Is there a July 2011 group?

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  • rabbit
    rabbit Member Posts: 613
    edited January 2012

    kk11,I am so happy for you, that is great news! As for the uterine cancer, we discussed that and apparently once I have surgery (which is scheduled for this Tuesday, Jan. 31st) I will be switched from Tamoxifen to something else that won't cause uterine cancer. I was told that the risk is 1 in 2000 or so if taking Tamoxifen. You are right about docs telling us the good and not the bad. I will look more into zometa side effects. And thanks so much for keeping my cousin in your prayers, I appreciate it! 

    shinypop, hope you feel better soon, it's almost over!! I start Feb. 13th. can't wait to get that past me. 

    My cousin was hospitalized on Sunday, got home yesterday, she was severely dehydrated. I wish she lived closer to me, I'm in Ky. she's in NY....I feel for her, she's having such a rough time. Please keep her in your prayers! 

    mavinbook, J-Bug, PhillyBird, dexxy, yooper, misswim and everyone else ....love to you all :)

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Rabbit - Are you having the hysterectomy/oopherectomy next week or a different surgery? Sorry if I missed a post?!?!

  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Just wanted to share my 3 month post chemo picture with you ladies. I finally uploaded it. :) I'll post my 4 month post chemo pic next week. This picture was taken on January 9th after attending the Look Good Feel Better program (put on by the American Cancer Society), so there's a bit of make-up involved which I usually don't wear lol! But I highly recommend finding if they have the program in your area. It's free, comes with free make-up, and free make-up advice (including how to pencil in those missing eyebrows!). I am not much of a make-up person, but I had fun!

    Photobucket

  • khs113
    khs113 Member Posts: 105
    edited January 2012

    Kristien-You are beautiful!!!

  • kk11
    kk11 Member Posts: 210
    edited January 2012
    Thank you khs! I credit it all to the make-up lol! AND good lighting. Wink We should all post our pictures here to track the progress of our hair growth! I used photobucket to insert mine.
  • rabbit
    rabbit Member Posts: 613
    edited January 2012
    You look great Kristien! I LOVED the Look Good Feel Good class, that was awesome. My surgery on Tuesday is the ooph/sal, hopefully that's the last surgery I'll ever need :)
    Here's a pic of me Jan 10th, 5 weeks PFC. My hair is already filled in a bit and longer since then, I'll get an updated pic soon. Love you guys!! ellen jan 10th
  • kk11
    kk11 Member Posts: 210
    edited January 2012

    Awesome picture Ellen! You definitely have more than I did at 5 weeks post chemo! Post your 2 month post chemo pic next! My next one will be my 4 month post chemo pic (on Feb 4th). :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Kristien, Ellen - you two look fabulous!  I see Ellen has a bit of the chemo curls going.  My hair is getting thick and curly - not what it was before - but any hair is a good hair day!

    Ellen - good luck with the final surgery - I'll be thinking of you.

    Robin

  • rabbit
    rabbit Member Posts: 613
    edited January 2012

    Thanks Kristien and Robin, my 2 month PFC will be Feb. 7th, I will post one then :) 

  • rabbit
    rabbit Member Posts: 613
    edited January 2012

    I broke up with my boyfriend of almost 2 years last week. We have known each other for 30 years, we dated when I was 16-17 and reuinted on facebook 3 years ago or so.

    Anyways, he's an alcoholic and I figured that out pretty early in our relationship this time around. I was living with him and moved out in April last year, but we kept seeing other exclusively. I moved back in with my mom and sister, coincidentally I was dx with bc a few months later, so staying at my mom's and sister's actually was the best thing for me, as my sister is a hospice nurse for 20+ years, she helps out in so many ways. 

    After my dx, I decided I didn't want to make any life changing decisions like leaving him for good, until I was done with all my surgeries and txs. We had a long talk in Aug or Sept and I had started to slowly move back in, he quit drinking for over 3 months, then on Xmas day, he got drunk and his excuse was "it's Xmas" so I moved the stuff I had slowly moved back in, back out LOL not funny, but I have to laugh at this stuff now. Then a few weeks after that I was on the phone with him and he sounded like he had been drinking, but of course he denied it, so I decided I couldn't take the stress of worrying about his drinking, and worrying about me, and I had a good heart to heart with  him last Monday.

    He took it pretty well, later that day he called crying saying he was so sorry. And I said "don't be sorry, some things just aren't meant to be". We talk daily but for a few minutes only and we don't say "I love you" anymore, it's hard, but I know it's the right thing.

    I just wanted to share....I think having bc and going through the crap we all are going through, made it easier to break off a relationship that I probably would of drug out longer if I wasn't going through this. I started reading a book called "Codependent No More" and have realized that I am a massive enabler, I mean I always knew that, most of my exes are alcoholics or have some major problems or addictions, and recently, most have anxiety problems, so strange I attract this type. But no more.......here's to being single, learning to love myself and may the next guy be normal! LOL

    love you guys 

  • misswim
    misswim Member Posts: 931
    edited January 2012

    Rabbit-you look great! Good for you for putting yourself first. We need to stay as stress free as possible.

    Kristien, you look gorgeous. I am so glad for you that things are going your way on the path to parenthood, and I hope you get everything you are longing for and more.

    Phillybird, you look fantastic! My hair is growing like a weed. I have been wigless for about a month.

    I am back to work full time and exhausted. Tamox was a piece of cake the first two months but i am now dealing with achy joints and occasional headaches. Overall, nothing very exciting.

    My reconstruction touch up at the end of December turned out great. One silver lining, at least.

    Miss and love you all!

  • rabbit
    rabbit Member Posts: 613
    edited January 2012

    misswim, you mentioned aches and headaches, what do you think that's from? I ache from head to toe, I have this horrible neuoropathy, or maybe it's carpal tunnel syndrome triggered from the chemo?? I don't know but I wish it would go away! I posted about it here: http://community.breastcancer.org/forum/69/topic/781783?page=1#idx_8

    I've been on the Tamoxifen for 2-3 weeks now, is it from this??

    Another lovely side effect I have is itchy spots, like crazy!

    The gift that keeps on giving, it sucks! :(

  • misswim
    misswim Member Posts: 931
    edited January 2012

    Rabbit, I have a little bit of neuropathy, but in my feet, and it seems to only bother me when I exercise. I was a person who ached constantly during chemo, and while it has gotten better, I still feel very achy alot of the time. No real pain, just soreness. My joints are achy when I wake up in the am, worst are hips and knees, but when I get moving, I am fine.

    I just changed from Effexor back to Lexapro and that is when my headache started. It is not every day, maybe once a week. I plan to mention it to the onc when I have my next follow up on the 10th. They are simple headaches, cured by ibuprofen, and in reading the tamox drug insert, headaches are one of the common side effects.

  • yooper
    yooper Member Posts: 47
    edited January 2012

    Radiation burns--for what it's worth I used Miracle Salve from Beeyoutiful. (They have a website and ship quite promptly. All natural, homeopathic type stuff.). Anyway, I thought it worked great. My skin healed very quickly, and at my post-radiation follow-up with my MO (2 weeks post final rads) she said it barely looked like I had even had radiation.



    Kristien...exciting news about the period! I have thought recently how thankful I am that I have had all my children. I know there are women my age (40) who haven't had their children yet, for whatever reason, and I am so glad that that wasn't me. How sad it would be to see that chance slipping away. I wish you all the best in your desire to have kids!



    Rabbit...certainly sounds like you made a good, albeit difficult, choice. Good for you!



    Two weeks into the Livestrong program and am enjoying it. Finally loaded some recent pics...will try to post soon. Enjoying people's pictures!

  • ellenquilt
    ellenquilt Member Posts: 172
    edited January 2012

    Hi all,

    Been MIA again -- too much going on and I've been sick from the radiation treatments and haven't felt much like doing anything but sleep by the time I get home from work.

    Glad to hear that everyone is moving forward so well.  The pictures are beautiful!  It seems a lot of us are beginning to return to a more "normal" existence after this journey.  

    My RO decided to spare me the final three treatments since my burns were so bad.  I had 15 hits and then they broke that for a week and did the boosts.  The boosts gave me second degree burns that blistered and broke, and after 8 of those we moved back to the regular hits.  Unfortunately they made the burns worse, so I've been out for another week.  I'm so relieved to not have to go back again and my RO believes that I had such a strong dosage that the missing 3 won't make a real difference.

    All I have left is the herceptin through July and then the Tamoxifen.  Almost there.  

    Hoping to begin rebuild  in the house later this month.  My son's problems ebb and flow, but on his good days he is trying to fix his life.  That's something.  My job for next year is still up in the air, but there's nothing I can do about that right now, so I'm trying to ignore it. LOL.  And my ex is handling all the mortgage issues and trying to get the bank to help us out since we are so far under water.  With so much going on, my treatments were just squeezed into the empty spaces. I'm glad they are mostly done.  

    I may not post much for a while, but I'm happy to read so much good news.  Be well, all of you.

  • rabbit
    rabbit Member Posts: 613
    edited February 2012

    misswim, I am now convinced it's carpal tunnel syndrome. I have all the classic text book symptoms. But I do have neuropathy in my feet, all my toes and the pads under my toes are slightly numb, but seem to be getting better with time. I have had severe foot pain, on the soles of my feet, but I don't know if that's neuropathy, plantar fasciitis or arthritis LOL....

    hi yooper, I want to join that Livestrong program here but now have to wait til I recover. Can you do swimming while going through rads?

    ellenquilt, I am so sorry you are having a rough time through rads. I hope the burns get better soon, when you say you are sick from the rads, is that tiredness or something else? I start rads in a few weeks and was curious what to expect. 

    Love you all!  

  • ellenquilt
    ellenquilt Member Posts: 172
    edited February 2012

    Rabbit,

    The radiation really increased my fatigue beyond what it was and the muscle aches and pains seemed worse, don't know if that's herceptin related or not, but I just felt so tired and achy all the time.  The burns were the worst part -- second degree. My nurse told me that I had the trifecta of traits for problems. LOL.  Chemo, fair skin and large breasts.  I know the other women there weren't having the same problems, so I guess I just pulled the short straw on this one.  I'm just glad I'm done.  It will take about two weeks for the burns to really heal up, judging from the last ones I had during the initial hits.  Fingers crossed for you that you sail through without a hitch.

    My immune system must really be on the fritz -- I've been home with a lousy cold for two days and would love to stay home for one more, but don't think I can.  No treatments until Feb 17, herceptin day.  That's actually been pretty easy.  Fast, just achiness that peaks around a week later, and the infusion is quick since there are no premeds.  Just as well.  Too much else going on around here. 

  • pinkpalette
    pinkpalette Member Posts: 88
    edited February 2012

    Greetings all!  I am happy to see that our group is still here.  Hoping all is well, and if not---hopefully on the mend.  I loved seeing your photos.  Rabbit your hair looks like mine. So nice to see the hair coming in.  You all are such beautiful and strong women!!! My hair is coming in as well.  No photos yet.  It is fairly thin, but strangely, it appears to have white tips.  Kind of a light brown color.  So strange and it is sticking up in the middle like a short mohawk.  Grateful it came back.

    Recently finished rads.  ellenquilt - I sympathize with you completely.  I am also large breasted and very fair and I got BBQ'ed to the max.  My Rad doc took vacation during my treatments, so my rad tech suggestion was to put on aquaphor and keep coming.  I cried every day as I was so burnt and bleeding.  My scars from the lymph surgeries were inflammed and raw.  I kept asking why they were doing the beam there, instead of my breast.  I kept the schedule and kept going - just to get it done.  I complained and another doc came in to see me and had me do saline washes.  I thought he was out of his mind.  It seemed to help.  It's been like 3 weeks now, and I am healing. 

    I saw my plastic surgeon this week for my annual check, and she found something suspicious on my back and biopsied it.  Waiting to hear.  Already had melanoma and multiple surgeries just prior to my Breast DX.  Oh God not again.  Hoping for the best.

    Love ya, Deb

  • shinypop
    shinypop Member Posts: 107
    edited February 2012

    Looks like we're winding down.  My rads burns are pretty intense. I feel like I'm more whiney, but I just can't help it. They hurt so bad. I may look into a saline wash like Deb. I'm worried that I'm not keeping the burns clean enough and don't want an infection. Two more zaps and I'm done. I can't wait for my new bewbs. I think it would be funny to get the new ones on the anniversary of having the old ones removed. I have a strange sense of humor. 

  • J-Bug
    J-Bug Member Posts: 626
    edited February 2012

    So many women are discussing their bra size. I like to say that I am a 38 -A. The scar from my bmx is turning black and splitting open and very raw and pink where it is coming open, like raw meat spilling out. (...and I am a very pale white chick.) The RO gave me some cooling gel packs to put on this area and has asked me to check in with her three days per week for a bit to see if this is going to stabilize. We will probably go without the bolus soon. I was granted some Oxycodone this weekend, so I will use that to rest up and get ready for next week's job interviews.

    I have had non-stop colds since starting radiation along with sore throat and ear pain and nose running like a faucet. I was so sick this week from a new cold, that I actually gave in and rescheduled a job interview. My daughter actually said, "Who does that? Who calls in sick to a job interview!!???" I thought the same thing. I will get all rested up and get back to it next week. I have two interviews lined up now, very excited!

    Great to see everyone popping in! Photos to come soon! 

  • rabbit
    rabbit Member Posts: 613
    edited February 2012

    LOL@ myself for posting my pic in the hysterectomy/ooph thread some of us had going...I meant to post it here. This pic is exactly 8 weeks PFC, hair filling in nicely, eyebrows looking like eyebrows with no pencil and eyelashes very full but very short, way too short for mascara still, but I'm loving them!

    8 weeks 

    I had to see a pain management doc today. I am getting some nerve test done called an EMG, it will determine if I have carpal tunnel or nerve damage from chemo. Also, MRI of my back, the gift that keeps on giving for sure, it seems that every single ailment I ever had, flared up 10x over.

    I'll update when I know more on that.

    J-Bug, I'm a 38DD, was a 36C my whole life til I put up a ton of weight, I lost some of it pre dx and the boobs never went down :( 

    2am for me, I am exhausted, nite all!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    Great shot, Rabbit!  Super short haid is soooo in these days!!

    J-bug - I am so sorry to hear about the raw scar and all.  You are very strong and brave to weather through all the surgery and healing.  Good luck with the job hunt.

    Everyone in this "club" of ours is a trooper to keep on moving forward in spite of everything BC and treatment throws at us!

  • J-Bug
    J-Bug Member Posts: 626
    edited February 2012

    Okay, this is the brave part: photo time! I am including 1st a grainy out of focus photo of me taken right at diagnosis. The 2nd is in January, around 3 months PFC, flat-chested. The 3rd was taken today, 4 months PFC with hair colored and dressed up with prostheses for interview. Unfortunately, my radiation burns show more than I realized, but I did very well not talking about health issues at all in the interview.

     

    rabbit: I didn't make my joke very clear. I was saying that now I am a 38 negative A -after surgery. I was in a thread where all the women kept listing their bra sizes, and I just wanted to get it out of my system. : ) I don't miss the girls too much, just when I put on my old dress clothes. 

  • misswim
    misswim Member Posts: 931
    edited February 2012

    J-Bug, you are BEAUTIFUL!!!

    You, too, Rabbit!

  • J-Bug
    J-Bug Member Posts: 626
    edited February 2012

    Thank you misswim. I am overdue to tackle that chemo weight. I keep getting started and then getting another cold. It'll happen eventually. Radiation will be done at the end of next week! It's probably too much to try too hard this week and next with all the radiation pain and my skin splitting open along my bmx scar line.

  • shinypop
    shinypop Member Posts: 107
    edited February 2012

    Everyone that has posted a photo is gorgeous!@!! I haven't taken a pic of myself but I am getting tons of compliments on my hair. It would seem that 1/4 inch hair suits me. lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2012

    J-bug - you look great! I love your bangs and think you look really professional that way!  Hope you are feeling better and healing.

  • J-Bug
    J-Bug Member Posts: 626
    edited February 2012

    rabbit: I meant to address your post about leaving your ex. I am sorry that you are going through such a painful experience during all this bc stuff. I dated someone when I was very young who was a recovering drug addict. After we had dated for several years, he got back into it. All the time in the beginning, he was clean as far as I know. I broke up with him, but he was so emotionally manipulative. Every time I checked in with him to see if he was doing better, he wanted to get back together. Then later, he was always telling my friends how I had such a hard time letting him go. I cared about him, but was not willing to be in a relationship anymore. I did not want that rollarcoaster ride. I found that breakup time period and drawing the line to be the toughest part of the experience. I wish you strength through this. Take care!

  • misswim
    misswim Member Posts: 931
    edited February 2012

    Have the "official" 3 month follow up visit Tuesday with the onc. Am a little nervous to see my blood work, but I feel fine and I am sure all is well. Will be mentioning the little Tamox issues I have, and push to start my Zometa.

    I miss you guys, I hope all are well. Wish me luck Tuesday!

  • bcisnofun
    bcisnofun Member Posts: 488
    edited February 2012

    hi misswim - I'm starting zometa next month.  We did a bone density and I do have osteoporosis, so the med onc thought it was a good idea.  Are you still on metformin?  Sometimes I worry that the meds I'm taking to keep me from dying will kill me :), but I guess I have to do everything I can.  Just my personality. 

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