IF IDC is hormone positive does that mean DCIS is too?

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4My3kids
4My3kids Member Posts: 34
edited June 2014 in Stage I Breast Cancer

I had multifocal DCIS (>3cm) and multifocal IDC (largest 2mm).  I was diagnosed in July 2011.  My IDC was strongly hormone positive...but my DCIS (Grade 2) was not tested or reviewed by either of the two pathology departments I went to for consults.  Am I incorrect to assume my DCIS would have been hormone positive also?  I had a double mastectomy w/alloderm reconstruction, total hysterectomy and am now on Arimidex.  I am 41.  My Oncotype Dx was 8.  I am concerned about DCIS remnants after the mastectomy as I keep finding post-mastectomy lumps.  Any information would be appreciated!

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Thank you for your reply!  Your info helps.  Yes...I am having the lump removed Tuesday...it is my third.  My surgeon feels it is more scar tissue...I hope so.

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  • wildrumara
    wildrumara Member Posts: 450
    edited January 2012
    Hi there -  We have a similar diagnosis.   I was always told the same....IDC trumps any DCIS.  They acknowledge it on path reports and what not, but not when it comes to treatment.   Another question......did you have one step Alloderm reconstruction by any chance?   Get back to me when you can and keep us posted on what you find out....Laughing
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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    I will update tomorrow the surgeon's thoughts and then the final results when I get them.   Thank you.

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Wildrumara...I had Alloderm, Expander then Exchange.  Honestly, they look great...but I feel the two bumps I had biopsied last month were where the alloderm met the expander.  The current lump is right next to original open biopsy cancer location scar.

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Update from biopsy... 

    My surgeon removed what he said looked like fatty tissue...and maybe some breast tissue...he did not see anything alarming but obviously we have to wait for the actual pathology.  I have not looked yet at the new scar...but it is pretty sore!

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Thank you again for your posts.  My pathology was benign (and no breast tissue)...it actually came back Thursday which was quicker than I expected.  I am very thankful...sore still with some hard areas near the incision...but very happy the results came prior to the weekend. 

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  • jenlee
    jenlee Member Posts: 504
    edited January 2012

     4my3kids,  hope you don't mind if I ask, did you have the hysterectomy to prevent recurrence? Or to prevent pelvic area cancers.  I have read of having an oopherectomy to stop the production of hormones for hormone receptive cancers.  If hysterectomy is helpful, I would like to find out more... Any means of avoiding more cancer and being around to see my daughter grow up is a consideration for me!

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Jenlee, my IDC was strongly estrogen and progesterone postive and my breast surgeon told me to consider a hysterectomy within a year of my mastectomy...but I also had ovarian cysts one of which was complex and hanging around.  One of the oncologists I saw for a second opinon said get your ovaries out...you do not want to play around with the cyst issues...so having heard that twice I did it.  I am 41...and I can't say I feel 100 percent like my old self...but maybe 85.  I like knowing it may improve my chances but there is no proof how much...but for me it was the right decision due to the age of my youngest child and my age.  Please send me a message with any questions.

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  • 4My3kids
    4My3kids Member Posts: 34
    edited January 2012

    Thank you...I will never get sick of hearing the word benign.

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  • sudhanshu001
    sudhanshu001 Member Posts: 1
    edited June 2012

    hi,

    i am with er positive pr negative and cerb2 positive and having stage 2 grade 3 breast cancer ,my treatment is 4 EC, 12 PASLI+HERCEPTIN, 30 sittings of radiotheraphy,and 5 year of harmonal thearaphy.

    is this will help me out of the problem, is this a aggressive treatment, we dont have enough money for herceptin,can without herceptin will help, please suggest ........

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