MIDDLE-AGED WOMEN 40-60ish

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Well, I am back and thanks for the pocket party.  He has changed my medication to nortriptyline 75mg.  This is a step up from the amitriptyline and have a follow up in 2 weeks.  Next appt is with the BS next Tues and possible breast MRI.  Go figure - just when I thought the never ending appts were done - now this.  I don't think I am asking too much - I just want to be pain free.

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    I'm hoping and praying that it works for you, Jo...

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Barba58 - Thanks so much - I am too.  I hate being in pain all the time.

  • Kay_G
    Kay_G Member Posts: 3,345
    edited January 2012

    I hope it works for you as well Jo. I know very little about pain meds so this discussion is giving me an education.

  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited January 2012

    Jo- I believe that pain free isn't too much to ask. Good luck with the new meds!

  • marlegal
    marlegal Member Posts: 2,264
    edited January 2012
    One thought that just came to me from Jo talking about an MRI ... I personally would rather have more children by natural childbirth (which I did, twice) than have a breast MRI. The last time my surgeon suggested one, I cringed, and she said to check and see if my insurance covered a BSGI (breast specific gamma imaging). Mine did, and a center near me had the equipment. You sit up and the machine comes to you, kind of like a mammo but not as painful. You get a dye injection beforehand and the special camera follows the dye around, similar to an MRI. I get these yearly now instead of MRI's because I had bad experiences with them (one example: tech inserted needle wrong and dye was going all over my face and arm while inside but they didn't believe me and kept me in the machine ... yeah, not kidding!!)  Anyway, just wanted to throw that out there in case others have an aversion to breast MRI's with dye contrast as I did. My public service announcement for the day!
  • YaYa5
    YaYa5 Member Posts: 667
    edited January 2012
    marlegal, THANK YOU!  i've been noticing how so many women here talk about breast MRI's like it's no big deal, but, like you, i absolutely hate them.  i know i'll have one once a year and i'm already dreading it!  i'm going to ask at my clinic tomorrow about the breast specific gamma imaging. i think i would have crawled out of that machine if the dye were going all over my face and i would be screaming at the same time.  that's ridiculous.
  • odie16
    odie16 Member Posts: 1,882
    edited January 2012

    Jo - I hope the medication change helps get you pain free. lt's not too much to ask for and I am hoping the pain doc gets you there.

    Barbe - Not sharing the results? SO not nice!! I am betting you could've taken her....ha ha

    Welcome to the new and hugs to all.....

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    My MRI was awful. All I wanted to do was scream, "Get me out of here!" I try not to think too much about the next one....

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    I am going to see my BS next week and I think he is going to order a breast MRI.  From what I am reading, I am not sure I want to do this.  I have never had any kind of an MRI.  Now I want to know what happens with these.  Are they painful?  That is not something I need right now.  Anyone who has had one, would you please explain the procedure to me in detail.  If you don't want to go into it here - please feel free to PM me.  Thanks. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    HI ANANDAGRAM!!! Welcome to my other world!!!

    Jo, I've never had a problem with an MRI, but I get lots of tests and am pretty used to being injected, poked, prodded and other wise totally being abused....

    I NEEDED to know if I was still having the Long QT events in my heart as I had been adjusting meds for 4 days. The bitch said the doc would tell me. That'll be days from now!! I needed to know now. I gave up too easy, but I've run out of a lot of the fight I used to have. I am SO sick of worrying about my health!!!

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited January 2012

    Didn't mean to scare you Jo! I just hated mine because I have claustrophobia a bit. I had to lay face down and your breasts hang down through two openings. They put an IV in my arm so they could add the contrast dye. They rolled me into the machine, a round tube. There is air blowing so the temperature is comfortable. They gave me the choice of earphones to listen to music or earplugs because the machine is very loud. They talk to you occasionally to tell you what they're doing and you have to lay perfectly still....that was the difficult part for me because I'm always antsy. It took about an hour for mine. It's not painful except that there's pressure on your breast bone and that does get uncomfortable because you can't lift yourself up to relieve the pressure. They roll you back out when you're finished and remove the IV. I must admit I was very happy when it was over!

    Maybe other people have had different experiences...

  • Kay_G
    Kay_G Member Posts: 3,345
    edited January 2012

    Oh, Barbe she was a b#}%^h! Hang in there, you'll get your results soon.



    Jo, my experience was just like Barb58 wrote. I was really anxious when they told me I had to lay on my stomach and stay in the machine and it would take half an hour. But when I actually did it, I had no problem at all and despite all the noise almost fell asleep in there. I had a second one just before surgery, and since I'd done it before it was a piece of cake. I guess I have no claustrophobia.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    For people with claustrophobia, they keep the tunnel well lit, with air blowing and mirrors so you can see out. I tempt myself by opening my eyes when I know the machine is almost touching my nose....I like to stretch my comfort zone....hehehehehe

  • SAB
    SAB Member Posts: 1,498
    edited January 2012

    Jo-I had a sedative before my MRI and don't even remember it!  

    Barbe-I would start calling the Dr. and leaving messages. 

  • odie16
    odie16 Member Posts: 1,882
    edited January 2012

    My experience with the breast MRI was just as Barbe explained except I was not offerred headphones. Probably a good thing as I likely would have taken a nap had it not been so dang noisy!!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    I've had a couple MRI's (back and breast) and I never had a problem.  I don't have needle fear, or any reaction to the contrast material, not claustrophobic, can willingly lie in one position for an hour, and I kind of get into the machine noises like it is house/trance music.  Really did not mind them at all.

    Never minded mammos either...before I had my rads.  Now, I only mind them because my treatment side cannot take the compression without the capillaries busting.   I never understood why some women hated them so.  I guess it comes to individual comfort level with all those machine diagnostics. 

    Try not to fear what you have not yet experienced.  It may not be too gruelling.  I did fear rads before I had them.  I still think they are harsh, but they turned out a lot less scary than my imagination made them and I even found them boring after the first few times.  MRI's aren't too exciting either.

  • YaYa5
    YaYa5 Member Posts: 667
    edited January 2012
    jo, just be prepared for loud noises.  i have no idea why the MRI machine is so noisy, but it clanks and thumps and it was such a big surprise to me.  for my last one i agreed to take 20 mg of valium right before and i think it helped a little.  i do NOT like having to stay still for any length of time.  just being told i have to be still makes my nose itch and my heart beat too fast.  i've always been like that. i think if i'd been warned about how noisy it was, i'd probably have been fine.  you'll do great, i'm sure.  there is absolutely no pain whatsoever.
  • lwarstler
    lwarstler Member Posts: 341
    edited January 2012

    Jo: I hope the medication change will help the pain.

    Finished chemo today! Yay, I hate the MRI machine too, so I get a valium from the doctor and take it 30 minutes before the scan and they I don't care anymore :)

  • Momine
    Momine Member Posts: 7,859
    edited January 2012

    Jo, the MRI can be a bit of a challenge, but it is not painful at least. You lie face down, with the boobs plopping into special cups. The tube is not big, and you are in there for what seems an eternity (for me it was about 40 minutes). You have an IV port in your arm, and halfway through, they inject some dye in there. The machine is NOISY like all get out. They give you ear phones to protect against the noise.

    My mother gets claustrophobic, so they gave her a xanax before the MRI and she just kind of dozed off. WIth all the testing and other stuff I have been through, I have gotten used to asking ahead exactly what a test or procedure will be like, so I can get used to the idea, and I also warn the docs when something is likely to freak me, however silly it may seem. If I can't deal, I take half a xanax before (although that has only happened 2-3 times). 

  • Reality
    Reality Member Posts: 782
    edited January 2012

    Hi barbe - Thanks for the welcome!! I'm glad I found this thread. If you are here, it must be a good one!

    Oh no -  noone has mentioned an MRI to me - just finished rads two weeks ago. I have had many surgeries and lots of needles, so that part does not bother me, but lying face down, does. Hopeully I can have a pillown under my stomach if I have to have an MRI - I get severe backpain if I lay on my stomach for any period of time - I have for years. I will definitely need valium or something to help as I do get claustrophobic to some degree. When I had a mummogram (for heart function before chemo), I started to panic a bit when the machine started to circle me - the tech assured me that I would not be enclosed - whew - that was a relief. 

    Darn- look at me panicking already when I do not even have one scheduled. I do have a mammo scheduled for May. My med onc is not big on scans (even though my insurance is awesome), so maybe he will not order one. What is the criteria for having one done?  

    Damn BC - I am asking for a saling-ooph. and the thought of surgery is not bothering me that much, but the thought of an MRI is. How silly is that?  Sorry - just got up and my mind is racing. Grandchildren will be here soon - that will get my mind off it for awhile.

  • Reality
    Reality Member Posts: 782
    edited January 2012

    ....ok - just put choc chip cookies in the oven for my grandchildren, lit some candles and turned on music - I am just going to chill-out. For those of you are not familiar with my posts, I usually do not panic - I do rant on occassionally about healthcare profs and 17 year old radiation machines that break down all the time - so, please do not dread me being here. I am often upbeat and funny - promise.....Sher

  • Galsal
    Galsal Member Posts: 1,886
    edited January 2012

    OMG...I'm middle-aged.  Hadn't ever thought in those terms until just now!  waaaaaah

  • Paula66
    Paula66 Member Posts: 1,728
    edited January 2012

    Jo I hope they can get you taken care of.  This dang stuff has got to let up sometime. 

  • madpeacock
    madpeacock Member Posts: 369
    edited January 2012

    Re: the breast MRI - when I had mine they had me lie on what they termed a "car ramp". Your knees are bent and then you drape over the openings for the breasts and rest your head on a padded face mask. No pressure on the low back - a problem for me - and your arms come around and rest on bars near your head. Actually it was pretty comfortable, compared to some of the other fun things we go through!

    I'm 49, and will be the last one of my group of friends to turn 50 this October. Just went to a surprise b-day party on Saturday for the next to last one. There were several recent cancer survivors there in the group (I was the only BC), so talk naturally turned to tests, radiation side effects, blah, blah, blah. Did I feel old talking about health issues all night??? Yike!

  • Reality
    Reality Member Posts: 782
    edited January 2012

    Thanks for the info., madpeacock (Love your name!) Somehow, being on my knees sounds better than lying flat - I think.....at least for my lower back. 

    Sorry the party talked turned medical - I can relate - I was invited to my son's girlfriend's parents for dinner - They are very casual people, so I looked forward to a relaxed get-togeher. All turned-out well in the end, as I kept changing the subject - (actually, I spent as much time as possible playing in the snow with my grandchildren.) I expected people to ask me how I was doing, but I did not know a lot of the people there and barely knew the others - instead of people asking me about treatment, if they had to, in a more private conversation, it was asked as a general topic of conversation - I have spared my adult children many of the details of treatment and was so uncomfortable discussing it in front of strangers and my son. I declined all invitations to Christmas get-togethers and was glad I did. 

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2012

    Welcome, Galsal!  Think of it this way...no one really knows your age, so you could have passed yourself off on the 30-something threads, but your cover would be blown the minute you started talking about chin hair, your upcoming colonoscopy, and how you don't like to drink Red Bull.  

    lwarstler,  We haven'theard from you too often lately.  Hope chemo did not take too much out of you, but IT"S OVER NOW, so happy dance, you did it!

                                                               

  • Reality
    Reality Member Posts: 782
    edited January 2012

    elimar - Thanks for the new photo - It awesome.

    Sher 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2012

    LOVE the new pic too! My body type USED TO BE the second from the right but I LOVE the far right gal!!!

    I was on a ramp for my breast MRI as well. Very comfortable as blood didn't rush to my head. Then the idiot tech guy started dancing around me saying "vascular invasion" and clapping his hands!!! Can you believe that???? Like something out of Monty Python.....idiot!

  • Reality
    Reality Member Posts: 782
    edited January 2012

    barbe - What an idiot - I bet you wanted to slap him!

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