Yikes -- will I have problems getting health insurance?

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LWA
LWA Member Posts: 39

Hi,

As I've mentioned, I had a hysterectomy late in October. Someone on hystersisters.com mentioned that after you have a hysterectomy, it will be six months before you go a day without thinking about the fact that you had a hysterectomy.

Well, as it happens, if you get a BC diagnosis soon afterwards, you'll forget all about having had a hysterectomy!

And I can further report that if you lose your job three weeks after your lumpectomy for DCIS, it will go a long way to pushing BC out of your mind. :-)

Yes, I have lost the (excellent) job I'd had for 13 years; my position was eliminated. I got my notice last week. I'm positive it will all come out fine (depending on the moment you ask me; at others, I'm sure I'll end up starving to death in a Dumpster) and consider this a chance to explore new areas, as I will have a period of salary continuation during which my health insurance will continue.

After that, assuming I don't have another job with insurance (though I suppose that could happen), I'll need to buy my own insurance. I just went to the big health insurance website to read about pre-existing conditions, and it said that you'll be automatically denied coverage if you have certain conditions such as cancer, insulin-dependent diabetes, etc.

Yow! Does anyone have experience in this realm? Does DCIS eliminate your chance of getting health insurance if you're buying it on your own?

I know that Obamacare will make it so this isn't an issue (thank god), but that's not until 2014, and who knows if it will all end up going into effect.

Thanks in advance,
Linda

Comments

  • TheLadyGrey
    TheLadyGrey Member Posts: 231
    edited January 2012

    The short answer to your question is yes, you are basically uninsurable outside of a group policy context.  

    My husband was between jobs last spring and our full coverage lapsed.  I was able to secure a six month policy for the family which is basically catastophic health insurance -- all pre-existing anything is excluded and it is renewable at their discretion. 

    I had a "we can biopsy it or come back in six months" mammogram in January, and I elected to wait.  My insurance agent told me that even THAT rendered me completely uninsurable, we should NOT apply for full coverage because being declined -- as we would have been -- is another red flag against you -- and the best approach would be to wait until after the "all clear" mammogram I was going to get in August.  

    Oops.

    In the meantime, and prior to my diagnosis, we got full group coverage through my husband's new job.  Immediately prior to my UMX, the insurance company said they were excluding treatment under the pre-existing condition clause unless I could provide "proof of creditable coverage" for the prior 12 months.  Because I had the fill in, catastrophic policy, I was given day for day credit for what would have otherwise been the pre-existing condtion exlusionary period so I was able to have the surgery and treatment as scheduled.  

    Had I not secured the fill in, catastrphic policy, I would have had to wait however many days I was uninsured which we calculated was this March.  I was cool with that -- my family not so much.  

    This may be a Texas rule -- who knows -- but the moral of the story is, if possible, have SOME sort of insurance at all times.  I was shocked that they accepted the fill in policy as "creditable" -- it was $3000 for a family of five for 6 months to give you an idea.   

    I will never take health insurance for granted again.  It is a scary feeling having an "iffy" mammogram hanging out there with no coverage and no certainty that was going to change.   People who rant against Obamacare don't get how vulnerable we are -- not just cancer patients but anyone with a serious health problem in their history.  The only people in our country who don't have to worry are over 65. 

  • LWA
    LWA Member Posts: 39
    edited January 2012

    Thank you, TheLadyGrey. (Definitely not trying to start a political argument here, but I'm with you, and also often wonder if Medicare will actually still be there by the time I need it.)

    I do recall that when I got this job, no one asked me about my health. I guess that's what you meant by the group policy context? If you get insurance along with a job, your pre-existing conditions are OK?

    Linda

  • epgnyc
    epgnyc Member Posts: 101
    edited January 2012

    Hi, LWA.

    First, let me say how sorry I am that you seem to have hit a Trifecta of bad news over the past 4 months....hysterectomy, breast cancer and then losing your job.  I am Director of HR for a finacial company and so to answer your question about health insurance -- yes, you are correct that if you try to get individual health care coverage they will either not insure you or will exclude coverage for the pre-existing conditions (in your case, breast cancer and anything gynecological) for a period of time, which I think is one year.  If you get another job that offers health insurance, the insurance carrier will have to take you with no questions asked, so that's your best bet.  Thank god for the Obama healthcare law when the pre-existing clause goes away for adults in 2014 (if the law isn't struck down of course), but unfortunately that doesn't help you much with your immediate need.

    If you had insurance coverage at your job, you are entitled to COBRA continuation coverage for up to 36 months, but you need to select this option within 60 days of leaving your company.  Unfortunately this isn't an option for many people since the direct cost of their company health insurance is often prohibitive.  But it's a great option if you can afford it, at least until you can get an individual policy or get another job that comes with health insurance.

    It's so totally unfair that it makes me grind my teeth.  I've got my fingers and toes crossed that you will be able to find another job that comes with health insurance.  Until then, best of luck to you.

    Ellen

  • Medigal
    Medigal Member Posts: 1,412
    edited January 2012

    LWA:  Sorry for all the problems you are trying to resolve at this time.  However, even if you find another job with health insurance, you cannot afford to be without insurance for a certain number of months if you want them not be be able to use your "pre-existing" against you.  Even tho COBRA is expensive, imo, it is a necessity to have it so that it protects you until you get another job (with insurance) or you find other insurance you can afford to buy.  I don't know the time period off the top of my head but your "must" make sure you stay insured if you want to have the pre-existing waiver. As for 2014, what O bama's Bill is planning on doing is great but if the other party trashes it, we all will be back to square one with the pre-existing.  Best of luck to you!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited January 2012

    I think they can't deny you for pre-existing condition IF you have had coverage for the previous 12 months.  I left my job in Feb. 2010, extended that health insurance until June 2010, got a self insurance policy through Aetna (through an artist co-op, deductible of $5,000.)  Was diagnosed in Nov 2010.   They have renewed my insurance each time - the premium actually went down this year.  I will probably keep this plan forever, even if I wind up getting a job (or husband!) that has insurance, just so I know that I always have it.    

  • LWA
    LWA Member Posts: 39
    edited January 2012

    Thank you very much for your kind words and the information, epgnyc (neat to hear from an actual HR director! The job I'm losing is at a financial services company), Medigal, and sweetbean.

    If I have health insurance through COBRA and go shopping for my own insurance as COBRA is coming to an end, is the idea that I can't be denied due to my pre-existing conditions because I've had coverage without interruption?

    Also, by the time I'm shopping for my own insurance, if it's been, say, three years since my treatment for BC, will the insurance company still require the period of non-coverage for the pre-existing condition?

    Thanks again,
    Linda

    P.S. sweetbean, I hope a very suitable husband turns up posthaste.

  • VJSL8
    VJSL8 Member Posts: 652
    edited January 2012

    We have an insurance exchange in California now. I would research with them to see what your options are. I know that with the Affordable Care Act that people who haven't had insurance for 6 months can get it through the exchange and I would hope that there might be an exception in cases like yours. Good Luck, I waiting patiently for 2014 to see what options I will have. VJ

  • Medigal
    Medigal Member Posts: 1,412
    edited January 2012

    Linda:  I went back into my files on COBRA (I handle it for my DD who lost her job last year).

    If you want to reduce or eliminate the maximum preexisting condition exclusion period, you must show "creditable coverage".  You cannot have a "break" in coverage of more than 63 days (at time of this article).  If you don't have a break in coverage, the new insurance whether it be a group with a job or some other type you decide to purchase, cannot use your preexisting medical problem against you.  This is why I make sure, my DD stays on COBRA for as long as possible even tho it is very expensive.  It also stated that if you had more than 12 months of continuous coverage in a prior health plan, it can be used to fully offset and eliminate the maximum preexisting condition exclusion period under a new plan.

    The secret to all this is to "keep continuous coverage"!

    This is the main reason I have sent so many letters to Obama and others about the PCIP.  One must go "six months without insurance" before they can purchase plans under the PCIP!  While one is waiting to get a PCIP plan, if you don't or can't buy it, it completely cancels your chance to get insurance under the above rules!  So be careful how you handle this and maybe try to google up some more info on this in case your State has extended rules.

  • LWA
    LWA Member Posts: 39
    edited January 2012

    Thank you guys very, very much! Thank you for delving into your files, Medigal. Feel much better now, knowing a bit more about it.

    Linda

  • LeesaAnn
    LeesaAnn Member Posts: 222
    edited January 2012

    The Breast and Cervical Cancer Prevention and Treatment Act of 2000 may be of benefit to you if you find yourself without insurance and an income. It is a federal medicaid program, managed at the state level. So each state has its own system of reporting and mangement. Its not the typical Medicaid, low ball doctors, system. Doctors are reimbursed very well under this program, and you would be able to find quality Doctors for care. If eligible, your medical expenses would be covered in full.

    Here is a link to cms.gov website:

    https://www.cms.gov/MedicaidSpecialCovCond/02_BreastandCervicalCancer_PreventionandTreatment.asp

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited January 2012

    I second the person who said to check with the programs in your state. I went on COBRA and rode it out until the end (18 mo) but then had to get something else.  Being uninsurable, I went with a state program for those with uninsurable conditions, administrated by Blue Cross. It is expensive and high deductible but it is insurance. No complaints here.  So I bet CA has one as well - look into that first. And I agree - keep continuous coverage. I was told it was VITAL to have continuous coverage and not let it lapse.

  • LWA
    LWA Member Posts: 39
    edited January 2012

    Thank you, LeesaAnn and AmyIsStrong. I had never heard of the Breast and Cervical Cancer Prevention and Treatment Act of 2000. Well, I guess if there is one thing I have learned today, it is the crucial importance of maintaining some kind of coverage.

    Linda

  • cycle-path
    cycle-path Member Posts: 1,502
    edited January 2012

    LWA: I urge you to become familiar with the "portability" aspects of HIPAA, the Health Insurance Portability and Accountability Act of 1996. HIPAA was implemented precisely in order to help people in situations such as yours. 

    Please look at this info: http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html 

    The bottom line, though, as you've already figured out, is that you must maintain some sort of coverage. With HIPAA you can't be denied as long as you follow its "rules" of maintaining coverage.

    This topic was also beat to death on the Insurance and Financial issues forum recently. You might want to read that thread as well.   http://community.breastcancer.org/forum/113/topic/780391?page=1 

  • jessicav
    jessicav Member Posts: 161
    edited January 2012

    Don't let any insurance lapse for over 63 days.

  • LWA
    LWA Member Posts: 39
    edited January 2012

    Thank you, cycle-path and jessicav. I will definitely visit those links, cycle-path. BCO is an awesome resource, and it is so bolstering to receive your words of wisdom and experience. Can't imagine trying to do this without it and you all.

    Linda

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