Has anyone started a Dec 2011 group?

Options
1262729313268

Comments

  • GracieG
    GracieG Member Posts: 118
    edited January 2012

    Kelly - I am so happy this treatment went well today, I had my reaction at my first treatment, did not at the second, but am still nervous about future treatments.  Hoping for a restful siesta for you. And hoping for no after pain from the Neulasta tomorrow.  

    Bailey - Boy, do I understand where you're coming from regarding treatment #3.  I am dreading it, and I have a total of 4 treatments like you.  And mine isn't until a week from tomorrow.  My son came over yesterday evening and said, Don't you have a treatment next week?  I said yes, but I don't want to go.  He said (loudly), but you HAVE to go.  I told him I am going, I just don't WANT to go.  No one understands until they've been through it.   

    mardibra - So happy to hear you're feeling a little better.  

     Here's to happier days to all of us soon! 

  • seacretgardn
    seacretgardn Member Posts: 269
    edited January 2012

    Wow you 3 ladies are so close, but I grateful to have competed the nasty AC. Yay! I hope all of you fair well these next weeks.



    I was so anxious going for the infusion, my heart rate was 104. Not good. They added Ativan to my pre meds and I slept through most of the tx. That was fine by me. Came home and slept some more. Wired and ears ringing from the roids but still fuzzy. Other good news is they were able to lower my dose since I'd lost so much weight. Only 5 mgs, but I'll take it!



    Ok, hang in there everyone, thinking back, it didn't ever seem possible to get to this point. Thank God that one day at a time did get us here.



    Baileybump, that sure sounds like divine intervention to me. I'm so glad you were blessed by that man.



    Ok ladies, a good night to everyone.



    Laura

  • Mardibra
    Mardibra Member Posts: 1,111
    edited January 2012

    So today I talked with my MO regarding instructions for taking the steroids before my first Taxol infusion (next week). She scared me! I have to take 20mg's of decadron at 9:30 the night before and another 20mg's at 3:30 AM! Then I'm scheduled for Taxol at 8:30 AM. Anyone else on this level of steroids? Seems a bit high to me. Sleep will definitely not be my friend.



  • momof3boys
    momof3boys Member Posts: 896
    edited January 2012

    Everything went well for my 2nd of 4 TC...thanks, Ladies!

    No issues, feeling pretty good, just tired! I hope everyone has a restful night!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited January 2012

    Oh, by the way...was diagnosed with IDC pre lumpectomy. Post lumpectomy it was IDC, ILC, and DCIS. An entire stew of cancer. And, bigger than originally thought so I will be having a mastectomy after chemo. Oh joy.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    Gracie - I was told by my MO having a reaction on tx 2 was rare and the nurse today said she had not seen anyone have more than one.  That makes me feel better but I'm sure I will be a little more nervous with each one.

    Bailey - glad all went well.  Devine intervention indeed!  A friend I went to high school with recommended a book called "Just Get Me Through This" by Deborah Cohen when she found out I was diagnosed.  I got it the next day on Amazon, read it in 2 nights.  It really helped calm my nerves and make me realize that I could do this!  I hope your new book does the same for you.

    Momof3 - glad it went well for you today also.  Hope you have a good week with minimal SE's!

    Mardibra - Glad you are feeling better.  We are on a different cocktail but I take 8mg of Dexamethasone the day before, 8mg the day of, and 8 mg the day after treatment.  So I guess you are taking a little more.  It doesn't seem to do much to me except I talk non-stop...my poor DH!

    Secret - congratulations on being done with the red devil!  Good luck on the next leg!

    Gentle hugs to all!

  • Mardibra
    Mardibra Member Posts: 1,111
    edited January 2012

    I live alone. Guess I will be talking non stop to the TV!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    LOL, I've done that before!  Feel free to PM me for a phone number, I'm still on my steroids so we can talk each other silly!

  • GracieG
    GracieG Member Posts: 118
    edited January 2012

    Momof3 - Congrats on finshing #2, so happy if was uneventful for you and hope you can get some sleep tonight.  Hoping you have better luck with your Neulasta shot tomorrow than you did last time, I'm sure you will.

    Mardibra - I'm on the same chemo cocktail as Kelly and take exactly the same brand and dose of steroids she does.

    Laura - Huge congrats on finishing the AC!!  

     Better days are coming! 

  • heatherb8
    heatherb8 Member Posts: 263
    edited January 2012

    Kelly..glad everything went well for  you today.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    Gracie - seems we have alot in common...same dx date also.  My second Neulasta was much better than the first so I'm taking my Claritin tomorrow and crossing my fingers this one will be as good.

     Thanks Heather!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited January 2012

    Baileybump - That's a wonderful story! I'm glad the book turned out to be such an inspiration. It's good for us to find those moments, and faith goes a long way.

    Heatherb8 - Glad you seem to be feeling better this time around. It makes such a difference to stay on top of the pills even when you don't think you need them.

    Markat, Kellogs, Momof3 and Seacretgardn - Glad you got through your treatments okay. Wishing you an SE-free weekend.

    Mardibra - I'm also only taking 8 mg, though I'm not sure how much they give me at the infusion time. 

    I'm looking ahead to #3 next Thursday. I'm a little worried that since I've done okay so far, everyone at work has decided that the chemo scare is over and I'll be able to pick up some of the work that's been waiting for me with no problem, which might make it more difficult for them to understand if the Mack truck hits me the next one or two times. I'm just glad I've managed okay. I made it back to zumba class tonight only to have my knee give out. Grrr. Advil is definitely my friend tonight. 

  • Baileybump
    Baileybump Member Posts: 172
    edited January 2012

    Racehl - I look forward to returning to Zumba.  Such a fun exercise/activity.  Santa brought me Zumba for the Wii, but I haven't tried it yet.  Wink  Definitely planning on implementing exercise into our daily routine when this is over!

    I discussed my "rapid heart beat" with my onco nurse and she thinks it may be because I take a blood pressure medication.  My pressure may be dipping, so my heart is doing what it should by kicking it up a notch.  I'm going to see my primary care on Monday night (last appt so hopefully sick people will be gone), to have it re-evaluated.  Onco nurse said blood pressure often drops during chemo.  Has anyone else noticed anything with blood pressure?

    Well it sounds like we all made it through our transfusions this week (a few of you are scheduled next week) . . . let's hope for minimal side effects this weekend!

  • rachelvk
    rachelvk Member Posts: 1,411
    edited January 2012

    That's interesting about the blood pressure. Mine has been slightly lower on a few occasions, but mine is usually in a good place, so there's not a lot of difference. I hope there are no other complications for you. I have noticed that my heartbeat feels different now, between the bmx and the TEs - that is, it's harder to feel it through my chest, if that makes any sense....

  • Gator65
    Gator65 Member Posts: 72
    edited January 2012

    This last AC was super sucky. It has been 7 days and I have finally returned to the land of the living. Still feel like garbage thougjh. I can get out of bed at least.

    I pray that Taxol is easier. I swear, I just want to quit. 

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    Hang in there Gator - you've made it this far quitting is not a good option.  I'm not on your regimine but I do get Taxotere which is the same family as Taxol and my SE's have been mild.  I hear the AC is rough.  Good luck to you.....((HUGS))

  • heatherb8
    heatherb8 Member Posts: 263
    edited January 2012

    Hang in there Gator..I agree with Kelly quitting is not an option...You've come this far, but I sure do get the feeling..I've heard the same that A/C is rougher than Taxotere/Toxol..

  • momof3boys
    momof3boys Member Posts: 896
    edited January 2012

    Baileybump- yes! Yesterday before my 2nd TC treatment, by BP was low. Nurse took it 3 times

    (100/60, 100/70, 110/60) I told her it is historically low (before BC) she said it was 140/70 on 11/11/11. I reminder her that on 11/11/11 they took it right before my BMX! Geesh.... That's obvious, isn't it.

    I'm feeling okay today. Get that damn Neulasta shot at 3:30... MO said that if all goes well for my 3rd infusion, she will cut the Neulasta in half for the last TC treatment. And yesterday, they did not give me Benadryl before my treatment, since I didn't have any reaction at the first one. And that was fine. No adverse reactions yesterday. And....my sister set up a kind of "celebrity visitor" schedule yesterday for my 3 hour stint! She came with me, but had different "surprise guests" appear for 15-20 minutes visits every hour. It was fun, as I was feeling fine, and made it go by much faster and with a lot of laughs! No cancer talk or questions!

  • momof3boys
    momof3boys Member Posts: 896
    edited January 2012

    Had to sign a HIPPA form before each guest appearance though! Although the nurse was very nice about it.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    momof3 - what a creative way to take your mind off your infusion.  You've got a caring and clever sister!

  • heatherb8
    heatherb8 Member Posts: 263
    edited January 2012

    Momof3..Kelly is right you do have a very creative sister..that's awesome!  So glad it made it go a little faster!  I hate the neulasta too..my body just aches everywhere..you can't even touch me!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    momof3 and heather - My first Neulasta was pretty bad.  I had the pain and restless leg feeling for a couple of days and was miserable.  The second one was not bad.  I was told by some ladies further along than me that the initial shot is the worst because the bone marrow expands more with that one.  Subsequent ones aren't too bad.  I go for #3 Neulasta this afternoon....hope I know what I'm talking about!  Anyway, taking my Claritin and will have the Tylenol and recliner ready!  Here's hoping you also escape the pain!

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited January 2012

    Ladies, I have noticed I have been dizzy the last couple of days BEFORE my last infusion which was 1/18. (#3). They took my blood pressure that day and I was low too! That is not my normal. So the nurse that came in to give me my Neulasta shot took it again and it is still low. She did say it was common after chemo however my dizziness was before. So I have increased be salt intake, her suggestion was to eat three olives and it should do it. Interesting that a few of us had the same issue this week. So I am next on the three rounds of taxotere. Ladies tell me how the first round has gone for those that have taken it already. I have officially said good-bye to fec. Honestly I can't complain to much as me se's have been minimal, although mentally I do feel about day 5 it does put you in a stupor. At this point I am on day 3 of treatment so I have a couple of days before I want to go into the fetal position.

  • markat
    markat Member Posts: 909
    edited January 2012

    Hi ladies. It's day 4 after #3 TCH. I'm feeling pretty crappy. Very tired and nauseous. Day 3 and 4 are always my worst days. Hope all are well.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    markat - sorry to hear you are feeling so bad.  I know days 3-5 are usually my worst too with flu feelings, tired and achey.  I hope you feel better soon.

     Just got back from my Neulasta and man did it hurt today! I asked the nurse if I could warm it up myself in the waiting room since they don't seem to understand that a cold shot hurts!

    Hope everyone has a good weekend...I'll be snowed in so it'll be a good reason to stay in the recliner.

  • heatherb8
    heatherb8 Member Posts: 263
    edited January 2012

    Kelly..that's good to know the first one is worst..So far the aches and sharp pains aren't nearly what they were the first time..so I think you are right on the first shot being worse...hope yours goes smoothly today.  That sucks she didn't warm it up for you..my nurses are kind and roll it around in their hands.  I will be snowed in as well, we aren't too far from each other..you will get the snow first and then it will head over here!

    Whata..I really wish I could help you with the taxatore, but I don't have any other experience to compare it to.  So of course for me it sucks, but you already did some of this stuff so I'm hoping that perhaps it doesn't suck so much for you..that's all I know to say, because the bottom line is..all of it SUCKS!  Good Luck to you.

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    Whata - I am on Taxotere but have not experienced the dizziness.  I had it after my first treatment but found out it was the Compazine for nausea.  I switched last tx to Zofran and have not been dizzy yet.  My blood pressure is always a little elevated from nerves. Make sure you tell your MO about it too if you experience it again.  Good luck!

  • Baileybump
    Baileybump Member Posts: 172
    edited January 2012

    Sounds like the snow is going from Kelly to Heather to Kathi!  We're expecting 4-6 inches by tomorrow (I hope for 6 - - I have NO plans to do anything tomorrow).

    Today was Neulasta day for me, too, and MINE hurt!  I didn't notice that it was colder than usual (my nurse rolls it around), but it had a much stronger bite than usual.  My hand is still sore from my infusion yesterday, too, so maybe I'm just more ouchy this time.  One more treatment to go. . .20 days until infusion, 21 days until Neulasta. It's not the infusion or shot that bothers me, though. . . it's the days that follow.  Ugh.

    Wishing you all a healthy weekend.  Stay inside and enjoy the snow!

  • Kelloggs
    Kelloggs Member Posts: 965
    edited January 2012

    Yep Bailey the snow is coming down pretty hard here in Ohio.  We are supposed to get around 5-6 inches and I'm with you....bring it on!  By the way, my Neulast hurt like a bitch today too.  I know it was cold because I could feel my arm was cold after she gave it.  I offered to roll it around in my own hand while waiting next time! 

    I came home from work today, cooked a dinner I couldn't taste and proceeded to take a 2 hour nap in the recliner!  I've been up and about, feel pretty good except for a little nagging headache and fatigue.  I'm gonna get snowed in tonight and take it easy!

    Hope everyone has a gentle weekend!

  • Gator65
    Gator65 Member Posts: 72
    edited January 2012

    Thanks ladies. I appreciate the support because my family just doesn't understand. They all tell me buck up. I just want to strangle them sometmes!! 

    I never connected the restless legs/twitchy feeling to the nuelasta. I thought I really did not have any SE from it.  Wow!

    I start Taxol on the 28th. Yippee! The steroids scare me. Oh well.

    I hope everyone has a good, minimal SE weekend! 

Categories