Alone - recent double mastectomy
Comments
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Please, get some rest and take some deep breaths.
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I too had a fluid problem. They were not too concerned though but they did drain it off once. Very, very painless as the tissue is so numb there. This is going to get a whole lot better soon. Hang in there!
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DCIS, stage 0, you are lucky. How did they find it so early? I'm sorry you are feeling so lonely. I wish you lived closer, I'd bring you a meal.
Does the hospital where you had surgery have any support groups for cancer patients? That might be a good source of support at this time. You're not alone.
Take care, I'll be praying for you
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As you're read here over and over, you're not alone. There are so many caring people here. You know, sometimes even when there are people surrounding you , you can still be alone, and that's not all that bad. You're still very early in this whole cancer journey and it really does get better.You have a very favorable diagnosis, as far as any cancer can be condidered favorable, and before you know it, you'll be up and about.Look at this down time as planning time for the new you. Go on line and find some support groups that meet face to face. You'll be surprised at how fst you'll become friends with others.
I too am not a religious person but I do frequently talk to someone up above. Sometimes it's my Mom or Dad sometimes it's the Man himself.
You have a therapist and that's a good thing. I'm sure that you'll get some good guidance from him/her but don't hold anything back.
I love Maine!!! Maybe a get together in the spring would be nice. Till then, come here, everyday if you want to, and we'll all chat with you.
Hugs 'n kisses to you and think about changing your screen name to something like Imstillhere!!
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Ahh how did they find it? Funny story....I had a mammogram 6 months ago (it was fine) and during that time I switched GP's. Well the new one automatically put it in the system to schedule a mammogram. So when I received the order in the mail, I went and told them I already had one. They said that since the insurance co already approved it, it wouldn't hurt. So I had another mammo.
It came back and they wanted to do an ultrasound because they saw something. They found a mass in the ultrasound. Next was an excision biopsy. The mass was just fibrous tissue. But the surrounding tissue was in question. The first pathologist said, "Negative" the second said, "I'm not too sure" so my surgeon said, "Send it away for more staining" The tissue came back DCIS. On Friday.
My family history was a big part of the decision. Grandmother, Mother, Aunt all died of breast cancer that had spread. So Monday the decision was a bilateral mastectomy on Thursday.
The right breast was full of DCIS, stage 0 and clear nodes and the left breast was clear.
Someone was watching over me this whole time. At this stage, it probably never would have been caught until it was worse. My surgeon says that if you are going to get breast cancer this is the one to get. For such a bunch of nothing, I still lost my breasts but not my life. Why don't I feel lucky though?
Until someone actually tells me I am in the clear and will not die from this, I don't feel safe. I am not educated enough to know where I stand and really wish I was.
Off to meet with my oncologist for the first time. I guess this should answer my questions. Will I be terrified again? I hope not. A person can only take so much.
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Theyaregone ... you've gotten a lot of good support here but I really hope you find someone to offer some face to face support too! I don't know what I'd do without all the wonderful friends I have. We lean on each other and pull each other through difficult times & we laugh and celebrate the good times.
In reading your last post I just have to say ... I think you're going through all the normal stages of grief. I'm not going to bother listing them here in this post. If you're interested just do a quick Internet search and you will easily find them. I think everyone goes through each stage when dealing with something like breast cancer. Some move more quickly through the stages than others. I hope you get to the acceptance phase just as quickly as possible. For me, it was so freeing to reach it!
Now I'm going to talk to you straight about something you wrote in your last post. I'm doing this out of care and concern and I hope you will receive it that way ...
You wrote:
Until someone actually tells me I am in the clear and will not die from this, I don't feel safe.
I feel no one can tell any of us that we will not die from breast cancer just as they can't tell us that we are not going to be in some fatal car crash tomorrow or the next day or next week, etc ... I think it is so self defeating to spend our time worrying about what is going to end our life. It really takes away from living our life, you know what I mean?
For what it's worth, however, I personally do think it would be okay for you to feel safe that you took a very aggressive approach, which I understand based on your family history, to a non-invasive cancer. I would feel that would almost guarantee that your breast cancer will not present itself anywhere else in your body.
I hope your meeting with the oncologist further reassures you! Be strong! You can do this!!!! ((( YOU )))
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I am not a medical expert by any means but I did a lot of research on DCIS prior to my own decision to get a bilateral mastectomy which is a very aggressive treatment for a small non-invasive cancer. My head was spinning with all the cancer-related medical terminology. What I learned is that anyone who has pure DCIS Stage 0 and BMX does not need to have chemo, radiation, oncotype testing, HER2 testing, SNB or Tamoxifen. DCIS is non-invasive cancer. It is contained in the milk duct and has not yet spread anywhere. With BMX there is very little actual breast tissue left behind. The risk of cancer occurring in that small amount of remaining breast tissue is estimated to be 1-2% (and with regular monitoring likely to be detected early.) Therefore, taking Tamoxifen could only provide a benefit of 1-2% at most at the cost of 2-3% of serious side effects (blood clots, stroke, endometrial cancer) from the drug, which is a registered carcinogen itself. Why would I take a carcinogen (which can cause cancer anywhere in the body) every day for 5 years for a potential 1-2% benefit? As always, talk to your doctor and make the decision that is most comfortable for you.
This is one more worry you should not have to deal with right now along with your depression. Check out some uplifting books from the library, put on some upbeat music, go for a walk. Get yourself out of the blue funk. It's natural to feel down after going through such an ordeal. But as you get better each day physically, you will begin to feel better emotionally too. We are all sisters in this battle and are all pulling for one another. We care about you too. Keep us posted with your progress.
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TAG-From your story of how you discovered your BC it is evident that you are meant to be here and will not die from this. In my estimation it was a kind of 'miracle'that happened for you. Before my own BC I would have never thought this way. I was very un-religious and had been for several years. When I got my BC diagnosis it was so distressing to me that I couldn't pray to God about it. I just wasn't feeling it and this was so upsetting to me. So I prayed to God that he would help me to believe in him and find my way to him and it worked! I was skeptical but sure enough that transformation happened. I look at life differently now and am a much better and happier person now because of it. I even feel that my BC was given to me so that this would be the end result. And its funny-when I stopped beliveing in God I would think to myself that he would probably give me some huge challenge where I would know I need him enough to come back.
So anyhow...I now look at things in a religious way with a Catholic spin. I believe it was your guradian angel who made you get that test when it wasn't scheduled. I also believe that you are still in that angel's hands and she has brought you here. Sorry if this sounds a little sappy-I surprise myself sometimes with my religion-speak.
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My prayers are with you tonight....stay strong...tomorrow is another day and with it comes hope...pray as much as you can....if you are a christian repeat this over and over again...."I can do all things through Christ Who Strengthens Me"....Believe me, you have the strength inside....call it out....reach for it!!!! ((((hugs)))))
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Mallory you sound so like me except I am not Catholic ; )
Thank you everyone for all your prayers. Now I need prayers just for healing - until I go for reconstuctive surgery this summer. I saw my oncologist - no radiation, no chemotherapy and no tomoxifen. I am done with cancer treatments. I'll have bloodwork and check-ups every 6 months but the prognosis is very good! AMEN
I am sooo relieved!
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In my quest for information I came across this link where a lady had photos taken during her mastectomy. I warn you that the photos are VERY graphic but what an opportunity!
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Yay TAG! You deserve some good news!
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TAG
That is excellent news!!! Now you just need time to heal, and you will beleive me. I'm currently 7 weeks post op and feel fine. Even did some light weights yesterday and some wall push ups. Had to go to see the MO today and rather than parking at the hospital, I parked across the street at the Mall. Only a 10 minute walk, but of course had to go back too!! I will be starting the chemo/herceptin process on the 17th. Can't say that I'm looking forward to it although I am looking forward to finishing it.
As for religion, I'm not into organized religion but I do beleive in a higher power and guardian angels. Something pushed me to get that mammogram I know it. I had a "seer" of sorts tell me last year that they visit me while I'm driving. I was originally hoping to hear the same news you received today but that wasn't to be. I was quite upset about needing the ongoing treatment, but after much research and guidance by some of the ladies here, I have a plan in place and I feel more at ease now.
Driving to the hospital today to meet MO and schedule my start date, on the radio came Everythings Going to Be Alright by Bob Marley. Haven't heard that song in ages. One of my angels???
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I commented this morning on your post. Couldn't stop thinking about you. You are not alone. Hang in there.
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I believe it was your husband looking out for you that got you that mammo appt and you are meant to be here for a long time. So glad to read your good news. Now take that second chance and make the most of your life. Spend time with people that will treat you well and support you when you need them. You deserve that!
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Tag, I am so happy, that you don't need further treatment. Wish I could say the same, but no such luck!LOL. Sometimes you just got to roll with the punches. Happy healing!
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Hi Gingergirl, I have DCIS stage 0 as well. Mine was found after an ultrasound found a shadowy area so as a precaution they did a biopsy. I had no lumps, just suspicious lactating in that breast. No family history. you just never know.
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TAG, I am just THRILLED you won't need further treatments! YAY for YOU! I too was terrified the cancer would take me out. I'm sure that is a fear every cancer patient has. But cancer is not the same as it once was. All these new cancers, enviromental (like mine) are not the same cancers that were often terminal. In many cases, just like yours, they are treatable with surgery alone. My girl, I would say you did have an angel the day you had to get the second mamo. You aren't meant to leave this earth quite yet. My guess is God has a job here for you. I rescue animals and have can drives for spay neuter money. It's my own little thing and my friends and neighbors started saving cans for me too. It caught on. We call it Cans For Critters. Well on a real bad day where I was just freaking out (and you all know those days) my friend told me God has me real busy working here and he wasn't about to take me away from His job. And somehow I kind of knew that. I think sometimes cancer gives us focus on who we are and what we can do to make God's Earth a better place.
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Today was my first physical therapy and I walked out exhausted! I go back Friday.
Tomorrow I get my camisole and temp booby oad thingies.
Now on to another problem. My skin is so sensative and feels like it is constantly burning! I can't stand to wear anything! I bought some lanolin based lotion and rub that on and have tried aloe and powder. How do I get rid of this? Its driving me bonkers!!!
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My skin was still so sensitive at 3 weeks but it did get better with time. I had to wear very soft fabric in that area and a sports bra that did not come up too high. The compression bra that I got at the hospital really irritated it.
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Try a soft sports bra that just gatheris in the front.
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Today I met with the boob lady and got measured for my new boobs. When she put the bra on me for the first time, I cried. I never thought I would be going through something like this. None of us did, I'm sure.
Anyway, it wasn't all that uncomfortable. I thought it would be heavy and awkward. Once I put my sweater on I looked like my old self again! Pretty cool. I just may skip the reconstruction.
I am still so sensative and the fluid is really bugging me. Late in the day, like now, it really hurts. I bought a new heating pad that goes in the microwave and the darn thing blew up making one heck of a mess. It was filled with clay which really is yucky.
Do you know how hard it is to find a lanolin based lotion? I went to Wal-Mart and started on one end and wouldn't you know it, the last one was the only one with lanolin.
I am thinking of all of you and hope you had a good day. Tomorrow I am back to PT and still sore from yesterdays but oh am I ever looking forward to the moist heat!
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TAG ~ Sorry about the heating pad mess, but just a word of caution... it's not a good idea to put heat on any areas that have fluid in them. Heat can really exaccerbate lymphedema, including truncal LE. Deanna
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TAG
As time goes on those foobs will feel fairly normal. Once you go to the silicone based ones, they are a bit heavier. I found by wearing them a few hours at a time, then longer again, they start to feel semi normal. Just like a normal bra though, when it comes off you still have that AHHH factor. Heat is a no-no for anything that might be inflammed. It feels good at the time but isn't good.
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theyaregone....just saw your post and wanted to say bless your heart, I'll be praying for you. I understand about being military and moving around. My husband is retired Navy and we still have a few friends from our Navy days. I was so scared even though I have tons of support so I cannot imagine going through breast cancer with no support. The ladies at our local breast cancer support group have been amazing as well as these boards.
Just know that you are not alone there is always someone on these boards that have traveled the same road. I look at my breast cancer as a challenge and know that I can do anything. You have to be strong to be a Navy wife!
The best advice I can give you is to when someone asks if there is anything they can do, let them do something. Also, take the meds you are given. You cannot heal well when you are in pain. Take care.
PS You can come to Mississippi for a visit....it's warmer, lol.
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Just checking on you. And saying hi TAG!
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Good morning Circles. How are you? I am doing better. I have so many appointments all week long - mainly physical therapy. It hurts but it hurts now so it won't hurt later.
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Good Morning TAG,
Hoping your day is a good one... We have snow here in WV. We have been so blessed with nice weather all the way up until today. Was hoping we were going to skip any snow this winter. Guess mother nature had other plans!! Yuck....hate snow!
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Hi TAG! We have snow here in Tennessee too. We are from Florida. First time we saw snow here was like magic! But the thrill is gone, lol!
I'm glad to read you are busy. I think it is good for you. I was supposed to do physical therapy too but I showed my Doc that I now have full range movement so she said I didn't have to go. But after my reconstruction I am planning on joining a gym. They say weight training is good to keep cancer from coming back into the bones, plus I would like to take off 15 lbs. My husband and I are in the rental business. Before this cancer stuff I worked right beside him everyday, tearing out carpet, toting boxes of tile and lots of cleanup. I look forward to working again but with mask and gloves this time.
What are your future plans?
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Oh boy do we have snow but the temps are real cold. I gyess 43 below tonight!
Woke up this morning to something new - bumps like little pimples on my arm. The arm they took the lymph node out of. Sort of like a weird rash all the way down to my wrist. They only took out 1 and my arm is swelling.
On another note - here's something a cousin sent me that we can use on our docs. http://imgs.xkcd.com/comics/making_things_difficult.png
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