BRCA results over the phone or office

They won't give any results over the phone.  I had to schedule an appt to meet with my genetic counsler so they could explain everything in the report.  Negative or positive results, you will have alot of questions so it is good to go in to go over the report :0)

Sending my best for good results, Cheryl

I received the results with a phone call.

Wow sorry... I was told at my initial appt. they would not give any results over the phone.

 Cheryl

Edited:  And just an FYI; My results were negative.

I received my results in the most reprehensible way...I was in my surgical gown with the wire inserted for my lumpectomy when I notice a missed call on my cell. It was from my surgical oncologist's office. I was less than an hour from surgery so I called them back. When I asked why they called, the PA said I was positive for BRCA1+ and I needed to walk over to their offices to discuss whether I would have the surgery. I collapsed in a puddle of tears in the surgical waiting area. I had to do a walk of shame...in my open back gown, surgical booties and cap...to her office, crying all the way. They had me wait in the waiting room (seriously!) until the doctor was ready to see me. She asked if I wanted to cancel the surgery and have a mastectomy. I honestly could not process it all. Needless to say, I now have another surgical oncologist.

I got the call to come in and meet with my gyno for the results - his last appt. on a Fri. afternoon, and I was quite surprisingly, BRCA2 positive. Normally, his nurse gives me "good news" on the phone.  My dr. recommended immediate removal of my ovaries and a double prophylactic mastectomy.  I had a lumpectomy for a very small tumor in 2009, followed by radiation, tamoxifen and clodronate (an anti-osteoporis med that I take as part of a study) and life is good so, I don't need this major dev't, clearly.  But, we survivors take things in stride.  The ovaries out is a no-brainer.  Initially, I thought "no way" on the preventive mastectomy but, am doing my due diligence and looking into nipple sparing surgery with the best surgeon I can find in NY.  I figure I have to do it - as my gyno says, who is so vigilent of my health, it's not a matter of "if" but, "when", I do it.  Good luck to you.  Remember, knowledge is power.

I received my BRCA+ results over the phone, but it may have been because I stalked my genetic counselor until she picked up. But I still think she would have given me the results via phone even if I hadn't hounded her.

I got a phone call on a Friday afternoon. Negative result. I told her I was really glad it was negative cause hearing the opposite would cause me to be a wreck over the weekend. She told me if it had been positive she would not have called on a Friday afternoon!



Demiller, that is the worst thing I have heard. I cannot imagine. I've had those wire locs and the LAST thing one wants to do is sit in waiting room like that. Grrrrr. Didn't they even wheelchair you over? It's just terrible what you went thru.

I got a positive result, over the phone, but I live 366 miles away from the geneticist, so maybe they made an exception.  I still had to schedule a followup appointment to go over the report.  One issue for me was I had a LUMP scheduled 5 days after the results came in and if I was BRCA positive, I would probably be changing my surgery to BMX.

I will add, I was somewhat surprised at being positive at my late age, as was the geneticist.  I was numb when I found out I had BC.  I cried, alone in my office, when I found out I was BRCA+, but I couldn't wait, scheduling wise, to be there in person.  It would have been difficult either way, imo.

I'm so sorry hanna....I am the first in my family to have found out officially and I still haven't faced the half of what that involves given some of our family trials and tribulations.  It's funny, some family just don't want to know, other's have had to fight their HMOs to even get the test (because they are male) and in my case, some family members I have not contact with, nor do I want to, yet I feel that need to tell them.  Good luck.

On the flip side, I think in a way we are lucky because of that other 1/3 that probably have a gene, but no one has even discovered it yet. Atleast we have the advantage of watching and/or preemptively challenging future cancers.  The one bad side is if we are the first to find out in our families, we become the sacrifical lamb for finding out our family members can be  BRCA+, imo.