Has anyone started a Dec 2011 group?

Woke up very nauseated and with a sore throat. My toungue hurts again, This is day 11 post tx 2?? Every day is something new.

Next tx is Thursday, the 29th. Some Happy New Year, huh?  LOL

Christmas very very nice. Had a good time with all. Just feel like crap today so I will work from home.

 Have a great day ladies!

Seacret:

Just read through from my last post to catch up. My DD has also volunteered to buzz her head when I do. I refuse to let her, she has such beautiful hair, but the sentiment is so touching.

No bruising from my port site yet but I have only had 1 tx (next one Jan 4th) 

Yesterday was spent mostly laying around. I had horrible bone aches and burning sensation. We did all of our Christmas celebration on Christmas Eve. My children did stop in just to see me but didn't stay long. I know it hurts them to see me like this. My DH made a simple meal for just us and I was happy with that.

Feeling a bit more normal today. I hope everyone is doing well and able to find some joy in the day.  

I've also had some port site bruising. At my last tx (#2), it felt like my vein got kinked or something. I could feel it protruding a bit. They are going to do the next infusion of "A" a bit more slowly and hopefully that will make a difference. All back to normal now. Next tx is Thursday. So Gator, you and I will be having a lousy New Years Eve together. I have not had any mouth issues except that my gums feel strange. Kind of like they are shriveling up.



Secret - good luck with the hair buzz.

Hi everyone. The holidays are certainly different this year. I did have an interesting time at my boyfriend's aunt's home. His other aunt has just started radiation after going through chemo, so the two of us got to bond a bit. She's one tough lady - her daughter told me I'd better be better than her mom at looking out for myself and paying attention to how I felt, rather than always trying to tough it out. I felt bad for the woman who was sitting between us. She was interested in our conversation until it got to the comments about losing finger nails.... Mine thankfully are still intact, and my two cracked fingertips seem to be getting a little better. I just keep slathering on the Neutrogena.

My scalp is getting, well, noticeable. I assume I have about 2-3 days left, max. I was hoping to make it to New Years... And my period is now in day 9, after starting a week early.

Whatashocker - I love that idea! I might do something like it. I'm thinking a big black (pink???) "X" through each letter.

Haven't posted in a while....I've felt guilty that I've been feeling good.  But this past Thursday the hair started falling out and I've been a mess since then.  Thank God for my DH, he gets the brunt of all of my tears.  I stopped after work Friday and got a very short cut.  I'm getting used to it which sucks because I don't think it will last long. The hair is falling out at an alarming rate, and the scalp is sore and itchy.  But I just can't bring myself to shave it yet.

I have my next treatment on Thursday so I will be having a Crappy New Year as well!  Here's hoping we all get through the next round with minimal SE's! 

markat- Sounds like we are on about the same schedule on day apart. I'm getting nervous reading about the cumulative side effects for some people.  I did pretty well with my first TCH and I was hoping that would continue.  Now I'm getting scared again.

I start my steroids tomorrow.  The Neulasta shot seems to be what made me feel bad.  I am fully expecting to spend New Year's Even sprawled out in the recliner with the "Jimmy legs" and pain.  Let me know how your second one goes tomorrow.  I'll be thinking about you and wishing you very mild SE's!

I am going in for #2 fec tomorrow with a neulasta shot on Thurs. I will keep u posted on how it goes. I will be able to get rid of the "a" on the chain link.

Ok ladies I have a question for anyone who is 6 plus weeks out of last treatment... Do any of you still have SE`S? went to the mall with DH lastnight for maybe 1 1/2 hours and my ankles swelled up Grrr Still have mild hot flashes/ cold sweats once in a while and some dizziness if I get up too fast.... is this normal??? HELP...... 

Seacret - i will let you know how the slow infusion goes. 

Laurie - good luck tomorrow....dont be scared, you will do just fine.  Keep us posted.

Terry - sorry, I just started on 12/1 and have my third AC tomorrow.  Hopefully, SE's will calm down for you soon.

Christine

Well home from TCH 2. Pretty uneventful except the nurse didn't like the way my port was acting. Every time I moved I set the alarm off on IV stand. She thinks there might be a kink inside or something. Oh and the power went off but the generators kicked on.



I'm tired but wired from all the steroids.



Terry you might want to check with some of the older groups from earlier in the year. Most of us just started this month.



Laurie good luck! I'm jealous of your cooler full of beer! You'll do great!

Markat you talk about the power going off so calmly! I hope you will feel well and SEs are mild.



Laurie good luck tomorrow. A cooler of beer and wig shopping, sounds like you and your sister will have fun. I was nervous yet relieved to get through the first AC.



I'm having this port looked at tomorrow, will let you all know, just want to be sure it's working correctly.



Terry sorry about the lingering SEs, what does the doc say? But congrats on finishing txs and the hair coming back, now that's exciting!

Markat - Wow, power going off does not sound fun!  I go in tomorrow for TCH #2 also....let's hope for minimal SE's for both of us over the weekend!

Laurie - What a great way to make that kind of shopping fun!  I went by myself and looking back I think it would have been better to take a friend, for another opinion if nothing else. 

Terry - Sending healing thoughts your way...hope you get rid of those SE's for good!  Yay on the FUZZ!

Keep - Every bit of good news is wonderful...especially after one treatment! You go girl!

When the power went off I was dozing off and just getting my Emend infusion.  I looked at the nurse and asked "did the power just go off."  She looked out the window and said yes but hopefully the generators kick on...and they did.  My husband laughed and said, at least you aren't in surgery.

 Good luck to everyone going tomorrow.  My stomach is already feeling a little yucky tonight, probably shouldn't have eaten so much.

Kelloggs and Laurie - Good luck tomorrow! I hope you sail right through your txs.

Keepnfaith - I'm so glad to hear the chemo is working. That must be a great feeling to have proof that it's helping, and therefore worth the SEs.

seacretgardn - Hoping your port is okay. I have TEs - supposedly my next fill is the Monday after my next tx (Thursday), so I'm hoping I'm in good enough shape. My right one apparently has decided it would like to settle in under my armpit. Can't wait to get through all this and move on to the exchange!

Day 16 - and the hair is holding out like the Alamo. Lost strands occasionally one at a time - it would help if I could stop running my hand through my hair 'just to check.' 

Market, I was Sick last night too. I think it was the double dose of steroids they gave me in error which lead me to eat 2 home made cannellonis that I probably wouldn't of had. I hate being sick so I would anything to NOT be. I hope you are feeling better today.



For those going in today just think that you are one step closer to done. There were lost on ladies at the centre yesterday man I hate to see the number of healthy ladies that was struck with this damn disease. Where is the cure?