Alone - recent double mastectomy
Comments
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You're not alone. My mom can be very cruel...which is why I don't intend on telling her of my diagnosis til after I'm done and healed, if that. She tends to take failures, and misfortunes and throws them in your face trying to make you feel inadequate. I surely don't care to hear things that will make me more depressed, or lower my spirits. I need positive thoughts during this time..ya know.
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Oh, Theyaregone - I am glad you got some rest. My DH actually is back in the house more often now, and I have to ask who is that man and what did they do with my husband? He wasnt there for me up until now, and I don't know if I can trust him to be here any length of time, but I am enjoying it while it lasts.
Being alone is no fun, and for a couple of years I was by myself. I had a BMX and that is no fun either. TAKE the pain pills. pain is not your friend at this point. heal first , then worry about the pills. i took them the whole first 3 weeks, but by week 4 was only taking them maybe twice a week if I did a lot. You mentioned that your family was military? Are you going through the VA for your treatments? CALL them, they have groups to help. Call the social worker at the hospital you went to, they can help, I am still im my recliner 8 weeks post bmx because I had an infection in my TE and had to have it removed. That is healing and I will be getting a port for chemo- so I am going to stay sleeping in it yet! To h*ll if anyone doesn[t like it! It works for me.
When you talk to your therapist ask for help- she can get you connected to some, I wish the best for you and will keep checking on this board to see how you are doing. We all use these boards for help and support, we all have our bad days, and occasional good ones! Please take care and really take the pills if you need them. Maybe call a neighbor and just ask then to call you every night before they go to bed? Sometimes you just have to lean on others. Praying for you.
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I'll try to answer your questions and comments. Hope I don't leave any out.
My therapist called and said she couldn't make it. Hopefully she'll keep our appointment tomorrow.
Tomorrow night is a support group meeting at the hospital where I had the surgery. I am searching for a ride and hope I will physically be up to going.
I live in a tiny town with a population of just over 8,000. We have a local hospital and not much in the way of support. When my husband died, there wasn't a grieve support group or counselor within a 3 hour drive! It was terrible to go through that alone too.
People here are very close-knit. It is VERY difficult to make friends when everyone calls you an outsider, although I have lived here in the County over 20 years I am still an outsider. It is a farming community and everyone here have been friends since childhood and through generations.
Heck the closest big town is Bangor which is a 3 hour drive one-way and the majority of locals have never even been there! I'm not joking.
It's very hard to get into a group of friends and hard to find something to do when all they do is sew, knit and linedance. Then the groups are all family there too! Not to forget the terrible winters we have. Right now we have over 50 inches of snow and below zero temperatures. If people don't go to Florida for the winters, they hybernate. I haven't even met some of my neighbors and I can see their houses from my window.
There isn't a vet hospital here so I am using the local hospital. My surgeon is new here and he said he made arrangements for a visiting nurse, OT, PT, Social worker, case manager and Home aide. A visiting nurse came 3 times and she is done. The OT came twice and isn't coming back. Never saw a PT person so I called and asked for a referal to outpatient PT. My case manager came once and talked about the bible, her church and ministered to me for a couple hours. Never heard from the social worker or the home aide. I see my surgeon Friday and will fill him in.
Through the internet I found out about the camisole, bras, and boobs my insurance will cover so I called a prosthetic place and have an appointment next week. How come nobody told me about these things? It is annoying that I have to learn about things myself.
Heck I even have to go out of town for an oncologist because we don't have one here and the hospital I am going to only has 1. So this should be a lot of fun.
I have gone on-and-on. Hope I haven't bored anyone.
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Hi TAG
And you live there because??
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Theyaregone please know you are not alone I just had a double mx in jan with no reconstruction every nite that you get one more hour of sleep it gets better. When those drains come out and you take that hour shower it makes a big difference. I had some horrible lonely thoughts but dont let them control you spring is just around the corner you sound like such a beautiful lady takes small steps everyday i am new to this site but already i feel the love sending warm wished your way
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Dear TheyAreGone........
Please stay close to this board. We are all here for you.......I know it's not the same as having someone there with you through all this, but each and every one of us is sending love and support to you,
Please post and private message to us often. Keep us in the loop.
We love you.
michele
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theyaregone wrote: I have a great idea - everyone come to Maine. I want to look at your beautiful faces and give you all hugs. Thanx for being here for me last night and I am sure you'll be here again when I reach out. I hope to get to a point where I will be able to reach out to someone when they need it too.
I've always wanted to see Maine! I really wish I could just jump in my truck and come spend time with you. Since I can't, please feel free to message me and I'll blab until you beg me to stop! *wink*
I'm so happy to hear you got some rest last night and I'm glad you found us & we found you!Hang in there!!!
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Theyaregone
I didn't mean to sound flip my last comment, I should apologize. People say small towns are so lovely and they are don't get me wrong, but I also know that they can be isolating at the same time because it's hard to break into cliques. I always go out of my way to make those new to our group welcome by engaging them. I don't understand people that don't.
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Myleftboob - I echo your question. Now that she is widowed, and seemingly estranged from her daughter, it might be JUST the time for a new start. I have heard about places where they say you are an outsider even after living there for decades. I could never stand that!
Theyaregone - I also would be curious as to the positives of your community and why you stay. It sounds as if you didn't grow up there, if you have only been there for 20 years or so. (Which still sounds like an awfully long time to me!). Do you have a job you can't leave? Being with a military background, you probably are good at and comfortable with relocating. MIght be something to think about - not NOW, obviously.
PLEASE be very upfront with the doc when you see him on Friday. The various services just never showing up is UNACCEPTABLE. Hopefully he can push for you, and you can advocate for yourself as well.
Please keep us posted.
Love
Amy
There was a woman on one of the threads I follow - she lived in NJ and HATED it beyond belief. She lived in a bad neighborhood, felt trapped in her house, was afraid of the driving, and on and on. Finally (after 25 years), she worked up the nerve to move and packed everythign up and moved to New Hampshire. It made a WORLD of difference (although she had a tough time adjusting to all the snow) and she was so much happier.
I also hate the limited resources you seem to have there.
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Ladies, Why am I still here? I own my home and put it up for sale. Not a seller's market and my home is a bit above market. Can't help it if I like the extras...
If it sells (eventually) I am going home to Cape Cod and the beautiful ocean!
Nights are so bad for me. As I sit here I just want to cry. Its just so hard when the rest of the world is quiet and enjoying there family time. To give little ones baths and smell their fresh hair, to get lovins goodnight, to be comfortable knowing everyone is warmly tucked in.
Now to just go to bed and say goodnight to the cat and not hear anyone say "Goodnight, I love you" ever again. Nights are so so bad.
I did my dreaded wall climbs a few times today - hate 'em but know they are necessary.
Maybe an Ativan is in order again tonight. I just wish I didn't feel so damn sorry for myself. In front of other's I put on such a brave face and make everyone laugh. I feel that if they truly knew how I felt they wouldn't talk to me. Nobody wants to be around someone that's so depressed. I don't even want to be around me.
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Hope to hear from you soon. Meanwhile please have a good night's rest.
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♥ ♥ ♥
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Well, so you are depressed . At least you recognize it. Now try to get help. Maybe some Meds will work for you. You have a right as to how you feel, and this disease is not fun, going it alone is worse. But there is help, don't be afraid to ask. I had a depressive episode some years ago, and meds helped. I am not telling you what to do, but just trying to give you options. Take care.
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Thinking about you right now. Sleep well my friend. Tomorrow is a brand new day!
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Okay....here's the Real Estate Broker in me coming out. Call your Realtor and ask for an updated market analysis, and also ask for the fair market rental value. In the Northeast, the best time to market a home is actually March on thru October. The buyers that want to move when school is out in June typically start looking late February, beginning of March. If you can't sell, consider renting your home and moving to where you will be happy. You can instruct your Realtor to keep the house on the market and your tenant would have to agree to showings and vacate in 90 days (or whatever you agree upon, 30 days, 60 days, etc) if you get an acceptable offer.
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Good morning! I suggest you make yourself a warm cup of cocoa this morning and open all the blinds so you can look at the snow. When I'm feeling a little blue & it's too cold to get outside just being able to see outside helps.
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Something I am really learnign is that you can't depend on anyone else. I have been excited for a week because someone said she would take me grocery shopping today. I got up and am all ready when the phone rings and she doesn't want to go. She also doesn't feel up to taking me to my first BC support group tonight or my surgeon's appointment in the morning.
This is the gal that swore she'd see me through this whole thing. She only comes over when she wants to use my computer or my car and then she leaves as soon as she is done.
When I came home from the hospital she stayed 1 night them took my car (its newer than hers) and she and her husband took off for 3 days.
Damn.
On another note. Last night was hysterical again. Crying and bawling like a baby. Ativan again and I slept all night. I hate nights.
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Dear they,
Just found your thread, please hear what we are saying--we are here to support without judgement, of course you are sad--as far as the crying goes, let it out--don't hold it in--we will listen and help you. xo
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Big Hugs to you and a slap for that FRIEND of yours!
I know all about the isolation in Maine! Spring might not get there until May!
I am sure they still consider you "FROM AWAY" even though you have been there for 20 years.
If you live in the county, do you get to Canada? or what about Presque Isle?
I was slowly driving a stick shift at two weeks after surgery. I made small trips at first then took myself to every support group meeting I could possibly get to. I had just moved into a new town and knew no one had no neighbors either and my doctors were an hour away and the only time I left my house was to go to support group each week. It was the best thing for me and I have made fabulous friends there that care for me and we do more than just talk about cancer.
Grocery shopping will be tough but make lots of little trips in from the car with one bag a t a time. I avoided reaching too high on the shelves. As it was just me to feed, my trips were few and when I did cook, I froze single portions to eat later.
Hopefully once you get to support group, you will make friends that do care and will show up when they say they will. I had offers to help me and I was overhwhelmed... No one knew me but they offered to help. Then when it came time, I hosted a member after her surgery at my house for a week.
We are both single and had no family and it was easier for her to stay with me because I have pets. I drove her to the hospital and brought her home to my house. I know there are wonderful people at support groups who would offer anything to help you through this.
I hope that you find a way to get there tonight - it will change so much and you might make a new best friend!
I'm sorry a rambled, but just leaving the house once a week was all I had to look forward to for many months.
It did something for me to help someone new as others had helped me.
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HUGS, trouble doesn't last always.
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They - this 'friend' sounds like a bit of a user. Please be careful. You are vulnerable now, but she is showing her true colors. Not good.
Could you perhaps call the coordinator of the BC support group and see if you can get a ride? They, above anybody, should understand about recent surgery and hopefully someone can stop for you. It's a small town, right? How far out of their way would they have to go?
Nighttimes are the hardest in ANY time of stress. Fear, sadness, worries are all magnified in a dark quiet house. My suggestion - do you have an IPOD? If so, download some podcasts - NOT MUSIC which can make you sadder - but talking. I used to use travelogues - people's accounts of trips to various places - kept me focused and I would fall asleep. Wear the IPOD in bed and in the dark. Then when you wake up a little, just slip it off and push it aside and keep on sleeping.
It works - I promise.
Good luck about tonight. I hope you get to go.
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theyaregone ~ Another thing you might do is start a new thread with Maine in the title -- something like, "Looking for other bc survivors in Maine," or "Anyone else in Maine?" I suspect there are BCO members who live within a reasonable distance of you who would also love to get together for a monthly luncheon or something like that, and as huge as this discussion area is, they may not come across this thread.
As far as more immediate assistance, if there's an American Cancer Society office in Bangor, they might know of people in your area (not limited to just bc survivors) who have volunteered to drive others to appts.
It's a shame that you've gone through as much as you have (dx, surgery) without any support. I hope BCO will help to fill that huge emotional gap for you now. Big (((HUGS))) Deanna
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Yesterday my therapist was supposed to come but called and cancelled. Today she showed up at 1 and left at 1:15 because her office called and someone else was scheduled for the same time and they were waiting for her at the office. She had to go. And this was right after I told her I was haing a real hard time at night.
I have only one person you can depend on and it is me!
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theyaregone ~ She's definitely not the therapist for you. It sounds like you need to find one who is experienced with breast cancer, as well as the other losses you've endured. The insensitivity of this one is beyond belief. Deanna
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Did she give you another time slot? Sounds like a social service agency not a private therapist. I know that they are tremendously overworked. NOT making an excuse - the treatment was unconscionable especially after you told her how you were struggling. But unfortunately, these workers and the friends that you have are not coming through. Better to not get your hopes up re their promises than be disappointed.
Are there any taxis in your town? Many have an 'affordable' rate for seniors or disabled. Not sure if you are a senior (no disrespect intended if you are not) and you are not disabled (although temporarily limited). Maybe call the town government and the local taxi co (if one exists) and see if there is ANY type of transport for people with illnesses. I know there is something here called 'paratransit' - it's not perfect, but it does work. When I was getting rads, a woman who was there with me would take it. I think you are going to have to be your own advocate, make LOTS of phone calls, see what services exist in your town/county or from the state and take advantage of those.
I echo the advice of DLB823 about starting a new thread with Maine in the title. Or even do a 'search' with Maine in the search field and see who/what posts come up.
Try to feel like a detective- scoping out hidden gifts for yourself. One thing you do have is time and a computer (well that's two things). Between those two things, and all of us here cheering you on, perhaps you can feel a touch more empowered. I really want you to get to that doctor's appt tomorrow. I WISH I was closer!
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OK so I did a search for Maine and found this thread:
http://community.breastcancer.org/forum/34/topic/772586?page=1#post_2635163
It is not recent (from the fall) but perhaps you will find some women who are nearby. Please send them a PM and tell them of your situation and see if anyone will help, or know of resources for you locally.
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TAG- PLEASE call your VA! they have groups that take vets for appts, they should be able to get you to your apts. Even if you have to go to the VA hospital that is farther away, that would be ok. Also there is usually a COPE help hotline or county Agency that deals with diabiled people, or even the council on aging- they have volunteer networks, even if you don't qualify - they may be able to hook you up with someone. Worse come to worse, you can get groceries on line. I am sorry you have to do all the work for finding help when you feel like sh*t, but as you said no one is helping you. One question, does your "friend" still have your car? If she does, demand it back ASAP. If she doesn't, CALL the Police- she has proven she is no friend. I don't know your age, but if you are on social Security- they have people to help with Elder abuse- this qualifies. Even if your neighbors are thinking you are an outsider, they will help you- It is in the New Englander code- they will help- please try calling- We are all concerned about you.
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I'm so sorry to hear you had a bad night AND learned you had a bad friend. But I read the suggestions here and I think they are excellent! I also think, much like my friend I told you about, there are new doors that will be opening to you. Don't be afraid to peek inside.
I wish I lived by you because I would never let you down. But you know what? Even just by use of the computer I am still not going to let you down. I'm staying right here with you.
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Theyaregone: Hello Dear., I hope you are sleeping peacefully right now.. I felt such pain when I read your words of pain and lonliness. I would have liked to have been able to put my arms around you and let you cry on my shoulder. I have never been in a predictamint like you are in but I have dealt with lonliness when I was left alone sick. You have been very strong (crying doesn't mean you aren't strong. I was happy when you said you had been praying. Get to feeling close to talking to the Lord. and sometimes just sit quietly and listen to see if he speaks to you-----maybe not in words but inknowing his presence.If you ask, he wilol be there for you and you will never be alone again. I've wondered if your husband had been sick very long and how long since he died. I give my deepest sympanthy on that loss. It must have you very sad. If you want to talk about your daughter you can send it instsnt message..Sometimes, we wshouldn't shut these angry, hurt feelings up inside of us to ferment. I I was so sad to read about your plight and when I read some of the other womens's stories, I was tearful.. But as I started reading the answers sent to you by these bighearted, caring, loving gals I just knew that they would prop you up til you can stand alone. You were bound to be so encouraged by their outpouring of love that you knew you could make it. Aren't they something to write home about? Makes you know that most people are good. May God bless you muchly.Look for things to make you smile.Find out about an antidepressant(If you are going to take Tamoxifen agood antidepressent would be Effexor because it doesn't act against tamox and helps some with hot flashes and cholestorol and bones . I was already on it.You are going to be so proud of yourself after you come out on the other side of this. With love and caring hugs, Joyce
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Joyce, that was so well said.
Theyaregone, how are you today? I hope last night was better for you. I want you to know I prayed hard for you last night. You were my last though before I went to sleep and my first thought this morning.
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