RAD treatment for Lumpectomy/DCIS but with History of Smoking?
I've recently been diagoned with DCIS in left breast.
As part of the pre-surgery screening I had an MRI that turned up 3 additional suspicious areas and had biopsies that today were returned as all 3 B9.
So I now have to understand treatment for the DCIS in left breast and the recommendation is for Lumpectomy and Radiation.
As I've been perusing these boards I saw one mention of caution for smokers and radiation treatment but I saw nothing on the 'official' section on radiation on the site.
I know a lot of you out there have done much research on many treatment options.
Any of you have any advise for smokers and radiation?
Im 47 years old and have smoked for years. I'm obviously trying to quit with my recent diagnosis but admittedly have struggled - particularly while waiting for recent MRI biopsy results.
I will ask my doctor for recommendation but I won't see him till late next week.
Would love to hear from others in the community who have knowledge or opinions.
Thank you,
Comments
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http://www.breastcancer.org/risk/new_research/20080122.jsp
Above is a link to a story on this site about it. When I posted this before people jumped in to say not to listen as this study was old. I have not, however, found anything to refute it. As a long time smoker this factored into me not wanting to do radiation. I live in fear of lung cancer and dearly regret that habit. Your oncologist would be the one to ask though.
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Thank you. Mallory u may have been the one to bring this to my attention and for that i am profoundly grateful. I too gravely regret my smoking history but i can not change it.
I too fear lung cancer more than my bc cancer diagnosis.
How has your prognosis and treatment gone without radiation? -
You are welcome! Well, my stats are DCIS with 1mm of microinvasion grade 2 ER+/PR+ HER-
Because the DCIS was so widespread I had to get a UMX which I was really bummed about at first because I wanted to conserve the breast and thought Rad would be the easiest thing. I seriously had no idea what was involved with radiation other than it would be inconvenient to go every day for 6 weeks. Once I found out what it entailed and the risk for smokers I was so glad to have the MX. And the MX was really pretty easy for me and so are the TEs. Nothing at all like I expected. And honestly I am not even traumatized at all to look at my scar. I actually am liking the fact that it is smaller than my real one-I look much thinner now. My MO wanted me to go on tamoxifan as my only treatment but since the IDC was only 1 mm it really would only take my risk of local reoccurence down from 1-2% to about 1/2%. On the other breast it would take it down to about 5%. I have not liked the idea of taking tamox at all and for my case have really felt that the SEs and risks were more than what I could gain from it. So after much consideration have finally decided to do a MX on the other side. This will give me major peace of mind as well as nicely matched foobs :-) And no more treatment for BC! (Godwilling of course-there is always that small chance it could come back to what is left of my breasts)
Honestly-you might really want to consider a MX. Many surgeons are all about conserving the breast-mine included. In Susan Loves book she explains it that they fought so hard to get to the place where they could preserve the breast that she hates to see the trend of prophyMX. I was talking to my PS today about it and she concurred that the old-school breast surgeons do not like to do anything more than what is necessary but she agreed with me that you should logically worry about preserving your life over your breast.
I feel the same way about fearing lung more than breast cancer. You should check out the book Anti Cancer- A New Way of Life. It gives you so much information on all cancer and how to prevent it. I feel like I am now actively trying to prevent cancer rather than being just afraid that it will strike.
Have you ever tried Chantix to quit? This was the only thing that has helped me quit in the past but I always started up again for social smoking after I was quit for a while. Thankfully I was able to quit for good when I got my BC DX.
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Thank you so much for the detailed response. i don't know a lot of the acromnys yet.
You mention above the TE's were easy. what is TE.
I did not smoke for about 4 days after diagnosis but I found it hard waiting on subsequent biopsy and have smoked since diagnosis but not nearly as much.
My goal is to quit completely with surgery. I still need to talk to doctor about treatment options but I think I'm going to try to avoid rad and talk to surgeon about what option he recommends if I choose no radiation.
Thanks again for the heads up. I think my peace of mind as a smoker is greater without radiation - potentially.
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TEs are Temporary Expanders. They put these in where your breast used to be and you go every couple weeks to have them filled with saline. When you are the size you want to be they switch them out and put in a silicone or saline implant. This is one of several means of reconstruction though.
Glad to hear that you are able to stop smoking as much. Once you get your gameplan in place I am confident that you will quit for good. So hard though-I still do miss it for 2 things: anxiety and stress relief and with a drink.
Good luck on your decision. You are doing the right thing getting all of your options BEFORE surgery. I wish I would have -I would have done the MXs at the same time and been done with it.
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As I sit here reading this thread, I am beginning to feel kind of sick. I quit smoking 12 years prior to my DCIS diagnosis. I did what I was told to do: partial mastectomy, then off to the radiation oncologist. I really don't remember being told that my risk for lung cancer was higher because I was a former smoker. I do remember that he said they do their best to keep the amount of exposed lung tissue to a minimum. I am not sure that in my case the benefit of radiation would have outweighed the risk. Just another reason I regret doing the radiation.
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Lane4, my questions are because I am a smoker now and have been for almost 30 years. As a non smoker for 12 years prior your lungs would be that of a non smoker.I'm actually just asking the questions because I'm new to this. My doctor has not said anything to me about being a smoker and radiation - but I do intend to ask.
Please do not let this post disturb your peace of mind - do not regret your treatment decision.
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mrkffr11, thank you for your reply. After a decade of not smoking (my math was wrong -- I quit smoking 11 years before diagnosis), I guess my lungs should have been back to normal, but I recently read that even in former smokers, the risk of developing lung cancer is increased 10 years after receiving breast radiation therapy. It's good that you are researching as much as you can before you begin treatment and are asking questions! When I was where you are now, I didn't know what questions to ask. It was presented to me as partial mastectomy + radiation or complete mastectomy and I did not want to lose my breast. I wish you the best with your decision-making and the treatment path you choose!
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hello !
I had surgery (lumpectomy) last december. I didn't quit smoking because I am waiting to feel better and will stop when I will go back to work. At home I have nothing to do and think about that every minutes. I know I should had quit but...
I am having rads right now for 4 weeks (5 days a week) and they asked me if I smoke and said yes but they don't tell me anything about radiations and smoking habit. I know that I should have quitted when I had diagnosis but I am not able to quit right now. I quitted smoking in 2011 for 9 weeks and I was so depressed, so I will wait a while and try again in a couple of months. For now I have enough stress.
I know that smoking is very bad, but for now I am telling me that it is not a few weeks that will change something. I think about quitting every day and prepare myself to do it but not until my mind is going back to normal. I am on a leave of absence from work and hope to go back in april so I fixed the date in april and try to conditionnate myself to succeed.
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Nicole, Thank you so much for sharing your story and your struggle with smoking.
I too am struggling with it. I've been a smoker for so long almost 30 years. When I first got biopsy result in late January that I had DCIS I could not light a cigarette - but it only lasted 3 days. I've cut back considerably but if I don't quit I'll be back at pack a day in no time. I'm already smoking more and more every day.
I just met with my BS about 1 hour ago and his recommendation is that I talk to radiologist about my concerns (smoking history) but his recommendation is for radiation therapy to reduce risk of reoccurance of invasive cancer.
Did your radiologist express any concern for smoking and radiation treatment? I've not talked to a radiologist or oncologist yet.
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I was diagnosed in August, and quit smoking two days later. I did chemo, then lumpectomy, and am now 14/34 treatments into radiation. I am really trying hard not to regret my decision not to have a mastectomy and forego the rads. But that link to that article is scaring the sh** out of me. Those are some scary numbers!
None of my drs said anything about increased risk of lung cancer with rads because I was a former smoker, but I figured that it was true with or without rads. Smoking has done lots of damage to my lungs I'm sure. In spite of my smoking history, they still recommended the lumpectomy and radiation. They did tell me that quitting smoking was the best thing to do for my treatment. (Duh, we all know that!). I smoked for 40 years, and I fear that quitting at this time may be too little too late.
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beegee, thanks for sharing and please don't let my questions disturb you. I've talked to my BS about my concerns and he still recommends radiation - I have an appt with radiologist next week.
I would not regret your decision at all. My BS knows my smoking history and still recommends it. I have to wait to have the surgical biopsy yet before I can decide if I can forgo rads (still would be my choice) my surgeon recommends but if the pathology comes back favorable with no surprises and it is DCIS with clear margins I will probably choose to forego rads.
I did not smoke for 3 days after my initial diagnosis - out of fear - but unfortunately I'm smoking again and trying to quit before my surgery scheduled for March 20.
Thanks again - best of luck and please no regrets - I have an inate trust in these doctors - they would not persue rads with smokers if the risk was very great.
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I am in a similar situation. I have been a smoker for 40 years (not so great, I know). I was diagnosed with breast cancer 2/16/12, 4mm, stage 1. I am to schedule a lumpectomy, consultation with a doctor is 3/6/12. I already decided not to go on any medication, i.e., Tamoxifen, or chemo. But I am not sure whether to agree to radiation or not since I also have COPD. I have tried to quit smoking, tried Chantix two different times, but I just can't do it. I know, I am stupid. I will ask my doctor about radiation and being a smoker but I really would prefer no radiation since it might do more harm than good. Since it's so recent that I've been diagnosed with breast cancer I've been trying to research and am pretty confused at this point about all the pros and cons for treatment. I have reviewed Dr. John R. Lee and Dr. Mercola websites who are not fans of chemo., radiation, and Tamoxifen, which apparently do more harm than good. They are more into hormone balancing and nutrition. But try to find a doctor who is into hormone balancing AND covered by insurance is practically impossible. I still need to decide, radiation or not?
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Hi Ladies,
I'm a 1 1/2 pack a day smoker. My dx has definatly influenced my desire to quit smoking. However I decided to get the rad tx in spite of the danger it may cause my lungs. The stress of the tx makes it more difficult to quit. As soon as tx is done and my head is cleared of stress I will try again. In my case there was a possibility that CA left on the skin, even though the surgeon scraped and cleaned, the skin with a laser burning any possible cells. It is questionable. I felt like I had NO choice but to do the RADS. I'm almost done with the radiation and so far there does not seem to be any effect on my breathing but long term damage may appear. The area of lung exposue is mininal.
Quiting smoking is a must. Sometimes I think I've put it off til tx is done as an excuse to keep smoking...........Only a week and half to go. wish me luck.
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chef127: I wish you luck with the smoking...you know better than anyone else what will happen if you fail to quit. It's probably the second greatest priority next to beating bc. When you stop, be sure and juice and drink lots of parsley and cilantro as it helps to clear your system of the nicotine. A friend of mine did this and he was able to quit cold turkey in very short order.
Sending you prayers and lots of positive energy for your next challenge.
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Kaara
As I sit here and light that f--king cig I know your right. I have a plan ready to help me succeed. nico patches, e-cigs, SF lollies, etc. I already juice parsley and wheatgrass but the cilantro is really 'dirty' and hard to find organic except in Whole foods which is 30 miles away.
It is a challenge indeed but it is crucial for survival. Thanx for the possitive evergy.
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chef127 & LynGal, thanks for replying and sharing your stories. i found a smokers tread on this site so there are more than a few of out here with the same smoking struggles.
I'm going to attempt to quit tomorrow - I say that alot - tomorrow.
Wish me luck and best of luck to both of you.
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mrkffr11,
Thats a very supportive thread. "IF" I manage to quit I'll meet you there.
When you quit tomorrow make sure your prepared. It really sux. Good Luck.
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mrkffr11, my best wishes for you. I am also a smoker, 40+ years. Have you found out anything about radiation on smokers?
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To all interested.,
I meet with a radiologist yesterday who suggested that even with my long history of smoking I should consider radiation treatment following lumpectomy.
Her facility does not do a partial breast only full breast radiation and yes part of my lungs and small area of heart would be in the radiation field.
I'm still very dubious if this treatment is right for me.
I might consider a more targeted partial breast radiation approach but I've been told that perhaps my insurance won't cover due to my age at 47 as opposed to 50+.
I really don't want whole breast radiation so I will talk to my surgeon about going for a larger margin of tissue or mx instead.
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I would be very suspicious of a facility that does not do targeted radiatiion. Whole breast radiation only seems pretty radical.
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LynGal,
I have finally met with a radiologist who was not detered by my smoking. She was doing her job and trying to convince me that radiation was what is needed to follow up lumpectomy.
I'm still not at all comfortable with it so will go back to my surgeon to discuss if I should persue something different sugically, either wider excision or perhaps masectomy.
So far none of the medical community seems concerned about introducing radiation to the breast to treat this condition - even if you have been a long time smoker. At the end of the day I need to feel comfortable with it and today anyway - I'm really not comfortable.
But my feelings on things have been know to change radiply as of late.
LynGal, Keep me posted on what your doctors tell you. I've not made final decision yet but know where I'm leaning. Would love to know what your doctors suggest.
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Chef127,
I never did make it thru this quit. I can totally relate with how hard it is to quit when there are so many tough decisions to make.
I'll keep trying though.
All the best, M
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mrkffr11 Had my consultation on the 6th. I was given an option, lumpectomy w/radiation or masectomy w/immediate reconstruction. I chose the lumpectomy but was told radiation would be for SIX weeks, FIVE times a week! I asked about cases wherein radiation can cause heart disease and/or cardiovascular disease and they "poo-pooed" it. I asked about radiation on someone with COPD/smoking and all they said is they have done treatments on COPD patients with no problem. Without any radiation, my odds of cancer coming back is 30-40%, but they cannot guarantee it won't come back with radiation. At this point I do not want to do radiation, why go through all that with no guarantees. I am going to do some more research regarding radiation. All conventional doctors have to offer is conventional treatment because there is nothing else out there that is not "alternative." They don't want to get sued, ya know!
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I am having a lumpectomy this Friday 4/6. I was urged to followup with 6 weeks/5 days a week of radiation. I did not want to do this. Via the internet I discovered interoperative radiation (which was not offered as an option). I told my doctor what I discovered. She said it is still a new procedure and there are no long term studies, however, she put me in touch with a radiologist anyway. He agreed I am a candidate, mainly because he admitted that the normal radiation treatment could possibly damage my lung and I already have COPD. The interoperative radiation is a one-time treatment, done while you are still under, in the area of the lumpectomy, for approximately 1/2 hour. I did more research and this procedure is said to be just as effective as the standard 6 weeks/5 days a week of radiation. This procedure is not widely used yet, my hospital (Northwestern, Chicago) has only done it for about a year. Those who are facing radiation may want to look into interoperative as an option.
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I had the lumpectomy, lymph node removal, and interoperable radiation 4/6/12. On 4/12/12 I received good news, margins and lymph nodes were clear (yay!!). However, I was told since my tumor was 1.1 cm I should followup with chemo. I don't understand, why would I need chemo? I decided to chance it, and not do it because my body has already gone through so much, and might this chemo be "over treatment"? My armpit is killing me. I developed a very sore, lumpy, redish bump; about three inches long by an inch and a half. I was told to wear a bra and am not sure if it's irritating the lumph node surgery area or if it's infected. Since it's Saturday today, there is no one to call. I had some anti-biotics at home that I started taking this morning just in case it is infected. The armpit area hurts one heck of a lot more than the breast!
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