Calling all TNs

journey4life

Hi Sandik - my BS and PS suggested that I have a PICC port (not line) put in the inside of my upper arm. I did and will get my first A/C on Tuesday. I'll let you know how it feels. Onc nurse gave me numbing cream to apply before tx. Best wishes for your surgery. You've come to the right place for support and information. The ladies here are amazing and very knowledgeable. 

inmate4232010

christina...mccrimmon.....thanks for remembering.  i slept really well last night and woke up with less anxiety this morning.  no more reason to be stressed since i get to see the Dr K today.  i can't change what he might say so i will just be happy to finally hear his opinion.  

sandik....welcome.  you will find these ladies to be the absolute cream of the crop.  my two cents on the port is you should definitely get it.   i can see my port from time to time, but i view it as my chemo plug-in.  if i would have to have my arm tapped every week or so it would be more of a reminder of what i'm going through than having a port i can hide.  it just makes the whole process that much easier.  

happy friday everyone!  i'm having a girls sleep over this weekend.  tequila and tacos.....here i come!  hehehe 

inmate4232010

Suze, LJ and MBJ.....think of you every day.  love to you.

TifJ

Inmate- hope your appt. goes well today!!

Have a great weekend ladies! The family and I are off to enjoy a weekend of fishing in southern Missouri!

Summer38

Welcome Sandik - sorry you are joining us but we will remain by your side throughout the journey.

I had DD AC and DD Taxol - all without a port. I always say that God forbid I ever need more chemo I will absolutely get a port! My veins (which used to be great) are shot - it takes forever to find a usefull vein now whenever I need tests.

Thinking of you today Inmate!

TifJ - enjoy your trip

ATeamNana

I had port also...I'm glad I did...I had chemo first though which shrunk tumor then lumpectomy followed by radiation...I had a CT scan couple weeks ago for another issue but I'm glad I did because.it also indicates no liver lesions. This is a great site for information & assurance!

Marsha

Anonymous

No port here, and glad of it. I had 4 doses of CT. My veins are fine now. Glad not to have had the extra angst of a port. I was told that if I'd had Adriamycin, a port would have been necessary. Adriamycin is very caustic to the surrounding tissue in the event of infiltration. Some drugs are worse than others in this regard. A port reduces that possibility.

NavyMom

Hi everybody.

Titan, I PMd Jenn3 a day or to ago to see how the wedding went.  I have not heard from her.  Also she has not posted on our Starting chemo August 2009 thread.  I know that she had a caring bridge page but I cannot remember her last name. 

LJ, Suze, MBJ, Becca,   Hoping to hear from you gals soon.

SandiK-welcome to the TNs.  You'll like it here.  Lots of good info and support. I did TAC so a port was a must.

Thanks to all who have commented their experience on Metformin.

Heidi, fun to see a pix of Macfry   

Titan  DH is sports nut.  I watch a ton of it with him on TV.  My fav is Footbal (GO PACK)  I tolerate hockey and golf  (I hate Tiger  barf, barf) and sorry, but dislike basketball.  March madness puts me over the edge!

Waving hello to you Marsha!

Thinking of you all, everyday.

Navy

bak94

sandik-did any of your docs mention doing chemo before surgery? Just curious. I have done it both ways:) First time I had lumpectomy followed by chemo, this time I had chemo followed by surgery (new primary in opposite breast)

I was able to hide my port with clothes, I loved my port! Glad to hear that your nodes are clear!

Inmate-thinking of you! Have a great girls night!

OBXK

Welcome SandiK - if you have any question along the way - just ask.

Lovelyface

Inmate - I am thinking of you and praying that everything turns out okay.  Sending you tons of good vibes.

Kelley41

I dont post alot but I do check this thread usually daily to check on eveyone and to say a prayer for those when needed...I am sorry because I do feel the need to vent but I knew that I could do it here...I have been having shortness of breath for about the last 3 weeks.  I finally got the courage to make the phone call today to my Dr.  I was able to get in for an xray with results being 24-48 hours...my husband says "Why are you making a DR appt" - I tell him I want to rule out lung mets - his reply is "what is that?"  I had to explain everything all over again about TNBC  and how aggressive it is and if it come back it comes back within the first few years,   and all of that "stuff" .....I also said, I would think as a spouse of 17 years and together for 22 years that he would have learned more about the disease....When I got back from the xray - no words of encourgement or even asked how it went - I brought it up to him and his response was "you worry too much" - He is a great husband and dad but.....HELLO!  Thanks for letting me vent!

Anonymous

Kelley-- sadly, some guys just don't get it. Or... they compartmentalize in order to keep their own fears at bay. Try not to take it too personally. We're hear to listen, and we understand.

inmate4232010

FUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUUCK!

 I could just scream forever but I have some cleaning to do before tomorrow night.  They took a biopsy today and I will have those results back on Monday.  Scan is set up for Tuesday, at 6:30 in the morning no less.  Ugh!  I know, I know.....stay positive, but the look on both doctors faces just said it all.  I am over this whole shit match.  The stress is unbelievable and I don't quite know what to do.  My left chest feels so "thick" and uncomfortable today and now I am getting this weird twinge in my arm when I move it a certain way.  

I can't think of anything else to say right now.  Love to you all! 

christina1961

Inmate, sent you PM.

onvacation

Hi, just diagnosed with triple negative, stage 1 no node involvement BC.  I will get a port in and start chemo in 2 weeks.  Lots of great info and love on this page.  I read more than I post but will be here for all you wonderful ladies in what ever way I can!  

Inmate  - HUGS

Kim 

OBXK

Inmate - I'm so sorry you are feeling so many bad things all at once. Wish I was there to take you out for a cocktail. We're all waiting with you. Check in often.

Kelley - I hope you get good results. I'll bet you husband is scared to death under that mask. Give the guy a hug, you've grown strong, maybe he hasn't.



-----

Going tomorrow to pick up my 17 yr old son's new car. Like I don't have enough to worry about!

Babs37

inmate- So sorry for what you have to go thru again.Just hate this f**ing disease!!!! I'm there screeming with you! We're here for you. Big hugs. xx

Babs37

Welcome Kim. Glad you found us too. It so great to have each other for support, in good and in bad news. We have to stick together.

sandik

Hi bak,

They did not mention chemo first. Surgery Tuesday. Haven't heard anything on my MRI from last night, so I'm going to assume its fine! (something new I'm trying. Don't worry unless told to! Haha)

Oncologist said nodes feel fine but I'll know for sure after they take them out.

bak94

Well crap, Inmate, nothing is worse than waiting over the weekend. They should not allow appointments on Fridays. Did you hear me scream for you? I think I heard you screamong.....Really hoping it is just from rads or something weird not cancer related.

sandik-good for you! I need to adopt that way of thinking!

I am getting a bit crispy from rads, a bit hot, but no skin breakdown. Glad it's the weekend! This is strange, but everyone at rads is so nice I think I will miss them when I am done. One of the rads tech I recognize from 2003! She hasn't been by tech this time so far, but she is so nice, she says she remembers my voice! (that is probably bad, I always think I sound funny!)

sandik

Inmate saying a prayer for you.

OBXK

Bak - glad you are getting the weekend off from rads. I saw my PT 3X a week for 2 months and I missed her!

Kim - Welcome! Do you know what chemo drugs you will be having? Not knowing what to expect can be hard. Let us know if you have any questions. Take good care. Karen

Titan

Ok..inmate...lets all take a deep breath here..I know you are freaking..we all are..and you KNOW what you see when you see the doc's faces..there's nothing getting around that...dang it...we aren't stupid anymore about this crap...so...just hoping that IF it is something it's contained inside the breast...hoping, hoping, hoping.

Heidi..ummm football season is over...talk to me in a few months about f-ball...it is basketball time......March madnesss...love it.

..raider..talk to me anytime..who do you cheer for?  I'm a OSU Buckeye fanatic..raised that way..my son goes there..I like your "Breast Cancer Awareness is every day when you have cancer....so true.

Jody...I think your foot pain is from the taxol...it gets better..really it does.

Maccrimmon..if your dh wants to talk to me about sports..let's have it...but he would probably like to talk to a bud instead of me..lol.

Welcome Sandi to our thread...there is so much information here...read what you can..its alot of information to take in...take it slow...I like BCO because though cancer is terrifying..the moderators on here and the information presented is  low key in matter of fact way... its like..ok slow down, take a deep breath..and take in what you need to know...I don't go anywhere but here....

Have a great week end everyone

My gambling streak continues...you guys probably think I'm awful..but I was at this social club today..and 3 of us bought these pull off things and one $450.00  lol..fun stuff

Oh on vacation and Sandi..getting a port is YOUR choice..you don't have too...just saying..

personally..I freaked out about having a port and my onc said I didnt have to have one...almost 3 years later my veins are still very nice..but they roll...when I have blood taken it is from my hand....not trying to persuade you one way or another..but you do have a choice.

Cocker_Spaniel

Inmate you know when your kids are unwell and you wish you could take away all their suffering well that is how I feel.  I wish I could take away all your fears and worry.  Sometimes life sucks real bad.  But on the up side when you get your good results next week all your weeding in the garden will have been done.  Thinking of you every minute and wishing you peace and free of fear until you get those good results. Annie. xxooxx    

Anonymous

Titan- it's never too late (or early) to root for your team...

Happy Birthday LJ!

onvacation

Good morning - thanks for the warm welcome!  The chemo I will be taking is Taxotere and Cytoxan followed by radiation.  From what I read this is the "common" mix for treatment?  I guess for me the scariest thing is this is not a "good" type of cancer to have (like there is a good kind! ) and they are just doing this to see if it works.  Not sure if that is correct or not, but since I am triple negative, there is no magic pill after treatment to help prevent reoccurance.  I didn't ask for any % or anything, because at the time I didn't want to know.  I have read enough to know that it can happen and for now that is all I want to know!  I think I am still in a bit of denial, but it is slowly sinking in!  

 For now I am trying to get my life ready for chemo, hair loss, eating right, exercising etc.  Reading all I can about how to deal with the side effects and what to expect.

 Have a great day ladies!

Kim 

LRM216

Thanks, Heidi, I didn't know it was LJ's birthday:

Happy birthday LJ, and I pray that this birthday is just one of many, many more for you - each better than the last.

Inmate: - sending all positive thoughts and good wishes that this is non-cancer related.  The weekend waiting sucks big time - I know only too well. 

To all the newbies that have come on board, I wish you the easiest of journeys with your treatments and please know that we are all on this trip with you and will remain so.

((((Susan)))) - sending love and prayers......

MBJ:  You are always in my thoughts - hope the tamoxifen is doing wonders for you.

And warm hugs to everyone else - may this weekend be good and kind to all of us.

Linda

Titan

Kim..my onc told me after surgery that chemo was to hopefully kill any stray cancer cells still in your body...they won't promise you that it will happen but thats basically what we have going on.

Meformin is looking promising for we tn's and several of us are on it (not me yet.dang)..but hopefully the trial will be successfel and we can ALL be on it...

 Sounds like you are preparing yourself mentally and physically for what is ahead... chemo isn't fun but it is doable.  Good luck!

Beautiful day here in Ohio..Time for a BBQ tonight..and watching my Buckeyes in Indy.

Laura...I tried so hard to get tickets to the Big Ten Tounament in Indy..I wanted to see you.

Teka

laurajane, Happy Birthday )