MIDDLE-AGED WOMEN 40-60ish
Comments
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hhmmm.....no answer yet on the mystery pic huh? I'll have to be sure to stop back tomorrow night!
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MP answer:
Eph3_12 came the closest with "snow on a foot path light" snow being the key word

It was a close-up of nature's snowball.
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Barbe - that is tough news but I hope they can get you straightened out quickly!
Man, missed the party and you all wore those guys out...

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Barbe hope you're geelng better.
Starting rads tomorrow. It's crazy all I've done in the past year and I'm more nervous about this than everything else. Go figure. -
Reesie you will do fine. Where are you getting the rads. I thought you had had rads to your thigh? was I wrong about that?
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Thanks Sherry. I did have rads to my tibia and humorous. But that was only ten treatments. That's why I think it's wierd that I'm nervous. I mean I've gone through the steps before.
This will be "normal" rads to my chest area and supraclavicular nodes (just chest on left, nodes too on right). -
Reesie use lots of cream. My RO gave me XClair. It is expensive but my insurance covered it and it is really good stuff. I have not heard anyone that has used it not like it. Only good comments about it.
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elimar:mi totally miaaes "no antlers" duh for me.. they're the hear no see monkeys that interested me!!the evil being bc that we don't (they) don[t aknowledge..!!!even after chrissy was here, they kept asking "where did you meet her, Mom?? another duh for our team!!!!3jays
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Off to the PCP this morning for the start of all the cardio crap. Also have to remember to get a gastro work up as that's what sent me to the ER in the first place!! Have a HORRID cough to go along with it all. Slept sitting up almost to ease the pressure on my chest....can't be good for me!!
I told my DH that I'm very close to feeling sorry for myself!! Enough already!!!!!!
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(((Barbe))) we are all in your Pocket.
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barbe, i'll definitely be in your pocket. let us know what you learn today.
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barbie - will be with today my friend.
Reece - wishing you the best with your treatments, like sherry said put the lotion on after your treatments.
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leaving in a bit to head to get an MRI on my neck. Have been having lot's of neck pain the last 6 weeks, been on meds that have not worked so hopefully they will find out what is causing this. Ready to get it taken care of.
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Good luck sherryc.........
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Barbe & Sherry - I hope I didn't leave too many crumbs in your pockets today. Let us know how things went.... ((hugs))
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sherry, please let us know how the MRI went. i'm thinking about you.
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Heading to the pain specialist tomorrow afternoon. Still dealing with this nerve damage from rads. I am told it is called neuralgia (nerve pain). Treatment is different than fibromyalgia. I can tell you from experience that Lyrica does not work at all for this. I am currently taking amitriptyline and it may just be a matter of increasing the dose. Will let everyone know what happens.
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jo, i wasn't aware that you had nerve damage from rads and i'm so sorry. i hope you get some relief from the pain specialist. i'll be thinking about you tomorrow.
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THinking of everyone who is struggling right now. I had some good news today - my MO called and said my bone density I had on 12/30 was "normal". I'll take it!
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Jo, i've had really good results from my pain management dr., and hope they'll have an answer for you.. he first tried lyrica , also (i'm allergic) and then, neurontin, which didn't work.. let us all know, cause we always are on the lookout, at least I am, for nerve pain....3jays
and madpeacock, im totally happy for the good results.. keep on pluggin, Barbe.. iits loke dominoes, eh.. the 1st one goes, and they all start to tumble!!!(hugs) 3jays
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Jo, see if Cymbalta is an option.....
Adjusted meds at the doc yesterday, got another ECG (centre didn't tell me the result and wouldn't give me a copy)...sigh.... I HATE that! I have copies of all the ones I had done in the ER as the doc said to carry them with me to prove to another hospital what I have in case another ECG doesn't pick it up and I'm in crisis. I hate old women in white jackets that get pleasure denying me what I asked for.....a copy. As friggin' simple as that. Nope.
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3jaysmom - Right now I am on 50mg of amitriptyline. May just have to increase the dose. I was on Lyrica before that and all it did was make my feet and ankles swell so bad I could not get shoes on or walk for that matter.
barbe - Cymbalta is not option for me since I am on Tamoxifen - my MO says definitely no way.so we will see.
Will keep everyone updated.
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3jays I am also on amitriptyline for nerve damage from rads and it works pretty well for me. I know of people who have neuropathy in the feet and hands and take nortriptyline and that works well also.
Had my MRI yesterday was an hour long because they did both my cervical and thoracic spine. I am hoping to get the results today. Will keep you all posted.
Jo hope your Dr. appt goes well today.
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Hello elimar - thanks for the invite. I will read through recent posts and chime-in now and then
Sher
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Hello barbe - as always, lots of hugs from me.
Sher
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I am staying tuned for, at least SOME good news to come in from all the people waiting for scan results. The worst is when they have you go through the diagnostic test and still end up stumped, so I'll hope that 1) B/C is not involved in anyway, and 2) That something does get determined and they can start easing the pain. Back pain is awful.
jo, I think you have tried Effexor, haven't you, but you didn't like it? Neurontin is another for neuropathy BUT chemically it is in the class of Lyrica-typedrugs.
Effexor works for my neuropathy as well as the Cymbalta did. Effexor o.k. with Tamoxifen. Worst side effect is dry mouth. I could buy Biotene mouthwash by the gallon. Effexor is going to be hard to do the withdrawl, I can tell already--but since I still get tingles of my neuropathy now and then, I know that is still there so I will just be addicted to Effexor for life.
All the drug treatments are nasty, some barely better than the conditions they treat. Medicine has a LOT to learn about neuropathy and chronic pain. How long until there are pharmaceuticals WITHOUT side effects? Anybody holding their breath?
Barbe, You really must expand your base of loathing, my dear, to include younger women and men of all ages (like I do) when it comes to denying you your healthcare information. Rules, rules, and more dumb rules.
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Hiya, Anandagram! I think you will find a supportive bunch here. Not to say we are all alike (except age group) so you find a little bit of ALL the Dx's and treatments. Same for opinions, but we try to get along peacefully while we sort all this B/C stuff out.
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eli _ I did try Effexor and did not like it at all. Bad SEs from it. I know Effexor is okay with Tamoxifen but not sure about Cymbalta. If it is a Lyrica type drug, it probably won't work for me since Lyrica did not. Will just wait and see what he says.
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Hi all...everyone's been so busy.
Barbe: I hope you gave that lady an earful. That's rediculous that she wouldn't give you a copy.
Jo: I used Cymbalta for awhile and it did help a lot, but it gave me insomnia and I finally just decided that taking heavy pain meds that knocked me out was more preferable. Good luck at our appointment and I hope they can help.
Sher: This is a fun group with lots of very knowledgable ladies to offer help and support. Glad to see you here.
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jo, It is Neurontin (gabapentin) that has similarities to Lyrica. Cymbalta did get approval to be used for fybromyalgia (and a different one salled Savella did also.) Cymbalta, I thought, worked o.k. with tolerable SE's, but if you go on Drugs.com, it warns away from taking it with Tamox, because they use the same liver enzyme, CYP2D6. Strangely, Effexor uses that enzyme, but does not get the same warning for interaction with Tamox. If you ever hear why that is, let me know.
[p.s. Cymbalta made me sleepy, nappy; therefore I gained some lethargy weight.]
I might be wrong in my thinking, but it seems to be not so much WHAT caused the neuropathy (chemo, fibro, diabetes, etc.) but just that they have to monkey around and find out what works with YOUR brain chemistry. If only I had the right balance of serotonin and norepinephrine and dopamine in my bad brain, I could live pain-free in happy, rainbow world. I just know it!
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Speaking of brains (and going back a few pages about "sensitivities" rather than "allergies" because this bears repeating)... I found out the hard way how some people have a sensitivity to aspartame (Equal, Nutrasweet) which, like MSG, crosses the blood-brain barrier.) Not just producing headaches. Aspartame made me feel like crap and has given me "restless leg syndrome" before. To find out if you have a sensitivity, just watch your diet like a hawk and eliminate it for two weeks. If you feel good, add it back in and see if you feel bad again. You'll know.
I had my first Cheetos (Spicy Jalepeno) of 2012 while typing this. Apparently I can tolerate small amounts of MSG on a good day, but when they say "Dangerously Cheesy" they do mean it, if you have a sensitivity, that is. (I'll probably never get my complimentary case of Cheetos NOW!)
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