Post-mastectomy exercises

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november
november Member Posts: 103

I had PBMX on 2/1/12 with 3 lymps nodes removed on each side. My doctor told me that I didn't need physical therapy. I have soreness on my L armpit and back of arm which is unconfortable. The R side is fine eventhough it had to be reopened due to post-op bleeding.

Beside the soreness everything else is fine. I have been taking motrin with minimal effect

Does anyone know of exercises that could help, especially those of you who had physical therapy

Thanks

Comments

  • Mallory107
    Mallory107 Member Posts: 223
    edited February 2012

    I had a PT person visit me in the hospital while in for my UMX.   Seems like it was something they did for everyone.  She gave me about 6 exercises to do immediately and then there were 4 to add on when drains were out.  These excercises are extremely important to do to make sure that you get your motion range back and don't get frozen shoulder so I am suprosed you didn't get them.  HERe are the first step ones I remember:

    1.  stand and move head so you look all the way to the right and then to the left...repeat 10x

    2.  stand and look all the way up at celing  and then all the way down.  10x

    3.  do the motion of bicep curls-stand with hands down and bring up so fists hit shuolders 10x

    4.  shrug shoulder all the way up then down  10x

    5.  rotate shoulder around and in and then around and out 10x

    6.  stand facing wall and walk your fingers up the wall ending at shoulder height.

    after drains

    7.  lied down and raise arms straight up to be perpendicular to body 10 x

    8.  lie down with arms at side and then sweep along floor to top-like making snow angels

    there were more but I can't remember them. Maybe do a google search

  • Golden01
    Golden01 Member Posts: 916
    edited February 2012

    I had a lumpectomy on 8/2/11 and a BMX on 9/8/11 with 2 nodes removed on L and 1 on right. I didn't see PT but found the best exercises in the October 2011 issue of Prevention magazine. Two sets of just three different exercises in each (one set for early on and one for a little later). I just took the magazine along to my PS visits and he'd okay which set to go with and which ones he felt would help the most. I had full range of motion before too long. Pay attention to pain and don't overdo! I also started yoga at the Wellness Community (classes for patients with cancer) at about 4-6 weeks). The instructors were great and would adjust the poses so I didn't put pressure where I shouldn't. Good luck.

  • november
    november Member Posts: 103
    edited February 2012

    Mallory 107 and Golden101- Thanks for replying to my post. I will try those exercises and will ask my doctor about going to an excercise class as well

    Hope both of you are doing well

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited February 2012

    The soreness under the arm and the back of the arm could be post mastecomy pain syndrome, which is nerve damage from the node dissection. I have a severe case of it.

    Your surgeon should give you the ok and some basic stretching exercises. Mine gave me a few to do, then gave me a broucher and told me to get some from the American Cancer Society. However, I did note and told my surgeon that the ACS booklet were for more advanced than I was at that time.

    I was not able to raise my arms more than a 45 degree angle from the sides until the surgeon gave the ok. I can't remember how long from post op I was.

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2012

    Hi November.  I had BMX with full ALND on one side and a sentinal node on the other.  My surgeon gave me a print-out of exercises that I could start doing a short time after surgery (I dont remember the specifics).  I pushed hard for PT, and she did send me.  I have had 6 orthopedic surgeries and was dumbfounded that referral to PT was something I had to ask for.  

    I saw a therapist who was a certified lymphedema therapist for rehab guidance after surgery. Basically, the advice is start low, go slow.  Even with just the sentinal node removed, you do have some risk for lymphedema so it makes sense to rehabilitate after the surgery with that in mind.  The lymphedema board is a great place for good answers - there are a couple super-knowledgeable women who post regularly there.  

  • lago
    lago Member Posts: 17,186
    edited February 2012

    Your doctor should be giving you exercises. Below are a list of them but some you shouldn't do till you get your doctor's clearance especially since you have had issues and it's only been a few weeks. I recommend you bring them in and discuss these with him/her. Some of these exercises are too advanced and you won't be doing them till a few more weeks go by.

    Linky 1  

    Linky 2  

    Many people don't need PT. PT and exercises will only help with your range of motion. It takes time for your body to heal. The pain should slowly get better everyday. Motrin might not be strong enough and it might not be the right thing to take since it can thin your blood making clotting an issue. Talk to your doctor about something else. Most doctors recommend Tylenol for OTC not Motrin, Asprin etc.

  • november
    november Member Posts: 103
    edited February 2012

    Thank you so much ladies for your advice. I will be sure to talk to my doctor

    Hope all is well for you

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited February 2012

    November,

    I know you live nearby.  I just found a free progtam at some of the localY's (NO Attleboro, Franklin) for folks in treatment or post treatment.  If I recall and it was jsut a few minutes ago, it was LIVESTRONG, it is 12 weeks jsut for folks with cancer. I need to start moving again so think I will sign up for the evening class begining the end of March

    Nel

  • carol57
    carol57 Member Posts: 3,567
    edited February 2012

    Outfield mentioned lymphedema, and that's a critical mention.  Current thinking is that if you have had any nodes removed--even one-- don't lift your arms above shoulder level for at least a week; two weeks for added safety.  There's some evidence that damaged lymphatics have a small window of opportunity to heal--7 to 10 days--but lifting arms above shoulder level likely interferes with that. One study of women with axillary dissection had half do the traditional range-of-motion exercises right after surgery; the other half waited 7 days.  The 'immediate' group had 2.7 times the incidence of lymphedema during the year after surgery, but both groups were tested for physical ability at one year, and there was no difference in ability to reach, move arms, shoulder movement, etc. 

  • crystalphm
    crystalphm Member Posts: 1,138
    edited February 2012

    I really think your doctor should have given you exercises. I had my first mastectomy with lymph nodes 2 years ago with no physical therapy, just a print out of exercises. I had my second mastectomy 3 months ago with physical therapy, it is like night and day (better!!!) with the healing with the help of a physical therapist, especially one trained in lymphatic issues! I learned so much.

  • hawaiik
    hawaiik Member Posts: 69
    edited March 2012

    Hi Everyone,

    I had NSBMX with direct to implant reconstruction on Dec 27th. My PS didn't want me doing anything for weeks not even set the table. It has to do with the movement of your arms and the production of fluid , if you still have drains they will tell on you if you move too much. I am surprised to hear of people doing so much exercise so soon! I finally started Physical Therapy 6 weeks post op with a lymphedema specialist. We started with lymphedema breast massage for 2 weeks to help move fluid and then at 8 weeks started Range of motion stretching exercises. I had 2 lymph nodes removed on the left underarm and had very limited ROM on that side. I am happy to say my ROM has improved immensely since then . I would be very careful and go with your doctors advice as to when to start any exercise.

    In my case it doesn't seem to have been any problem to wait to start PT, as carol57 mentioned, it is critical to do all you can to prevent lymphedema .

    Karen

  • november
    november Member Posts: 103
    edited March 2012

    hi Nel-I have an appointment with Beth this week at the North Attleboro YMCA to sign up for the class which starts the end of March. Thanks for the info and thanks to everyone who replied. I am doing very well. I have full ROM and minimal to no arm pain- some stiffness from time to time but relieved with stretches. I went back to work part-time this week

  • dreaming
    dreaming Member Posts: 473
    edited March 2012

    American Cancer Society has a booklet about exercises to do at home, and one needs to make sure to do them for ever, I stopped doing mine , even as a long term survivor, I had a frozen shoulder that took one year  to mend and this time with PT .

  • november
    november Member Posts: 103
    edited March 2012

    Anyone in the Attleboro Ma area- I met with Beth Grimes who is the director of the LIVESTRONG program at the YMCA. She asked me to pass on the word regarding the free 12 week exercise program. The next evening class starts on 3/27/12. Feel free to call her if you are interested. It is for anyone with a cancer diagnosis. The # for the Y is 508-695-7001

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