Calling all TNs

Dear Susan,

My heart is breaking for you and your family. It seems like just last week you were a ball of energy as we were galavanting in New York together laughing, drinking shopping and having fun. I remember how difficult it was to keep up with you. You were so patient with me trying to keep up. You are pure sunshine and full of such positive energy and full of life. We have all learned so much from you and you have always been there for all of us. I've especially appreciated your wise words when I had no where else to go or anyone to turn to, you were right there for me with a cold beer in hand and a big hug. It makes me so angry that there isn't something more that can be done for you. I too am praying for a miracle for you. Please let me know if there is anything I can do. If you don't have the energy to type you are welcome to call me. Every time I see a pair of Louboutin's I think of your wonderful smile. Hoping your feeling better than you think and we still hear from you often. Hugs to you, your wonderful kind husband and beautiful children.

Love,

Laura

Susan, I my heart aches for you today.  Like so many others, you were such a major part of helping me get thru treatment.  Your knowledge, support and positive attitude pulled me out of the funk of my initial diagnosis.  I really do think of you daily, I hope and pray for peace, comfort and painfree days.  Enjoy every second with your beautiful family.  I'm praying for a miracle for you too. 

Lovelyface, Thinking of you and wishing b9 results for you today!!!!! 

Susan -

PM'd you.

Love,

Linda

I didn't mean to put my post and mess up the conversation about how sad we all feel for our dear friend Susan right now.  I am sorry.  I just want to add that my heart is so broken, I am so super sad, when I read Susan's last post.  This really can't be happening. 

Although I must say that I have a very good feeling in my heart, I feel that this bright woman is going to get out of this situation just fine. Hospice is just a mental and physical rest for her and her family right now, but I feel that she is so brilliant and so smart, that she will be able to get out of even this, she still has chances with other drugs.   I truly believe that she is going to get better and be released from Hospice within 6 months, due to improvements in her health.  Why do I so strongly feel like this?

lovelyface- I am the Queen of neck problems. It started in 1993 when a horse I was riding fell on the landing side of a jump and drilled my head into the ground, knocking me unconscious. Then, in 2003, I slipped on the ramp of my new horse trailer (it was frosty) and gave myself one H*ll of a case of whiplash.

For years I have suffered from migraines, and only now am I beginning to realize that these are/were probably "cervicogenic" in nature. In other-words... related to the cervical spine and radiating into the head. Chemo will fast track you towards arthritic conditions if you are predisposed to them.

With one bulging disc, multiple bone spurs, arthritis and locked facets I definitely meet the criteria. I have had multiple CTs (with and w/out contrast) and MRIs of my neck, but I can't honestly tell you that one more than the other shed any particular light on it. Obviously, MRI will show more soft tissue damage and a CAT scan more bone, as I understand it.

I have *extremely* limited ROM, particularly to the left (only about 30-40 degrees). I've gotten so use to it it surprises me when people ask what I did to my neck, as it is so obvious to them and so "normal" to me.

Anyway, my chronic pain is finally beginning to come under control with the injection of cortisone into the C2/3 & C3/4 joint. Next time, I'd like to go into the C 1/2 also and I think that will be the end of a lot of daily pain and headaches.

My pain sounds a bit like yours (not sure what the "in the front" part refers to) and my doctor ordered tests that would definitely show all of the cervical spine. Perhaps you might discuss the above regimen if your case warrants it. I can't believe I went 20 years before finally getting on what I now believe to be the right track.

Susan, I hope you have many many good days ahead with your family.  Your beauty and grace shows in every post you've made here.  ((Hugs))

Lynn 

Susan,

I am so saddened by this news. You have inspired me from the first time I read one of your lively, logical, always kind posts and I am so grateful to you for all the help you have given me, including pointing me to the Halaven trial.  Thank you.

I believe you had mentioned in the past that you felt bad on pain meds and I hope that maybe hospice can help you feel better with better meds or better schedules for them or something.  I too, of course hope for some kind of miracle that will reverse this path for you.  Lots of love to you, C

Susan I will never have the pleasure of meeting you here on earth yet I cry for you.

May the road rise up to greet you

May the wind be always at your back

May the sun shine down upon your head

May the rain full softly on your face

And until we all meet one day in Heaven as friends

May God hold you in the palm of his hand.

Praying for one of God's miracles for you. xx 

My dearest Susan......

My heart aches and my eyes fill with tears from reading your recent post. May God hold your hand and make this journey peaceful for you. I pray for memories to fill your family's hearts and bring smiles to their faces should you leave us.  You have touched my life in a very special way, and I have thought about you daily since the day we had lunch.

I too, am hoping this is just a difficult time, and you will get the rest and treatment you need to continue on.

God, please take care of our dear Susan. She will be sorely missed should you choose to bring her home so soon.

Warm hugs Susan,

Heather 

Dear Susan

 There are no words... Thank you for all of your wisdom that you have shared with us.  Sending you hugs. 

HeidiToo - thank you so much for your post.  Wow, you sure have gone through a lot with your neck.  I also feel that your migranes were from the cervical condition, as I also have had headaches and when I move my neck in a certain way, the headaches go away. I am glad that yours is getting resolved with the cortisone shots.  I can actually live with this without any problems, as the pain only comes when I sleep on that side. I wake up with a pain which lasts almost all morning long.  If it is coming from the cervical or muscle - that is fine with me.  I just want to make sure that it is not coming from Cancer mets or anything suspicious like that.  Just want to make sure I catch it early enough, whatever it is. Hopefully, I will make my doctors get to the bottom of this as I just need to know what is causing the pain.  Thanks again so much.  We all are made exactly the same way, therefore, it helps to learn from one another.

Susan, I wish you MANY pain free and joy filled days ahead with your family. You are such an inspiration. Bless you, sweet sister.

Can I start out by yelling?  I HATE F#$%^&G CANCER!!!!

I am so sorry about everyones latest bad DX's, Happy for the good ones, and just pissed about my latest scans.  I have been having hip/groin pain for about 3 weeks, Finally got a bone scan scheduled last Friday, and saw the MO today.  Being a Nuc Med Tech, I knew by looking at the images on the disc that there was a spot on my skull, but the radiologist read some areas that I thought were probably arthritis as possible mets, so....... now on to another PET scan,  I am hoping that I can get it scheduled for this Saturday, otherwise not until next Friday.  Ya know, as I said I am a Nuc Med Tech, so if I am radioactive from my scans I cannot scan anyone else.  If I can't scan I don't work, if I don't work I will be living in a box under a bridge.  ( well not really a box, I can use a hammer and nails and bild something out of wooden pallets)  We still aren't sure what is causing the hip/groin pain because that area was clear, and the spine looked ok.  So as I said, on to the PET scan and a new referral to the orthopod.  

Becca 

And I've got a caravan.  Really depends on what your weather is like there, sun - the tent, cold- the caravan. I do hope everything goes well for you but as all the ladies on here have told me hang on and be positive, it really works, well most of the time.  Thinking of you and hoping you get your scan on Saturday and all is well.

OBXK - I love your sense of humour.   Annie xx