xpost---colonoscopy--frequency change?

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wallycat
wallycat Member Posts: 3,227
edited June 2014 in Stage I Breast Cancer

Hi all,

I posted this on the ILC section because that is what I have.

I'm curious if anyone has been told that their colonoscopies should be every 5 years vs. the traditional every 10.

Any comments on colonoscopies is welcome.  I detest the prep ...sigh.

Comments

  • Kathy044
    Kathy044 Member Posts: 433
    edited January 2012

    I'm age 67 and I've never had a screening colonoscopy. In my province in Canada screening colonoscopies are only suggested for those with risk factors for getting colon cancer. I don't have any. Apparently, according to the screening protocol on the government website for this province oncological events such as breast cancer don't count as a change in risk. Perhaps ovarian cancer might, I'll have to recheck.

    Anyway after reading about women on BCO getting colonoscopies because of a BC dx I did a search and couldn't find any evidence of a link between the two cancers, which explains the screening practice here in British Columbia. Routine PSA testing for men to check for prostate cancer is not standard in this province either, men who want one have to pay out of pocket to have one.

    At my last physical my doctor did do a digital examination however.

    Kathy

  • JMW
    JMW Member Posts: 99
    edited January 2012

    Hi, I also am from Canada and just had a colonoscopy a couple of weeks after I finished my radiation. The colonosopy had nothing to do with my bc tho. My family dr. recommended I go for one every 5 yrs. because my father had colon cancer which I guess puts you in a higher risk category. Hope this helps.

  • Halah
    Halah Member Posts: 352
    edited January 2012

    I had a colonoscopy after my dx at age 50 and was told I wouldn't need another one until I was 60. I think you would need more frequent coloscopies if you were positive for any gene mutations. At least that is what my ONC told me when I had the genetic testing. Not sure if is needed more frequently if you are at a later stage or not.

    I agree, the prep is horrible!!! Here's hoping there is no need for more!! 

  • MissTW
    MissTW Member Posts: 98
    edited January 2012

    Hi Wallycat,

    I am a stage 1, ILC survivor and a stage 3 colon cancer survivor at age 44.

    When I was diagnosed with colon cancer my surgeon and oncologist told me to have a mammogram immediately because he said there may be a correlation between the two.

    Since I was so overwhelmed with my cc diagnosis I didn't follow his advice until September 2010, that is when I was diagnosed with ILC Breast cancer.

    A colonoscopy is so important and can save your life when caught early. Yes, the worst part is the prep but it is easy after that. Good luck with your decision! 

  • YramAL
    YramAL Member Posts: 1,651
    edited January 2012

    I had my first colonoscopy when I turned 50. A non-cancerous polyp was found and removed. Because of that polyp and my history of breast cancer, I have to go back for the next one 2 years after the first one. If I had not had a polyp, it would have been 5 years because of my breast cancer history.

    Mary 

  • catbill
    catbill Member Posts: 326
    edited January 2012

    I do know that when one is BRCA+,cancer and colon cancer have a link.  I don't know about if you're not BRCA+.

  • Racy
    Racy Member Posts: 2,651
    edited January 2012

    I had a colonoscopy at 48, before BC. A benign polyp was removed and I was advised to have another one in three years due to the polyp.

  • slousha
    slousha Member Posts: 312
    edited January 2012

    HI,

    Some months after my colon cancer surgery in March, 2009 I found a thickening of tissue in my left breast, first I hesitated to let check it, after six months I was dxed with BC - both tumors were adenocarcinomas. At my control colonoscopy in 2011 was said next in four years.

    Best wishes

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited January 2012

    I had my first colonoscopy almost four years ago. Because I had two pre-cancers I was told to get another one in five years. I probably should call the doctor to see if she wants me to have one this year - she doesn't know about my breast cancer last year.

  • KorynH
    KorynH Member Posts: 301
    edited January 2012

    I had ILC also. persistent upper right quandrant pain for 20 months led to last years' colonoscopy which revealed nothing. I was told 10 years from that point on. End of story. Hope this helps!

  • OnePetie
    OnePetie Member Posts: 68
    edited January 2012

    Was told by both my PCP and Oncologist that I should now have them every 5 years.

  • wallycat
    wallycat Member Posts: 3,227
    edited January 2012

    Thank you all for your feedback.

    JO-5, I had a colonoscopy at time of Dx since it was the year I turned 50.  My then gastro guy said every 5 years for BC patients.  Because I had ILC, I thought it was unique to my type of cancer.  I am BRCA negative.  My results were, in his words "You have the colon of a 20 year old"...to which I replied, "can you turn me inside out ? "  SurprisedTongue out

  • coraleliz
    coraleliz Member Posts: 1,523
    edited January 2012
    I'm on the 10year plan. Family history of colon CA, not breast CA. 1st colonoscopy at age 32, benign polyp removed. My last colonoscopy was 3 years ago, so I will probably revisit this issue in a couple of years. Thanks for the heads up. I might be the only one, but I'd rather have a colonoscopy than a breast biopsy. (good thing I had a BMXWink)
  • buffy
    buffy Member Posts: 73
    edited January 2012

    I am 51 yrs old and had my first colonoscopy 3 weeks ago.  I had breast cancer 4 1/2 years ago.  I did have a polyp but since it was "nothing" as the GI Doc stated when he got the pathology report, I do not have to have another one for 10 years.  If the polyp was an adenoma (precancerous) then it would be three years.  I then brought up the fact that I had breast cancer and he said that if I wasn't comfortable with the 10 years, since you do have a higher risk of colon cancer if you had breast cancer, I might want to have one at five.  I told him that I would discuss it with my oncologist. Therefore, I do think the type of polyp has a lot to do with the timing of your next colonoscopy.  I was told by my oncologist in one of my first visits with him that if you had breast cancer you had a higher risk for colon, but he never even told me to get a colonoscopy...go figure!  It is evident that there are so many different scenarios.  

  • wallycat
    wallycat Member Posts: 3,227
    edited January 2012

    My original Gastro guy is in wisconsin and I am now in Washington state....

    I emailed my onco here and she said every 5 years.  I guess better safe than sorry....sigh.

    I hope they have better prep out here.

  • Megadotz
    Megadotz Member Posts: 302
    edited January 2012

    I was put on a five year schedule because I diverticulosis (not -itis). I think the screening frequency depends on what your risk factor is.



    I don't know anyone who "likes" them. I'm out like a light when I get twilight sedation so I miss the exam part, now if I could do the same for the prep.....

  • cbm
    cbm Member Posts: 475
    edited January 2012

    I get a colonoscopy every year.  At age 39, I had a symptomatic polyp and my first colonoscopy.  I did not even know I had to get on a regular schedule because the benign polyp was the kind that will become cancer if not removed. My sister had endometrial cancer and my brother lost a kidney to cancer; Lynch syndrome was confirmed in her case.  

    Every year they remove a few polyps, some the normal kind and some the bad but benign-so-far kind.

    I was told by a surgical oncologist at Moffitt when I was first diagnosed with breast cancer that it would be hard not to hypothesize a relationship between my cancer and my siblings' cancers, and theirs have distinct connections to increased colon cancer risk.

    Sigh.  Whatever.  At least the prep is easier than it used to be. 

    Warmly,

    Cathy 

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