 weeks ago i woke up to a rash on my left chest (BMX july of 2011)  saw the doc and he thought it was shingles.  i was happy to hear that and took the antibiotics.  the rash is still there and the last week i feel "thick" on my left side.  my ribs feel more pronounced, if that is even possible.  anyway, i have been slowly freaking myself out.  i know better and should just take one deep breath, over and over, until friday, but with my history i can't help but think i am headed towards stage IV.

    the up side to all this freaking out is i weeded my entire yard today to take my mind off of it.  still stressed but with a freshly coifed yard.  gotta look at the upside.  

    thanks for letting me rant!

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  • bak94
    bak94 Member Posts: 1,846
    edited March 2012

    inmate, what time is your appt on Friday? I will be at rads at 10:15. I wonder if you are still having issues from rads. The first time I went through radiation in 2003 I had rib pain and soreness for a long time, I mean like a year! It felt different to touch than my none radiated side, so I hope that is all it is. I certainly understand the fear, though.

    Babs-Yayyyyyy!

    Hi Aimee! I met you on another thread a while back. It's gotta be your arthritis

    My husband came into the house yesterday with a strange look on his face holding a letter, then tosses it to me. It was from the mammo clinic saying it was time for my mammo! Well, I don't have any boobs anymore!!! He started to laugh, and I did not know if I should laugh or cry, so I started laughing hysterically! I should probably call them to let them know I do not need their services anymore. If I did, I would now go to my cancer center for all tests.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012
    MacFry is just taking time out of his busy day to stop in and say hello....
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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited March 2012

    Trying to get on metformin has been like trying to move a mountain. I can get in a study at Dana Farber but they want me to change my onc and radiation onc to them....and I finally liek the one's I have. Going to my PCP with some studies in hopes she will put me on..I could stand to lose a few pounds if it has had that effect on anyone.

    The big C sucks. My cousin (55) and a nutritionist jsut got diagnosed with brain cancer and my neigbor has lung  and bone mets from uterine cnacer 5 years ago....doing yoga 2 times a week...one of them is saurvoopa yoga...I lvoe it...bliss inside and out.

    Hope everyone is doing OK.

    Suze if you are lurking I hope you are not in too much pain, hell, not in any pain.

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited March 2012

    Bak.....i hope that is all it is.  i finished rads march of last year.  still doesn't explain the rash but hey, i would be so happy with shingles.  how are you doing?  looking forward to our get together.  just let me know when you have a break in studies.

    heidi......or should i say macfry?  thanks!  :) 

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited March 2012

    Bak....my appointment is at 12:30 so it looks like i will miss you....bummer!

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited March 2012

    Inmate - I can't explain the rash, but I have a strong feeling the swelling is from the Rads.  I had a lot of pain from my ribs after chemo and rads.  I used to massage and still massage all those areas.  Every once a while I come across a painful area, but after lots of massaging, the pain goes away in a few days.  I can just imagine how difficult this must be to wait until Friday and then get to hear what the doctor has to say.

    Suze - I miss you, please come join us soon!

    ksmathews - good luck on the metformin, let us know how you do.  

    Everyone, I feel like crying a whole lot today, not sure why.  I just came back from my son's house where I babysat the 3 small dogs for an hour.  They make me feel so good.  I sang songs as they lay there looking at me and listening to the songs.  I tried to make my voice really sweet so as not to freak them out.  The most loving one, Evey lay like a baby because she knows I like to hold her like that and looked at me the entire time.  I wanted to test out their instincts to see if they were acting any differently around me. I guess animals can sense disease etc.  So whoever has an animal try this out with them, if you are having an extremely uncomfortable period waiting to see a doctor, maybe the animals can tell us something.

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  • OBXK
    OBXK Member Posts: 791
    edited March 2012

    Babs - great news! Hope the US goes well.



    Lovelyface - I hope they come up with a good answer on your neck pain. I have scar tissue at 3C - from being left without neck support in my 11/2 hour rad set up. My husband puts one hand at the base of my skull, and nod under my chin and gentle pulls while I am lying down. A nice traction move that gives me some relief.



    Kmatthews - good luck with the new meds! We'd love a set of twins around here! So much more interesting than FC! I held a 2 day old baby goat this week, I swear I felt my uterus contract!



    Painting- so sorry cancer keeps cropping up around you. I hope they are able to stay in treatment for a long time to come.



    Inmate- hope you get some answers on the rash soon. Try looking up radiation rebound or recall. It's the gift that keeps on giving!



    Heidi - nice to see MacFry!



    Today I got out of PJs, walked the river board walk and weeded about 4 feet. hope the sun is out again tomorrow.



    I hope the ones in treatment are managing well and I hope those at the end of treatment, are comfortable and surrounded by all their favorite people & things.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited March 2012

    Lovelyface - could your pain be tension. Its amazing how this plays on our minds and you can tell yourself it might be something sinister.  I know if I am worried I go all tense and sore in all funny places.  Everything wil be just fine.

    Babs37 - wonderful news ALL CLEAR.  I know everything will go well next week. Keep your chin up.

    OBXK - yes there are bigger things to fry than hair loss.  I guess I just didn't think it would  happen two weeks after the first chemo but I am good with it.  Small price to pay.

    Inmate - forget about stage IV it just isn't going to happen.  This will be something simple left over from your rads, trust me!!

    MBJ, Susan - hoping you had a good pain free day.  Thinking of you lots and waiting to hear like the other girls how you are doing.

    I too had a  tearful day today as feeling quite sick.  Not sure if it was the chemo from yesterday although I didn't feel like this last time and if thats so what is next time going to be like or whether it is from the tablets as I get constipated and have a windy tummy from the Ondansetron.  Whatever it is I feel quite down today. I suppose having the chemo after the port going in didn't help. Just hope its not the chemo cause there is a lot more to come. I am still taking all the meds religously. 

    On the Metformin side when I saw my Oncologist last Friday she said she was very interested in the trial but as its a cheap drug to manufacture nobody will sponsor it in NZ or Australia.  Great aye. 

    She also said that 850mg x 2 daily is an awful lot of diarrhoea and could play havoc with your tummy and she was not sure the medication would help what with all the dehydration.  She intends to keep an open mind about it until more is known.

    Sending lots of warm hugs to you all.  Annie.     

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  • Babs37
    Babs37 Member Posts: 455
    edited March 2012

    Thanks ladies. I slept like a baby last night. Glad this one is over.

    For the neck thing- I had the same problem last year. Since I had my mx,I always sleep on my left side so I think that didn't help BUT I bought myself a good pillow and the pain eventually went away. It's a memory foam kind of pillow, I paid 100$ for it,it's not cheap but I was desperate for something to work!  Now when I sleep, it supports my neck too and it did the trick. Lovelyface, maybe look at the way you sleep to see if that can be the reason for your neck pain. It's worth the shot!

    Hi MacFry!

    Susan, MBJ and LJ - Big hugs to you 3.xx

    Thinking of you all and wishing you all the best today has to offer. Hugs.  

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  • TifJ
    TifJ Member Posts: 1,568
    edited March 2012

    MBJ- I saw your post on your Stage IV thread and am excited that the Tamoxifen is helping!!! I can't wait to see a post that says you're up and walking!!

    LJ- How's the deck coming along?

    Suze- Hope you are having a good day!

    Hi MacFry!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Inmate, sounds to me like radiation and hoping for shingles, don't think its stage IV at all. 

    Had a really nice day on Tuesday, hubby and I drove over to the East coast to visit with his niece and meet her boyfriend, haven't seen her in 6 years!  She's all grown up now.  :(  Boyfriend is a sweetheart and they are just the cutest couple. 

    Had a great, fun time!!  Sadly, dark thoughts of "this could be the last time we get together like this" kept running thru my mind.  I HATE THIS!!!  Why does this have to overshadow even the happiest of days? 

    Hoping everyone is having a great week

    Suze, LJ - thinking of you both! 

    MBJ, going by what Tif says above, very excited to hear Tamoxifen is helping!! 

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited March 2012

    Christina- so glad you are being the reconstruction process. It does take awhile but the results are amazing. I feel so complete now.

    Babs37- I am so glad for your good news.

    Ksmatthews-please share your experience. As stated I am just full of GAS, and I loss 4 pounds so far. How fun, right?

    Suz, MBJ, and LJ- ((((HUGS)))

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Lovelyface- Yes, maybe your doctor could prescribe a portable traction device. I have one, and I love it. Also, in lieu of that, you could try a traction pillow. It's a bed pillow that gently places your head/neck in traction for a more restful sleep. I've had one for years and, frankly, wouldn't be without it.

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited March 2012

    Heidi, that pillow sounds amazing, I sleep in odd positions all the time.  I think its because of our dogs, they wait until were asleep then stretch out and push us around and out of the way until I'm in a funky position, both hubby and I wake up stiff and sore.  Can I just google to find out where to get one? 

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  • AimeeMac
    AimeeMac Member Posts: 241
    edited March 2012

    bak94-

    Hi! I do remember meeting you on another board, although I can't remember what area of Seattle you are in. I'm up in Lynnwood (the one week a month I am home). Thanks for being so reassuring about the arthritis. I think I just had a freak out. Since I've never had arthritis, I don't know how to tell it from something different. Will try to reach my Dr. when I am back on the west coast tomorrow.

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  • Summer38
    Summer38 Member Posts: 253
    edited March 2012

    Hi Ladies,

     I don't post often but I read everyday - just wanted to pop in and let you know that I'm thinking of all of you. Praying for LJ, Suze and MBJ everyday. Good luck tomorrow Inmate!

    Titan - I miss JustPayton too! I'm not a huge basketball fan but when I do catch it I'm reminded of the 2 of you going back and forth....

    Hugs to all!

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