Q's about prophylactic breast surgery

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beepbeep
beepbeep Member Posts: 84

I was wondering if anyone could answer these questions about PBM's.

1. How long would it roughly take in the operating room to do PBM and reconstruction at the same time?

2. In your experience, did insurance cover this procedure?

3. How far does the scarring extend? Will the scars be visible when you wear certain types of clothing? Say a tank top, for example?

4. Are there ways to screen the small amounts of remaining tissue?

thank you~

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2012

    Hi beepbeep,

    You're sure to get a ton of good insight from the ladies here shortly. In the meantime, you may find it helpful to check out the main Breastcancer.org site and the Prophylactic Mastectomy page.

    Hope this helps!

    --The Mods

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited January 2012

    I had a modified mastectomy on the bc & prophylactic on the non-bc side.  I'm sure your insurance will pay if you doctor gets surgery pre-certified.  It may depend on how they code it, but most offices are used to doing those sorts of things.  I would definitely talk to your doctor about it. It was my choice to have the non-bc side removed.

    Depending on the type of reconstruction you have, I doubt that your scars will  show.  I had delayed reconstruction a bilateral diep. My ps surgeon didn't have anything to work with & I had a lot of rads damage on the bc side.  She did an amazing job have some fairly low cut tops and the scars do not show at all. 

    As to the how long you will be in surgery would depend on the type of reconstruction.  I had 2 doctor and it took about 8 hours for the bi-lateral DIEP because it is a micro surgery.  NJ 

  • besa
    besa Member Posts: 1,088
    edited January 2012

    The O.R. time depends on the type of reconstruction you want and the number of skilled surgeons working on you.  For tissue transfer (DIEP/GAP/hip flap)  some facilities have two very skilled plastic surgeons working on you at the same time and this greatly cuts the time in surgery.  I had a bc diagnosis and DIEP reconstruction, then decided 4 years later to do prophylactic GAP on the other side.  Insurance covered the surgeries.  My insurance would have also covered bilateral propylactic surgeries without a bc diagnosis if I had a significant family history, if I was BRCA positive, or if I had other significan risk factors that could lead to a bc diagnosis.  The scars are completely hidden even if I wore a bikini (which I am not going to wear).  Get a copy of the latest edition Kathy Steligo's "Breast Reconstruction Guidebook."  It is the best I have seen on the topic and will give you the kind of information you are seeking (and more).

  • thatsvanity
    thatsvanity Member Posts: 391
    edited January 2012

    Hi in my experience:

    1. I was in the operating room about six hours.

    2. Kaiser did not cover the type of reconstruction I had, but they did cover a mastectomy and other types of reconstruction.

    3. I have scars that do not show with a tank top.

    4. The tissue removed in my mastectomy was sent to a lab for cancer screening.

    I hope that helps, but like the mods said there is a lot of information on breastcancer.org, and mayoclinic.com. I hope that helps,

    Amy Lynn

  • LISAMG
    LISAMG Member Posts: 639
    edited January 2012

    1. How long would it roughly take in the operating room to do PBM and reconstruction at the same time? All depends on the type of reconstruction, flap procedures are very long. I had NSM with expanders and my surgery lasted 4.5 hours total.

    2. In your experience, did insurance cover this procedure? Yes, my risk reducing surgery was fully covered, based on family hx. alone, using evidence based criteria.

    3. How far does the scarring extend? My scars are hidden, LIMF, or inframmary fold. Will the scars be visible when you wear certain types of clothing? What scars?? U cannot see them with or without clothing.  Say a tank top, for example? Never.

    4. Are there ways to screen the small amounts of remaining tissue? Clinical breast exams 2x year along with monthly self exams are the recommendations i was given with implants. If anything were to develop, an abnormality would most likely be easily palpable since implants are placed under the muscle. I will not pursue any further screening/imaging unless waranted. Why go thru surgery to be faced with continued worries/fears by unfounded screening methods?

  • vmudrow
    vmudrow Member Posts: 846
    edited January 2012

    My answers are the exactly the same as LISAMG! Make sure you ask if they will do nipple sparing!

  • klynnz
    klynnz Member Posts: 60
    edited January 2012

    My answers are the same as lisamg but I have scars visible only when naked or in a bikini. The drains caused 2 small scars under each armpit. My nipple sparing mastectomy scars go from armpit to nipple. I'm fine with all my scars.

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