Has anyone started a Dec 2011 group?

Woohoo my brain MRI came back clear- no mets! I've never been so happy to just have a headache.

Seacret:

Thanks for the encouragement and kind words.

Markat:

Great news! Am very happy for you! 

3mon:

I understand your frustrations with your Mom. My mother wound up in ICU for over a month because she doesn't like to follow directions either. This was earlier this year. She has a lot of health problems and gets bullheaded sometimes. My sister is her main caregiver and was at her wits ends. I made the out of state trip to be with my mother and give emotional support for my sister. During that visit I hurt my mother's feelings, which I hated, but I had to get my point across about her being more serious about her care. Now she's trying to give me the same lecture. (ha) Only I'm doing everything I can to listen to doctors and advice on this board. I want to keep this as easy on myself as I can. Hang in there and hopefully she'll start listening to you and realizing you only want what is best for her.

Blessings to all for a good Christmas, however we may have to celebrate it.  

Thanks for the advice naan!

and thanks for sharing your precious moment. 

It's so great to check into this thread and hear how it's going for all of you. I have tx2 (A/C) on Friday and I've been running around like a maniac these last couple of good days. Now I'm in bed exhausted, remembering that I need to rest.

 One of the hospital ladies sent my whole med file yesterday for my records. I have pieces of it, but the whole package of it sent me into anxiety land. Me? A huge packet with all that info. Me? With all these technical terms behind her name. As nice as those people are it's sad that they know me only or primarily as a cancer patient.

 I'm a little grouchy. I have been overwhelmed by ENVY! I want to plan a trip, buy tix for a show, whatever....but it's nearly impossible to do so. We can't plan well with this disease. (And it's expensive!)

Market what wonderful news!



Naan she sounds adorable. I miss my daughters being little.



Mamabee, glad to hear you felt so well 6 days out.



Getting nervous, AC tx2 tomorrow.



Have a good night all.

Thanks Naan, last time I waited, thought thats what the NP said. Next day the nurse said take everything you have, alternating them.



I'm a little sad, today was a really good day. Yesterday and today I actually saw and felt like myself.

Those i spoke to agreed. Told me how worried they were last week.



Asked my daughter to please keep reminding me the fog will lift again.



Again, thank you to all of you.

Eve I will be thinking of you. Hoping your SEs are minimal.



Your family sounds like a joy and a wonderful support.



Have you spoken to the onc regarding Your vision? I did have some blurring, but attributed it to my general feeling of fogginess and fuzziness. My already dry eyes are worse, I'm constantly putting in drops.



Feel well Eny, keep us posted.



To anyone else who has tx today, minimal SEs! Everyone else, a great day!

Thanks ladies! I'm so relieved! It was really freaking me out.



Naan that was such a sweet moment.



Evy that's awesome that you could share that with them. My 7 year old could probably handle it (she thinks my hair falling out is hilarious) but my 6 year old is very sensitive.



Glad to see some of you are feeling better! Good luck to those getting TX today, you are in my thoughts.

Naan what are your restrictions? Is it because of nausea or are you doing something else?



I'm feeling down today...tired and grumpy. My husband is like walking through this in a fog.

Hi ladies, AC tx 2 today. Feeling lousy. I think the steroids really do me in but am afraid to reduce them since they are supposed to help prevent nausea. I don't know how any of you drive, I get blurry while still in the chair.



I think I had nurse Rachet today. When she said she doesn't usually work on Thursdays all I can say is good! Not fresh but sloppy. Sloppy can be dangerous. When she was getting ready to do the adriamycin injection, she got special purple gloves, as she walked towards me, I saw the gloves graze the top of the infectious disease disposal. She threw them on the uncovered table and walked away. I "accidentally knocked them on the floor so she would have to get a new pair, and be ready to use them.



Didn't feel a thing last time they accessed my port. Did this time. When she pulled it out blood was coming out pretty quickly and she grabbed an alcohol wipe and a wad of gauze. I said what if this doesn't stop. Her reply " it should"', and handed me another wad of unwrapped gauze. Great. I'm already seeing a bruise too. I'm wondering if can make a request for an onc nurse next time.



To add insult to injury, my period has made an appearance. I'm 53, spotted in Sep but otherwise was done for a year. Cramps like I don't remember having since I was a kid.



Mardibra, terrible that the nausea lasted so long. I haven't had the SEs you are experiencing, but I already have very dry eyes, and that has gotten worse. I feel dehydrated all the time.



The onc wants me to take an anti anxiety med. Says I am the one causing my quickened heart rate from worrying. While that sounds reasonable, I don't want to deal with yet another drug and it's side effects.



Does anyone have any advice on what they take to sleep in spite of the steroids?



Finally I hope any one else who went today or is going tomorrow has minimal SEs!



Hugs, Laura

I hope everyone's SEs are quieting down a bit. I'm sorry to hear that some of you are having more trouble with the second round. Just when we think we're getting the hang of it....

naan - I love what you shared about your daughter's comment. She must be a doll. And I am curious also what restrictions you have. Other than being told to avoid raw veggies and fruits w/o peels when my wbc is low, I've been green lighted for just about everything. And I've thrown some pretty specific questions at my onc as I read things here just to double check.

seacretgardn - There is nothing worse than a sloppy or careless nurse. Especially in the infusion room, they should be extra careful and try to look like they know what they're doing!

3montsmama - This is a rough ride you and your family are on. I hope your mother can start listening more and understanding that you're a part of her healing team.

I saw my onc today and my bloodwork says I'm out of the woods - neutriphils above 6! The onc said I did everything I was supposed to, and suggested that 100.5 doesn't have to mean another ER trip, but that I should be watchful. I'm so glad I got out of that rut. But last night I started getting horrible heartburn - I already have reflux, so I'm not sure if this is made worse by the chemo or the antibiotics. Unfortunately I had forgotten my Prilosec and my boyfriend had nothing around to help except regular milk, and I couldn't sleep to begin with. But I'm back home with my Prilosec and Tums now, so hopefully I'll be able to bring that under control.

I hope everyone will be able to celebrate at least some way during the holidays. I may not make it to my sister's Chanukah party because my nephew is sick, and my boyfriend is surveying his relatives to make sure I can come along to their Christmas celebrations without much concern. I'll try to get some celebrating in. 

darlam,

I am so sorry about the horrible nausea. I certainly hope they can find a way to make it more manageable for you. I wouldn't wish it on anyone and it's been my biggest worry with the chemo. Think I rather carry headaches than deal with a sick stomach. My heart certainly goes out to you. 

Seacret, I don't know if your dr is suggesting a longer-term med or "as needed." I am taking a daily, which helps, but Ativan has been my salvation during some of these days. It releases a little tension AND is an anti-nausea med.

 I too worry about too much medicine, but i have decided to roll with it and detox when it's all over (at a spa, I hope!). I hope everyone feels okay heading into the weekend.

 I have tx2 today, AC, and I'm dreading it. But they have wifi and I got my hands on an Ipad with streaming Netflix, so I'm hopeful that old Frasier reruns will be a good distraction. 

Thank you Peacock. My concern with longer term ( welbutrin) is that so many of the side effects are the same as I'm experiencing, rapid pulse, shallow breathing. Maybe I'll ask for the Ativan first.



Much luck today Peacock, hoping you have an easier time this one.



Markat, yes but it was prescribed to be taken twice a day 9 & 6. Yours is once?



Darlam love the FB post. Lots of creative energy, ESP for 5 am!