Neutropenic fever
I'm worried that I'm getting this. Just started taking my temp yesterday, it got up to 99.9, then down to 99.7. Latest temp is 100.1.
Can anybody with experience let me know what to expect if my temp goes to 100.5 and I have to call the chemo nurses?
Sunday, like an idiot, I decided to try to prune a rose. Of course, I got a prick in my thumb, which bled. I also got microscopic silvers in my index finger (one of which I didn't even see until yesterday; one of which hurts and is red -- but neither bled). I dressed and bandaged my thumb immediately (Sunday) but didn't get to the other ones until yesterday (Monday). Oh, and it's in the "affected" arm side!
I'm really worried that I caused myself to get neutropenic fever, if I do get it. My latest neutrophils are 1.6 absolute, 57%. That's low but not super low.
I'm halfway through chemo and everything has been going so well! I don't want to be admitted to the hospital (cost, etc.) and I REALLY don't want this to delay chemo.
Comments
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etherize - a neutropenic fever is just that - caused by low WBC, you can't cause it with anything you do. If it is truly neutropenic you may need antibiotics for protection in the short term. I ran a low grade fever after every chemo, it is pretty common - make sure you are keeping an eye on it. I never exceeded 100.5 (that I know of) but I did flirt with it. If you do go to 100.5 definitely call your onc. Are you allowed Tylenol? Are you receiving Neulasta? For the slivers, etc. obviously it is an infection risk but keep it clean and use a topical antibiotic if you have one.
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They will probably just put you on oral antibiotics. Do call them when you have fever so they can prevent you from needing to be hospitalized.
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Thanks so much for putting my mind at ease, SpecialK and ma111!
I learned about neutropenic fever through my chemo class (at Kaiser); they said to call them if we get a fever of 100.5. SpecialK, I am allowed Tylenol but it never occurred to me to take it!
I think maybe I will wait to see what my temp does on its own, though ...
We didn't get a lot of info on this in the class, so I googled around and found a site that said foreign bodies such as rose thorns (!), viruses and many other things could cause it, since it's basically an infection of the blood. So my impression was that it could be caused by low neutrophils and/or other things ... but maybe that's not correct.
Anyway, I feel much better about it and my temp went down to 99.4, so I'll just be sure to keep an eye on it.
Thanks again!
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etherize - so glad the fever is down but keep monitoring it. Also, watch your fingers for any signs of infection and keep them super clean.
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Etherize, don't just treat a neutropenic fever with Tylenol! It's not true it's just because the white blood count is low. What your docs are worried about is overwhelming infection which can happen when you don't have the white blood cells to fight all the bugs that routinely get into us through the mouth, anus, minor skin nicks. The risk is nowhere near as high for us as for people being treated for some other cancers, like acute myeloblastic leukemia, but it's there. That's why they want you to call if the temp goes above a certain number.
I actually was not supposed to take Tylenol at all so that my temperature would more acuratey reflect what my body was going through. I had one hospital admission for a neutropenic fever and the source was identified (which doesn't always happen), I had one kind of equivalent course of IV antibiotics done as an outpatient (they offered me admission and I turned it down) with no source identified, and one course of oral antibiotics when it seemed pretty clear that I had a virus going around my family.
You are at more risk when your ANC is <500. I think mine was 0.1 when I was admitted and more like 0.7 or so they let me stay out of the hospital. But in considering your ANC, it's also important to know if it's starting to recover or not. If it's 1.6 and it was 1.0 yesterday, that's great. If it's 1.6 and you don't know whether it was still going down or coming back up again, that's really different.
Sorry to be the bearer of less cheery advice. But please, please call your doc if it goes over the threshold they gave you.
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Outfield, thanks for your response! As I mentioned in my previous post, I wasn't planning to take Tylenol yet for the very same reason you were told not to: I wanted to see what was going on with the temperature (it's now down to 99).
Overwhelming infection is something I'm particularly worried about, since I have HIV and the chemo is taking its toll on my T-cells (a specific kind of WBC). So I'm at higher risk of infection than the average person on chemo. At 1.6, my ANC is at the lowest point it's been since starting chemo (it reached 1.6 once before but later rose considerably). I'm pretty close to my nadir WBC, so I expect it to go up in the next few days.
SuperK, you wouldn't believe how many times I've washed and bandaged these poor little fingers! lol
Anwyay, it looks like it was a false alarm for now but yes, I will be keeping a close eye on it!
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Etherize,
What an unfair combination. As if any of this were fair. My admission and infection were my first cycle of chemo . Afterward I was obsessively sanitizing doorknobs and faucets, wiping myself with baby wipes (softer), clipping my nails when my counts would be highest - all this stuff to reduce the chance it would happen again. It was quite scary the first time. My sweet old dog mis-judged where I was holding her bisquit and bit my hand - severe anxiety and threw her bisquits onto the floor after that. Never did have to delay chemo
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Outfield, I missed your reply until now! I can imagine you'd be really paranoid after getting neutropenic fever on your first cycle. Sounds like you took great precautions afterward.
I have two cats -- one with big, long claws. He's a sweetheart, but I worry about those claws! ;-)
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I had neutropenia after my first chemo. Both the ONC and the hospital said that's usually when it happens most. I'd been told to monitor my temp about 4 times a day and if my temp hits 100.5 to call them. It did and I was told to take 2 Tyelenol and lay down and rest. Recheck the temp at about 2 hrs and again at 4 hours mostly to make sure it didn't rise anymore. If, after 4 hours it did not come down below 100, I was to get thee to the ER and I did. I had been told that the high temperature signified an infection and w/ a weakened immune system I may not be able to fight it. The number one thing the ONC pounded into my head is that I could die much quicker from sepsis spreading rapidly throughout my body than cancer could ever take me.
Here's the thing tho - I didn't feel bad, never was warm and actually there was no real way of knowing that it was happening in my case other than the temperature. Was put in the hospital for 2 days b/c that's how long it took to get temp back to normal range. I was given continual IV solution and every so often the IV had an antibiotic added. They released me once my temp returned and stayed in the normal range for something like 12 hours.
Don't beat yourself up - I did something stupid that I am sure landed me in the hospital and the ONC and hospital staff said that we cannot live in a bubble during this time and so these things may happen - oh and this never affected chemo schedule - next one was still on.
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Ohhh what a week this has been! I got Round No. 1 ten days ago and have been miserable with all the side effects yet to be tweaked. Massive headache. Then, came the fever. It was flirting between a 99.1 - 99.6. At 100.4 I was told to go to the hospital. I had the chills, everything imaginable, like a bad case of flu. Then it went to 100.4 and I took two Ibuprofen and drank a glass of pomegranite juice. Here's the problem. I tricked my body into thinking I was fine. Within 1/2 hour I felt great. I even took a shower and a walk around the block. I had conquered this! (or so I thought). I called the Triage Nurse to let her know and her advice as to stay off the Ibuprofin and to check my temperature at 8:00 p.m. and regularly after that. If it stayed at 100.4 during the night for an hour, to get to a hospital. Sure enough, at 8:00 p.m. (six hours since taking the Ibuprofin, it began to climb. Finally at 1:00 a.m. it climbed to 100.6, then 100.8. I went to the emergency room. Sure enough, I had falsely tricked my body by taking Ibuprofin when in fact, I was neutropenic at .6 (not sure what that means, but it's low). I don't know how long I will be wearing a mask in public for, or how long my newfound germaphobe status will last - and I have it bad, even typing on my keyboard freaks me out...but we have to take this seriously. We have nothing to fight off any germs, even when someone says they are healthy (like my daughter), they might be, but one germ from them could spiral us into hell. So, here I am three hours out of emergency, feeling much better since they pumped me full of antibiotics, and considering not working for at least ten days and until my blood count rises. This is a scary thing to happen, especially when we second guess ourselves (i.e. Do we REALLY need to go to the hospital?) - that's a dangerous thought. If you have a fever GO. My only question is, how long do I have to wear a mask for? The duration of my chemo or just until my white blood count is up again? The roller-coaster ride continues.....Special K? Are you there?
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