For those starting chemo in June
Comments
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Mary, My hair is at that stage where I'm going to have to suck it in and go take my chances with the crazy ladies with the sheers. The follow-up report I received from my onc stated "slight alopecia." Now, I did not just fall off the back of the turnip truck yesterday. I know that means loss of hair or baldness. I've been standing on my head looking the mirror going "where?" Maybe I've got bald spots I can't even see with my 60 year old eyes!
Augusta! I've been by the golf site a few times. They keep it closed up behind vine-covered gates/fences like there is some top government secret hidden in there or something. All you can see from the road is vines. It does not look like a golf course would be in there. Augusta is not too awfully far from Athens. I get totally mixed up now that I have moved back. I sometimes forget where I am. You may do that when you move to Phoenix.
All you ladies have a good Wednesday! -
Janie, my sis-in-law didn't live right on the course but her house was close to one of the holes(her back yard). She would rent her house out while the what ever was going on, my chemo brain, the green coat tourney. I think Lee travino rented it several times and I don't know who all. My hubby got to play golf there because sis-in-laws father in law was a mamber. Hubby can't play anymore with bad knee, wrist and back but he really felt special telling his friends he played there. I can't golf and never want to. I tried, can't see doing that much work to chase a ball. Gotta get, Mary
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Mary -- The Master's
There must be another way in there off the beaten path. I tried golfing once -- the first and last time........shot a 98........................................................................on the front nine!!!!!!!! I had a hard time putting. I may do better on the golf course now that I sharpened my putt-putt abilties. Do you think it may generalize and transfer over? Too much walking to chase a little ball around.
I have a dental apt Monday -- trying to figure out what to do with this Taxol-damaged mess. Sometimes I am tempted to get dentures and be done with it.
Have a good day ladies! -
Hi Ladies--My 2 times ago dog, Benji, who was our dog from 1969-1982 used to fetch golf balls for me. I'd use a driver or an iron and whack them clear across the pasture and he'd run out and get them back for me. I never lost any of them. He'd even hold them really gently in his mouth so they didn't have teeth marks. I took an actual college golf class so he helped me practice when I'd come home. I got an A, Benji got an A+ from me and I haven't played golf since the class. It seemed kind of a waste of time thing to me. We had 43 kids at daycare today--My cook's mother had knee surgery on Monday so she's off for the week. Therefore I made 72 hot dogs and the hugest pot of mac & cheese that you can imagine and there was only one tiny spoonful of M & C left when the dust settled and zero hot dogs. We have all these little sectioned off colored serving plates and down at the bottom is this white plate. When we have to use the white plate--that means too many kids!!!!! The snow has almost melted. We've had 3 days in a row of 50 degree weather. It's great, but the flip side of this is that my sump pumps are working overtime again. All that water has to go somewhere and it always chooses to flood my basement. SIGH!! But I will not complain, because I think that Spring has finally Sprung!!!!! YAY!!! Mary, I'm thinking of getting my hair whacked off again because it's starting to get longer in the back and is doing this Pollyanna ringlet thing again. I also empathize with you in the finger department. It's like a different crack happens every day. At least I'm to the point where my co-workers have quit asking me how I cut my finger. I've told them so many times that it's "just happening" that now they don't say anything when they see my poor bloody fingertips. Well, it certainly makes life more interesting--doesn't it? Gosh, we had this little girl that we were supposed to take to Daisy Scouts at 3:30 this afternoon and we got busy making this rainbow for the big picture window in the front by tracing around all the hands and cutting them out in rainbow colors--anyway I digress--so we forgot to take Hailey to scouts even though I had it written in about 3 different places. Her mom showed up at 5 pm and said--I went to the scout meeting to pick her up and she wasn't there?? I'm like OOPS, sorry, chemo-brain, you know. Hope everyone had a wonderful Wednesday--Life is Good--Smiles--NancyLee
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Okay--You are not going to believe this, but when I woke up this AM it was Cold & Foggy & Misty. Then it got colder and colder and by noon it was snowing--By 5 tonight it was REALLY snowing and when I drove home at 7:30 it was an all out blizzard. Now there is at least 2 inches of new snow and the roads are icy again. The added treat was that I had to relight my hot water heater tonight because the water got so deep in the basement that it drowned the pilot light of the hot water heater. Such Fun. We had 48 kids at daycare today. HMMMM. Tired isn't the word. Hey, tomorrow's Friday. YAY!! Good Night from the Frozen (again) North. Life is Good--Smiles--NancyLee
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Hey Girls, Nancy and a dog named Benji, it so fits. It was warm here yesterday, very warm. Storms and lotsa wind in the middle of the night. They say it will be in the 60's now. We will see. Got to go, got grandkids. Hugs, MAry
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Hey ladies,
It is nice here...short sleeves. I had a long dental apt this morning. Lots of work to be done....Taxol rises again. All the king's horses and men will never be able to put me back together again. I switched dentists. This one carries their own insurance. Our school dental insurance sucks. I am going to cancel it during open enrollment.
My elementary school has agreed to send me to my GPA conference in FL in May, all expenses paid! I need to pick up continuing ed hours. I haven't been to too many workshops etc. during my bout with BC, and now I suddenly realize that I must have 40 CEU hours by December!
Nancy, Do you ever have a bad day? If you do, it would have to be a lulu because no matter what happens to you and it seems to be a lot, you always say life is good. I guess the fact that we are all still here makes it good.
Mary, enjoy the kiddies. PJ and Renee, have a great weekend. -
Janie, what fun to get to spend a long time at the dentist. i HATE dentists.
Mary, howd the open house go? Did you post it and i missed it?
Nancy Lee, you obviously have the patience of a saint. I mean, you put up with a lot PLUS all those kids. Man, I couldn't do it.
Was home sick yesterday with some lovely bug. 102 degree temp, the works. A little better today. Gonna go in the work for a little bit, then probably veg most of the day.
Paula -
PJ,
I would rather go to the doctor than the dentist. It is a toss-up between dentist and mammogram. We worked out a treatment plan and I know up front what it will cost -- basically an arm and two legs...but much cheaper through their health plan that cost 119.oo a year....less than what is coming out of my paycheck monthly for the one that is doing me little or no good.
In case you gals did not catch the following on the other thread, this is interesting finding: http://msnbc.msn.com/id/12079476/
ALso, bad news, Fighter Lu is not doing well. -
Hey, We got hit with a tornado and the weather channel has been here all night. My neighborhood is fine but 3 blocks away its like a war went on. My daughters neighborhood is a mess. One third of town is destroyed. I was out to eat Mex. with my son and his family, came home and saw the sky and all the neighbors out watching. I went to the back yard heard the familiar sound of a train and picked up the dog and went to the basement thinking sh*t, I just sold my house and it is going to blow away. My house was fine despite the giant trees accross the alley. When it died down I called my daughter and no answer so I hopped in my SUV and dodged the debris and fallen trees and found her sitting at her table wondering why I was upset her phone phone was off. She went outside to find her neighbors rooves gone trees on their houses. I told you she must of been dropped on her head!!!!! They stayed here lastnight because no elec. and no school today. Well gotta go rent a storage place to put my crap. I got exactly what my house was listed for so theres a plus. Later, Mary
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Mary, sounds like a terrifying time! Thank god you and your family are OK. Was her home damaged?
And congrats on selling the house. So what's the plan on moving south?
All's on an even keel here, so it's a great day. And no tornadoees. Damn, those things scare me. We get lots of tornado watches and warnings, so usually I blow them off. But every once in awhile, I get very jittery about it. Mostly trying to figure out how to get me, Nathan, the dogs and the cat into a bathtub. (no basements here) Oh, and of course figure out where the hell to put my husband...
Paula -
Mary, congrats on selling the house! And the fact that it is still standing! We get a lot of warnings here too. The town I work in was damaged quite a bit right before I came here the first time. My hometown in TN is situated between mountains and does not have many tornadoes. They had one really big one in the 1930's and not much since. We do not have basements here either. Most have them back home where there are no tornadoes. Go figure.
Mary, what if anything has anybody leveled with you about concerning our prognosis after the news broke from the study? Truth is, probably nobody knows yet. It seems like most of us who were stage III or less are doing well with the Herceptin. So, when I noticed the following from my February Mayo report, it freaked me out. I had overlooked it before. I was highlighting it for the ps when I noticed "remains at high risk for relapse." -
Janie, as a reformed relapser, I say this: They really have no idea WHO will relapse. Seems to me all the Herceptin stuff is very positive and surely sort of levels the playing field. Did I tell you my onc said he almost wished I was HER positive so I could have the Herceptin option?
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O.K. I have to read this Mayo report I shall return, Mary
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Mary, This was my own personal follow-up report that I received after my Feb visit. I had somehow overlooked that statement until I was highlighting the pertinent parts today before sending it to the PS. I have a consult with him the 27th and they want all this info beforehand, so I am sending them my last report complete with suggestions to have reconstructive surgery. Just looking at this board alone, it appears that those of us who did not have mets and did the Herceptin have done pretty good. I was beginning to rest a little easier.
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Janie, I read some reports on Hercept. but all them say 50/50. I don't see my onkie until the 20th. I have heard of relapse while on the hercept. I will ask my onkie what he has heard. He has been in Washington lobbing for more drugs to be released for cancer. What did you read that freaked you out? P.J. did you ever quit smoking girlfriend? I get a bad hankering (as Janie would say) for a smoke sometimes. My daughters house was fine and thats a miracle. She has a tree about as big as her house in her back yard and I was affraid it came down on top of her house and that would crush the whole house. Thank God it didn't. I am sooo glad she got the other tree cut down because it would of crushed her house as it was rotten.I close on my house 5/5 or before. I have to be out then so I rented a storage space. The gal I was buying the mobile home from p#*sed me off. I have some places I am checking out on the net in Phoenix and I will go out there in a couple wks. My daughter is going to check out the neighborhoods and property and let my know what is good so I won't have to take so much time looking. Better go as grandkids have to be taken to school.Hugs,Later, Mary
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Gosh, you all have worse weather than me. Snow is nothing compared to floods and a tornado or two. I've only seen one tornado in my 54 years and that was one too many. PJ--I think maybe God HAS given me more patience than sense, but that's a good quality for someone in my business. I learned a long time ago to Keep My Goat Hidden!!! Because you know that if kids ever find out where your goat is hidden, they'll go and get it every chance they get!! I liked your "reformed relapser" comment. Yes, Janie, I do have bad days. In fact the last 4 in a row haven't been that great--Saturday I awoke with a fever of 101.5 that went to 101.9 after TylenolER and then finally stabalized at 100.8 for about the next 6 hours. Needless to say, I spent all of April Fools Day in bed drenched in sweat and aching. Sunday I felt just crappy but the fever was only 99.6 all day. Guess the Tylenol kicked in. But I couldn't breathe when I laid down so I stayed awake all night and did bookwork for the daycare and watched horribly stupid movies on tv. Monday, AKA yesterday, my throat felt like I'd swallowed razor blades and my chest hurt so I called my doctor. He told me to come up there and we'd do the chest x-ray thing to make sure I don't have pneumonia again. So I got in my jeep and drove to the daycare, dropped off the bills and payroll that I'd done on Sunday night, went out to get in the jeep and drive to Glendive and lo and behold--smoke was pouring out from under the hood and antifreeze was pouring out from underneath. I shut off the jeep and called the garage. The guy there, Sparky, said he'd come and get it sometime during the day so I then lost my wheels to get to the hospital. One of my girls just whipped into the parking area and saw my problem and gave me a hug and the keys to her car. She told me just to bring it back in one piece. I drove thru pea-soup thick fog all the way up there to sit around and watch all these people with broken, arms, legs, fingers and ribs visiting in the x-ray waiting room. Every one but the rib guy had fallen on the ice. HMMM. So I figured right then that I was the luckiest person in THAT room no matter what had happened I didn't have any broken parts. Anyhow, after the dust settled, I have a bacterial infection, no pneumonia, no strep throat, low WBC still so my immune system is still not all that great & I'm back taking stupid antibiotics for 10 days which cost me 75 bucks. SIGH. Today--I have NO voice. Try working at a daycare with no voice. It was challenging especially when I went to the grocery store and accountant's office. I took paper and pen and wrote notes all day. SO--I DO have bad days, but I just stand back and laugh because it just feels way better than crying and you know you shouldn't sweat the small stuff. Speaking of laughing in times of trouble--Do you read Funky Winkerbean in the daily comics? They've been doing a series about metastic BC. I've cut a few of them out to keep. It's a good comic strip. Mary, glad you got your house sold at your price. Way to go. Here's a random comment--There is hardly anything cuter than a bunch of baby lambs playing on a hillside on a sunny day. When I came home tonight, there were about 15 little lambs just running and jumping and having the best time tearing around over the hill by my ranch house. Their poor moms were baaaing and trying to sort their own babies out of the bunch and the lambs were just ignoring them and having more fun. I sat there and watched them for about 20 minutes and confirmed my belief that: Life Is Good Smiles NancyLee
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I tell you Nancy, your life is almost Seinfeldian so many things happen to you. But I'd LOVE to see those cute little lambs....
Onc visit tomorrow. Hopefully, the last for 3 months. I guess I'll get my AI prescription. I hope there's nothing tricky up his sleeve. Like more scans.
Mary, so what's the plan? You have a temporary place to stay between houses? Will your hubby be able to find the place if so?
Hi to Janie and Renee. Lovely weather here. I might even plant something (besides my butt on the couch) this weekend.
Paula -
Paula, Will be thinking about you re the onc visit tomorrow.
I have been making appointments right and left this week. My insurance switched manages so I had to change prmary physicians. I have an appointment May 12. I hope I can get her to write me a prescription for the tremor so I don't have to see yet another specialist (neurologist). I have several dental apts scheduled, a ps apt, an onc follow-up, and a mammogram. I guess that's it for right now. Mayo also recommended a cardiologist, so I know that's coming too.
Nancy Lee, Who do you think will be voted off AI tonight?
Hey Mary and Renee,
Later Gaoors, -
Gosh, Janie, I was a little surprised that Mandesa got booted but I think that it was bound to happen because although she has a beautiful voice--she doesn't have the ideal appearance with the weight thing. I didn't actually watch any of the show except for the last 2 minutes because I was making myself a little supper. I forgot to eat today and got home and realized that I was actually hungry. PJ--On the Seinfeld thing--I've often thought that too. I was driving home tonight and I felt something fall into my lap. I immediately looked up at the visor to see what had fallen down and realized my vision was drastically altered. I looked down at my lap and realized the left lens of my glasses had fallen out. SIGH. So I just left it there and drove the next 6 miles with my left eye shut when I had to see clearly. Now there's all these truck drivers from the oilfields that think I was winking at them!!! When I got home, I found that the little screw was still in the frame so I put the lens back in and tightened it up again. Just another thing to chuckle at. The state license renewal lady showed up at daycare today. We passed with only a couple of small corrections needed like we were missing charcoal in the medicine kits. I had bought some, but my pal Cindy whispered to me that she thinks she put it in the fishtank because we never used it. Ladies--tomorrow--April 6th is my 2 Year Survivorship date. I'm taking the rest of the week off from work and going to Glendive and having a mammogram and then going out to dinner with a couple of ladies from the Relay for Life. I'm staying up there in a motel and will be attending an educational conference on the 7th and 8th at the junior college. I get CEU's for the 2 day workshop and I can use them to renew my teaching certificate which I keep current just in case I go insane and decide to teach again in the future. So I'll be away for the next few days. Tom, my renter, is going to take care of my cat and dog and also run the sump pumps to keep the flooding in my basement to a minimum. It had kinda let up leaking, but it started to rain again tonight so.....I'll let Tom take care of it and I'll enjoy my mini vacation. Best get to bed--Long day and all. Life is Good--Smiles--NancyLee
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Hey Girls, Yes Nancy's life is like a movie, I laugh, I cry and I feel like I learn something. I thought strange things only happened to me but I am glad I am not alone. Hubby will be home tomorrow so I guess 2 wks. out is the normal. Now if you think the "fixing up" is bad Holy Cow!!!!The packing is even worse. He is helter skelter. No order just grab a box walk through and throw in. He can't wait to get home and help, help me in a mental hosp. I got got a lot done the past couple days but MY LORD.....my hubby is a pack rat!!!!I have been in the basement and what a mess of crap!!!!He hordes everything. Hope he don't notice a lot of it is gone!!!!I got the storage shed 1/4 full and theres so much more to go. My youngest called yesterday wanting to know where I am going and explaining to me how I should have a place and I can't live on the street. Who is the parent here? I ain't worried. It is raining and storming here so that will slow things down. We got an inch over night and rain through tomorrow. Treatment today so theres a half a day shot. Well kids to get to school. Congrads on the 2 years Nancy. Hi Janie, P.J. and Rene. Hugs, Mary
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Nancy,
Kenny Rogers grew up in the town I live in now. He used to live on a huge farm just outside the city. He was seen around town a lot, especially at the Kenny Roger's Chicken places. We saw him and his then wife and son at the carnival at the grocery store one night. The last time he got married, he moved, I think closer to Atlanta, not sure.
I thought some of the contestants had a lot more song choices they could have chosen from. Katherine should have done Don't It Make My Brown Eyes Blue. I read that they need a piece of equipment that would help them be able to hear themselves sing -- that it is loud, they have a hard time hearing themselves. I think that happened to Taylor this time. He looked puzzled or something. I hope you enjoy picking up your CEU hours. I am looking forward to doing mine at a FL beach in May.
Mary, I hope you are feeling ok after treatment. Do you still do the Benadryl? I always slept the day away after mine.
PJ, any news yet? -
Yep, no doc for 3 months! He gave me samples of 2 months of Femara, which I guess I'll start taking tomorrow. They'll do a PET scan in 3 months, too. (Gee, can't wait for that) Since I'm convinced it'll be clean, then it'll be a scan every 6 months for a couple times.
That 3 months will be just after I get back from my next trip in early July. Headed to Madison to see Mom and sis and family. Something new to look forward to (as opposed to Mary, who has MOVING to look forward to. yuk).
All in all, a good day. I guess I should be watching American Idol, huh? All I watch in a given week is Survivor. Stupid but somehow I'm hooked.
Later gals,
Paula -
Great news P.J. We are all going to stay clean, thats an order!!!! My friend(Carla) of the past 8 months of chemo and visits to my house got bad news yesterday. She was telling my mom in law who had an apt. and came back to sit by me because Dr. was running late that she has been fighting for 3 years and intended to see her 3 year old grandson graduate from highschool. They told Carla to call her hubby and Dr. wanted to see her and I just about cried. She came out when I did and we walked out of the hosp. together and she just cried because her body can't take anymore chemo. She is 50. We have become friends and I am just heart broke. I am her release sorta, she comes over and we talk and she has a lot of stress. She is such a wonderful person. Phone rang and now it is time to take kids to school. I shall return. Mary
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Mary,
That is so sad about your friend. What are they going to do, anything? Or has that even been discussed?
PJ -- Doesn't it feel good to have 3 whole months before a return visit? I did not watch AI the first 3 years. I thought it was all rockers. Everyone around here kept talking about it and I tuned it last year and got hooked. There is a wide range of musical types -- rock, country, pop, easy listening, blues, gospel, soul, just about anything you can think of shows up at some point. It is fun to pull for your favorites and amazing to watch how they grow from the time they audition to the time they reach the final 12 and began to look like professionals. I usually only watch the last survivor to see who wins the whole kit and kabuddle. Of course, I do not know any of the people.
Have a great day.
Janie -
Hey Girls, I got hubby to pack tools and take them to storage. There is a God.... Ya know when I started hercept. 8 1/2 months ago there were 6 of us doing chemo, all have died except Carla and I. Thats scary. Well have to run to Springfield with hubby to get his hazmat and tanker stickers put on his cdl. We are going to get breakfast so I will check in later. Hope everyone is having a great wk. end. Hugs, Mary
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Mary, I like how you start your messages all happy and light, then get into something really awful, then pull yourself out of it and get on with life. It's awful to hear about all of those who didn't make it. But you are making it and we'll all be here. Heck, we may all be retired in Phoenix in 20 years... Got room?
Beautiful day here today. We're going to picnic and hike around a little (nothing strenuous, of course) with some friends.
Janie, I hear they had some nasty storms in the Southeast. Hope you dodged all those.
Hope you all are having a nice weekend,
Paula -
Mary, moving is a pain in the kester. I like PJ's idea about us all retiring in AZ. It is sad about your chemo buddies at the center. On the brighter side, we were all doing chemo at the same time and we are ALL still here, and none of us are going anywhere for many more years.
PJ, it only rained a little here. The storms were in other parts of GA. Same for TN. Mark is there visiting my folks. It stormed there, but nothing like what happened in Nashville and further West where there were several deaths.
Dreading going back to work Monday. I could get used to this...going to bed when I want...getting up when I want...eating when I want....
Have a great rest of the weekend ladies. Don't work too hard on moving etc. -
Hey girls, if we don't have room hubby can build on, he has a tool for that I am sure. Nighty nite, Mary
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I have a couple of Aero-beds that can go in it. We can just inflate them for the new room. Then we can ride horses on the desert and eat Cactus Jelly and toast. Sounds like a plan!
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