Stoping arimidex

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roxy42
roxy42 Member Posts: 495
edited June 2014 in Stage III Breast Cancer

Hello ladys heres a update My ONC is stopping the arimidex to see if the swallowing gets better I call the Pharma company that makes arimidex and they said Arimidex can cause swallowing problems I have taken these drugs for 4 and half years so close to the 5 year mark.Im done with all the AI and have been on tomox Dr wont put me back on that.My saftey net is gone.Im so scared about my future I was node positive.I hope 4 plus years is enough to keep me safe.Im going for a throat scope in two weeks to make shure nothing else is going on Keep me in your prayers.I should be happy to be done with all this but I'm not..............Godbless roxy

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  • roxy42
    roxy42 Member Posts: 495
    edited March 2012

    Thank you for your kind words.I will try not to dwell on it

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  • cbm
    cbm Member Posts: 475
    edited March 2012

    Hi, roxy42, I don't know if this will help you or not, but I took Arimidex for about 18 months before complaining about worsening side effects.  I was switched to Femara and they all went away.  My doctor said that Femara, Arimidex, and Aromasin all do about the same thing, but do it differently, and if you can't take one you might be able to take a different one.

    Best to you;

    Cathy 

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  • roxy42
    roxy42 Member Posts: 495
    edited March 2012

    I cant I have tried them all.So ONC says im done

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Roxy, my onc put me on tomoxifen when Arimidex didn't work.  A lot of women do well on it.

    Barb

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  • roxy42
    roxy42 Member Posts: 495
    edited March 2012

    My Onc wont put me back on tomox I asked him and he said no

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    If you were on Arimidex for close to 5 years, then it should last for quite awhile after stopping.  The swallowing issue is not something your onc wants you to deal with.  Give yourself a break from the Arimedex for awhile and discuss with your onc what he thinks you should  do.  I guess you'll have to trust what he tells you.

    Barb

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2012

    I would feel the same way Roxy.  My hugs and prayers are with you for a long BC-free life.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited March 2012

    Roxy.....I quit AI's after 3 1/2 years...the side effects were just too much....I'm at peace that I'm not on any thing.....I know that I increase my odds for a recurrence, but then again, there is not guarantee that the AI's keep up recurrence free.  Many oncs only keep patients on AI's for 5 years, so look at it as that you finished your Tx protocol...Celebrate this milestone.....and wishes that your throat study is normal....Hugs, Karen

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  • roxy42
    roxy42 Member Posts: 495
    edited March 2012

    My ONC called me back and said to stick with the arimidex for 7 months and then I will be done.They dont think its the arimidex sence i have been on it almost 4 years and no swallowing problems till now.He said a reaction like that would happen soon after taking the med not 4 years later.He thinks the Oral thrush that i have had for two months went down my throat and his causing the swallowing problems.He put me on thrush med so we will see if it gets better and the throat scope in two weeks will show more........So i guess im staying on the arimidex for 7 mor months

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