Neuroendocrine features

kris529 · July 2011

Hello. I am newly diagnosed with Stage 2, Grade 3. I had a lumpectomy on June 16 and plan to start chemo next week. The path report described the tumor as poorly differentiated with "neuroendocrine features." All the doctors that I have met with (both breast surgeon and oncologists) are concerned about the neuroendocrine features aspect. I am curious to hear from anyone else who had this type of tumor and what, if anything, they have learned about it. Thanks so much!

Kssb · December 2011

I was dx 2/2007 with large cell neuroendocrine carcinoma of the breast. I have been researching for almost 5 years but it took me over a year to fully understand the pathology report. My tumor(s) were poorly differentiated, high grade 8/9. P53 was 97% and ki-67 was 44% (both considered unfavorable indicators. ER/PR+ (favorable). I had initial surgery, then reexcision for wider margins. Chemotherapy was TAC every 3 weeks for 6 treatments. Then 4-week accelerated course of radiation. Currently on Tamoxifen then will switch to Arimidex. It will be 10 years of these lil pills if I can stick with Arimidex. Had horrible side effects when I switched to it in 2008. It was so badly tolerated I went back to Tamoxifen. I was dx while living in San Diego, then had reexcision, chemotherapy, radiation treatment at Fox Chase cancer center when we moved back east 2weeks after dx. Now back on the west coast and being followed at Cedars-Sinai by neuroendocrine specialist and local onc at UCSD. 5 yr scans are just 1 month away.

momof3boys · January 2012

There is a specialist in New Orleans (NOLA) that specializes in NET neuroendocrine tumors. His name is Dr Eugene Woltering. His email is: ewolt@lsuhsc.edu

If you email him, I promise he will email you back. He's very kind and generous with his time. His mother was a NET patient

momof3boys · January 2012

I'm sorry, it is: ewolte@lsuhsc.edu

Neuroendocrine features

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