are all radiation centers the same?
I don't start rads until april and havn't talked to RO yet.
But I'm wondering are all Rad centers the same. I've heard our local rad center has gotten lots of awards and recognition.
I had my sx up at sloan kettering in NYC. it was difficult making the long trips. my family wants me to consult with them. I'm pretty sure I'd be able to stay for free at the hope lodge.
I'm just wondering what the difference between centers are? are the machines different?
I don't even know what to ask. Ive read some of the stuff in the rads section.
Comments
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fredntan - I don't know about ALL radiation centers being the same since I only have experience with one. The biggest complaint I had is that I felt I was on an assembly line. I would go in, be taken to a dressing room that was more like a large closet with a curtain for privacy where I would get undressed on the top and put on a gown with the closure in the front. Then I would be called to the radiation area where my mold was already placed on the table. I would lay in the mold, the technicians would adjust my position and then they would leave the room while the machine rotated around me stopping at the programmed areas for the alloted duration. Then I was done and would go back, get dressed and leave. Once a week they took xrays to make sure they were radiating the correct area at the correct dose and once a week I would see either my RO or her nurse practitioner. I was in and out usually in 20 minutes or so.
Some people lie in the prone position and some lie supine (on face or on back). Some people liked their radiation staff and some people didn't (me included). I think the most important is 1. How often does their machine break down? - one person had to drive an hour or two to get to the center and then would find out the machine was down and she couldn't get treatment, 2. Do they run on time more times than not and 3 that you feel comfortable with the facility and the staff. Other than that I think most radiation centers are pretty much the same. You may want to consider that around the fourth week or so you will get fatigued and may appreciate a shorter drive home.
I would suggest when the time comes, you join or start an April 2012 radiation thread. You will get the support you need and will get different suggestions as to how to deal with any side effects you have. Everyone reacts differently. I hope you have a smooth trip and the decision you make is the right one for YOU.
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I'll be starting Rads on Tuesday (Monday is simulation) I was wondering this...at my Center, they have you ring a bell when you finish the last rads of the treatment plan. Someone else on here talked about getting to ring the bell. Is that something they all do? When I mentioned it, my RO said she thought they were the only ones who did that.
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No bell ringing at my center but I did get a Ph.D. certificate (Phinally Done) and hugs from the techs.
Fran, don't know if all radiation centers are the same (I only attended one) but so long as it has a good reputation and is affiliated with a good hospital I think you'll be in good hands. A lot of it comes down to the credentials of the RO. Radiation is a gruelling routine (just from a time commitment perspective, if nothing else) and you want to make it as easy as possible on yourself. If you have the choice you don't need a long commute to add to your burdens.
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Hmm, when I finished my rads I got a diploma for completing my "course" signed by the entire staff -- at the end of chemo I got a crown.
Rad Centers are different, they have different equipment and may offer different oprions. A good friend who was diagnosed after me went through treatment through a different hospital. Both have highly rated programs -- where she went they were pushing brachytherapy, the center I went to didn't offer it. With nodal involvement I wouldn't have been a candidate for partial breast radiation anyway. My friend ended up having traditional external radiation due to characteristics of her tumor.
FWIW, the radiation center I went to had wonderful staff and support services. A nutritionist was avaialble once a week and was willing to help me work up a plan. The waiting area was very pleasant, with nice art work, The changing rooms were a good size, had doors and locked. The radiation nurses offered help with mitigating side effects as they started to show up.
SInce radiation is a daily treatment, I would go for something local --- especially with a well respected center nearby.
All the best.
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All radiation centers might be the same, but I learned recently that all radiation oncologists may not treat things the same way and that second opinions are valuable just as they are with surgeons and oncologists. Perhaps it you got an opinion from the RO who would be directing your treatment at a local center and then ran it past Sloane Kettering as a second opinion, you and your family could rest easy knowing that you would be getting the same treatment as you would in NYC. That said, I don't know what a "radiation plan" consists of or what to look for in that. I need to know the same thing myself if I want to get a 2nd opinion.
If your user name indicates that you are in Virginia, feel free to PM me and I'll share with you where I am having treatment. There are a number of good choices in the NOVA/DC area if that's where you are.
All the best to you! -
From what I can tell from reading posts on my radiation support thread, radiation centers ARE very different. Some are much more warm and fuzzy and comforting, some are more brisk and assembly line.
My radiation was done at a warm and fuzzy place. I was greeted by name by the receptionist every day 9but not just me--that women knew EVERYONE!!). I had a team assigned to me and the team leader stayed the same for most of my treatment. When I was lying on that stupid table, the staff was focussed on me and talking to me. I know some women in my group had the rad techs talking like they weren't even lying there. A year later I was walking down the street near the hospital and I ran into him. He remembered me and gave me a big hug. Having a friendly place to go, for me, took a lot of the stress out of the situation.
And some have more experience. I had to have zaps on the left. I was glad to be at a place that had LOTS of experience with the treatment I needed because if the treatment was screwed up, I could have ended up with a damaged heart.
moonlight60, I like the idea of ringing a bell to celebrate. My center told me how many were left. People who finished their rads often seemed to bring baked goods for everyone to enjoy. My DH baked cookies.
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Personally, I put a lot of weight in the RO. How much experience do they have? If they offer different types of treatment, do they understand your concerns and make an appropriate recommendation? Though a tech does the CT for the rads simulation, the RO is the one who reviews their work, determines the appropriate dose, and does other behinds the scenes work on your actual rads therapy. (in my case, my RO was able to do the Tx to avoid my sternum, since I have a rare bone condition). My hubby also asked about the equipment and how well they maintain and calibrate the machines, how well they train their staff (so no human error) etc. My RO also started several complementary therapies in the ONC office.
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I would be very be very surprised is all Centers were the same. Only have experience with one.
The Center I went to gave Certificates signed by all you had had. (Liked them al but my favorite tech was a young man - probably 30 - 35 - as he was always so upbeat and a ready funny something to say.). The dressing room have 3 bays that with lockers on 2 sides and a curtain to draw across. There was a bathroom at the end that had a shower in it. There were mirrors on the wall so you could check how you looked before leaving. You were asssigned a locker so you had a secure place for your valuables and top/bra/wig/whatever. You were given given a pink waist length cape and a terry cloth robe to keep in your locker and you could exchange them from the supply in the cabinet when you wanted to..
What I found the 'strangest' - not what I expected at all. The room was a circle probably about 36' across it, there as a planter box around the top with pretty artificial flowers in it. There was no door to close - an opening about 8' wide and 8' tall. I asked about it and was told that because of the round configuration and the placement of the machine, it was impossible for any of the radiation to escape the room.
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Im going up to johns hopkins ive decided not to even talk to the local RO. The doc up at johns is a BC RO. I really feelso angry and hurt how my local docs failed me before I found the lump.I can never turn back the clock. I just can't take any chances with these locals. The local RO will try to reassure me.he will probably not want to hear my story of how his radiology friends saw my thing, looked at it on US and said it was fine. Had two mammos that noted this thing. Well guess what they should have put a needle in it. I can just never forgive them for the pain they have caused me and my family
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I know how you feel. I felt that my local radiology department had failed me by not seeing anything on my mammos. I did not go there for chemo and surgery. I am returning to that hospital system for radiation. Hopkins is a great choice. I got my 2nd opinion there, which supported the treatment plan I got from Georgetown. I was very happy with my treatment at Georgetown.
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I am going to MDAnderson for my Rads. The RO there did part of his residency where I live and still talks with the local docs. He said that they won't be able to give me as strong of rads I need without burning me. Now my friends who are doseometrists don't understand that, btu I just don't care. you don't become one of the best in the nation without reason. I also feel like my hometown oncs failed. They missed many infected lymphnodes by not testing enough. All my major decisions and treatment is now at MDA.
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Besides feeling comfortable with the doc and staff, you might want to do a search about the different types of radiation therapy that are used for B/C. Some centers have the old tried and true equipment, and don't offer state-of-the-art technologies that others might have.
p.s. That is not that big a deal, but it might make a difference depending where your tumor was located.
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Hopkins has intergrated its radiation program to include Suburban and Sibley the hospitals that have been absorbe by Hopkins in the DC metro area. All of their ROs are part of Hopkins staff. The Suburban RO co-director Susan Stinson is a part of the breast cancer program and wonderful to work with.
Just metioning this if you wanted to work with Hopkins closer to the Virginia area.
In any case, Hopkins runs a great radiation oncology program.
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I had my radiation done at Sloan Kettering, and I completely understand your reasoning for wanting to go to the best for this.
I don't know how many treatments you'll need, but radiation is 5 days each week, even if it only does last for a few minutes, you still have to be there every day.
I think if I were in your shoes, I would find out if its possible for them to set up the angles and molds and all the important measurements, and then work with a local radiologist to make sure you receive the best of care, but from home? Because it seems to me that for each treatment, they had certain measurements they set me at, and then just did the treatment.
I'm sure there are differences in ability and quality - its only normal that the centers with the biggest and best reputations have them for a reason. And those reputations are what makes it possible that the best and brightest doctors want to work there. But, that's really JMO. I'm sure there are very good radiologists all over, but like I said, I certainly understand your reasoning.
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itsjustme10 wrote:
I would find out if its possible for them to set up the angles and molds and all the important measurements, and then work with a local radiologist to make sure you receive the best of care, but from home? Because it seems to me that for each treatment, they had certain measurements they set me at, and then just did the treatment.Does it work this way? I know my RO was present and reviewed everything (including my placement on the table) my first day of rads and my first day of "boost." He's the one that oversaw everything. (He reviewed the work of the tech during the simulation appointment and later did the calculations. He reviewed the weekly Xrays and examined me once a week. He also tweaked my dosage between my regular rads and boost). Maybe I've been a software engineer in big companies too long, but this feels like something I'd prefer to have a single doc take ownership over, vs. having one doc "design" the treatment and having another one execute it. Seems like there's a potential for miscommunication or for things to fall through the cracks. I could be wrong but just an FYI on other things to consider.
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All rad oncs don't do things exactly alike, equipment in some may be newer than others, and surroundings vary a lot. I was very fortunate to be treated where they had a peaceful waterfall entrance, visiting therapy dogs in the RT waiting room, a constellation on the ceilings of the tx rooms, and warm blankets for your legs. Some in my BCO rads group had dreary basement rooms without any of those patient oriented touches. The place I had mine (in 2009) recently sent all of their equipment to a new satellite facility after purchasing newer generation equipment.
I had my surgery @ UCLA -- 3 hrs. away. When it came time for rads, they were able to recommend a UCLA trained rad onc in my area. Because she had a previous affiliation with UCLA, I felt I was getting the same quality of care. And because she kept in touch with my docs @ UCLA, I felt she was well-invested in my care. Perhaps you could see if MSK can recommend someone similar close to where you live? Deanna
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peggy_j, I remember the RO being there for the dry run, and then making sure I was at the certain measurements they wanted - 17.9, 10.2, 103 - those numbers are etched in my memory - LOL - but between putting the table (and me) in the right position, making sure the lasers hit the tatoos in the right spots, and making sure the weekly X-rays were taken of whatever it was the doctor was looking for were done by the techs. I saw the RO for about 2 minutes once a week.
I think they have this all down to a science (no pun intended) so that once all the parameters are set, the rest just follows.
Obviously the OP will need to feel comfortable with whomever she chooses as an RO. But, it seems to me, and as I clearly states, its JMO, the bulk of the work is done at the test run, and once its set, as long as the techs follow the instructions - which didn't change once during my 25 treatments - its all good.
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I don't think all radiation centers are the same; and more importantly, not all radiation oncologists approach treatment in the same way. I went to a local RO who told me about the high percentage chances of heart and lung damage. It was frightening and even he suggested I go to Dana Farber. So I did, and I met with the Chair of Radiation Oncology who was able to develop a protocol using different types of radiation for different target areas and avoid my major organs. It made a huge difference to have an RO whose specialty is breast cancer vs an RO who treats every kind of cancer. I feel like I got the best possible care by making the daily trek to Boston. And what's more important than that?
By the way, I also saw my RO every week and towards the end, he made significant changes to my treatment because my skin was not holding up well. I felt like I got very "specialized" care and not just the run of the mill treatment.
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Thanks for all your replies. I'm going for simulation next week. I'm actually looking forward to staying in big city.
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Fran,
I'm sure you'll get great care at Hopkins. Here's a link to various things do around Baltimore, including some half price deals: http://www.baltimorefunguide.com/
The radiation treatments only take up a smaill part of your day. Have fun exploring.
All the best.
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I had my treatments done at the SENebraska Cancer center in Lincoln, NE.
My BS coordinated setting me up with the MO and RO. I had the Contura Balloon Brachytherapy, which meant 1 treatment twice a day for 5 days.
Each treatment the techs would position me, a ct scan was done to verify position of everything, the Physicist would position the radiation rod, the RO would come in check it all then I was left alone while they observed me thru a large plate glass wiindow.
My RO was part of the team at MD Anderson that developed the treatment I had. Also, one day a week the RO offers a free massage with a licensed therapist at the center.
When I was finished, after the RO removed the balloon the techs gave me a mylar balloon with a diploma attached. The balloon had 'Congratulations, good job and other positive sayinigs on it.
The receptionist called me (and my husband) by our names when we arrived, and the whole staff was pleasant and friendly. I believe that is a big help to help us maintain a positive attitude.
Good Luck to each of us as we continue this unwanted journey!!!!!
Vickie
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