Anybody with my diagnoses doing well?

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Sissydi
Sissydi Member Posts: 516

Does anybody on the forums here have my similar diagnoses? Just curious, as I am not seeing it too often. Just needing moral support :(

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  • blondie45
    blondie45 Member Posts: 580
    edited February 2012

    I am pretty close to your diagnosis. I am doing well after bilateral mastectomy almost 3 years ago and bilateral DIEP last year. Let me know if you need anything at all. Hugs, Dawn

  • hmh23
    hmh23 Member Posts: 306
    edited February 2012

    I too am close to your diagnosis although my type is rare, Invasive Lobular.  I am two year survivor today!!!!  I also had a bilateral mastectomy with a DIEP, 16 chemos and 33 radiations and I'm doing really well. 

    If you need some additional words of encouragement, I would head over to the 3 years survivors boards etc and you'll find many with your diagnosis.  Also would also recommend a book entitled, There's No Place Like Hope.  It got me through some dark times and is now highlighted in 4 different colors of highlighter....it's a must.  Hang in there and don't hesitate to reach out whenever you need words of encouragement.

    Heather

  • Sissydi
    Sissydi Member Posts: 516
    edited February 2012

    Thank you Hearher and blondie!

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited February 2012

    I would say we are close, but I am not Er+.  I was slightly Pr+ but it was soo little that they consider it negative.  But I had multifocal tumors, and Her2+, had a tumor roughly the same size as yours (well the largest one), extensive DCIS and four positive nodes. I realize I am not really all that far out here. Had Mastectomy, TCH and 33 rads, no Reconstruction. I am also a grade II due to a low mitonic score (1, the rest were 3) Welcome! 

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2012

    Hi there,

    I'm kind of close.  I was diagnosed about in Nov 2010, had BMX, chemo, rads.  Now doing Herceptin.  Just had my exchange.  My scans in December were clear - wahoo!  Hang in there - you can do this! 

  • slousha
    slousha Member Posts: 312
    edited February 2012

    Hi Sissydi,

    I' m quite close to your dx too ! It's early stage still!

    Best wishes and take care!

    Usha

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited February 2012

    I'm close as well. Same Er/Pr Her2 status but no nodes.

    Did my surgery/chemo/rads/Herceptin and am doing great. it's 3 years since dx this month and it is definitely starting to feel like a bad dream that I had a long time ago - fading for sure.  Any questions, feel free to PM me.

    Also if you are on the TCH chemo regimen, please feel free to come visit our TCH thread. It is a very active thread and lots of good advice for women going through the "TCH" portion or just the Herceptin portion. You're more than welcome!

    Amy 

  • whatRstatsanyway
    whatRstatsanyway Member Posts: 53
    edited February 2012

    I'll be three years out in April and there is light at the end of the tunnel (and, no, it's not an oncoming train!) Hang in there (((hugs)))

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2012

    Me too, her2 and lots of pos nodes. Doing very well!! Take heart, you will be fine!!

  • missy_111
    missy_111 Member Posts: 141
    edited October 2012
  • Soccermom4force
    Soccermom4force Member Posts: 631
    edited October 2012

    2B multifocal 1.5 cm largest one..1 node chock full of cancer... 7 years 10 months out,

    Hugs,

    Marcia

  • Sue2690
    Sue2690 Member Posts: 43
    edited October 2012

    There really aren't many with this diagnosis, are there?  I have the same, I think!  I didn't get an official stage because my tumor was "too big for surgery" and I did chemo first, but my nodes were matted so from what I saw that made me stage IIIa.  I had one node confirmed cancerous by biopsy, and three more that were notably enlarged in the ultrasound, so I'm sure I had more involved.  I had my UMX on Oct 5, and will get path report tomorrow. 

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