Calling all TNs
Comments
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LJ - Oh my God, your landscapes are stunning. Before passing away my uncle told us of a dream in which he is in a place which is full of flowers and gardens. His mother who had already passed was sitting in the garden of flowers as he referred to it. I imagined it in my mind as I was told of this dream. Shortly thereafter, my uncle passed away. I had imagined the dream just like your landscaping gardens.......... flowers, shrubs, beautiful beautiful peaceful place.
I just love your work, wow! Just blown away!
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LJ: Breathtaking work you do - amazing. It's all so beautifully natural and calming as well. Did you always have a flair for landscaping and gardening when you were growing up, or is this something that you developed as an adult. I find it fascinating to have such a talent. If I lived in your home, I don't think I'd ever want to leave it!
Linda
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Ladies, I've been reading the past few days on my phone or computer and haven't been able to see the pictures (have to be on the website directly for that!) But I just had to log on and see what all the "fuss" was about. Wow. Inmate, you are a courageous woman. Bravo to you for sharing with all of us. It brings canser (I never spell it correctly-I read in Crazy Sexy Cancer Tips that spelling it wrong takes away some of its power, so I do what I can!) out of the dark and shines a light on reality. You probably have no idea how many you have helped by sharing your story and photos.
LJ-Wow, girl! The gardens do have a calming effect, both for the viewer and for you, they certainly must bring you peace and satisfaction. Nothing like playing in the dirt is there?!
To the rest of you, thanks for sharing your lives with the rest of us, those that actively particpate in the conversations and to those (like me) who most often lurk, but still appreciate the chance to be a part of the group. Sometimes it is difficult to read and often I am in tears, but I can't tear myself away, either. I need to be here because you all are here. You get it. You live it. Thank you.
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Yes, inmate we talked about the tomo a bit. My ro said it would be fine w/o. My hubby thinks I should have pushed more for it, as ro recommended it if he felt he couldn't do the job, he said he could work it. Now I am 3 days in and having second thoughts, even though I trust this doc and really like him, I think that is why I have stayed. Oh, I am also getting a bit of over lap from my radiation in 2003 because my im/medistinal node was a bit past halfway under my breast bone. So my bone must be getting the rads too right? I kinda want that in case any bad cells migrated to the bone...
We do need to get together. Any thoughts about where? Sounds like bothe of us are south of Seattle!
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Hi Heidi-I was talking about the very first landscape picture you posted. The short little skinny dark green tree that is just right of the rocks, I think there are 3 or 4 of them in the picture. I saw a tree like that and fell in love with it, but is was 60$ for a pretty small tree, but then they got some even smaller ones in and they were 45$. I only got one, but really wanted more. I just love the dark color. I guess the one we have is some kind of new hybrid and it grows tall and skinny, but not too tall! I saw a mature one and it was beautiful! The name comes from the sarugo cactus because that is kinda the shape it grows into. I am sure I spelled that wrong!
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Inmate---you are stunning. So real, brave, and raw I love it.
LJ--you are so talented. I just look at a plant and it withers up
whoever posted the dog pic---nicest dick I have seen in a long time!
and to all of you---if you have not seen the scar project take a minute to peek at it. It brought me to tears to see all of the beautiful women ( us included ) this stupid disease affects. We are all resilient, beautiful and strong!
Maggie
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bak94...i started on "regular" radiation before the tomo was ready to go then switched. i was "in love" with my first rad doc but even he agreed that tomo would better serve me so i reluctantly switched. not that the tomo doc was bad i just really connected with the folks at highline. yes, we are both in the south end so should be able to met up quite easily. are you going to radiation at swedish cancer institute on madison? i can meet you around the time of your appt. i know a great place in madrona (close to swedish) if that works for you. i am busy tuesday and thursday of next week, otherwise wide open. i can even head down your way (maple valley?). soooooo looking forward to meeting you!
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mags20487....... thanks for compliments! i feel a little uncomfortable with all the nice words. i don't feel strong or brave, just not willing to "blink first" when it comes to FC. i think all of us on here are strong, brave and beautiful in our ability to live in the face of this nasty disease. perhaps we should start our own scar project (of sorts). my husband has suggested putting my pics in an art show. i certainly don't have a huge body of work to fill an art gallery, but would be happy to set up a photo shoot (for anyone close enough) if you would like to participate. i know enough people in seattle that we could set up a wonderful event. perhaps we could create a fundraising project to benefit those on BCO that need a little financial help. what do you ladies think? i'm still working on the shirts and will have more information on that soon.
i must say that i am so very proud to be involved in such a group of strong, beautiful women as you all. thank you!
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Inmate, can't wait to see the images from that project! Sounds incredible.
Phyllis -
Simply beautiful
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Inmate-I am too shy in front of a camera but would love to assist or help out in any way that I could!
Next week isn't looking so good, lots of appointments! How about the following week? Throw out some days that work for you-looks like the only day that doesn't work for me is March 1rst, but the 27th or 28th work and the 29th as long as it is early afternoonish. My treatments are on Madison and are at 10:15. Madrona is fine, although I do get lost easily:) I know blondelaywer is close to us too, should we check to see what she is up to? I haven't heard from her in awhile.
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inmate: I love your pictures, thank you for sharing.
Heidi: Thank you for posting more pics of Laura's landscaping. So pretty, I'm ready for spring!
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Maggie:
Jeez, now you made me jealous when you said Dick the dog's penis was the nicest one you've seen in awhile....
Made me realize that it's truly the ONLY "Dick" I've seen - in a long while! Lol!
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...the dog photo sure is funny! -
OMG>>Mags!.
Seriously..has anyone really seen one like that? I'm just curious...I mean..that is a pretty big dog.
Laura..absolutely stunning...so proud of you...where did you go to landscaping school? Just curious...my DH likes to do this kind of thing and I'm gonna drag him in here to see the pics....don't think I'm going to show him Dick though...lol
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Inmate - Wow! what powerful images. Thank you for sharing.
LJ - Your lovely landscapes, make me want to go out and start digging!
Bak - I'm sorry you are having such a tough go, I can only imagine your anxiety.
Lovelyface - I hope they get your pain sorted and that you get good news on the biopsy.
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I see my BS Thursday. I have muscle wasting in my right arm and shoulder pain. (cancer side)
all muscular, it scares me.
Wishing everyone a good weekend. -
Been lurking a bit lately. Life has been moving so quickly. Thank goodness. But trying to keep up with all the latest..
Inmate - You.Rock. Thanks for sharing.
LJ, wow you do awesome work. Awesome is such an overused word, but I am in awe!
To those dealing with side effects, and new diagnosis, or potential diagnosis... wishing you some peace tonight. It's a long hard road. But this is the spot, to vent, and be irrevrent, and silly, and angry. We're here, and, unfortunately, know what you're going through. And can learn, and appeciate, the dignity and beauty of those whom are battling it still. Peace to everyone.
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LJ, Just absolutely beautiful and serene.
Bak, I'm sorry you even saw that image of the node - remember radiation works well for us - and you did have a super response to chemo!
Susan, Thanks- I am relieved to be coming off the trial and scared at the same time. I don't think I will have a baseline scan unless symptomatic. My last CT and bone scan was in October - and had one before that in May I believe.The October one was because of the trial but also to check out my rib pain. I am supposed to start Tamoxifen in a couple weeks and will be seeing my onc so I'll ask about the scan. I can't remember how often I go in to see them for followup - maybe it is my standard 3 months. The onc said I could come every 3 or 4 months to see him but I told him I wanted to see him every 3 months. I wish I could get him interested in metformin.
Lovelyface, I'm not strong, just have a lot of bills! My office is close to home and very casual. During my first chemo I had a bed there. Keep us posted - I hope everything turns out well with your tests.
OB, I hope your tests come out ok, too - wonder if it is from the rads? I still have soreness on my chest from rads and my skin is stuck to the muscle (over 4 months out). After the side effects from this chemo wear off I am going to get more aggressive in dealing with the scar tissue.
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Hi Ladies
Why oh why did I ever think I could concur this. Days 1-4 pretty good because of the meds I expect. Today feel like shit. Worn out, tired, constipated, never have been before, queasy, body feels like lead and all I do is cry. Nothing to what you are going through but I just feel like crap. Now got to have a port. They will give me a GA so thats playing on my mind. Having a bone scan on Tuesday and scared there will be mets somewhere. Believe it or not I am not totally selfish my thoughts are with every one of you and to be honest I don't know how you cope. You all have my total admiration and love. Annie
Just saw BernieEllen's post and had my first giggle of the day.
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Bernie-I laughed so hard I cried!
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CS-you are going through alot right now, and it is good for you to let out your frustrations. I think you will appreciated the port. I had mine put in and had chemo the same day with it. I was very lucky, my port did not hurt much at all. Hope you feel better soon!
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Bernie - yup, I'm ruined, lmao.
bak - maybe you can talk to your GP about Metformin?
CS - the port was worth every second for me. I have good but small veins, and this protected them.
Feeling the Ativan kick in. Talk to you tomorrow!
Best,
Susan. -
CS- I think you will appreciate the port too. I didn't have one and got all my chemo (4DD AC + 12 taxol) in my right hand (cancer side) and my veins are shot! I now have LE on that side and I really feel that the fact that my blood circulation is no good anymore on that side now because of my veins, it doesn't help. If I knew then what I know now, I would have gotten a port. Just saying.....
For the "feeling like shit part", I went through that too after a couple of days after chemo. I think that we all did and can relate. Are you getting Neupogen shots for your WBC? If so, that can be the reason for how you are feeling. They can really make you feel bad but it does not last long. When I was doing chemo, I started feeling that way 2 days after each chemo for about 2 days and then I was felt ok. You can do this!!! And don't feel bad about posting that you feel bad! We all went through chemo and we know it's a hard time. That's why this thread is important,so we can help each other in this journey. Hugs to you. xx
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Suze, I asked my mo once and he said no, which is odd because he doesn't usually do that! I could ask my primary doc, as I am overweight and have a high bmi. but my blood sugar levels are good.Are you taking meformin now? I am thinking I should go on another chemo after rads, like he originally planned. H e kinda switched it up because of my complete response, but after seeing my original scan I think I want more assurance. I'm gonna have to ask to see my newest scan now, maybe it will get that glowing mass out of my head as supposedly it doesn;t show up at all. Still needing to work on my diet. Been pretty good with exercising. Whay am I up at 5 am? Haven't even slept yet! Edited to say mass instead of ass!!! HA ahahahhha, my glowing ass!!! Oops. When I did see the pet I giggled because i could see the out line of my bum and it looked so funny!
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Wow....things move so quickly on this board!
LJ - I want to live in one of your landscapes! I would love to have a garden, but I'm stuck here in the concrete jungle with a few scraggly apartment-living house plants.
Inmate - your photos are so powerful! To me, they are portraits in courage.
LRM - Ditto on the Dick....lol!
BernieEllen - yup, the internet has ruined me!
CS - when I was going through chemo, the shit always hit the fan on day 3. I think that's when the meds wear off. My se's were just like what you've described. They lasted thru day 7 and then went away. My best advice is to go easy on yourself during the bad days...just do what you can to get thru them....and make the most of the good days. And there WILL be good days!
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Lovelyface- I've had that kind of pain for 6 years and have not gotten to the bottom of it yet. I take hydrocodone every day...as little as possible just to keep the edge off otherwise I would never get out of bed. Oddly, any activity aggravates the low back pain and the neck has to be babied or it acts up more. Will you pm me if you make any progress?
Love hearing about ladies with a talent and your contributions to our wonderful planet! Seriously, I"m jealous!
Happy day to everyone!!
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Bak- I don't know if you know, but I saw a couple posts from Blondelawyer a couple weeks ago- she is now Stage IV. So disgusting to hear another TN is suffering.
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