Lymphedema risk & TB test following BMX

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coraleliz
coraleliz Member Posts: 1,523
edited June 2014 in Lymphedema

Hoping someone else has been through this. A yearly TB test is required for my job. I've had a BMX with 4/5 nodes removed on each side. I've never heard of TB test being given anywhere but the arm, but I'm not sure why it couldn't be. I don't know if I could be treated like an employee with a positive test & go to chest Xray/questionaire? Or if I'd really want to? More radiation......

I currently don't have signs of LE that I can see. Just less "tone" from getting older. Any insight?

Comments

  • Leah_S
    Leah_S Member Posts: 8,458
    edited July 2011

    coraleliz, why don't you ask if they can do it on your thigh or your back? The LE risk is real.

    Best of luck.

    Leah

    edited to add: if they do it in your back it should be in the LOWER back since the upper back is part of the quadrant at risk for LE.

  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2011

    coraleliz, good for you for thinking of it!Cool

    I'll second Leah's suggestions. The risk is VERY real with a test like this that can create inflammation. I've had it done on my thigh, which was not an issue, but it helps to have the same person read it who administered it so you don't have to explain it twice. I had it read once in the ER over the weekend (I was working at a hospital) and the nurse who read it was VERY suspicious.Laughing

    Let us know how it goes. Be well!
    Binney

  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2011

    Leah & Binney. Thanks! My TB test isn't due for a couple of months. I was pretty sure the only reason the arm is used is for convience. It shouldn't be that hard for them to accomodate me/my request for another site. Helps to know others have gone before me. Thanks again.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012

    I asked for my annual TB test to be done in my thigh. I explained that I've had lymph nodes removed on both sides. I was told that the tuberculin(tubersol) derivitive has only been tested using one site & that is the inner aspect of the lower arm(can't remember what she called it). I was also told that it shouldn't be a problem because the tubeculin derivitive wouldn't be absorbed. I thought I should avoid anything that could potientally cause inflamation.

    Anyway, I currently don't have symptoms of lymphedema. My left arm has been really achey lately so I'd like to avoid it & I'm right handed so I REALLY don't want it used. I didn't have the test done. Employee health is looking into this further & will get back to me.

    Would love to hear what others have been told. Anyone?

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2012

    Coralez, the ppd test is adminstered intradermally--just below the skin, and when it's positive, there is swelling and inflammation--of course the ppd is absorbed, and then if your body has been exposed to TB, your T cells mount a defense and a positive TB test is greater than 10 mm of swelling and I've seen some whoopers.

    Maybe it's only been standardized on the inner portion of the arm, but the T cells don't discriminate, they'll come after it on your thigh.

    They can't force you to take a risk for this.

    Tell them to call the CDC if they have questions.

    When I googled "alternate sites for PPD testing" I got a pdf from Vermont Dept of Health which said:

    Alternative sites such as the upper back 
    or shoulder, or back side of upper arm, 
    may be used when the forearms are 
    inaccessible or unsuitable.  

    And here's the CDC site:

    http://www.cdc.gov/tb/

    I know you're trying to avoid the upper quadrants, but if the upper back is ok, why isn't the thigh?

    Kira

  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012
    thanks Kira, I'll check out your references & dig further myself. Perhaps I'll get a call back with an alternate site option. Can I be "forced"? The CDC is federal & if the state I live in says all health care workers need to be tested, which takes precedent? I know there are some exemptions, not sure if I quailfy. But I'm willing to get the test, just want it somewhere else!
  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012

    I got a call back letting me know that the medical director approved an alternate site (my leg). So, problem solved. I know that if you don't want your child to recieve a TB test that is "required" for entry to kindergarden, you can sign a form refusing on grounds of religious or personal beliefs. I'm not sure that will work in a hospital.

    The hospital also provides & "requires" that all employees recieve the flu vaccine each year. We have the option of signing a waiver. It's also only given in the arm because that is the only site it was tested. I declined that one. When I was late getting my TB test a couple of years ago, I was given a deadline & told if I didn't get it by a certain date I would be "taken off the schedule" but I wasn't told I'd be fired. Conflicting information on the internet on this one.

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2012

    Binney gets the flu shot in her thigh. The flu shot is intramuscular, and once I had a nurse give it too shallowly and looked up administration, and it just was intramuscular, not subcutaneous--although they did do a study on subcut administration and it worked.

    What is wrong with these people?

    The level of administration is key, not the place on your body.

    I met with employee health the other day--and told the nurse she was NOT drawing my serology (come on, I'm fully immunized and have the records)--so we compromised with a phlebotomist with a butterfly and the nurse got to do the ppd. Which left me with a bruise...

    Kira

  • carol57
    carol57 Member Posts: 3,567
    edited February 2012

    Wow, Kira and Coraleliz, this whole discussion makes me think: if the two of you, working in healthcare, have to push back so hard to protect yourselves, how does the average Jane stand a chance?  I'm also thinking of someone in another thread whose RO refuses to acknowledge LE even though another provider and an LE therapist says probably/evaluate it.  

    Those of you working in healthcare may have a different view of what sometimes feels like a parent/child relationship, so you may be more comfortable arguing back when a provider is not being helpful or accommodating a true need. In the past I have found it easier to be a pushy advocator for my children than for myself.

    Looking back at my own recent medical journey, I sure did let myself be pushed around before I woke up and realized that no one was going to protect me from LE mistakes and missed opportunities if I don't do it myself.  But even though I know this to be true, I still feel like I'm somehow doing something inappropriate when I challenge my various providers on their inadequate understanding of LE.  Sigh.  Kira, you should put on some 'challenge the medical establishment' seminars.  They would be sell-outs.  (Of course, probably not too popular with your employer!)

    Carol 

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2012

    Carol, at the start of my treatment, I was in such shock and fear, I went along passively--with the surgeon who didn't agree with my concerns, didn't know what to do about my seroma, with the rad onc who drew my blood weekly--because they made money on their in-house lab and trashed my one good vein, the same rad onc who when I finally questioned how high up the field went both told me that radiation never caused LE and "why did I worry?"--because I already had LE, and I found a PT when I developed AWS two weeks out, who had been at the LE clinic and she had me doing all the wrong things--swinging my arms overhead, repetitive movements, etc. So, I didn't push back, and I got all the wrong treatment, and I'll never know if I could have dodged the bullet. Likely not, but still.

    The same rad onc dictated "patient states she has LE, no swelling seen" Needless to say, I don't see her anymore.

    So, I was passive, and scared and floundering.

    Yeah, if I had to do it again, I'd know better, but at the time, I'm just incredibly lucky I found this forum and Binney--but I already had LE.

    I fight back now, but the proverbial horse is already out of the barn.....

    I just hope all my posts help this forum can arm other women so they don't make the same mistakes I did.

    Kira

  • Binney4
    Binney4 Member Posts: 8,609
    edited February 2012

    Kira, it's only our own horses who are out of the barnUndecided, and at least that fact can alert the rancher before all the others get out too.<sigh!>

    Carol, the key for me has been to take an offensive stand and start educating my providers. But it never ends. I've done in-service chats with my own med onc practice and the last time I went in for my flu shot there the nurse wanted to see how far up my arm the compression sleeve went -- if there was room above it she thought she'd give it in my arm. You smile nicely and set them gently straight. Again.

    The StepUp-SpeakOut page about essential information for health care providers is here:
    http://www.stepup-speakout.org/essential%20informat%20for%20healthcare%20providers.htm

    Copy it off and deliver it to whatever person at your doctor's office is most likely to listen to you. If you want their attention, you might add a plate of brownies. (Brownies have multiple applications to the problems of LE!) Offer to talk to them about your own experience at their convenience. It's not a matter of shaming them for their ignorance (though that's tempting tooYell), but of sharing their surprise at the things they were never taught.

    Onward! (Okay, climbing down off my soapbox nowEmbarassed!)

    Liz, so glad that worked out for you. You might record the date of the call, name of the medical director, and notes about the conversation, so when it comes up again next year you'll have a precedent to show them. Or ask him to put it in writing to you for future reference.

    Geesh!
    Binney

  • coraleliz
    coraleliz Member Posts: 1,523
    edited February 2012

    Carol-Working in healthcare certainly has it's advantages but also it's challenges. I work in a fairly small community. I didn't want to burn the bridge with the only acute care hospital in town. I'm not sure how hard I would have pushed. I also know all the physicians & although I'm not entirely happy with my MO, it could be worse. With my blood pressure, I usually tell the medical assistant that if it's really necessary they'll have to use my leg. Sometimes they skip my BP.

    Binney & Kira-As far flu vaccines being given in the thigh, the only reason I know why it shouldn't be, is that on heavier people it might not be possible to reach the muscle with the needle that comes on the pre-filled flu vaccine syringes. Sometimes you can't reach the muscle in an arm of an overweight person with such a short needle.  This doesn't apply to me. I'm 5'5" & 105lbs, hitting muscle.....no problem. I didn't want to fight one,  so I declined it.

    I really appreciate the nurse in employee health for helping me out here. She said she called or emailled(maybe both-can't quite remember) the CDC to find out about an alternative site because all she could find was mention of the arm being the "preferred" site. The CDC couldn't give her an "alternate" site, so she went to the medical director. I had it placed today in my thigh. I was told this has never come up before. With bilateral BC be found in 3-4% of all women with the disease, it sounds like it's hard for us to stand up & speak up & push

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited February 2012

    Coraleliz, while the deltoid muscle is the preferred vaccination site for adults, the thigh is an approved alternative location. Here is an excerpt from the CDC's Vaccination Administration Guide on their website:

     -Adults (19 Years and Older)

    For adults, the deltoid muscle is recommended for routine intramuscular vaccinations. The anterolateral thigh also can be used.

    I have been getting the flu shot in my thigh for the last 6 years ever since my LE dx.  My PMD offers a walk-in flu clinic for his patients so I just call ahead and let them know which day I will be there. This is the first year they told me they would have to get a longer needle for an IM shot into the thigh.  I think I must be one of the very few patients they do thigh injections for and perhaps they reviewed the literature this year for proper protocol.

    CDC quidelines call for use of a 1" - 1 1/2" needle, 22-25 gauge for standard IM shot into the Deltoid muscle of an adult.  A 1" needle is adequate to reach the Deltoid for most adults but 1 1/2" is more commonly used for obese patients or thigh injections.  I had no problem with them using a longer needle for my thigh even though I think the 1" needle used in previous years was adequate for me.  BUT I did object when the nurse walked in with an 18 gauge needle.  I told her that she was going to have to get a much smaller gauge than that.....18 gauge needles / IV catheters are typically used for blood transfusions and surgery.  There was no need to poke a huge hole in my thigh to deliver a vaccination.  She came back with a 22 gauge 1 1/2" needle which was fine.

    Some resources I read suggested that the gluteus muscles should be avoided as an injection site specifically for vaccinations because you don't want to risk hitting major nerve bundles or blood vessels. The anterolateral thigh (vastus lateralis muscle) is an acceptable alternative IM injection site for both adults and children. Nursing staff must use their assessment skills to determine if their patient has reasonable muscle mass at the injection site, or excessive adipose tissue which may require they adjust the needle length accordingly.  Gauge pertains to the size of the inner lumen of the needle and since most vaccines are not very viscous, a smaller gauge 22-25 lumen is perfectly adequate.

    http://www.cdc.gov/vaccines/recs/vac-admin/default.htm#guide

     So yes, we still have to continually educate ourselves and others to be our own best advocate. Changes for the better are coming....but still much too slowly!

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