CELLULITIS + FLYING :COULD I BE GROUNDED?

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moogie
moogie Member Posts: 499
edited June 2014 in Lymphedema

Am despondent and on Keflex farting up a positive storm. 

I got LE in my " good arm" after an hour flight, properly compressed a few years ago.

This week I wore custom, well fitting garments for an hour flight. Did MLD before donning the sleeves, did exercises in flight. Two hours after landing, I started having drenching sweats--different than a hot flash---and a funky feeling. No redness anywhere.

24 hours later the sweats continue, and I am stuck in 100 degree heat. 36 hours later a big red patch appears on my hand and I begin KEFLEX. I had to forgo my return flight and take a train for 13 hours because I cannot fly uncompressed and one shouldn't compress an infection. I had the option of using a loose old sleeve only for the minutes in flight, and then ripping it off the second we landed. I had no bandages because they are so bulky I could not have carried more luggage and I do not normally bandage since I wear sleeves. It was a gamble and after consideration I decided I did not want to have the stress of wondering if I was pumping crud through my system---or fearing more time in flight due to scheduling delays on landing.

I could have had a trip to Paris for the price of this fiasco,piling last minute train fare on airfare.

Is there anyone else out there who has such issues flying? Do I have to travel everywhere with sleeves and bandages? It is so depressing  waiting for this infection to resolve and thinking I am now grounded since my body may not be able to handle flight...

Comments

  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2011

    Moogie!Frown That is so sad, and maddening, and plain horrible! And 13 hours on a train with cellulitis is not anybody's idea of a fun trip either.Surprised Awfully glad you had the Keflex with you -- is the infection improving? How in the world are you?

    I have to fly wrapped. No way around it. Gives the TSA people a good scare and confuses the heck out of them, so I have to give myself plenty of time to process through those minions of anti-terror safety. Or whatever. The upside is I never have to deal with my luggage because one look at me and people are always willing to help.Undecided Dubious privilege, but there you go. Take what you can get.

    Shoot, moogie, I live in a big valley and can't drive more than an hour in any direction without a significant altitude change, so I have to wrap for car trips.Frown

    At any rate, always a good idea to tote all the wrapping gear along whenever you're away from home, even just overnight. It allows for handling even minor emergencies, much less something of this magnitude.

    So -- no, not grounded. You'll fly againSmile, but wrappedTongue out. This is doable, honest!

    Please take care of you: drink plenty of water, elevate, rest, eat brownies.  How can we help?

    Hugs, prayers,
    Binney

  • moogie
    moogie Member Posts: 499
    edited July 2011

    BINNEY, you just did help! Maybe wrapping is worth a try when I get brave enough for another flight. Did you ever use compression sleeves for flight and stopped for these issues? I assume wrapping works better due to the pumping action? Redness is gone, only a little feverish now.

    I took Keflex immediately and early since I could just imagine myself in Bellvue Er with someone trying to put an IV in my neck away from home. If you have ever been in a NY city ER after midnight ( which is the witching hour for cellulitis---it deserves a study... 12: 25 AM and here comes your special late night red patch), it is like entering the third ring of hell purely for mayhem.

    The sweats and feverish feeling were my warnings, with a weakness and heavy arm.  Am going to rest tomorrow and do nothing in hopes of resolving this mess.

    It is hard to know you did everything right and the fickle finger of fate intervenes anyway! I also had trouble going to the mountains! And not very high ones at that. If you remain at an altitude for a while can you switch to a sleeve once the body adjusts? Or does it adjust at all?

    Moogie 

  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2011

    Moogie, I never tried to fly without wrapping. I once drove out of the Valley without wrapping and my arm hurt so bad, it was just scary (and incredibly frustrating). Fortunately I'd packed the bandages along so we stopped and wrapped, but after that I knew I'd never try flying without it.

    When I've remainned at an altitude it's adjusted, but we're only talking about 7500 feet. I'm conservative about it, though, and spend the first day and night wrapped and switch to garments the next day. Whatever works. Undecided

    Glad you're getting better! Be well, and keep us posted,
    Binney

  • kira66715
    kira66715 Member Posts: 4,681
    edited July 2011

    Mooge!--this just totally stinks.

    I used to fly with a Solaris on, but after the hand fracture, I fly wrapped--it was no real hassle and I got to board first.

    This sounds like a total nightmare.

    Are you better?

    Here's a concept: prophylactic antibiotics for flying---I have had chronic sinusitis issues, and my allergist and ENT both see a lot of sinusitis after flying--due to barotrauma--and I would always pack antibiotics and sometimes, I would start them before the trip.

    Something to consider.

    Hope you're feeling better, and let me know if I can help.

    Kira

  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2011

    Moogie, you should get a refund for the flight home, yes? With a letter from your doctor? Worth a try anyhow.

    Hope you're feeling even better today. Rest up!
    Binney

  • moogie
    moogie Member Posts: 499
    edited July 2011

    The idea of antibiotics and wrapping before flight give me such hope.

    I hate that I was thinking this would limit my husband's ability to travel with me, as he is such a good egg and was of the mind" well we just will not do that anymore" because he sees how hard this ordeal ends up. Family and longtime friends live too far to drive and that would be too great a loss to bear.

    Today feel a lot better and have about 8 Keflex down my gullet with 32 more to go. No redness just fatigue. FOr me that has been the one common warning each time I have gotten cellulitis: fatigue. I will begin to listen to that more closely. As a hyper person, I could barely keep my eyes open dozing the 13 hour ride time -----and for me that was weird. Slept in today and will elevate like a queen for the duration to see if by tomorrow my fingers will lose some puffiness.

    Such thanks to all of you for listening. A sage fellow at a medical supply shop was good counsel as well. I had no bandages with me and spent more than an hour calling to find one in the area that would have all the wrapping supplies on the shelf. The fellow who has supllied garments for LE for over 20 years if I recall told me:

     Do you want to hear the TOOT TOOT of the train or the DRIP DRIP of the i.v.?

    A full set of bandages wold probably have met or exceeded the ticket price, so he had a point.

    Much thanks for your support---I do not know how I would get by without you all.

    Moogie 

  • sushanna1
    sushanna1 Member Posts: 764
    edited July 2011

    Moogie,

     You seem to be living one of my nightmares.  I am so sorry.  Hang in there.  

    Sue 

  • moogie
    moogie Member Posts: 499
    edited July 2011

    Tired but feeling much better. Thinking that this will resolve!

    I will not let this incident prevent me from flying in the future. The best thing I did was toss 4 Keflex in my handbag " just in case". Having a days' worth of meds on my person may have saved me a costly and uncomfortable week for sure. Cellulitis can move fast, and if I had waited till the morning to travel back to my suitcase with the entire bottle----it probably would have gone berserk. It appeared in less than an hour! I checked..went about my business...and it popped up angry in such a brief time.

    We need to " be prepared" for sure. GO GIRLSCOUT!

  • kira66715
    kira66715 Member Posts: 4,681
    edited July 2011

    Moogie, my LE therapist used to work with Robert Lerner MD, the pioneer of LE treatment in the US, and he had this three day rule--any insult to the arm, and you got three days of antibiotics.

    I would think that you'd consider taking keflex the day before travel in the future, to get good blood levels for the flight.

    I used to get instant sinus infections with flying--it's a long story, but after 5 surgeries, I discovered low dose macrolides (azithryomycin, erythromcyin, biaxin) for chronic sinusitis, and my ENT thought it was a great idea, and it has been. Knock on wood.

    The most recent LymphLinks was all about cellulitis (newsletter from the NLN) and there was a specific article on prophylactic antibiotics by Paula Stewart--a patient with monthly episodes who settled right down on prophylactic antibiotics.

    Smart move to have the keflex in your purse. Feel better.

    Kira

  • Lynn18
    Lynn18 Member Posts: 416
    edited July 2011

    I don't have a sleeve because mine had to be custom made, and it is not ready yet.  I am supposed to fly tomorrow.  Am I in trouble?  Do most people have problems when flying?

  • moogie
    moogie Member Posts: 499
    edited July 2011

    If you need a custom sleeve due to already present LE, I would be loathe to fly without any compression. Do you know how to do a proper LE wrap?

    Flying gave me LE in my good, no nodes removed arm 2 years ago---so I would err on the side of precautions and follow the National Lymphedema Network Guidelines. 

    Wait for Kira and Binney to weigh in...

    Moogie 

  • Lynn18
    Lynn18 Member Posts: 416
    edited July 2011

    My PT told me to wear the sleeve as prevention.  I have not been diagnosed with LE, but I did have a lot of nodes removed.  

    I did not realize simply flying can cause you to develop LE?   

  • kira66715
    kira66715 Member Posts: 4,681
    edited July 2011

    Lynn, it has precipitated LE in some women, there is controversy about compression sleeves for flying if used for prevention, but it seems wise to have one--and a gauntlet, so fluid doesn't get pushed into the hand. Some LE therapists will have patients wear a low compression sleeve--15-20mm, only made by Jobst (which comes small, medium, large and fits a large variety of arms), paired with a higher compression gauntlet, 20-30mm

    Here is the NLN paper on compression and flying:

    http://www.lymphnet.org/pdfDocs/nlnairtravel.pdf 

    And here is a great article by Andrea Cheville MD of Mayo Clinic of why you'd wear hand protection with a sleeve--it's on the lymphadiva site:

    http://lymphedivas.com/lymphedema/gauntletandsleeve/ 

    If you can't get good fitting compression before your flight, be sure to drink a lot of water, and frequently raise your hand over your head and close your fist to pump the fluid out.

    Have a good trip

    Kira 

  • Lynn18
    Lynn18 Member Posts: 416
    edited July 2011

    Moogie and kira:  Thank you.  I have great respect for you that understand or deal with LE--there is a lot to learn.  

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2012

    bump for rianne: I'm glad you flew without problems, but please know that your experience is not universal and if you get LE from flying, it's an incurable disease.

    Please read the NLN position paper on flying and remember that in the NYU study, Jane/onebadboob was the 180th or so woman who had gotten LE from flying.

    Women need to understand their risks and then make the decision that best benefits them. 

    http://www.lymphnet.org/lymphedemaFAQs/positionPapers.htm

    Kira

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