December 2011 Rad
Comments
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Oh, I am not a happy camper. 24 rad done, onto the boosts starting tommorrow!
This must have killed my immune system - I have a nasty head cold and now a bladder/kidney infection. Oh, joy.
My breast is bright red. There are burn marks around my collarbone and shoulder bone in the back. I just hope that the boosts are not as harsh to the body.
I have gobs everywhere and now more drugs.
6 more to go.
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#5 done. Woo Hoo. I like talking to the other ladies whie waiting in the "women's" waiting room, but many of them are more than half way done as well. We talk about how whimpy men are, and there's only a wall between us. LOL. Ladies, you're almost done! Hang in there. I have the nasty cough from the nasty cold I had. Today, I had heart palpitations all day long and was having MANY PVCs. Had to go to the family doc and have an EKG done, and hoping I'm not ER bound... I will go to sleep and it will be gone tomorrow.
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23 done, 2 more before boosts to scar. I am raw and peeling, it hurts. So tonight I'll be taking pain meds and hoping it knocks me out.
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ellen, i agree with you that chemo was way easier. it sounds weird to say that, but this burn and then returning every day to re-burn the burn is driving me nuts. i find myself gritting my teeth constantly just thinking about it. i have 7 more full-breast and then 5 boots, so at least you and i are nearing the end. it sucks, though. i hope you get some releif soon. one day at a time.
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LOL...my DH just told me he is having sympathy chest itching and pain!!!
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Ellen, I am sorry you are having such a hard time. Hopefully they can get the skin to settle down soon and you can continue to receive the tx.
And I gotta say, to me the rads are nothing compared to chemo. But then, I had sort of a rough time with C, and am still suffering se's from the Taxotere, plus had horrible fatigue after my final chemo, so my 'yardstick' may be different. Plus, my skin is holding up so so and that is a huge relief.
Good luck to all, I'm figuring most of us are now near the end!
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Good Morning Ladies
I am on #14 today, certainly not the walk in the park they said it would be is it?? Oh well one step one day as we have been doing throughout this journey. Hang in there my fellow sistas
Hugs
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#18 for me today. Yesterday RO and I decided that I should get the boosts. I was borderline on whatever criteria they use. But I told him, I don't ever, ever want to have to come back here when I'm done. So we decided on 5 boosts.
My finish date was Fri 13th. Now it is the 20th.
Skin starting to itch and getting a rectangle of red on back shoulder blade area. Asked and they said that is the backside of the field. -
They actually dose my back from underneath, so I have lots of small, red sores there too.
Day #20 today, and my RO informed me I will be getting the "boost" of 5 more after the initial 28 are done, since I am handling the rads well so far. Had my first real bit of pain today (though not much) from the rubbing of my bra. I take the bra off the moment I come home! My skin is red, but certainly not blistered, and the sores on my back are more like little zit scabs than "blisters." They don't really hurt at all.
I don't want to use the chemically "Aquaphor" they gave me, so I have been using cocoa butter. It works only so-so, so I ordered a tiny bit of pricey emu oil that will arrive on Friday. I'll let you know if it's worth it.
The one side effect I one feeling is immense, overwhelming fatigue. Plus, like other ladies here, I have a horrible head cold/sinus infection that could be the cause of the fatigue or the result of the rads, or both!
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#6 for me. Hope you all had some relief today...
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ellenquilt
Sorry the rads have left you so burnt. My heart feels your pain. I am starting rads next week. I'm ready to accept whatever happens.
Excuse my ignorance but what is a BOOST? It sounds stronger than the regular rads. Forgot to ask my RO.
THANX.........................Maureen
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#24 for me today, but not before seeing the RO who made some changes because my skin is not doing well at all. I now possess Cuticerin gauze, wound pads, UltraKlenz wound cleanser and six tubes of Aquaphor. For today and tomorrow's treatment, I am getting regular radiation instead of electron beam because my skin can't take any more of the concentrated shallow rads. He told me it will probably get worse because of the delayed reaction. I must say the Cuticerin gave me some instant relief. And I'll be taking pain meds at night.
It's a toss-up as to which is worse, radiation or chemo.
But it's almost over.
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Trying to catch up with everyone following a small vaca. I had #9 today and am just starting to get pink. Will meet my new RO tomorrow.
((((((Michelle)))))) So sorry you're having a tough time, friend!
BIG HUGS to everyone else too! I'm just so tired (not having anything to do with treatment) I can barely see straight.....
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I had tx #14 today. I'll be halfway through tomorrow! So far, my skin is doing great. It's a little pink but isn't dry or itchy. I've been washing with Dove unscented soap and haven't used any creams or lotions.
I'm not quite as exhausted as I was before Christmas. I think having two long weekends helped.
Does anyone else here suffer from insomnia? I haven't had a good night's sleep in months. I took Melatonin last night but it didn't do anything for me. Anyone else have any other (preferably non-pharmaceutical) suggestions? -
Michelleo - My best sleep comes on the nights when I take Restoril (prescription). I hadn't slept through the night since menopause about 15 years ago! I started using Restoril back in June 2010, not every night, but it sure does help.
Have you tried Benadryl? That works for some people...not me. Melatonin doesn't work for me, either.
Thanks so much, Kat! I'll get through this! I hope you had a fun vacation!
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michelle, i'm so sorry your skin is not doing well. do you have 6 more treatments? i certainly hope the meds and the special gauze help you heal quickly. at least with chemo, we got 3 weeks to get better. with rads, it's just constant and it gets a little worse each time. i'm not a fan! please keep us posted on how you're doing.
michele, i use benedryl for sleep and it works well for me. maybe try two instead of one? i don't know. i can't believe you're not even using lotion or creams and you've passed 14 tx's. you're very blessed indeed!
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YaYa - I have just one full treatment left, then 5 boosts that will not involve the really badly burned area. Yeah, this is not a walk in the park. When I am done you'll hear me celebrating all the way to the Heartland!!!
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michelle, only one more is good news! i'm actually looking forward to the boosts because they won't be on the really bad place on my chest. it's obviously not as bad as yours, though. thinking about your chest being worse than mine makes me really sad for you.
i'll be listening for your celebrating!!
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today is my first boost!!! 5 more and I am outta there! Michelle, so sorry to hear about the skin issues, and glad that it is boost city for you too.
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Michelleo13: Sleep has been my big problem, too. I just read some research saying insomnia affects 80% of Bc patients during treatment and 60% of us long term. My medical oncologist says it has to do with the estrogen levels going wonky on us, and LuvRVing's comment about it starting at menopause corresponds with that. Estrogen must be a good sleep drug, if lacking it has us lying awake so much.
Are you taking anything for it now? Whatever you do, don't take Ativan, Valium, or Xanax for it, since the benzodiazapenes are a bear for addiction and stop working very quickly unless you increase the dose all the time. (*Holds hand up miserably as an example of this*) I am in the painful process of de-addicting myself from Ativan to eliminte it entirely, but not a moment too soon, because it can lead to long-term brain problems. All stuff I learned too late.
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Hello Ladies,
I start rad treatments next week. So very sorry for all the burns you are enduring, but its almost over. I feel ignorant but, what is a boost? It sounds worse than the actual rad treatment.
THANX.......................... Maureen
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Hi, Maureen: In my case, which I think is typical, the boost is five extra days at the end of treatment where they focus a tight beam just on the mastectomy scar. That's apparently a really likely place for recurrence, so they want to give it a few extra zaps.
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windlass,
Thank you for the info. Makes sense to me.
I was wondering why there are no tatoos anywhere near my scar. Are they aiming at it at a different angle? Why is it the questions come up after the appointments. It must be me. I'm going to call the RO and ask. BUT he must know what he is doing??????????????
THANX...............................Maureen
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Chef127 - my tattoos are used to line me up properly to the machine. I have one on each side of my chest a bit under each armpit, and a couple others that are used for alignment. Yours might be different depending on where you are being radiated. And everyone's angles are different - I have 11 different angles and thus 11 zaps of varying length from 2 seconds to 30 seconds. Because of my anatomy, the angles are very narrow as the RO is doing everything possible to avoid heart, lung and thyroid damage. He is also minimizing the amount of radiation absorbed by my ribcage.
There is a reason why many of these doctors are also PhD's in Physics or have Medical Physicists with PhDs on staff.
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Thanks for the sleep tips ladies! I haven't tried Benadryl. It made me sleepy during the Taxol infusions so maybe I'll give it a try. WIndlass, my Dad took Ativan for years and that's one of the reasons I don't want to start taking anything like that. I don't need to get addicted to that!
Congrats to the ladies nearing the end of treatment. I had #15 today so I'm halfway there!! YEAH!!!
Michelle, you're right. This radiation is complex stuff! They have been making adjustments for me all week...and they're talking in millimeters. That's crazy!
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I have # 11 today skin holding up only using aloe vera Gel put it on @ least 3 x a day for some reason im not having boosts Ill have to ask Why. should be half way tommorow having 25 rads in total Sorry for you ladies getting burned and sore hope you feel better real soon.
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#15 today!!!!! 10 more to go. Skin is holding up ok feeling a little tight and crispy. Hugs sistas
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#25 tomorrow!!! Boosts next week. Am so excited!
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Hi Ladies, do any of you have the clear stickers over your rad tats? If so, how is that working in regard to your breast getting red, burned, etc. What about lotion reaching that area if you have a clear sticker? Thanks in advance.
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Michelle013, I have also had success with "Sleepytime" tea or something similar. Good luck getting those Zzzzs!
No treatment today as I was struck with one of the worst migraines in recent memory (it's done now though, thank goodness for Maxalt MLT). Between the holidays and the delay today, it feels like this process is taking forever. Next week starts five days a week so it should start moving along more quickly soon. #10 is tomorrow and so far, very few SEs. (I have been told no creams or lotions unless RO gives 'em to me. So I use Dove and Tom's deodorant and leave it at that.)
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