Charleston Bound, part 2

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  • AnneW
    AnneW Member Posts: 4,050
    edited December 2011

    Best of luck, Bren!!!!! Post when you're done, okay?

    Watch that IV sedation...you'll tell Marga stuff that you won't remember, but SHE will!!!

  • jacee
    jacee Member Posts: 1,384
    edited December 2011

    Brenda.....what a way to bring in the New Year. Being finally "whole" again and no more surgeries!!! Thinking of you this morning, hoping all goes well.

    Gosh, Anne...hearing you say that really makes me wonder how much we talk after we think we are out!!!

  • jessicav
    jessicav Member Posts: 161
    edited December 2011

    Jerusha:

    So very happy and inspired to hear your pain went away! And that it was better instantly after surgery. I can't remember what it was like not to have it so it would be amazing to feel good again.

    Much thanks (: 

  • Adey
    Adey Member Posts: 3,610
    edited December 2011

    Good luck today B!

  • Del11
    Del11 Member Posts: 944
    edited December 2011

    Home now. Feel pretty good since no general anesthesia. She really sculpted the heck out of this nipple. Skin flap from the breast, skin flap from the hip, and I think from someplace else too. She was trying to beef it up so it stays big like the other one, which has areola skin in it. Fingers crossed!

  • AnneW
    AnneW Member Posts: 4,050
    edited December 2011

    Fingers crossed, indeed. I'm hoping MINE shrink down to a nubbin!!!

  • christine47
    christine47 Member Posts: 1,454
    edited December 2011

    I hope you all don't mind me posting my questions on your thread, but I believe you all are the experts on Charleston reconstruction.

    So here are my questions, and thanks in advance for any and all answers:

    I understand there are several choices of docs in Charleston, did most of you go with Dr. Massey?  How about Dr. Kline/Craige??  Does Dr. M.  use assistants?

    For those who have gone from implants to DIEP, etc, do you still have the football like scars, or can they replace implants with tissue and use same scars? 

    I am ok with my implants, they look fine and just had nips and tats, but I have a strong feeling I am not going to be happy in the future.  I was so frustrated exercising today with my implants distorting under my pec muscles.  I had the opportunity for DIEP with my PS, but he told me 12 hrs of surgery, possible conversion to TRAM and a B cup at best, so I went the implant route, which I am glad I did not take that direction with him.  I had thought about a tummy tuck with him this spring (with some fat grafting to breasts and axillary area), but now wonder if I would be burning bridges doing this.  Your thoughts?

  • jacee
    jacee Member Posts: 1,384
    edited December 2011
    lol Anne...nubbin-something small and undevelopedLaughing
  • cider8
    cider8 Member Posts: 832
    edited December 2011

    Anne, I'm hoping mine shrink down to a nubbin, too!  Mine was skin graft from scar, not the origami flap I hear more about.  Time will tell!

  • jessicav
    jessicav Member Posts: 161
    edited December 2011

    Christine- I don't know answers to alot of your questions but you will find them here. I do know that there is a big difference between Tram and Diep. Tram takes core muscle and you mentioned exercising. Also, a possible conversion from Diep to Tram during surgery?? See what the other ladies say on that  You want someone who has the skill to give you exactly what you want.

    It should not be they will go for a Diep but you agree to Tram if they can't do it. These are big surgeries so it is good to do research.

  • jacee
    jacee Member Posts: 1,384
    edited December 2011

    Christine- Probably most of the women posting on this thread have used Dr. Massey. But there are several who have used Dr.Kline/Craigie. Dr. Massey used Dr. Craigie to assist on my Stage 1 DIEP. However, I believe Dr.Kline/Craigie no longer accept some of the insurances that Dr. M does. She now does most of her Stage 1 surgeries in NOLA (see NOLA in Sept thread under Breast Reconstruction). She is assisted there with Dr. Sullivan and Dr. Dellacroce. She travels back & forth from Charleston to Nola to Chicago to Salt Lake City. I believe she will still do Stage 2's at all places. We all love her as you can tell!!

    Yes, there are many Dr's who say they will do DIEP, but want the option to go with TRAM if they feel necessary. Do your research....you will want a Dr who has done thousands of these surgeries. Dr. M and the others in NOLA  are very skilled at minimizing scarring and using existing scars. And they won't stop until they are satisfied and you are too!!  I didn't have implants, but I'm sure some of the others who had them will come along and answer soon.

  • AnneW
    AnneW Member Posts: 4,050
    edited December 2011

    Don't do that tummy tuck till you're certain you won't have  DIEP. You could still have SGAP or hip flaps, but that might not be your best option.

    I had implants first. The skin paddle on one breast was removed on a subsequent surgery. The other breast had radiation, and the skin just didn't stretch enough. But with the nipple (and when I get the aereola tattoo) it's hard to tell. That said, the docs are getting better and better about having a tiny skin island, as long as your own skin is healthy.

    I hated how the implants jumped when I worked out!! I had mine removed due to scar build up and nerve pain. I wish I'd gone the SGAP route first, but we can't rewind. It's been a learning experience, for sure.

    By the way, Drs. Craigie and Kline are fabulous surgeons.

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited December 2011

    Christine47-  I didn't have implants, so I can't help you with those questions.  I just know that you need to spend time talking about all of your concerns in detail with your plastic surgeon.  Many of us that post are patients (works of art, really) of Drs. Kline and Craigie.  They only perform surgery in Charleston, which was reassuring for me that they would be here if I needed them.  Someone mentioned insurance- when I had my procdure, I was out of network, but their office took care of everything and got me covered.  That was a huge relief.  I believe they take most insurances, but it's good to know they can help if needed.  Oh, and I agree-- don't get a tummy tuck until you've decided what to do with the reconstruction!

  • christine47
    christine47 Member Posts: 1,454
    edited December 2011

    Thanks for all you your thoughtful responses!  I am about 5 hrs from Charleston, SC.  I do like the idea of using a surgeon who has a "permanent office", as I am alittle neurotic at times.  My current PS is at large acedemic center, but has spent alot of time with me.  I like him and look very good, but just not sure in the long run I will be happy.  I exercised yesterday for about 1 hr with my trainer and today I have a slight burning sensation in the pec area.  I just don't think he does free flaps often enough or fast enough, he is very young.  I do not have much abdominal fat (I carry more weight in hips/butt), but some loose skin ( thanks to my dear babies).  I never thought about traveling for surgery when I received my diagnosis, I was in a hurry to get the cancer out, have chemo, and get better.  I have great insurance and out of network benifits are excellent, so probably no issues there.  I may just wait until the weather is nice this spring and make a road trip for a consultation, combined with some great food and shopping.  Guess I will hold out on my tummy tuck incase I need that tissue later.  (my PS was amused at my thinking about tummy tuck as he and his department do many total body reconstructions for post bariatic surgery patients,and said he could do a "mini tuck").  I feel sure I have enough "junk in my trunck" for a couple of c cup boobs.

  • LindaG47
    LindaG47 Member Posts: 400
    edited December 2011

    Brenda,  I'm a little late at wishing you luck, but I do hope everything went well.  Please let us all know how you are doing and wishing you continued good health.  You do look great!

    Wishing EVERYONE a healthy, pain-free, prosperous and happy new year.   

    Linda 

  • Adey
    Adey Member Posts: 3,610
    edited January 2012

    Saw Marga yesterday.  Butt boobs doing great.  Still have hip drains.  Can't wait for march!

    A Very Happy New Year to All!

  • AnneW
    AnneW Member Posts: 4,050
    edited January 2012

    Glad you're doing well, Adey!!!

  • jacee
    jacee Member Posts: 1,384
    edited January 2012

    Adey, that's wonderful to hear !! Happy New Rear, (I mean Year)Wink

  • jessicav
    jessicav Member Posts: 161
    edited January 2012

    Hi ladies-

    I am de-constructing in Charleston with the plan to do an sgap or FG sometime afterwards. Right now, im ust get pain-free. Here's the question. How do I get a "helper" doctor close to home. I will need a PS at home possibly to remove drains and follow up but how do you couch that? You don't want to say well, I only trusted someone "else" out of town to do the actual surgery. How does that work? What's the diplomatic way to handle this? Especially important as you want the best follow up care you can get at home. 

  • Jerusha
    Jerusha Member Posts: 406
    edited January 2012

    Jessicav, I went to a local general surgeon for my follow-up stuff. He does not do flap reconstructions, or any reconstruction, for that matter -- so there were no turf issues. It would have been very uncomfortable to go to any local PS's. I asked ahead of time, and he was very gracious. I had no problems, but knew that I did not want to be pulling my own drains or snipping my own sutures. I saw him once after Stage 1 and once after Stage 2.

  • jacee
    jacee Member Posts: 1,384
    edited January 2012

    Same here...just went to my surgeon who did my initial mx. She was very willing, and actually talked with Dr. Massey from time to time.  She pulled drains, drained a seroma, removed stitches, treated infection. No problems.

  • LizR
    LizR Member Posts: 330
    edited January 2012

    Jessicav:  I just went to my local primary care doctor (my breast surgeon was too busy to see me) - and that went just fine.  Good to have someone who can see you quickly in case you develop a fever or are ready to get your drains pulled.   When is your surgery?  I have another Stage 2 with Dr. Massey on Tuesday, 1/31 and just booked my flights (will be coming in on the 28th and leaving on the 2nd).  I'll be at Roper - I can drop in and see you if you will be there during that time!   I had my SGAP in 2010 and still getting little tweaks.

     Brenda:  Congrats on finally being done!   You have been down a long road and it must feel so great to be at the end!  That is so interesting about your new nipple - really sounds like you got the works!   My nipple from a year ago is quite flat - will be interesting to see if there is anything that Dr. M can do to "prop" it up.

    I am traveling to Charleston alone this time around - actually meeting up with my best friend from college and another friend from these threads for a girls weekend before the surgery.  My 18 year old son has graciously agreed to fly down at the end of the trip to accompany me home (his first time flying alone - hope he doesn't get lost!).  He just found out he got into the College of Charleston - though not his top choice, he did fall in love with Charleston last spring and is looking forward to the ribs and corn bread he had last time!  (I would not be surprised if College of Charleston climbs back to the top of the list after this trip - who wouldn't love to go to college in Charleston???).

    Hope everyone is well, recovered from the holidays and enjoying the New Year!  Liz

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited January 2012

    Hi Ladies! I know that this is a stage 2 thread but was curious if you could answer or point me in the right direction. I am having DIEP done with Dr. Craigie and Kline on 1/18. I have already had a BMX and was just curious the length of most of your surgeries that were similiar to mine (masectomy completed). Any tips on lodgeing? I'm from SC but 3.5hrs from Mt. Pleasant. I applied for the Hope Lodge but was told I will not know if I am approved to stay in Jan 11th, at the earliest : (

  • jacee
    jacee Member Posts: 1,384
    edited January 2012

    Kasey- welcome!! This thread is for anyone doing any stage at Charleston. I had my DIEP with Dr. Massey with Dr. Craigie assisting. I had previously had a mx on my cancer side, then had a Genereal Surgeon do a prophylactic mx in Charleston during my DIEP. So I don't know how long he worked on me before Dr. Massey & Craigie took over. And I had 4 flaps removed, but only 2 were used. My surgery was 11 hrs. I think most are closer to 6-8 hrs.

    We really like the Holiday Inn & Suites on the Mt Pleasant side of the bridge, and have stayed there twice. But for my Stage 1 DIEP, we stayed at the Hilton Homewood Suites in Mt. Pleasant. They gave us a $70 medical rate,had a living area, kitchen and it includes breakfast & and evening meal on Mon-Thurs nights. We were there 9 nights.

    The Hope Lodge is very close to Roper Hospital where I was, but I'm assuming you will be at East Cooper??. Best wishes as you make plans....such an exciting time. You will be so pleased. 

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited January 2012

    Thanks Jacee! I just called the Hilton homewood suites in MtP and was quoted $119 for a medical rate : ( That's more than I'd like to spend...Hopefully, I'll be accepted at the Hope Lodge. I was told since my surgery is on a wednesday that I'd be released from the hospital on Sunday and need to stay in town 2-3 days past hospital release. I will be at East Cooper. For the DIEP, do most people recommend tons of pillows to sleep upright or is there something better?

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited January 2012

    Kaseymomto2-  There are quite a few hotels in Charleston.  Have you asked Dr. Craigie's office for a listing?  I think the hospital has one, as well.  I would certainly try to negotiate them down!  And yes-- pillows pillows pillows!  I have heard people mention full body pillows as being very helpful.  I think I slept with about 10 pillows.  It would be ideal if your hotel had a recliner. I suggest you also request a handicap room because they usually how showers that are larger and seats.  You'll be pretty tired for a few days.   I live in Mt. Pleasant and had my procedures with Drs. Klina and Craigie more than a year ago.  If you need any help while you're here, just let me know.  Oh, and Mount Pleasant has a lot of fabulous restaurants!

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited January 2012

    Thanks Better-Body! I am heading out this morning to relax the back and see what products or wedges they have for sleeping. If they are crazy expensive then maybe I can find one of those husband pillows. I am a side sleeper so this is gonna be hard. Tell me the local, to go, great restaurants? Also, how long was your surgery?

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited January 2012

    Kaseymom-- sent you a PM. 

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited January 2012

    Kaseymom-- sent you a PM

  • AnneW
    AnneW Member Posts: 4,050
    edited January 2012

    Check it out, sisters! I'm the featured Mermaid this month!

    http://drmarga.com/our-mermaids/2012/01/anne.html

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