Calling all TNs

TIFJ- yes it is rare but it can change. I've been praying for a mutation too. When I developed the skin mets that can be a sign that the FC has changed to her positive, but no such luck. The chances are small. I hope you had a good day.



OBXK- our brunch was so much fun. We are going to try and do that more often. I hope you had a good day too.

I found my lump around Christmastime. 2009. I hit my breast on a chair and it hurt. Then I found a lump. Pigeon egg sized. It throbbed! Due to my husband then being laid off work. I didn't go in. NO money! A Cafemom friend had the same symptoms.. Sounded like me. So when I made my apt. for my mammogram. One where you go to a clinic and they take you out back to the Van! I said I had a lump. she goes, then I can't do you! So I had to wait and go to another city. I didn't have a safe car. So my newly jobless Daughter decided to take care of me! It was always she driving, her Dad & I!! Mammograms, Biopsies.. And having a morning Friday hurting test. Took until 3:17pm on Monday March 1st. A Scheduled Fun Day! Well the phone cracked the girl's voice cracked and I heard I have Breast Cancer!! Everything changed then!!  I had some tests, sentinel biopsy Etc.. A bad DR. that couldn't do anything Right! A Surgeon that did my first surgery and installed my Not Good Chemo port. Then she decided to close her practice and run for politics! So I had to find a New surgeon. I did 4 rounds of Adriamycin/Cytoxan every other Monday with a neulasta shot on Tuesdays. The did 7 weeks, every Monday of Taxol. It was disabling me. So I couldn't do the 12. I had a lumpectomy scheduled on my 50th Birthday but she changed it to 2 days before my Birthday. I ended up with 35 days of Radiation including a boost. I'm still tanned, swollen and hurting!! My husband is still jobless. So we have no income! I never recovered from all of this! I'm in pain from head to toe. But we still have each other and Love!! That dear husband whom I met one Christmas eve 1976. Begged me to live to stay with him. I did. I feel helpless and hopeless. But am still alive to live to love another day.. Nothing in this was easy. Whatever could go wrong did! But I got through it! Thinking back on my life.. This wasn't even the worst part of it!! I guess "Triple Negative" anything can't be Good!? I hope that we can find any common denominator and see what it is.. Do we fit into any profile? I'm a 32 year Migraine sufferer and was told migraine sufferers are less likely to get breast Cancer. They've never stopped!! I hope to live to see Prevention and The cure to all Cancers!! When I was 19 & pregnant. We found my Bio mom. Whom I was taken away from by the RN in my birth hospital. So When we found her in time. She was dying from Breast Cancer. She never shared if I had a Dad or family. I never shared she'd be a mother. not that she lived. We had a short emotional visit. She was 46. My poor dear husband got to see her dying look on my face! It was so hard to see his broken heart looks on his face. He felt so helpless but tried to encourage me! I do have married daughters and grand babies. I always wanted a big family I never had! I now have it. Its all you Cancer fighters right with me! Thank you! Nice to know you! Strangers are friends I've yet to meet!

Titan - ((hugs)) to you with your husband out of town, and celebrating not one but TWO important milestones. I'll be thinking of you tonight and tomorrow.



Susan

My heart breaks to hear about MBJ.  How, when did this all happen?  My God!  I just cannot believe how one day someone is well, getting better, and then it is back.  I know that MBJ was taking all kinds of precautions.  I am glad she will be able to take tamoxifen now.  My body could not take aridimex for the very small percentage of positivity.  I am so scared, my core needle biopsy is scheduled for Tuesday afternoon.  I had my Cervical spine MRI on Friday and the results are not out yet.  When the surgeon calls me at work next week to give me my results, I swear to God, I will have a heart attack before I can hear it.  Can anyone please give me any advice as to how to hear your results.  To me this is the single most difficult thing in the world.  Shall I have her call my son who can tell me easily later?  I swear I don't know how to handle this.  I am sure I will pass out, as my heart will come out of my chest.  I am so scared of another cancer diagnosis.   What shall I do, ladies.  Does anyone know what percentage of TN's have a local recurrence?  What percentage have a distant mets?

Titan, Congratulations on 29 years!!  That is a great accomplishment.  And 35 months is awesome, too - you are almost to the big milestone for us! 

Annie, I got thrush twice, and both times, the doc wrote for me to take Nystatin, an oral anti-fungal. It's a sweet liquid you swish and swallow four times a day. Some don't like the taste, but I thought it tasted like candy, so I never forgot to take it!

CockerSpaniel,

I have had two CTs with contrast - the test itself is not scary - I didn't like the breast MRI even though supposedly it is somewhat "open", I found it very claustrophobic.  But the CT scan IS open and relatively quick.  Make sure you put the contrast in the fridge the night before so it is cold.  It tastes better that way.  I have had the cappuchino (yuk) and berry (less yuk) flavors of contrast. They told me berry was the most popular. Both times it took at least a day or two to get my results.  I was so anxious I went to the nurse's station and got a copy of mine because I hadn't heard from the doctor yet.   Sending you my best for a clean scan!

Pretty day here in Tennessee.  I am just now getting up; my days and nights are all mixed up due to chemo.  Feels weird to be finished after a year of active treatment.  I am going to be on tamoxifen for the 5-10% ER receptors but won't start for a couple weeks. Hope everyone has a great day!  I'm headed into my office once I can get moving.

Happy Anniversary Titan!! Make sure you use the guilt factor when he gets home- always leads to a nice gift or evening out!! HA!!

Laurajane- we will all be with you in spirit tomorrow- praying for good, no great results!! have fun in the greenhouse today!

Hey

I havnt got my hormone report yet and am scared tht am TN my bioposy shows am grade 2 Can TN occurs in grade2? I find that all of you are in grade3 tht s y I ask thank u 

Happy 29th wedding anniversary Titan!

Loverlyface- Sending you calming vibes. I know waiting for result is hard.Deep breaths.....(((Hugs)))

CS- My onc prescribed what was called "magic mouthwash" for mouth sores. I had to use it once on AC and it worked wonders. Ask your onc for it.

LJ- Wishing you good results tomorrow.

MBJ- Hope you are feeling better and that the fact that your BC switched to + will open up new treatments for you. Fight on!!! We are all with you. (((Big Hugs)))

LJ - hoping tests come out good for you.



Saw onc today, will be calling hospice tomorrow. Even though the Halaven is working at keeping me stable, I still seem to be headed downhill. My appetite is nil, I'm not keeping much down, I'm using a wheelchair constantly, and am on oxygen most of the time. All I want to do is sleep. There are some chemo options I may be be willing to try as long as SEs aren't too bad. They are simply palliative so not a problem with hospice. My MO is consulting with Dana Farber also, but we aren't holding out much hope.



My doctor can't give me a definite timeframe. From one week to five months, but likely somewhere in between. I physically don't feel great, so my guess is three months.



I won't be posting much, but when the time comes, my best friend will be sure to let everyone know so there aren't any questions.



This board has meant more to me than words can ever say. I am okay, and am going to take these next weeks really trying to feel well.



I love you all,

Susan

CockerSpaniel, I got a mild thrush just after my second round. I didn't want to take any more drugs (cripes, we had enuf huh?) so I, in the days coming down from steroid high and before SEs kicked in, found a yogurt I liked (lemon meringue yum) and ate a few of those a day.  Protein was good. And it got rid of the thrush, which was, uh, gross.  I was on taxotere, which I blame for this nice SE. I also had neulasta shots the day after. The claritin thing sounds kinda kooky, but I didn't take it the first time, and I had horrible leg and body aches. And took claritin the second time, and still felt crappy the fourth day out, but no aching - so go figure.  So for whatever it's worth...

Susan - I have no words except..........tears, tears, tears, and a very broken heart.  I still want to believe in miracles.  Please don't say goodbye. You have helped me so much on this board, so my heartfelt sincere thanks for all your help and guidance.  I hope your kids are doing okay.  May God bless you and your family, my friend.