Ohio Chemo Sisters

Oh Debbie,  I can not afford to lose 1 pound!!  I can not wait until it is over,but I must admit I am really scared.  My PCP did an occult stool test last month. Negative for any blood so that is a good thing.  Ths diarrhea and constipation started before I had the chemo,that is why my PCP and MO think it is stress aand anxiety. I did ask the GI doc if stress could be the cause. He said "yes you won't be the first person". . I pray that it is stress and nothing else...

hello all...TX #2 was monday- i am doing well so far-forgot to take my steroid last nite but-

i lost 5# between TX 1 and 2 ;i'm good with that!!! dunno how it happened tho with all that i ate!

i have realized how thick my hiar actually was-until today, as much as i had lost i still had the same amount left-now i have empty patches- wore my wig yesterday and today when we went out- couldn't wait to get home to take it off  tho! what hair i have left tonite hurts.

absolutely loved today's weather - 

well- that was my check in-

Hello everyone----sounds like you all are hanging in there.  Debbie, glad to hear you are almost done with rads.  Have fun on your trip!    Hi Teri!

Eileen----When I went for my first chemo, I met a lady there who was having her last treatment---she gave me her number and told me to call her anytime and we talked quite a bit.  Her advice to me was to eat a lot of yogurt during the time I was receiving chemo.  I was not a big yogurt fan, but I found I liked the probiotic types like YoPlus and Activia.  It did seem to help me.  That and drinking lots and lots of water.  I hope that you will feel better.  Wish you didnt have to go through a colonosopy on top of everything else.  Everything about dealing with bc is stressful, thats for sure---but take it one day at a time.  You are in my thoughts and prayers.    I remember counting down the weeks----then all of a sudden it was done. 

Everybody----- take care, try to eat well, get your rest when you can---let others take care of you for awhile (thats a hard one for us moms) and know that you are being thought of everyday as you go through this.    A hug for you all,   judy

When I was doing chemo my eyes weeped constantly - must be what you call the taxotears.  I had TAC  - taxotere, adriamycin (the red devil), & Cytoxan.  I also had the Neulasta shot - the very first one made me ache all over, after that not so much.  I was taking Claritin 2 days before, day of and day after to ward off the Neulasta aches - seemed to work.

I also have some lingering neuropathy in my feet - it comes and goes.  It did not present until at least a month after I had my last chemo - weird.  I believe the taxotere causes that as well.  I am told it should go away eventually.

I was able to get a teeny tiny bit of mascara on my almost invisible, microscopic bottom eyelashes today, woot!  And I wore my new wig - got some raves on that. 

I had the first boost today, I finally got to see a bolus - they explained that it keeps the radiation focused nearer to the skin's surface. 

Oh - and last night we went to Rafters (Meadowlake Golf Course clubhouse) for open mic, I sang with my hubby for the first time in 2 months, and had 3 beers!  Wow, what a party animal.  It was nice to do something sort of normal.

That's all I have for now ... peace!

sending positive vibes for a good weekend for all of us in Ohio!

i have a lunch date with my son today! ( i have no life so this is a good thing!)

Hi,

I'm from ohio...the Akron area.  I'm at the tail end of all this.  I've had double MX, chemo, radiation, I'm on tamoxifen now and in a few months will have my implant exchange. 

dx in dec...surg in jan..mammosite radiation in jan...going to chemo dr at 3..does n e 1 have any suggestions on questions i should ask i have written a couple down...thinking of taking my ipad and video recording it

oops...i accidentally hit submit...on my one paper it had a nottingham score...and i went to the website and that is how i came up with mine...as no one has verbally told me a grade

Munny - ask for a copy of your pathology report if you do not have it already. You bought it sister, get yourself a cc.   Have your doc interpret it into layman's terms.  That will have all the info about your hormone receptor status, stage, grade, etc.  Make sure you understand it,  because then you can go on line & learn more.  The ipad recorder is a great idea ... I took a crazy amount of notes.  I recommend you get a spiral bound notebook & write down questions as you think of them, and take it to ALL your doc appts.  You will find yourself referring back to it over and over.  I still do.  It ended up being kind of a journal.  Every time I went for treatment I would write down the nurses' names, the order of drugs they pumped into me, how long they took to infuse - it is funny to look back now and see how crappy my writing got when they put the Benadryl in me, I got really loopy!  LOL!  Be an educated consumer - ask questions, ask about your options, and do not be afraid to have them explain again if you do not understand.  There are no dumb questions.  This is your life!  GOOD LUCK TODAY!

Also Munny, I am curious about the mammosite rads, that was not available around here in Canton, according to my docs - they said it was not done much.  I would have liked to have had that option.

Kelly - I knew you would bite on the Rafters reference, right around the corner eh?  We will hook up soon, if you feel like it.

I had boost #2 this morning at 8, having #3 today at 4. 

SWIM UP BAR ... SWIM UP BAR .... SWIM UP BAR ...

I also asked for all my tests/scans to be put on disk for my records. I had a year book planner that became invaluable come income tax time. Since all my Dr appts were logged in all I had to do was go back and figure mileage to and from the appt. If you itemize your taxes it goes toward your medical expenses.

Welcome Corrie!

Gracie I have family in Dublin!  I go up there all the time.....

Just got home from my laproscopic Ooph this morning.  Actual surgery only took 45 minutes!  I only have two stitches!!  How awesome is that?  They "say" I can resume cardio workouts Monday...this according to my husband, but that isn't what the Dr told me before surgery....so once I get that clarified I'll be good!

Also, my dr was awesome...she knows how nosey I am so TOOK COLOR PHOTOS and gave them to my husband (of before)...wow, I expected lots of scar tissue....there was NONE.  Again, how awesome is that?!? 

(My uterus was pretty big (well compared to the ovaries...lol about the size of my fist)...filled with blood I'm on my LAST PERIOD EVER!  I'm really hoping the AI will be easier on my eyes and joints.

The worst part is always the anesthesia for me.  I almost puked several times!  And since I wanted to leave they couldn't give me anything for it.  They have to monitor...yayayaya...so I was out of there, came home, took a pink pepto and laid down for a few hours....

Now I'm just hoping to not be BLOWN away in the coming storm....shesh! When it rains.....buwahahaha.

Stay safe!