Its back and we are scared

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lovehertons
lovehertons Member Posts: 58

My wife of only 1 year was diagnosed with stage 1 breast cancer in april.  Minimally invasive and her 2+.  The "team" thinks this was a sequella to the massive radiation she received to treat her Hodgkins Disease(25 years ago).  We did a bilateral mastectomy with reconstruction.  It was going well with a few hitches along the way.  The Cough started in early November(oh, its just a cold) then we treated for possible bronchitis.  It got better, but just didn't go away.  We got the news yesterday that she has an adenocarcinoma of the lung with lymph node involvement.  Stage IV breast or stage III lung is the current dx with more tests scheduled next week.  Talk about a royal kick to the stomach. 

This is my primary question, what is the best way to keep the kids informed? How much do the need to know?  I have two daughters age 16 and 14 and a 12 year old son.  D's are only 10 and 8 year old boys.  Mine know some, hers haven't been told yet as we didn't want Christmas to have that hidden meaning.  My secondary question is for the Husbands and Wives, How do you stay strong?  This forum seems to really provide everybody with an outlet. 

Comments

  • YramAL
    YramAL Member Posts: 1,651
    edited December 2011

    I'm bumping this up for you-

    It's kind of slow around here, probably due to the holiday weekend, but I know there are some good people around here that will answer your question. 

    Mary

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2011

    Communication and truth.  The only way to stay strong.  Allow yourself to be scared.  It's okay.  Be strong for each other, but cry when you need to.

    Talk to the kids.  I agree in trying to keep it separate from the holiday.  But, sooner than later, they need to be told and understand the facts.  There is a section on this site about talking to the kids.  It is very helpful.

  • profbee
    profbee Member Posts: 858
    edited December 2011

    I'm so sorry.  I would advise you to post over on the stage IV board...your message will likely be seen more there.  My heart has broken over this journey thinking of my hubby--so strong for me, and though I can forget sometimes and laugh, he's the one who looks over and sees this bald person where his wife used to be.  It's just a constant reminder for him, and I can just avoid mirrors!  I hope you'll both find strength in each other, and be there for each other when you're not (hopefully at different times!).  You'll be surprised at the strength you have.  

    My son is 5, and the only real advice I have is that we said mommy has breast cancer (I was worried he would hear it at some point and be scared).  Your kids are older though, and so these words will be scarier for them. Best of luck to you.  My heart goes out to you and your family.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2011

    Hello lovehertons. I'm sorry you have to join this community, but you'll find support and information here for you and your wife and family.

    As well as advice from members, you'll find a section on the main Breastcancer.org site called Talking to Your Family and Friends about Breast Cancer that may be helpful with knowing how to talk with your children.

    We wish you well,

    Judith and the Mods

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2011

    lovehertons, you are right to wait until after the holidays to address this issue with your children.  I found a lump last December 22 and only informed my husband and one of my sisters at that time.  I did tell my son (only child) but he was 18 and I felt he could handle it.  

    When we started letting other family members know, what helped me a great deal was my husband handled most of those conversations.  My head was reeling from the whole thing.

    One of the first things a bc survivor from work suggested was to ask the doctor to give me something to 'take the edge off'.  It took several tries to finally find an anti-anxiety medicine (buspar) that has helped me cope.  My husband chose not to take any medicine due to his work situation (at times operating machinery).  I purchased the book "Breast Cancer Husband" and my husband found it helpful to read.

    I think we took turns being "the strong one".  We let the answering machine pick up many phone calls when we could not face talking about what we were going thru with others.   It's been an emotional roller coaster for months.  We are coping better after dealing with this for a year.  It is something we take a day at a time.

    I'm sorry you are going through this during Christmas time.  You and your family are in my thoughts and prayers.  bc.org is truly a lifeline and you will get lots of insight here.  God bless. 

  • lovehertons
    lovehertons Member Posts: 58
    edited December 2011

    thank you all.  For whatever reason, today was a tough one.  I saw a sleeve of golf balls that D had bought to learn the game.  I just thought that that was not what we were going to do this summer.  The big "C" sneaks up on you and kicks your arse at the least suspecting times.  Thank you all for being here for me. D is so stoic some times.  I think she handles it better than me and I am not the one thats sick.

    On a good note, we have friends coming in tomorrow night.  I know that crying is an option and I have told them that that is ok.  Kleenexes for all. 

    I hope that I will be a positive person on this forum,  I don't know if D will get on, she is quite reserved.  I think of you all often.  I know that none of this is fair, but it wouldn't be life if it didn't have its trials. 

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2011

    You have a good heart, loveher.

    It is said to be harder on the caregiver. I believe that to be true.  My husband, I know, feels helpless, or helpfulless, if that makes sense.  He knows that there is nothing he can do but be there for me.  He is. Every step of the way.  Ther eis a great book out there that one of my employees actually gave to my husband.  It is called "when your wife has breast cancer".  It's small, but powerful.  By the time we read it, we were half way through this nightmare.  But, it helped me understand what he might be feeling, and helped him understand what I was going through.

    Face this as a team, a tag team.  You will grow strong together.

  • ali68
    ali68 Member Posts: 1,383
    edited December 2011

    Hi so sorry to hear your news, I'm going through the same with my family at Christmas. My girls are 23,16 &13 I told them the cancer has spread and that I had 50/50 chance of living for another 5years then it would be better. I also told them I would be a bit poorly so that I could kill the cancer so not to worry when that happen's. Be honest with them because other wise they will think all sorts and that would be worse. I have two close friends who are your wife's stage and that was ten years ago and they are going strong. You will be fine stay strong as a family.



    Alison x

  • grandad911
    grandad911 Member Posts: 22
    edited December 2011

    I wish I could tell you how to handle it.  From my perspective, with kids 10/12/21/24, I was just honest.  Mom's sick, but it's going to be OK.  My kids did poorly in school this year, no surprise, but that's OK, I expect them to be hurting too.  Learning that my wife had cancer was like having the rug pulled out from under me.  I cried alot, and I'm sure you did/will too.  That's healthy, and it's not bad for your kids to see you that way.  I will pray for you.  Strength will come automatically as your wife needs it.  I was amazed at what I could do when she needed me.  Nothing else matters when your loved one is ill.  Don't be afraid to ask for help.  Everyone feels helpless anyway, and giving them something to do - bring dinner over, watch the kids, whatever - helps them too.

    -Mark

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