Has anyone started a Dec 2011 group?
Comments
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Whata..I'm so glad you haven't had many side effects..and hope you have minimum se with taxotere..on the Dec group for Taxotere/Cytoxen there have been ladies that had minimal and some that have had quite a few..I know it's tough walking in there when you feel good knowing you're signing up for a round of toxin into your blood stream..that could potentially have long term risks, however in my mind had I not done it and it came back I sure would be mad as hell at myself for not trying everything I could..Hang in there your 50% complete!!! Half way there sister!!!!
xoxo
Heather
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Tx went well today. I was asking my nurse if reactions can pop up in any number of infusion and she laughed at me and said I just jinxed myself. But everything went smoothly. I'm hoping this one is easier on me than the last one.
Thank you for the well wishes and good luck to those of you going this week! -
markat - I had a reaction at tx #2 and my MO said it was unusual, most have it at the first tx. Crossing my fingers it is rare and won't happen on Thursday too! Wishing you minimal or no SE's!
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Thanks Heather I appreciate your well wishes. I wonder why in Canada we do the 3 fec's and the 3 taxotere in 3 week intervals and on the U.S. side you do the 4 infusions every 2 weeks. If given the choice I would prefer to get in done and over with. I would prefer the 4 every two weeks. I assume they are equally effective. I had asked my oncologist about just doing the taxotere because I had read somewhere it was more effective with the grade 1 tumor but she indicated your protocol was based on your stage. They are the professionals so I have to trust them. So it looks like you just have the one more to go. I am jealous.
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Thanks Kelly. You are actually the reason I asked. She told me to tell them immediately if I started feeling warm. Good luck Thursday! I hope you don't have any reactions this time!
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To all the ladies with the heartburn, throat, and mouth se's. My heart goes out to you. My tongue feels like I burned it on coffee yesterday, but it's been like that about a week. Cheeks feel like they were swiped with a lidocaine swab. Heartburn appeared with TX1, but mysteriously disappeared after #2. Good riddance!! I have it anyway if I'm not careful, ever since pregnancy #2.Mine are enough and my friends with worse. . . . .So sorry
The h**roids were also a gift that keeps on giving from pregnancy#1. Flare-ups when constipated since then. The first Tx caught me by surprise with really bad constipation that I got under control after 2 days, but the damage was done. I think I have the routine figured out and am planning my attack strategy.
Onco dr. today gave me the clear for returning to work. Giving me antibiotics prophalactically (nothing involving Trojans) since the WBC went down so fast to literally nothing (.6) when they checked Tuesday. So starting Friday, I take another one. Trying to keep that little bubbly yeasty friend away, too with all the antibiotics, but Cipro is no milk, yogurt, so more pills until Thursday when that runs out.
How do you all keep track of this when you are fuzzy headed sometimes. I come up with a great plan, use the little pill things and then draw a blank sometimes???
Here's to a good night; no fevers over 100.5; find a comfy spot; pet the pup, cat, kid, man, friend. sibling.
In other words remember why we are going through this lousy time--to gain some time in the future with those worth fighting for.
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Hello Ladies..I did pick up a new side effect after my third tx...the heartburn..I never get heartburn and it really sucks..one day after still have my taste, but that oughta be gone tomorrow..hate that no coffee till the end of next week..ugh..
Wave..I did 4 t/c every three weeks..I wasn't even aware of the FEC treatment..is it due to positive nodes? Or does that not matter for the number of treatments? I know my cousin was diagnosed at 34 with stage 4 mets to liver had 5% of her liver removed and had 8 treatments of A/C and an additional year of treatment because she was also HER2+ and also 7 weeks of radiation..She's 6 years NED! She is my inspiration to get through this..She did this and continued to work full time take care of a 3 year old with minimal help from her worthless husband that left her for another woman less than a year after she completed her treatments..but cheated on her the whole freaking time she was going through her treatments..What an ass that man is...
Markat..so glad all went well for you today! I hope your side effects are minimal or not at all..wouldn't that be an awesome switch!
Kelly..My MO nurse said typically the side effects happen either after tx 1 or 2..there's just so many conflicting stories aren't there!!! Praying no new SE's for you too!
Sno..I keep saying my mouth feels like the shrunken head guy in the waitingroom in Beetlejuice..I don't know if I heard that hear or I came up with it when I watched the movie the other day, but it makes me giggle just a little..I really hate that part of it..and nothing I do helps it..maybe your prophalactic antibiotic (thank goodness not a trojan) takes care of some of that...But, I'm on the cipro right now and it didn't do anything..I will say I have been taking raw probiotics (pill form) and man does that help the GI trac...Well see how later in the week goes with the good ole runs..man those are the worst! The probiotics are a bit $$ but really helpful and then you don't have to do the yogurt to keep away the other infection none of us want! I'm struggling this time with the meds in fact I forgot to take my Cipro yesterday..I had the steriods vitamins, anti neas meds, blah blah blah, looked on the conter and there it was..hope it doesn't screw me up too bad.. Couldn't agree more with your final line of your post..Love it!
Hope you all get a good nights rest!!
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Sno, I love what you say at the end of your post. Some days are so damn difficult. I hate that fuzzy head feeling, sometimes find myself walking into a room and wondering why am I here?
Every day I make a list, now if I could remember to read it...
So many are getting closer and others on the AC have already finished up. I hope the SEs are manageable. I have my 4th on Thursday, getting anxious.
Do many of you go for bloodwork in between txs? The only time mine is checked is day of tx.
Hugs to all, feel well,
Laura -
I want off this ride...now!
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Laura..I go every week for bloodwork..I think because I ended up in the hospital after the first tx.
Mardibra..I hear ya sister..me too!
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seacretgardn - I also only get my bloodwork checked the day of my tx. That made me a little nervous starting last Thursday and over the weekend, when I was supposed to be at the 'low point,' but had no idea what was really up. Looks like this time I was okay.
Sno - Sorry you're stuck with antibiotics (but I love your humor!). Are you supposed to completely stay away from yogurt? The warning on mine last tx said not to take it within 2 hours after or 6 hours before dairy, calcium supplements and Prilosec, so I managed to jigger the schedule so I could take it and still get my calcium. You can also take acidopholus to make sure your stomach bacteria stays balanced.
Heatherb8 - Sorry you've got the heartburn. OTC Prilosec worked really well for me when I was dx'd with acid reflux. I took it twice a day when it was at its worst. Now I'm on prescription strength when it flared up after my first tx.
Whatashocker - If you haven't found them, there are some Taxotere threads you can check out. It can be harsh, but so far I've been okay having it along with A-C. Some of us are on the Dec Tax/Cytoxin thread, so you can check it out.
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Kelly - we're on the same schedule. . . #3 on Thursday. Good luck to you!
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Laura - Number 4 this Thursday, I bet there are days you never thought you'd be this far along.
Kelly & Bailey - number 3 this Thursday, a lot of you are on the Thursday schedule.
Good luck to all of you.
I get my blood checked every week. Since I'm in a suburb from where my onc is, I go to my PCP's office, yes, germ central, except for treatment day, that one is done at the onc's office. I've had 2 treatments & my onc has had me take antibiotics for 5 days a week after each treatment. I've been waiting for the big "Y" to hit, but not yet. I had it fierce after my BMX surgery, so figure it's just a matter of time.
Mardrbia - sounds like this one hit you hard, hope you're feeling better.
Is anyone else having more of a problem sleeping as the time goes on? I wake up every hour during the night. I can't remember the last time I slept through the night, and this is not helping with the fatigue. My onc gave me an Rx before I even started treatments for a 1 mg. Ativan but it is doing nothing. I guess I better call tomorrow. Ugh, I'm so tired of pills. -
Bailey - I'll be thinking of you Thursday...seems we are chemo buddies! What cocktail do you get?
Mardibra - Hang in there...you can do it. But if you find a way to get off the ride please take me with you!
Heather - the story about your friend is truly an inspiration. 6 years NED is awesome! Thanks for sharing that. I have mets to my lungs (from the get-go) and that gives me some hope.
Laura - I get bloodwork weekly also. It's interesting to see the trends. Usually the week after tx I am fairly good because of the Neulast. Week 2 is my low week and I am always amazed how much my counts rebound by the next treatment day. I get copies of all my bloodwork to keep.
I'm back on the steroids today preparing for tomorrow...UGH!!!!!! Hope you all have a good week with minimal SE's. {{Hugs}}
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Tomorrow is TC #2 of 4 for me. Hair is shedding quickly, just this week. I'm definitely taking the Claritin this time. That Neulasta shot was a nightmare!
I hope everyone has an easy go of it this week. Thinking about all of us! -
momof3boys - the good news is that the first Neulasta is the worst. I took the Claritin and still had bad pain from the first shot. The second one I forgot to take the Claritin day 2 and 3 and was still okay. The initial bone marrow expansion from the first shot is the worst and the ones after that are not as bad. Good luck tomorrow!
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Thanks Kelloggs! I know I felt that Neulasta rising up in my pelvic bone, all the way up my spine. It was the weirdest thing.
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mom - I know what you mean...not only did I have that deep ache but I almost felt like restless leg syndrome. I was laying on the couch and it was like I had to move my legs continuously. I get TCH #3 tomorrow so we will both be in the chair. Hope you have an easy infusion and a good weekend with minimal SE's!
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Thank you, you too! I'll be thinking about you tomorrow. Good luck!
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Good Luck tomorrow Kelly and Mom! I will be thinking of you.
So far two days after tx and one day after neulasta..feeling tired, but not bad..Not quite as achy..but I'm chalking that up to the vicoden..Seriosly ladies ask for the rx..It helps..I take it right before and take one every 6 hours or so even if there is no sign of pain..I've been told by many RN's to stay on top of the pain don't let it break through harder to manage.
Gracie..I did have some sleeping issues..I'm taking xanax and actually took 2 and it helped, but my dose is a little lower..maybe you could see if you could take one and a half..we definately build up a tolerance to the sleeping meds..
Good Luck to all and hope everyone has minimal pains and se's today!
xoxo - so blessed we have each other..Really helps!!
Heather
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Had my Neulasta today. So far today has been okay. Just tired and my stomach is a.little upset. Good luck tomorrow ladies!
I only get bloodwork the day before tx. Mardi hope you are doing ok! -
I'm slowly coming back to life. I can't wait until this is over.
I only get bloodwork done on the day of tx. No problems so far.
Good luck tomorrow ladies!
Happy thoughts to all. -
Mardibra you made it through 4 ACs. Congratulations! I hope the taxol treats you more kindly.
Im so nervous about my 4th tomorrow. Felt semi-human today and now feel like I just went back a week. Mouth on fire and when I looked at my throat my taste buds on the back of my tongue are abnormally swollen. Gross!
I still feel that drug racing through from 2 weeks ago.
Notice most of you ILC ladies on a different tx than I am. That has my mind going to worrisome places. I had the same recommendation from 2 oncs but I want to tell them No More!
Blessings and prayers to all and I will be thinking of those going tomorrow, hope you feel well.
Did anyone say Ativan? Might be a good time for one.
Laura -
Laura..I hear you on saying enough is enough, but if two MO are recommending it that would really make me certainly consider it pretty hard. What other chemo do they want you to do? 4 rounds of T/C or Taxol? I'm actually relieved to see a few of us have ILC..when I was diagnosed with it i saw that 10% of breast cancer is ILC..mine is actually mixed ILC/IDC, but 85% ILC..the initial biopsy had me as IDC...Is the reason they want you to do more is due to node positive?
Good Luck tomorrow Laura..Hope all goes smoothly for you.
Heather
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Seacret the fourth one takes a little longer to get over but when you start feeling good again the happiness of not having to do another one puts you in a happy place, the happiest since I started this. Just did first taxol yesterday and it went well, no SE so far, little sunburned.
Sending good thoughts your way tomorrow! -
Heather I had 2 areas of ILC in my left breast with node involvement and a small DCIS in the right, no nodes. I will be doing taxol x 12 . Thank you for your good wishes.
FLislander, thank you so much for your encouraging words, helps so much to hear that you are doing well after your first taxol. I will be moving my txs to the onc other location so that will move me physically and mentally away from the nasty AC experience. It will also allow me to see the onc each tx instead of the NP.
I will be thinking of the others tomorrow too.
Sleep well.
Laura -
Kelly - I get Taxotere/Cytoxan. Tomorrow is number 3 (OVER the hump) of 4 treatments. I count today as my official MID-point. Treatment #3 will be the start of the second half.
Mom - thinking of you, too! Thursday buddies!
How did other people feel "mentally/emotionally" before tx 3? I was full of dread yesterday and edgy/irritated all day today (could be the steroids, too!). I felt so good this past weekend. . . and know what I'm headed for this coming weekend. Made me sad, dreadful, irritated (as the days progressed). I feel like tx #3 is messing with my head. . . but it won't win!
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Bailey...I think it's the steriods..and it is definately your head that messes with you..when you start to feel good and bam "thank you sir may I have another", Ugh..Only one more Bailey, me too!
Good luck today Bailey and Mom!
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Well tx #3 went smoothly today...I was so nervous after having the reaction last time. I am tired from the extra pre-meds but otherwise feel good. Neulasta tomorrow and probably crappy weekend ahead. Siesta time now.....hugs to all my sisters!
btw how are you doing Markat? and I'm thinking of you too Baileybump - did all go well today?
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Treatment #3 was smooth. My labs were good. I asked if I should be checked more often than the day of transfusion, but they said not since my counts were good. Following treatment, my hubby and I went for a late lunch at Panera Bread. When we were leaving Panera, a man followed us out and caught Joe's attention. He asked if I was a cancer patient, and when I said, "yes," he said, "I want to give you a book that I just wrote." The books is called, After Diagnosis: Life. He said he was having lunch with his daughter and said, "I feel like I am SUPPOSED to give her a book." God was clearing speaking to him through me. . . awesome and overwhelming. It looks to be a wonderful book to work through. He signed it for me and asked me to email him. There are so many books I could read (and I'm not a reader), but for this man to feel like he was supposed to give me a book, I feel like it's a gift from God. . . WHAT A BLESSING (and exactly what I needed to pull myself out of this funk)!
The next few days will certainly be a challenge, but they seem to pass with the help of these forums. Thanks for your positive thougths today. . . they worked!
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