Has anyone started a Dec 2011 group?
Comments
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Markat- I had a friend use clippers to shave my head. Find any mom with young boys and they are sure to have clippers. I thought it would be harder than it was. Honestly, once it starts falling out it is so messy - hair everywhere - it makes it easy to say see ya! If you don't know anyone with clippers they are easy to buy. Walmart I'm sure has them. I also didn't want to go to a salon...a salon felt too public for me. But, I'm sure they would be happy to stay late for you if that makes it more comfortable. You and the barber and some clippers.
Good luck! -
Thank you, you all warm my heart. It really does help take some of the sting away knowing others understand.
The dr called in the magic mouthwash for me, I'll pick it up in the morning. Can hardly wait.
Just on the phone with my ex husband, who has been so wonderful these last few months. When he came by today he was limping. Just left the ER with a dx of cellulitis in his foot. I feel terrible, he's been running around for me, now he needs someone.
That's been one of the very difficult aspects of this, feeling inadequate, having to depend on my family.
I want to take care of them!
Mardibra, thank for the prilosec info, hopefully that will address the wicked burning stomach that the zantac hasn't managed.
Hope everyone gets a good nights sleep.
Laura -
Markat, they just used clippers on me. She did it matter of factly taking the emotion out of it had I did or a family member. But I must say it is cold without hair
. To be honest it feels better when it is done.
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Wow, so many great post
Laurie, my AC experience was a little different, my MO warned me that days 3-4 would be the worst and they were. I was slightly nauseous from days 2-4, but definitely after about a week or day 5-6 back to my old self almost. I would give yourself about a week before doing anything too energy driven.
Markat, I cut my hair at a salon that was quiet and slow, no other customers, I took my wig, so that she can style it for me and I could make sure i was wearing it right, some sylists may be willing to come to the house to do it for u, it's worth asking.
Terry, I don't know what you're going through right now, but can only imagine, I'm due for surgery come April or May, don't know if I too will have a MX or lumpectomy yet, but I'm sure I will know how it feels when I get there. My heart aches for u...
Laura, sorry to hear that u r still suffering, u poor baby, wish I had magical powers to alleviate all the pain and SE's, but the only thing I can do is pray, so I will for u and all the others in this group
Hope I didn't miss anyone, may u all have a wonderful week with little to no SE's
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Hi ladies- feeling a bit better today still missing my boob, I go today to have the drain removed YIKE, I remember when the last 2 were removed OMG it hurt so bad..... unless it was only because I had home care and she took them out.... I havent looked at anything since the dressing change in the hospital thursday, and when I did then I cried like a baby for hours.... Its sad but I am also glad its gone... and YES it was MINE, people say the stupidest things sometimes... Could have been an arm or a leg.... Well Shit I think I would have rather it been one of those 2 things...... havent decided on reconstruction yet, its an option though, NOT too keen on another surgery though especially a 8 - 10 hour one.... so I may just get a prostetic, or hell just fill a balloon with water and hope for the best....... Big hugs to all.... and thank you for all the kind words
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Good morning... guess I joined the OMG list. Woke up around 4 am for the second day in a row with really heavy bleeding... my period? Not sure. First time I'm off the pill in ages. Anyway, yesterday I just went back to sleep. This morning, when I stood up, I woozed and had to sit down on the bathroom floor to avoid blacking out. When I looked in the mirror, my face was ash white, and I don't think I've ever seen my lips that pale. So I called the onc and the answering service set go to the ER because of hemoglobin concerns (shoot - the one thing I've been forgetting to take with all these meds is my iron!). They checked me out, and aside from low hemoglobin and neutropinia (1.1), decided it just must be my body finding its new monthly (for now) normal. My neighbor was good enough to take me over, but she's been sick, so I wore a mask in the car. Now I'm going to take a nap and then decide whether to go to work or not. I can do some work here at least.
Good luck to anyone with treatments today, and wishing subsiding SEs for everyone else.
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Thanks for advice ladies! I think my friend's husband is going to shave my head. He shaves his so it should work out. My husband has never shaved his so he's nervous about it.
Like an idiot I overslept today and missed my MRI. It was either rush and get my girls ready for school or myself, and of course I chose them. They rescheduled for tomorrow.
Rachel that is so scary! I started the day after my first treatment and it was horrible. I hope you're doing ok!
Terry good luck today! -
I read this in natural health book to gargle with glutamine then swallow for mouth sores during chemotherapy I have modified and I break open capsule in yogurt drink and swish as I drink. I feel comfortable as I found a few other articles and doc said ok. Please research as I had mouth sores first time and have not since I started this, also healed esophagus from heartburn, worked for me worth a try, got it from health food store says it promotes gi health
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I've been running around like a crazy past week as Santa does not take breaks as I feel like, all my best wishes to you all. Got the Christmas tree up also, thank you for your posts I read every night and feel comforted to be with you guys, SEs and all, don't even have enough time to list all mine... Going in tomorrow for round 3 AC
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Catching up again...worked the weekend, delivered three babies yesterday. I can almost forget for awhile......then I realize chemo round 2 is coming Thursday. I am DREADING it already. Trying to reach my MO today to talk about using Emend by mouth the day before and two days after chemo. Apparently they save this for people for whom nothing else works....! Didn't know it existed, found it by researching myself. Expensive. Insurance only covers so much...$164 out of pocket for each treatment. It's worth it if it works! Just thought I'd mention it for some of the others who have been hit hard with this also. I have a drippy nose, watery eyes and zits too, just for the record.
Terry, I feel mutilated too. Some of my friends didn't get it either. "Just cut it off and get rid of it!" was the consensus. Well, yeah, but.....it's hard. I wanted immediate reconstruction, my PS recommended against it because my diagnosis was so confused pre-surgically. Now I'm like you. I want it, but I also want to be done with this, vs having another series of surgeries. Not sure what my end decision will be. My husband couldn't be more loving or attentive, but intimacy is not happening, which makes me feel defective also. He says he just can't get past feeling like we're in crisis mode and once the chemo is over, he will be mentally in a better place to "pick up where we left off." I need reassurance that I am still desirable...which leaves us in no mans land. I think it's fine to grieve ALL the things in our lives that are forever changed....and then we have to eventually accept that there's a new normal. I'm still working on that.
Someone (sorry, lost track who) asked about cold caps. There is a whole thread for that, but google Penguin or Elastogel cold caps. I have Elastogel, they're cheaper. It's quite a production to pack them in dry ice, transport to chemo, switch caps every 30 min. etc. My DH has taken on that job. I am day 19 from 1st chemo and haven't lost hair yet, though my scalp feels sore today. So I don't know if it's going to work or not, but I felt it was worth trying. Someone also wanted to know about nutritional supplements. I take COQ10 100 mg daily, to protect the heart. B6 is supposed to help with nausea and also reduce neuropathy, I take 100 mg daily of that also. Also for neuropathy, Acetyl-L Carnatine 500 mg a day. On another thread, L-Glutamine 30 mg a day was recommended for neuropathy also. I bought and tried it, but it's a powder that you dissolve in a beverage/pudding/applesauce, but it just really tastes so awful that I can't do it with the nausea.
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Just got home from second AC treatment. Feel good just a little tired. Tonite my DH is going to buzz my head. It was weird this morning getting ready thinking this will be the last time for a long time that I will be drying my hair. I think the hair loss makes it feel so "real".
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Busy bunch here! Rachel sorry about your ER visit. Be careful and get some rest!
Market I'm glad they could reschedule you so quickly.
FSislander thank you for the L glutamine tip. I have been taking the tablets, I'll have to look for the powder. Not that I'm looking forward to AC #2 on Thursday, but they depending on how my mouth is, they may have to delay my treatment. That worries me.
Darlam delivering babies! Can't even fathom. I'm still so loopy Its a good day when I do simple things around the house. The coq10 is not considered an antioxidant? I will look for that too. Amazing to me how I learned about all these supplements from these posts, not the onc.
The onc nurse called about my prescription before, I told her I think they gave me too much, she officially thinks I'm nuts!
Good luck and mild SEs to anyone going for tx. tomorrow, be well. -
Worked from home today....tired is an understatement. Tomorrow is my first day of work wearing Esmarelda. It's a good wig but still a wig. Not looking forward to the questions. Esmarelda is going to "out me".
Hopefully this finds you all with minimal SE's. -
Mardi good luck with Emarelda tomorrow. I've decided to have mine shaved Thursday night. The thought of my hair falling in to Christmas Eve dinner is worrying me too much.
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Be prepared to look like a 12 year old boy!
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Ha! I keep telling my husband that I'm going to dress in punk clothes to try and pull off the "alternative " look. I think that scares him more than the cancer
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My DH just finished shaving my head. My 13 year old couldn't watch but my 20 year old held my hand:) We took alot of pictures and laughed. I had to make my daughter promise she wouldn'tput them on facebook. It wasn't nearly as bad as I thought- I actually feel relieved to have done it. The wig looks good but is uncomfortable- hopefully I will get used to it. Hope everyone is doing well!
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Round two.... had a fever of 100.5, so it was back to the ER. They were so uncoordinated - I waited 50 minutes before they had me see a nurse, despite having said "chemo - low immunity - fever." In the end, they asked me to log my temperature for the next few days and just take it easy. I feel fine, but the onc answering service (of course it had to be after closing time this time) said I needed to go in again. I'm just glad I'm okay - and my wbc was actually up a tad to 1.4. Hoping I can get some real rest tomorrow...
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Rachel I'm so sorry. You must be exhausted. Thank goodness your WBC was up a bit, and you are otherwise feeling well.
I hope you can get some rest tonight and tomorrow.
Take good care of yourself.
Mardibra good luck with your outing with Esmarelda tomorrow. I have a feeling my wig will remain on the stand.
3girls I'm happy you were surrounded by family and that it was a relief. Im still waiting for signs of shedding, any day now.
Good thoughts to all tonight. -
3girls lol about facebook! My girls are 6 and 7 and I've decided to not include them in the process. I'm just afraid it will scare them.
Rachel hope you are feeling better. Have they given you any instructions on avoiding certain foods that could effect your wbc? Fruits or veg?
Seacret hope you're feeling good today!
Have my MRI this morning. Yesterday my headache was actually gone for the first time in 11 days. I've been using Reflexology pressure points. Who knows if that's why. -
I can't stop sleeping!
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Okay, now it's my turn to whine.
I WANT MY LIFE BACK! The old one!
Last week, I was thrilled because I sailed through chemo for the most part. Today, I'm a shriveling wreck because my temperature is heading back up and my onco nurse today said like it or not, if it goes back up, I have to go back to the ER. My boyfriend lives an hour away, and I don't want to ask my neighbor again to take me, and I'm just tired of all this. I guess I should have stayed home - I did go into work for a few hours - but I was worried that staying in was making me feel like an invalid.
That's it for now. For the first time in this whole BC experience, I worry that I am getting completely overwhelmed...
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Oh Rachel I'm so sorry. Was thinking about you today, hoping you were ok.
It's really difficult to stay put when you're used to being active and feeling productive. Especially when you were feeling pretty good.
I think the isolation, self-imposed, has been one of the most difficult parts for me.
For now this isn't the kind of thing you can push through, like before.
Be gentle to yourself, lots of fluids and hoping your fever retreats.
Laura -
Hi ladies!,
I am on day 6 of treatment 2 and life is not sucking too bad right now. I buzzed my hair off tonight. My hubby held my hand and I only cried a little. I look so weird! Overweight GI Jane with gray hair on the sides. I am only 46 and the sides of my hair is pretty much gray!! I am so bummed. I do not kow whether to rock the bald or wear my wig. ??
I had a good dinner with him afterwards and I feel pretty decent. I hope I can go to work tomorrow. I am so far behind it is ridiculous!
I can so relate to being overwhelmed. I understand how you feel and I want mine back too!!
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Rachel - I hear ya...I want my old are free life back too. Take care and feel better.
Gator - I now know the real color of my hair and I'm also graying on the sides. Damn I'm old (45)! Heard some crazy news today. A very good friend of mine called to say that her boyfriend has BC! Just diagnosed today. I was stunned. He is a doctor and has been keeping tabs on my journey. Guess its his journey now. Unbelievable.
I rocked Esmarelda today. She looked good but she was a little uncomfortable due to my stubble in the back. A week from now I should be totally bald. Told my boss that I have a new found respect for him (he shaves his head) because I never realized how my hair kept my head warm.
Need another nap. Night night. -
Rachel I hope you're ok today!! If I lived anywhere close to you I would totally drive you: )
Hairs coming out in bunches today. My next tx is in a week and of course my worst day will be New Years Eve. First year we'll miss our friend's party in 8 years.
I need to stop reading all the scary stuff on the internet and take everything a day at a time.
Hope everyone is feeling good today! -
Markat so glad you're feeling well today. I have to say I am too. Even though I begin tx 2 tomorrow. I was worried they might postpone due to my very sore mouth sores. They are finally subsiding.
Nervous about beginning the cycle again tomorrow. For those of you ahead of me, I don't think most had a drastic difference between 1 and 2?
Ok now this is weird but I really think I have a very slight period. Had period like cramps last couple days. I've only had one period in the last year, so I guess it's possible. I think Rachel mentioned heavy bleeding ( Rachel I hope you are home resting).
Markat you're right about the one day at a time. Sorry about missing your party. Hoping your SEs will be milder.
Gator sorry it was difficult. I'm still waiting for some shedding to buzz mine completely. It feels like straw on my head so I know it's any day. Got the hat/wig yesterday, which is so much easier than the wig. Feels more secure too.
Dreary and raining on this first day of winter in NJ, but at least its pretty warm.
Hoping for a good day for all. -
Okay, I'm feeling a little better. I chose to curl up and go to sleep, even as my temperature edged up to 100.5. My onc had already put me on Cipro in case there is an infection somewhere; the thought of sitting in that lousy ER with doctors who couldn't do anything other than fill me with fluids, stab the heck out of the veins (okay, those are the nurses - one totally blew out a vein in my hand even after I warned her that had happened the last time someone tried to use my hand...) and scratch their heads wondering what else they can do, just wasn't going to do it. My temp was way back down this morning. The weird thing is I feel fine - energy level is okay, no nausea. The hidden 'infection risk' is maddening. I did see two knicks on my hand that are a bit red. Has anyone ever watched Monk? I hope I don't turn into a germaphobe.
Thanks for all the support. For those who are just losing your hair, I'm thinking of you. I'm always amazed at the women I've seen in wigs or turbans or bandanas, or bald, and how beautiful they still really look. You can do this. Mardibra - go esmerelda! My boss is also bald. My boyfriend (who works with me) keeps joking about Mini Me...
Consoling myself with my first cup of hot chocolate of winter (thanks for the reminder, Seacretgardn).
As for bleeding, yeah, my period is coming in fits and starts. This is the first time in years I've been off the pill, so I expected it to go haywire.
One other question that's a bit gross, but I figured I'd toss it out. Aside from constipation, has anyone noticed anything odd about their bowel movements? Mine are still few and far between, but they have just become a really weird color (mustardy) and I forgot to mention it to my onc yesterday. Not sure if this was listed as a possible SE.
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I'll sign the petition; I want my life back too. Good luck to all those going for second treatments tomorrow. I have been rushing around trying to finish Christmas stuff, knowing I will not rejoin the world again for at least a week. We are going to celebrate as a family once I am able, but that will certainly be later than the 25th.
Hugs to those dealing with hair loss. I am still waiting to see what will happen. Very sore scalp, but hanging on so far.
Rachel, glad you are a little better. It's so weird how everyone has different issues....but doesn't seem like it's a cake walk for anybody. Bowel movements.....ummm; orange. No idea why.Feel like my period is going to start, but hasn't yet. Have been regular till now.
Wishing peace to all and special moments wherever we can find them in the midst of chaos. I keep telling myself it's a rotten year of my life in exchange for what will hopefully be many more good ones.
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Had my first chemo session today. I was terrified but so far it isn't so bad. I have heartburn, my throat feels scratchy, and I have some weird sensations in my hands. I feel light headed if I move too fast. A whole lot less than I was expecting.
From what I have been reading it's usually days 3/4 that seem to be the worse. Of course that is Christmas Eve and Christmas for me. Hoping I can at least enjoy a little of it with my family. If it weren't for the Christmas tree I would totally forget I think. My children are adults except for my 17 yo and he's more concerned about me than the holiday. Still, I would like to have some celebration instead of this being the "season of my breast cancer"
My thoughts and prayers are with you all. I read the board daily, even if I'm not responding and I hate it that any of us have to go through this.
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